I hope Nicole won't mind me asking for advice on her discussion page, but I'm at a loss what to do and not very good at these forum's.
My son is AU and he was treated for 4 years by a dermatologist who had him on cyclosporin,…"
My niece is a consultant for disease and infection control, in a Dublin hospital, Ireland and she's telling me tofacttanib is considered experinental and only used around the 8th day for server covid infection, it might cut…"
Was just wondering if anybodys doctors have taken them off the jak inhibitors, as both my boys where taken off their imune suppressants due to the covid 19 or cronavirus. one is devastated we don't know what to…"
I live in the south of Ireland, but but the tofacinix through Northern Ireland (part of the UK). Our doctor is my sister, I tried a lot of doctors with no luck, she lives in another part of the country, so not ideal, but had no choice for my…"
Our doctor tests for iron, sugar,fasting fat levels,thyroid, liver and kidney and also screened for tb with blood tests. First test before starting , then at one month and every 4 months after. Also they are getting vaccines, not sure how many…"
"Hi could you get it sent to a parcel motel in the USA and collect it later. It's what I do in ireland we have a big pharmaceutical industry and customs are strict, But the UK are not as bad and I get it sent there and collect later"
"Yes they were in Coventry for a few weeks, but when they were released, they had a duty to be paid sticker on them, I could pay via a bank but as was beside the depo I went direct, I needed an id to collect. I think it is more strict to get…"
I just got a delivery in 10 days to northern Ireland, no customs. The time before parcel force held them and I had to go to their depo to pay the import duty. But I had to have an id with me, so I'm not sure it would work…"
I read on another link on this site that Catherina Ryan, in Ballsbridge has prescribed Tofacitinib. Might be worth contacting her, she's a dermatologist and then your GP would be easier to talk to.
Best of luck Ben"
I live in Northern Ireland also and have been undertaking treatment with Xeljanz successfully for the last three and a half years. I have visited with Dr Brett King several times and my GP does my bloods
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