Ben
  • Male
  • Co.Donegal
  • Ireland
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Ben's Friends

  • hgpb
  • Merrick
  • hellopeesha
  • NicoleT
  • Frida Rupert
  • Livia18
  • pterese
  • Steve
  • bibby
  • Villa fan
  • Karen Smith

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Latest Activity

Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi All, I hope Nicole won't mind me asking for advice on her discussion page, but I'm at a loss what to do and not very good at these forum's. My son is AU and he was treated for 4 years by a dermatologist who had him on cyclosporin,…"
Nov 19
Ben and hgpb are now friends
Jun 15
Ben replied to NicoleT's discussion Xeljanz from India
"Hi my contact with Beacon, wanted me to inform anyone in group from UK that EMS will start services to the UK on Sunday 7th. So hopefully that will work out for us all"
Jun 3
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole, My niece is a consultant for disease and infection control, in a Dublin hospital, Ireland and she's telling me tofacttanib is considered  experinental and only used around the 8th day for server covid infection, it might cut…"
Apr 18
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nicole, Stay safe, Ben"
Mar 16
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole,  Was just wondering if anybodys  doctors  have taken them off the jak inhibitors, as both my boys where taken off their imune suppressants due to the covid 19 or cronavirus. one is devastated we don't know what to…"
Mar 16
Ben commented on Livia18's photo
Thumbnail

after two years treatment with Xeljanz, my first relapse

"Hi Livia, so sorry you have a spot come, were you trying to reduce your dosage or anything like that? Ben"
Dec 29, 2019
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Ryan,  We're are you based ? Ben"
Sep 7, 2019
Ben replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Brilliant Nicole, thanks for keeping us up to date "
Aug 26, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Hi, I live in the south of Ireland, but but the tofacinix through Northern Ireland (part of the UK). Our doctor is my sister, I tried a lot of doctors with no luck, she lives in another part of the country, so not ideal, but had no choice for my…"
Jul 5, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Hi, Our doctor tests for iron, sugar,fasting fat levels,thyroid, liver and kidney and also screened for tb with blood tests. First test before starting , then at one month and every 4 months after. Also they are getting vaccines, not sure how many…"
Jul 4, 2019
Ben and Merrick are now friends
Jun 23, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Hi could you get it sent to a parcel motel in the USA and collect it later. It's what I do in ireland we have a big pharmaceutical industry and customs are strict,  But the UK are not as bad and I get it sent there and collect later"
Jun 22, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Yes they were in Coventry for a few weeks, but when they were released, they had a duty to be paid sticker on them, I could pay via a bank but as was beside the depo  I went direct, I needed an id to collect. I think it is more strict to get…"
Jun 5, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Hi maireadcg, I just got a delivery in 10 days to northern Ireland, no customs. The time before parcel force held them and I had to go to their depo to pay the import duty. But I had to have an id  with me, so I'm not sure it would work…"
Jun 5, 2019
Ben replied to NicoleT's discussion Xeljanz from India
"Hi magmck I read on another link on this site that Catherina Ryan, in Ballsbridge has prescribed Tofacitinib. Might be worth contacting her, she's a dermatologist and then your GP would be easier to talk to. Best of luck Ben"
Jun 2, 2019

Profile Information

Relationship Status:
Married
About Me:
I have three children,all with various types of alopeica. I can't find a doctor who will help,
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 7:46am on May 7, 2019, Villa fan said…

Hi,

I live in Northern Ireland also and have been undertaking treatment with Xeljanz successfully for the last three and a half years. I have visited with Dr Brett King several times and my GP does my bloods

 
 
 

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