magmck
  • Female
  • glasgow
  • United Kingdom
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  • hellopeesha
  • Saraloujay
  • NicoleT
  • kimk
  • Frida Rupert
  • Steve
  • AlopeciaDestroyedMyLife

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Latest Activity

magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi hellooecia.  Thank you so much for taking the time to reply.  Hopefully Natalie has read my reply and as you can see. I’ve started taking xeljanz also ... just in the last few days.  It will be probably 4 months before I get…"
Sep 13
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Natalie. My GP has agreed to refer me to Dr Sarita Singh at Chelsea and Westminster Hospital in London.  There is a long waiting time (4 months +) to be see as aNHS patient.  She has agreed to see me and  Following on from the…"
Sep 13
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Natalie.   Send me a wee message and we can chat x"
Sep 12
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi  how are people here getting on ? Ive found a London based Dermatologist and my GP has agreed to refer  me and she is seeing me as an NHS patient and my HP has agrewd tommon my bloods. So progress at last ! So let’s see what…"
Sep 10
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi. How are you getting on ? clinical trials are beginning in Glasgow. I’ve found a dermatologist in London and my GP is referring me and has agreed to monitor my blood with her support.  Progress ! Hurrah ! "
Sep 10
NicoleT and magmck are now friends
Sep 6
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"There’s a closed fb group you can join called alopecia and xeljanz when you start taking it. "
Aug 28
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi. Mines is fairly long-standing unfortunately. I’m not sure how to proceed as I don’t want to take the drug without medical supervision or at least without having my blood monitored.  I have asked a dermatologist I attended some…"
Aug 27
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello.  I live in Glasgow and have been unable to find a GP / dermatologist who can help.  Where in the U.K. are you ?"
Aug 26
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara.  Thanks for asking your dermatologist. I appreciate it. I think,Southampton are gathering info for a clinical trial and October seems to be the time frame for this beginning.   I had a conversation with someone there and she…"
Aug 22
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sarah. I thought I’d responded to this!  Such good news ! Am very pleased for you. Sounds like you have a very good dermatologist ;-). I’m not feeling too confident about mine.   Apparently Pfizer will be enrolling for large…"
Aug 20
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole hope yore doing ok and stabilising and seeing seeing signs of recovery.  Return_life - has you read research that suggests that Jaks new to be increased to remain effective. That’s a bit worrying given the higher risk of side…"
Aug 19
magmck replied to Stefwilliams's discussion Tofacitinib
"Hi.  I live in Scotland and have ordered some from Beacon. A number of other people did and had it tested and it seems legit.  it worked out roughly £300 for 300 month supply at 15 mg per day.  The issue in the U.K. is finding…"
Aug 15
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Natalie. How are you getting on! I’ve had a I’ll think about it response from my GP Re blood monitoring and don’t think he will. No clue how to progress this if he does refuse.  My precious dermatologist refused and emailed…"
Jul 31
magmck left a comment for bibby
"Hi Bibby  how are you getting on with finding a GP. ?  I asked mine last week and he intends to consult with his defence union to see whether he was in a position to monitor.  I’m not feeling too confident about this at the…"
Jul 31
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello.  Thanks for posting.  It’s heartening to read of your progress though the infections must have been very difficult to deal with.   It’s good that you have Dr King monitoring your progress and must be reassuring for…"
Jul 31

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

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