magmck
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  • glasgow
  • United Kingdom
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Latest Activity

magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin  Do you mind me asking your dosage. I’ve had it a long time too (12 Years )and trying to feel positive / hopeful and this thread has been a fantastic support and source of information.  I have Tofacitinib from beacon and am…"
Tuesday
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida  thanks so much for all the really good information you post - it’s been so helpful for me personally. I’m currently taking Berberine and I’m on the verge of taking Tofacitinib from Beacon. I think I would like to…"
Jul 13
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat  last question ! Re prednisone. Did you take 60 mg 3 days each month or did you take them daily ?  Thanks for your help ! "
Jul 10
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat - Well done you.  I’m going to do the same.  I’ll start Tofacitinib from Beacon over the next few weeks. Hopefully my doctor will agree to monitoring blood. If not I’ll see if there’s a UK counterpart…"
Jul 10
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Mashloum I was so pleased to see your sons progress on Xeljanz! You must be thrilled.  Have the doctors helped you understand what the results mean?  . "
Jul 9
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nat  i appreciate the information and will discuss with my GP if I can get off the starting block and get him to agree to monitor my blood.  I think it makes sense to use steroids intensively for a period rather than increasing…"
Jul 9
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Steve  that’s great news you must be delighted.  I also have Tofacitinib fromBeacons Nd would like to begin taking it.  However I beed have the conversation with my GP and am worried he will say no. Is tie GP monitoring your…"
Jul 9
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat.  Congrats ! You must be thrilled.  Can I ask you a question? . I’m starting Tofacitinib from Beacon hopefully if my doctor will agree to monitoring.  Regarding the prednisone was the dosage in the form of steroid pulsing…"
Jul 9
magmck replied to NicoleT's discussion Xeljanz from India
"Hi Ben. Can you remind me where in the U.K. you are.  I’m seeing my GP next week to ask him to monitor my bloods while on xeljanz.  Thanks ! "
Jul 5
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Singh  did you know about the dr - caiterina Ryan in Dublin who is supportive. ? Also what cotherspy  are you trying ? the is ! "
Jul 1
magmck left a comment for maireadcg
"Hi Mairemcd  did you get Tofacitinib ok? I’m in Glasgow and ordered and received in just over a week "
Jun 30
Frida Rupert and magmck are now friends
Jun 29
magmck replied to NicoleT's discussion Xeljanz from India
"Hi  i received my package delivered to my door in just over one week. no issues  with customs no hassle. Very impressed "
Jun 27
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sarah  i would be interested in that! However spite health care as far as I know if a private set up and not NHS and may not see this as being part of their remit. However I’m interested to hear what they think :-) "
Jun 26
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara.  I think you, Libby and I are at the same stage.  I’ve ordered from Beacon and. Once I receive the Tofacitinib I will contact my GP to ask if he will monitor my blood.  I would also like to discuss with him whether he…"
Jun 23
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Saraloujay.  Im waiting on Tofacitinib from Beacon and once i receive them will contact My GP to ask if he will monitor my bloods.   It woukd be good for me to tell him there are other people who’s doctors are doing f the same.…"
Jun 20

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

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