hellopeesha
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hellopeesha's Discussions

Positives and Negatives of Ordering from Beacon

Started this discussion. Last reply by bibby Jun 10. 6 Replies

Hey guys, I want to start a thread to chat about ordering from Beacon - for those who have done and for those considering. I'm really torn for various reasons. I desperately want this condition to…Continue

Tags: xeljanx, tofacitinib, beacon

Testing Beacon Tofacitinib before Starting It

Started this discussion. Last reply by Nat May 24. 2 Replies

Hey all,I was just wondering - have any if you had your Beacon tofacitinib tested before you started taking it?I'm based in Ireland and am about to order, but I'd feel a lot more at ease knowing of a…Continue

Tags: beacon, testing, Tofacitinib

Off-Label Tofacitinib in Ireland?

Started this discussion. Last reply by bibby Jun 2. 31 Replies

Hey,I'm based in Ireland and am hoping to order tofacitinib from overseas soon, as the price is horrendous here.However, I'm wondering how it would work getting a prescription/medical supervision…Continue

Tags: off-label, off, label, prescription, eu

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Latest Activity

hellopeesha replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Way to go man! This is super encouraging! Wishing you all the best with it! Paul."
Monday
hellopeesha replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm confused - Ahmed didn't lie? He simply stated that nobody will need to order from you as people can get the drug for much less than half price.  Also, you state in an earlier post that your name is Javier, yet in the post directly…"
Jul 11
bibby and hellopeesha are now friends
Jun 21
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Thanks for that reply. Yes. I will communicate with both of them once my boxes arrive from beacon (2 weeks approx) to hopefully monitor the blood. Fingers crossed"
Jun 10
magmck replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Hi Bibby  the secretary was clear that Dr Ralph doesn't prescribe the drug.  However that’s not to say that she wouldn’t monitor the useage of in terms of blood monitoring.? I was recommended a De Murad also in Dublin and…"
Jun 10
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Just for some confirmation regarding dr Ralph , were you told by her secretary that she does NOT prescribe xeljanz for alopecia ? Thanks in advance "
Jun 10
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Hi. Glad I read this post magmck, I was going to make an apt with dr Ralph, saved €250. Please let us know how you get on with dr paus, Manchester is very close to Dublin so would be great if we could source a co-operative blood screening…"
Jun 10
magmck replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"hi paul. I think we’re in the same boat.  The drug from beacon does seem to have been tested by Pfizer and apparently is the same as Tofacitinib only slightly weaker ( I think Nicole had it tested ) .  Many people have been taking…"
Jun 8
Baldie replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"I asked my derm about it and she said no way.  Xeljanz messing with your immune system.  3rd world pharma is akin to getting cement injected into your butt in Mexico.  I can see her point."
Jun 7
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Magmck. I too have ordered from beacon. 10 boxes. All I need is someone to monitor me. After the email you received it does sound more positive. I will be following your lead and ringing them up Tuesday for clarity. Thanks for the tips on the gps…"
Jun 2
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Bibby.  I emailed Dr Ryan’s practice and outlined I was looking for Tofacitinib for alopecia and the secretary /practice nurse advised that in some instances De Ralph will prescribe Tofacitinib for alopecia.  What makes you think…"
Jun 2
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Bad news. I just checked doctor Ralph’s profile , she was mentored by a dermatologist that 100% refused xeljanz to me after I made a pitch perfect plea regarding the treatments merits and effectiveness on alopecia areata etc. it seems there is…"
Jun 2
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Wow. Let’s see how you get on with dr Ralph. If this fails I am seriously considering a trip to the USA to find a doctor that will monitor remotely (while sourcing xeljanz in India from beacon pharmacy) "
Jun 1
Natalie replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi All I am in the UK, I attempted to book an appointment with Dr Caitriona Ryan last week and was told she is not accepting any new appointments until February next year !! What a shame. However I was made aware of a Dr Nicola Ralph who works with…"
Jun 1
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Colin . Thanks very much for the info and the link. It’s a god send for a lot of sufferers in Ireland. Can you tell me did you have to wait long for an appointment to see doctor Ryan ? (Can’t ring myself today as it’s Saturday)…"
Jun 1
hellopeesha replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hey magmck, I think your GP is the best person to talk to. Ask them to help you locate open-minded dermatologists as you've spoken to others who are being prescribed in different parts of Europe and emphasise that you've exhausted all…"
May 30

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Alopecia areata
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