hellopeesha
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hellopeesha's Discussions

Off-Label Tofacitinib in Ireland?

Started this discussion. Last reply by bibby on Friday. 11 Replies

Hey,I'm based in Ireland and am hoping to order tofacitinib from overseas soon, as the price is horrendous here.However, I'm wondering how it would work getting a prescription/medical supervision…Continue

Tags: off-label, off, label, prescription, eu

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bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi magmck  ill try and locate the blood screening service over the threads this wknd. It’ll give you an additional option if you are going to embark on xeljanz treatment. Since you are UK based I assume your dermatologist is in the UK. I…"
Friday
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Bibby that’s helpful to me too in the U.K.  it would be good to have a GP on board in cad blood results need to be interpreted/understood.  I have a GP appt next Friday and will ask for blood screening to serve as a health MOT. I…"
Friday
hellopeesha replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Thanks bibby! I'll dig around and have a look. I'm in Ireland so hoping they'd have a branch here in Dublin. All the best, Paul."
Wednesday
Steve and hellopeesha are now friends
Wednesday
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Somewhere on the xeljanz forum I read a post from a contributor that they were getting their monthly blood tested and monitored by a UK Blood analysis company and this company informs them of the medical status of the blood results. The cost was…"
Wednesday
hellopeesha is now friends with magmck and Gogo
Tuesday
hellopeesha replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"I feel the same. So I guess your main question is can they monitor you or won't they monitor you. If you can figure that out you'll know where you can go from there :-) Best of luck with it! I'll keep you updated on how I go and keep…"
Monday
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi. No I wouldn’t take it without medical supervision "
Monday
hellopeesha replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Thanks for that. I'd ask her if GPs and/or derms can prescribe it off-label. If you know that's a possibility, she may still not be willing to do it, but at least it'd be a possibility if you found another willing GP (if it were legal…"
May 13
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Paul.  Ive copies the response from the dermatologist below.  I hope you get a different response    Dear I am responding to your recent email to the dermatology service.   As you may know, JAKI do not as yet have a licence…"
May 13
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi paul  glad you’re commenting on this thread. It’s came at such a good time for me.  I need to find some good research about xeljanz and print off for my GP. I would be very grateful if you could let me know how you get on…"
May 13
hellopeesha replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hey magmck, Thanks for your reply, I'll certainly keep you updated.  Did your dermatologist refuse point blank because she couldn't get involved or because she wouldn't? I'm trying to figure out if it's at a GP's…"
May 13
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Paul.  I live in Glasgow Scotland and I too am considering Xeljanz.  There have been some very encouraging and positive threads from Frida and Nicole. However both live in the states.  Ben and Mariemcd comment on the forum and…"
May 13
hellopeesha posted discussions
May 12
hellopeesha replied to notsuffering's discussion Rejected by girls in India
"Hi Sophia, I'm not so sure that every girl in India would be rejecting of your friend because of his appearance. Many people accept and reject others because of their appearance across the world, not just in India. It sounds like your friend…"
May 12
hellopeesha replied to Sarahmiller90's discussion Very new with Alopecia areata incognita (diffuse alopecia areata)
"Hey Sarah. Thanks for sharing your story - you've taught me something new - I've never heard about the incognita part before. I'm going to check it out. So let me give you an idea of mine - it confuses me a lot, because it's not…"
May 12

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