magmck
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  • glasgow
  • United Kingdom
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Latest Activity

magmck replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Hi Bibby  the secretary was clear that Dr Ralph doesn't prescribe the drug.  However that’s not to say that she wouldn’t monitor the useage of in terms of blood monitoring.? I was recommended a De Murad also in Dublin and…"
Jun 10
magmck replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"hi paul. I think we’re in the same boat.  The drug from beacon does seem to have been tested by Pfizer and apparently is the same as Tofacitinib only slightly weaker ( I think Nicole had it tested ) .  Many people have been taking…"
Jun 8
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I agree football fan.  Tc you post such measured supportive and considers posts and your recent post froze me into thinking OMG whet am I doing even Considering taking an unlicensed medication for what for me is a long term recaltriant…"
Jun 5
magmck replied to NicoleT's discussion Xeljanz from India
"Hi mairedcg Do you mind if I ask about your experience with your GP? I am considering asking my GP to monitor my blood while using Tofacitinib. I’m honking of ordering from Beacon.  It is a bit of a scary prospect given the potential side…"
Jun 2
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Bibby.  I emailed Dr Ryan’s practice and outlined I was looking for Tofacitinib for alopecia and the secretary /practice nurse advised that in some instances De Ralph will prescribe Tofacitinib for alopecia.  What makes you think…"
Jun 2
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Bibby it’s dr Catriona Ryan. I think there is a thread by Dublin books or hellopecia   She’s on holiday from July - November however she has a partner available who can prescribe Tofacitinib. "
May 30
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole  thanks so much for your response. I’ll do that. Having followed your journey I’m certain this setback you are facing will resolve itself ! I’m sure if you increase your dosage it will steady itself. Maybe it’s…"
May 27
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole.  It seems that there is a GP in Ireland who is willing to prescribe Tofacitinib for Alopecia. I don’t think I will qualify for the drug payment scheme which operates for Irish citizens as, living in Scotland I am a Uk resident.…"
May 27
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Singh  hope youre doing well.  Did you have to travel to USA as there was no support for you in the U.K.? My sister lives In Liverpool UK"
May 25
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"hi Micheal  I couldn’t get your link there "
May 25
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Dublinbooks So pleased for you ! That’s great news. How amazing a dermatologist prescribing Tofacitinib for alopecia off licence. . Maybe there’s  more relaxed licensing in Eire than the U.K?  I’m wishing I had Irish…"
May 25
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Aaw - what a nice supportive forum in the midst of the madness "
May 23
magmck replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hi mind over matter. Can I ask which company you are using to have your bloods checked  thank you "
May 22
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi paul.  I’ve done a little more research and unfortunately it would seem that blood screening companies suggested won’t Screen if taking xeljanz and gps refuse as it’s off label. I’m feeling a bit despondent as I…"
May 21
magmck replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hi mind over matter. Hope you don’t mind me getting in touch to ask if you havd any luck with blood screening ? My dermatologist refused outright.  Hope the treatment is continuing to go well. Are you continuing to see results ? "
May 21
magmck replied to NicoleT's discussion Xeljanz from India
"Hi Jonny  I’m also in the U.K. I am interested but need a gp to monitor bloods. Do you have a gp who is doing this for you ? "
May 21

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

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