NicoleT
  • Female
  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Football fan on Wednesday. 414 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by nb3689 Sep 6, 2019. 91 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

momx2x2 replied to NicoleT's discussion Xeljanz from India
"Why would you be losing? Did you change anything? This is all so frustrating! I think I might take you up on your offer, do you have any 11 mg extended release?"
9 hours ago
PaulV replied to NicoleT's discussion Xeljanz from India
"Beacon contacted me last week about my order (placed in April).  Apparently DHL operated a special charter to ship medicine out of Bangladesh, and Beacon said they could ship my order that way.  Unfortunately I missed the deadline to…"
10 hours ago
NicoleT replied to NicoleT's discussion Xeljanz from India
"I have some big patches in the back right now. Sort of like 2 big ones connected forming a really big one. They seem to be regrowing but im not sure why its happening. i havent changed my dosage at all. im just going to keep on 16, hope i dont see…"
yesterday
maireadcg replied to NicoleT's discussion Xeljanz from India
"I did this and lowered mine last January from 20 to 15 and then got a big patch. I upped them again and had steroids and it grew back. Then in feb this year , I tried 15 one day and 20 the next and then in March, noticed a big patch at the back. I…"
yesterday
Frida replied to NicoleT's discussion Xeljanz from India
"Thank you NicoleT you are such a kind person.  I  already bought some for my daughter she is 11 nearly  Finally after many years searching for good dermatologist  I found one in USA which is very good  now I am looking for a…"
yesterday
momx2x2 replied to NicoleT's discussion Xeljanz from India
"I’ll have to check to see how long I can make it , any word on opening  of Beacon or courier?"
yesterday
NicoleT replied to NicoleT's discussion Xeljanz from India
"I would stick at 15 if thats where you had full regrowth. dont bother going up to 20. sadly, the attack has already happened so you may continue to see more new patches form, but you will start to see regrowth in those patches so long as you are at…"
yesterday
momx2x2 replied to NicoleT's discussion Xeljanz from India
"Nicole, you were right! With full regrowth,  I went from 15 mg to 10 mg, at first I did complete reduction (maybe 4 weeks) and then I thought I better  alternate days, so I’ve alternated between 15 and 10 for three weeks and i just…"
yesterday
NicoleT and TJ are now friends
Saturday
bibby replied to NicoleT's discussion Xeljanz from India
"I’m considering Venkat pharmacy. They are $47 per 30 pill. Ship with DHL to the UK. Shipping based on quantity. "
Saturday
Football fan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole you are way to generous."
Wednesday
NicoleT and Tori are now friends
May 19
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Yes tori message me!! Xo"
May 19
Tori replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole, I would greatly appreciate if you could share some boxes with me too.  Thanks so much! "
May 19
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Ryan and Smitty  Happy to send you guys some boxes today. I just emailed both of you. If anyone else here is in the United States and is desperate and out of pills please let me know I can send you some to tide you over. "
May 19
Tori replied to NicoleT's discussion Xeljanz from India
"Has anyone used NIBA Healthcare? They have Xeljanz for $350 per 60 tablets and can ship via DHL same day they get payment. Feeling desperate but not sure if I should give them a try."
May 18

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (7 comments)

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At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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