bibby
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bibby's Discussions

Could NETTLES have caused my almost full regrowth PICS attached

Started this discussion. Last reply by ChrisPowers Jun 6, 2018. 2 Replies

Going from AT (zero smooth scalp/beard etc) to what looks like full regrowth. Note , I’ve been AT for 5 years. February 2018 I applied raw stinging nettles on my scalp and beard for  5 days a week…Continue

Regrowth following cortisone injections in shoulders

Started this discussion. Last reply by bibby Oct 14, 2017. 6 Replies

I hope someone can shed some light on this one.I had 3 injections in my back 3 weeks ago. The injections were due to a neck and shoulder injury whip lash in a car accident.I was put under anesthetic…Continue

Tags: operation, Regrowth

Intolerable dry flaking skin on face and scalp

Started this discussion. Last reply by Aimee Feb 14, 2016. 2 Replies

I am wondering if anyone else is having this issue. I have incredible flaking skin on my scalp and face which coincides with a terrible itch. The rate of hair loss accelerates when this phenomenon is…Continue

DPCP caused 100% hairloss for me. WARNING

Started this discussion. Last reply by bibby Jul 29, 2014. 9 Replies

I started DPCP treatment under the care of a nurse in my local hospital June 2013. Its now July 2014 and all my hair is gone. I had mild alopecia areata since I was 9 years old , I am now 39. The…Continue

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Latest Activity

bibby replied to NicoleT's discussion Xeljanz from India
"How much are Aspar costing Carlie (good to know what the fail safes are) ? "
Tuesday
bibby replied to NicoleT's discussion Xeljanz from India
"Thanks Carlie. Would you have any idea if I ordered today what the estimate time would be for a UK delivery with EMS ? It usually takes about 4 weeks but with the way things are it’s worrying (I’ve only got 60 pills left from my previous…"
Jul 3
bibby replied to NicoleT's discussion Xeljanz from India
"Hi Carlie. How many boxes/bottles were in your order ? (Just seeing if it tally’s with the 4 box limit beacon warned me about) . I don’t have a prescription so I would not be able to order using DHL if customs would require a medical…"
Jul 3
bibby replied to NicoleT's discussion Xeljanz from India
"I was told by beacon that the maximum order for DHL was 4 boxes of pills . If I exceeded this volume of boxes I would require a prescription (which I don’t have) so I decided on EMS. I have not sent the payment yet as I’m trying to…"
Jul 3
bibby replied to NicoleT's discussion Xeljanz from India
"Yeah. I’ve 43 days left of pills at my required dosage. I’m worried that EMS will be waaaaayyyy back logged so DHL would be the optimum service as it’s much quicker. Consignment safety of delivery and customs issues is my paramount…"
Jun 17
bibby replied to NicoleT's discussion Xeljanz from India
"Has anyone used DHL from India (beacon) to the UK ? Was there any issues ? (I’ve used EMS prior with zero problems) "
Jun 17
bibby replied to NicoleT's discussion Xeljanz from India
"Has EMS gone belly up in India ? All the European couriers are up and running with no problem. If DHL are shipping would there be some shipping issue delivering to the UK ? The big benefit to DHL is the delivery time very quick compared to EMS. "
May 29
bibby replied to NicoleT's discussion Xeljanz from India
"Same as me. I was patchy but concealable from 9 years old till about 36 years old. Gradually AT to AU in 5 years. (I’m male though so unlikely hormonal) , interestingly once I started to take the beacon generic I just slowly regrew all my…"
May 26
bibby replied to NicoleT's discussion Xeljanz from India
"I’ve been on the generic beacon version 11 months now (never took the official version) , was AU 11 months ago. I’d say I’ve 80-90% of my normal hair now. "
May 26
bibby replied to NicoleT's discussion Xeljanz from India
"I’m considering Venkat pharmacy. They are $47 per 30 pill. Ship with DHL to the UK. Shipping based on quantity. "
May 23
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Never thought of doing this but it seems to make sense. Even to split the intake over 7 hour periods. I may experiment with this myself and gauge the result. Currently on 2.5 pills per day. Could do 1 pill morning , 0.5 pill afternoon and 1 pill…"
May 17
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Charlie. How much do venkat charge per box ? "
May 15
bibby replied to NicoleT's discussion Xeljanz from India
"What did beacon say after you paid them.? Did you get an estimate on your delivery? I’m going to have to order next week. I’ll be out of pills by the 17th July. UK based address. "
May 13
bibby replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole. I have 6 boxes of beacon 5mg remaining. I’m doing the maths on what’s left. My regular dose is 2.5 pills per day. If dropping to only 2 pills per day now will give me stock till 2nd of July and need to drop to 1.5 pills…"
Apr 22
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida, I believe I speak for all sufferers of this disease when I thank you sincerely for the time , effort , care and emotion in that fantastic reply. In these times we are at tender hooks. I’m a fully recovered AU sufferer thanks to…"
Mar 16
bibby replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I’m a father of 2 kids (5 & 7 years old) , zero autoimmune or alopecia issues in both kids. My own parents and brother also zero autoimmune or alopecia issues. Seems to be very random selectivity in regards to alopecia and who gets that…"
Mar 16

Profile Information

Relationship Status:
Single
About Me:
have hairloss since i was 10
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 5:28am on July 31, 2019, magmck said…

Hi Bibby 

how are you getting on with finding a GP. ?  I asked mine last week and he intends to consult with his defence union to see whether he was in a position to monitor.  I’m not feeling too confident about this at the moment and thought I would check how you and others were getting on  

At 11:22pm on March 3, 2011, LeslieAnn Butler said…
Hello and welcome, Bibby!
How are you today?
Leslie Ann
 
 
 

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