NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Fred Mar 29. 374 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by nb3689 Sep 6, 2019. 91 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

Fred replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi everyone, I’m new here and have spent the last few days reading these forums and it’s amazing how much info is here.  Im from the east coast of Canada which really limits my ability to access Beacon, as I have no access to the…"
Mar 29
Ryan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nicole! You're always a tremendous help! :)"
Mar 28
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"And Sheila I would love to meet you any time once we come out of CV scare.  if anyone here finds themselves desperate let me know I have a large supply. "
Mar 28
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Ryan  try checking in with Mauree. I think they are scrambling to keep up but I do think you will eventually get a tracking number from them.  mouree@beaconmedicare.com.bd im going to check with an acquaintance about another…"
Mar 28
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi all here is the new USA contact: mouree@beaconmedicare.com.bd good luck let me know how you go hearing back. "
Mar 28
Ryan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey guys, Anyone having trouble placing orders from Beacon recently?  I've sent a transfer over to them earlier this week with transferwise and it was confirmed the next day. I forwarded that receipt to Beacon twice but had no response. I…"
Mar 28
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole  woukd you mind sending me contact, I have emailed a few times but no response. I have full regrowth but afraid of running out if I can’t get an order in thank you, you look great in pictures  next time I see Bordone  in…"
Mar 26
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole, can you please post a new contact here?"
Mar 26
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Could you email the new contact as well?  Shamiul was always so helpful!"
Mar 26
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"They have a new USA sales rep. I will email you the contact. Shamiul no longer takes care of USA. "
Mar 26
LJBMD replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Does Beacon has regional sales reps in the US?"
Mar 26
yp replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I went down from 20 to 15 to 10 gradually in fall/winter of 2019. I haven't had any new patches or loss since. I've also had AA for about 30 years and i didn't drastically lose my hair in a short period of time. When i lost my…"
Mar 26
NicoleT liked Melinda's video
Mar 26
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I live in USA yes."
Mar 26
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"When did you go down to 10 from 20? please let me know I would immediately go back up to 10 instead of 5. before your head will be full of patches learn from my mistakes. Re beacon, i bet they will let you order 10 boxes of the 11. i dont know.…"
Mar 26
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Awesome!"
Mar 26

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (7 comments)

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At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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