NicoleT
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  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Ahmed Apr 11. 122 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by Steve Dec 8, 2018. 90 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

sultan h replied to NicoleT's discussion Xeljanz from India
"Hollow everybody  any one give us his or her experience with Tofacinix, i want to order it tomorrow  and i’m hesitant ! Please give me hope , couse i gave up taking xeljanz cause very expensive  so hope Tofacinix work as…"
Saturday
Ahmed replied to NicoleT's discussion Xeljanz from India
"Hey All. Could someone help me understand how to go about getting name brand Xeljanz? I know there is a 3 month coupon or something but not sure how that works. I also see my doctor at Columbia University put a prescription for Xeljanz on my…"
Apr 19
NicoleT and Ron's mom are now friends
Apr 15
Ron's mom replied to NicoleT's discussion Xeljanz from India
"Hi SI! Really great to hear about your daughters regrowth, it gives me hope for my son! We have just started him on the same dose as your daughter, 5mg a day. My sons weight is also around 100 pund so I hope he won't need more. Can I ask you…"
Apr 15
Ron's mom replied to NicoleT's discussion Xeljanz from India
"Hi SI! Really great to hear about your daughters regrowth, it gives me hope for my son! We have just started him on the same dose as your daughter, 5mg a day. My sons weight is also around 100 pund so I hope he won't need more. Can I ask you…"
Apr 15
NicoleT is now friends with sultan h, Zahid and Gogo
Apr 14
Ahmed replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I would recommend trying to find a dermatologist in your area that knows about tobacitnib being used for alopecia and going to them. I went to a couple dermatologist that tried making me use other thing which weren't working. I went ahead and…"
Apr 11
Usc90grad replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Here's an update on my attempt to get on Xeljanz.   I met with my arthritis doc and he was not familiar with it being used to treat AA.   He said if my dermatologist would recommend it for that, he would be happy to switch…"
Apr 11
Karaholly and NicoleT are now friends
Apr 9
kevin replied to NicoleT's discussion Xeljanz from India
"hello I took an inhalation dose for asthma, I breathe a lot and I'm more uncomfortable having bronchial tubes taken. I also had honey cinnamon ginger honey and my throat does not irritate me anymore I had to catch a cold snap which turned into…"
Apr 7
kevin replied to NicoleT's discussion Xeljanz from India
"my friend it's been 3 months she is under tofacinix. never under xeljanz it has a 60% hair coverage but few eyebrows and eyelashes .. with 3 seals. I ordered a box of generics a beacon of baricitinib I wait to receive it and have it tested…"
Apr 7
kevin replied to NicoleT's discussion Xeljanz from India
"hello yes I had them tested in the laboratory it is 4.2mg instead of 5mg, the laboratory does not know that he added extra. yesterday for 3 hours I had my bronchi whistled as a start of asthma attacks. I feel that my throat is irritated. my friends…"
Apr 7
maireadcg replied to NicoleT's discussion Xeljanz from India
"Do you not think it was just a coincidence as they’ve been tested and are exactly the same? I had shingles 9 months into xeljanz and it is an immunosuppressive drug so maybe it would have happened anyway on xeljanz ?"
Apr 7
lu391 replied to NicoleT's discussion Xeljanz from India
"hi, I've been taking tofacinix for 6 weeks and I had no problems, however I'm still using xeljanz in the morning with one tablet, while I take 2 tablets of tofacinix during the day, and 2 times a week I take 3 tablets"
Apr 7
Khalil left a comment for NicoleT
"Hello dear, Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh Thank you so much"
Apr 7
kevin replied to NicoleT's discussion Xeljanz from India
"Hello nicole I went under tofacinix for 2 weeks me and my friends noticed having bronchi taken as having an asthma attack. I was under xeljanz and I had never had this side effects"
Apr 6

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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