magmck
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  • glasgow
  • United Kingdom
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Latest Activity

magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi anna do you mind me asking how long you have had alopecia.  I read on another thread that if the onset of the disease is > 10 years ( As is the case with me unfortunately) then the likelihood of xeljanz being effective is much reduced.…"
Jan 7
magmck replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Hi superduper ive been on xeljanz for 4 months now. 20 mg with faint vellus.  Disppontomg to hear that chances of regrowth over 10 years is low as I’ve had this for 11 years. Is there some research that indicates this or I suppose…"
Jan 7
magmck and Kate are now friends
Jan 2
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida.   Try well put.  I think I probably should have found someone to talk to over the years.  This site and posts like yours are a big help / support "
Dec 12, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carlie.  Very very well done you !   Your hair is absolutely gorgeous.  What an absolute pleasure to read your post.  ! I lost my hair 12 years ago when I was 39 and there was absolutely nothing online re treatment for alopecia.…"
Nov 21, 2019
magmck replied to Sj0909986's discussion Treatments coming up
"Nor 75. Whst is the drug if it’s not Xeljanz ? "
Nov 3, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kate. How are you getting on ? Did you get sorted with a Dermatologist? "
Nov 1, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Your GP might refer you and you could be seen as NHS patient "
Oct 11, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"of course not.  Can you pm me "
Oct 10, 2019
magmck replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Katie.  I’ve been referred to a Dermatologist in London and there’s a dermatologist in Ireland d who treats patients using xeljanz.  Might save you going to the US "
Oct 10, 2019
magmck replied to NicoleT's discussion Xeljanz from India
"Hi Bibby glad to hear things working out so well for you! onwards and upwards! :-)"
Oct 8, 2019
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara Lou.  Best of luck.  I don’t know if the trials are common knowledge yet.  I think Pfizer are trialling in 3 centres throughout the U.K.   I’m waiting on my GP to refer me to dermatologist and keen to get…"
Sep 20, 2019
magmck replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sarah.  Yes. I’ve started taking them and my GP has agreed to monitor my bloods fingers  crossed for us both :-) "
Sep 20, 2019
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi hellooecia.  Thank you so much for taking the time to reply.  Hopefully Natalie has read my reply and as you can see. I’ve started taking xeljanz also ... just in the last few days.  It will be probably 4 months before I get…"
Sep 13, 2019
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Natalie. My GP has agreed to refer me to Dr Sarita Singh at Chelsea and Westminster Hospital in London.  There is a long waiting time (4 months +) to be see as aNHS patient.  She has agreed to see me and  Following on from the…"
Sep 13, 2019
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Natalie.   Send me a wee message and we can chat x"
Sep 12, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 4:48pm on October 12, 2016, Lucy said…
Hi there was looking for someone nearby to chat with about alopecia the ups n downs
 
 
 

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