magmck
  • Female
  • glasgow
  • United Kingdom
Share
  • Blog Posts
  • Discussions (88)
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

Magmck's Friends

  • Kate
  • hellopeesha
  • Saraloujay
  • NicoleT
  • kimk
  • Frida Rupert
  • Steve
  • AlopeciaDestroyedMyLife

Gifts Received

Gift

magmck has not received any gifts yet

Give a Gift

 

magmck's Page

Latest Activity

magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Thank you x"
Feb 13
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi Anna.  Just read ruxolitinib.   I’ll try xeljanz for bit longer then maybe consider barcitinib if no response.  Thank God for being able to access Bangladeshi pharmacology "
Feb 8
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi Anna  i started oral xeljanz  now on 20 mg Beacon so not full strength. I have very light vellus on my scalp. And some eyebrows and eyelashes.  Don’t know which way it will go but I’ll continue to take it.  Where…"
Feb 8
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi. Anna.   It’s such an interesting/ exciting time. I can remember when I lost my hair I googled alopecia and  a nothing came up it.  It’s been so heartening to see the explosion of treatment especially when you have kids…"
Feb 7
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi Anna.  Mum surprised your dermatologist agreed to such high levels of tofacitinib?"
Feb 5
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi thanks for your advice .  I do have some faint but there eyelash/ eyebrow growth and some vellus on my head after using 20 mg generic xeljanz for around 4 months and will start  minoxidil on the vellus  i have a dermatologist i…"
Feb 4
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi anna do you mind me asking how long you have had alopecia.  I read on another thread that if the onset of the disease is > 10 years ( As is the case with me unfortunately) then the likelihood of xeljanz being effective is much reduced.…"
Jan 7
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi superduper ive been on xeljanz for 4 months now. 20 mg with faint vellus.  Disppontomg to hear that chances of regrowth over 10 years is low as I’ve had this for 11 years. Is there some research that indicates this or I suppose…"
Jan 7
magmck and Kate are now friends
Jan 2
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida.   Try well put.  I think I probably should have found someone to talk to over the years.  This site and posts like yours are a big help / support "
Dec 12, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carlie.  Very very well done you !   Your hair is absolutely gorgeous.  What an absolute pleasure to read your post.  ! I lost my hair 12 years ago when I was 39 and there was absolutely nothing online re treatment for alopecia.…"
Nov 21, 2019
magmck replied to Sj0909986's discussion Treatments coming up
"Nor 75. Whst is the drug if it’s not Xeljanz ? "
Nov 3, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kate. How are you getting on ? Did you get sorted with a Dermatologist? "
Nov 1, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Your GP might refer you and you could be seen as NHS patient "
Oct 11, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"of course not.  Can you pm me "
Oct 10, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Katie.  I’ve been referred to a Dermatologist in London and there’s a dermatologist in Ireland d who treats patients using xeljanz.  Might save you going to the US "
Oct 10, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2020   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service