Do you mind me asking your dosage. I’ve had it a long time too (12 Years )and trying to feel positive / hopeful and this thread has been a fantastic support and source of information. I have Tofacitinib from beacon and am…"
thanks so much for all the really good information you post - it’s been so helpful for me personally. I’m currently taking Berberine and I’m on the verge of taking Tofacitinib from Beacon. I think I would like to…"
"Hi Nat -
Well done you. I’m going to do the same. I’ll start Tofacitinib from Beacon over the next few weeks. Hopefully my doctor will
to monitoring blood. If not I’ll see if there’s a UK counterpart…"
i appreciate the information and will discuss with my GP if I can get off the starting block and get him to agree to monitor my blood. I think it makes sense to use steroids intensively for a period rather than increasing…"
that’s great news you must be delighted. I also have Tofacitinib fromBeacons Nd would like to begin taking it. However I beed have the conversation with my GP and am worried he will say no. Is tie GP monitoring your…"
Congrats ! You must be thrilled. Can I ask you a question? . I’m starting Tofacitinib from Beacon hopefully if my doctor will agree to monitoring. Regarding the prednisone was the dosage in the form of steroid pulsing…"
i would be interested in that! However spite health care as far as I know if a private set up and not NHS and may not see this as being part of their remit. However I’m interested to hear what they think :-) "
I think you, Libby and I are at the same stage. I’ve ordered from Beacon and. Once I receive the Tofacitinib I will contact my GP to ask if he will monitor my blood. I would also like to discuss with him whether he…"
Im waiting on Tofacitinib from Beacon and once
i receive them will contact My GP to
ask if he will monitor my bloods. It woukd
be good for me to tell him there are other people who’s doctors are doing f the same.…"
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