NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by singh Aug 6. 261 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by Steve Dec 8, 2018. 90 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole keep your chin up and just think xeljanz does work for you ! So it will stable and start kicking in again! I have read somewhere that even for people who it doesn’t work should stop and restart like 2 weeks later and for some reason…"
Aug 6
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole, so so sorry to hear that. The good thing is you know that the medication works for you so this is just a slight set back. Look forward to hearing about your recovery! TS"
Aug 5
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Nicole, I'm so sorry you are not seeing regrowth instead of patches! You really are the one person that saved me! I now am 2 months on 15mg iand am slowly seeing the white hair turn dark. Without you I’d still be wondering  what I…"
Aug 5
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"So sorry to hear about that Nicole.  I’m not on here much but your were an inspiration to me in my toughest times.  Your pictures gave me hope (like many others) and I am forever in debt to you.  You have helped me so much and…"
Aug 5
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey TS  Yeah my tapering was NOT GOOD. Please take my advice.  After  One year and full re-grout with a daily dosage of 15 mg my doctor had me go down to 10 mg a day this was a huge mistake I now have large patches all over my head…"
Aug 5
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you for the quick response. Will definitely read through them now. "
Aug 5
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi TC, Please read some prior posts. Nicole had some spots and shedding 2.5 months after reducing the dose to 10 mg.  She increased her dose to 20mg."
Aug 5
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole, are you still on track with titrating off the medication. If I’m reading your post correctly you should be down to one pill by now. Would love to here how things are going as I’m hoping to start doing the same in about 2…"
Aug 5
Ryan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks! I was worried because there was a note saying something about only paying HKD in HK. Glad it works out for you"
Aug 5
lu391 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I always use Transferwise to pay Beacon, I never had any problems"
Aug 5
Ryan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hello! I'm curious if anyone here ordering from Beacon has successfully used something like Transferwise to send payment for your order. Thanks!"
Aug 4
NicoleT and Deena are now friends
Aug 2
Arsenalauba replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole! Have your shedding stop? Hope everything’s working, god bless."
Jul 29
Arsenalauba replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Also wondering"
Jul 27
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole, Did your shedding stop on 20mg?"
Jul 22
Lidan replied to NicoleT's discussion Xeljanz from India
"Pour ma part ils ont reçu mon virement le 12 juillet et ils m ont donner un code pour suivre le coli via EMS mais sur le site quand je râpé le code ils disent que le transporteur n a pas donné d information ! "
Jul 16

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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