magmck
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  • glasgow
  • United Kingdom
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  • hellopeesha
  • Saraloujay
  • kimk
  • Frida Rupert
  • Steve
  • AlopeciaDestroyedMyLife

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Latest Activity

magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole hope yore doing ok and stabilising and seeing seeing signs of recovery.  Return_life - has you read research that suggests that Jaks new to be increased to remain effective. That’s a bit worrying given the higher risk of side…"
6 hours ago
magmck replied to Stefwilliams's discussion Tofacitinib
"Hi.  I live in Scotland and have ordered some from Beacon. A number of other people did and had it tested and it seems legit.  it worked out roughly £300 for 300 month supply at 15 mg per day.  The issue in the U.K. is finding…"
Thursday
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Natalie. How are you getting on! I’ve had a I’ll think about it response from my GP Re blood monitoring and don’t think he will. No clue how to progress this if he does refuse.  My precious dermatologist refused and emailed…"
Jul 31
magmck left a comment for bibby
"Hi Bibby  how are you getting on with finding a GP. ?  I asked mine last week and he intends to consult with his defence union to see whether he was in a position to monitor.  I’m not feeling too confident about this at the…"
Jul 31
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello.  Thanks for posting.  It’s heartening to read of your progress though the infections must have been very difficult to deal with.   It’s good that you have Dr King monitoring your progress and must be reassuring for…"
Jul 31
magmck replied to texas2016's discussion After 2 Years...Xeljanz Did Not Work For Me
"I wonder if it’s more complex than just duration of the disease. I’ve had it for 11 years and I understand this decreases the likelihood of it growing back with treatment but hopefully won’t mean it will never grow back ? "
Jul 27
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin  Do you mind me asking your dosage. I’ve had it a long time too (12 Years )and trying to feel positive / hopeful and this thread has been a fantastic support and source of information.  I have Tofacitinib from beacon and am…"
Jul 16
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida  thanks so much for all the really good information you post - it’s been so helpful for me personally. I’m currently taking Berberine and I’m on the verge of taking Tofacitinib from Beacon. I think I would like to…"
Jul 13
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat  last question ! Re prednisone. Did you take 60 mg 3 days each month or did you take them daily ?  Thanks for your help ! "
Jul 10
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat - Well done you.  I’m going to do the same.  I’ll start Tofacitinib from Beacon over the next few weeks. Hopefully my doctor will agree to monitoring blood. If not I’ll see if there’s a UK counterpart…"
Jul 10
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Mashloum I was so pleased to see your sons progress on Xeljanz! You must be thrilled.  Have the doctors helped you understand what the results mean?  . "
Jul 9
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nat  i appreciate the information and will discuss with my GP if I can get off the starting block and get him to agree to monitor my blood.  I think it makes sense to use steroids intensively for a period rather than increasing…"
Jul 9
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Steve  that’s great news you must be delighted.  I also have Tofacitinib fromBeacons Nd would like to begin taking it.  However I beed have the conversation with my GP and am worried he will say no. Is tie GP monitoring your…"
Jul 9
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat.  Congrats ! You must be thrilled.  Can I ask you a question? . I’m starting Tofacitinib from Beacon hopefully if my doctor will agree to monitoring.  Regarding the prednisone was the dosage in the form of steroid pulsing…"
Jul 9
magmck replied to NicoleT's discussion Xeljanz from India
"Hi Ben. Can you remind me where in the U.K. you are.  I’m seeing my GP next week to ask him to monitor my bloods while on xeljanz.  Thanks ! "
Jul 5
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Singh  did you know about the dr - caiterina Ryan in Dublin who is supportive. ? Also what cotherspy  are you trying ? the is ! "
Jul 1

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

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