All Blog Posts (5,813)

Surviving Prom with Alopecia

In life and alopecia, there are lessons and blessings. Unfortunately, some lessons are harder to swallow. Prom was one of those lessons for me. I'm still learning to let go of the anger and guilt I feel because I wasn't accepting of my appearance. I lost my smile. But through the lesson, I…

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Added by Gabe on March 17, 2020 at 3:08pm — No Comments

Why do I fight for a cure?

I have been AU for almost 15 years. I lost every hair on my body over a period of three weeks, and in the process, I lost almost everything. I lost my business because people refused to do business with me. I lost my day job because I no longer had a "professional appearance." I lost the vast majority of my family and friends, because no one wanted to be seen with me. I was told never to come back to the church I was attending because they thought it was contagious.

I fight…

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Added by TurboK on March 7, 2020 at 12:35am — 12 Comments

My 13 year old beautiful son with AU, right before his eyebrows disappeared

Added by KKG on February 24, 2020 at 3:37pm — No Comments

Looking for photos to promote alopecia awareness on our Instagram page!

Every day we look at the photos on Alopecia World and they are truly beautiful and, honestly, deserve to be shared.

Therefore, we are looking for photos that we can share on Alopecia World's Instagram Page.

If you have a cool photo that we can use, please post it here with your IG handle so that we can link it back to your account.…

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Added by Cheryl, Co-founder on February 21, 2020 at 2:30pm — 8 Comments

Struggling with my culture - Alopecia and Black Hair

Hair plays a vital role in black culture. Hair, for black people, has always stood as a symbol of self-expression and power. I wanted to be proud of my hair and proud of my culture.

I love how black culture can express itself through hair. I am fascinated with the precision and talent of professional barbers. The clean edges. The fades. The designs. I saw the movie Barbershop as a celebration of the black community and the support…

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Added by Gabe on February 20, 2020 at 11:30pm — 2 Comments

Vegan

Hi Mikr and Others:

My diet is mostly vegan, although I slide and eat fish when vegan protein is not available.

I try to be  a good yogi and practice compassion and non-injury to other beings.

Sorry to say that my hair has not grown back, although my blood pressure and cholesterol are excellent.

Brandy

Added by Brandy on February 18, 2020 at 12:19am — No Comments

Sports Illustrated model with alopecia pulls off her wig on the runway

We weren't born believing hair makes you pretty, but society has lead us to believe that.

In an empowering move, she took off her wig on the runway.

"Taking my wig off in front of hundreds of people will be a moment I tell my kids about someday!” she told Sports Illustrated. “I was so nervous backstage leading up to the moment, but knew in my heart I had to do it. I had to do it for myself, for all the tears I've cried about this condition, for all the girls…

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Added by Alopecia World on February 8, 2020 at 11:00pm — 2 Comments

I'm new to this. Is anyone from the greater Seattle, Washington area?

I'm new to this. Is anyone from the greater Seattle, Washington area?

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Added by Bon on February 8, 2020 at 3:03pm — 2 Comments

Shampoo suggestions?

Hello I just started in this blog, I have been suffering from this condition for a few years now, my hair loss is on the front of my head so it looks like I have a very wide forehead.  I am just curious as what is the best shampoo to ti use for my hair so that I do not loose more hair.  Please help   Thank you

Added by Guddi on January 30, 2020 at 1:30pm — 2 Comments

Massachusetts Rep. Ayanna Presley Shares Her Alopecia with the World

Just watched A.M. Joy and listened to Massachusetts Rep. Ayanna Presley share her secret of living with Alopecia. She bravely went on television without a her wig! Thank you Ayanna for showing the courage and bravery. I hope to get to that point someday! It has taken me many, many years to talk about it with close friends and family.

Added by Hopeful1 on January 19, 2020 at 12:12pm — No Comments

hi guys I would like to ask you for help

recently my son was diagnosed with a very, very bad immunodeficiency

doctors wave their hands and can't do anything about it

I'm confused

Added by AdamHar1 on January 15, 2020 at 5:17am — 3 Comments

Alopeica support & awareness through music

Hey Guys!

My name is Nick Moore and I have had Alopecia areata since 15 years of age. It has further developed into AU. (meaning I have no hair all over my body) I must admit, I have not struggled as much as other people, it was mostly an "oh well" moment, however, I have had my times where it has not been all smiles. 

My goal is to help create not only awareness of the condition but support for other people through my story. I have recently started creating music. My latest…

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Added by Nmoore on January 11, 2020 at 4:00am — 1 Comment

Does anyone have any new treatment for AU? xeljanz is not an option. thanks  lee

Does anyone have any new treatment for AU?

xeljanz is not an option. 
thanks 

lee

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Added by rick on December 31, 2019 at 4:58pm — No Comments

Women with alopecia pose in stunning photo series to show that bald is beautiful

"Models removed their wigs to embrace their hairlessness to pose in a photoshoot which raises awareness of the condition."

Excerpts from an article on Metro.co.uk:

"Photographer Chrissy Sparks, 35, from Birmingham, has photographed thousands of women, of all shapes and sizes, since opening…

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Added by Cheryl, Co-founder on December 30, 2019 at 9:30pm — 1 Comment

Xeljanz for Alopecia Areata Incognita - Question

Hi All,

I began Xeljanz for my Alopecia Areata Icognita 1 week ago. About how long have most of you gone before you noticed the medicine taking affect? When will my shedding slow down? REALLY hoping this medicine works for me.

Thanks!

Dana

Added by dnp224 on October 29, 2019 at 5:10pm — 5 Comments

"I didn’t know it was OK not to completely fit in."

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

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Added by Cheryl, Co-founder on September 19, 2019 at 11:00pm — 1 Comment

Modified Coimbra Protocol...high dose vitamin D for Immune modulation

I have no designated Coimbra practitioners here in Toronto Canada. I've had alopecia Universalis since I was 30...I am now 55.. Over two years ago I had my genome read and found out I have polymorphism in my VDR (vitamin D receptor gene) where I don't convert sunlight into vitamin D very efficiently. When I went to get my vitamin D levels checked at the time at I was under 30 (ng/ml) . …very low. Since then, I…

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Added by Mike Staffieri RHN on August 26, 2019 at 3:07pm — 4 Comments

Canadian Alopecia Areata Foundation Conference July 19-21

Hi Everyone

just a quick note to let everyone know that Canaaf is hosting their annual Come Together Conference at Great Wolf Lodge in Niagra Falls July 19-21. I will be sharing my story on Sunday of the conference. Meet others with Alopecia, share journeys, and get great advice and resources. More info is found at Canaaf.org. 

Added by Jennifer Krahn on July 9, 2019 at 9:45am — 3 Comments

Best Human Hair Wig for RoyalMe

I said I had bought a human hair wig from RoyalMe. 800 credit for my wig! I have used the wig for about 1 month. Yes, it is still in good condition. I wash it as I wash my own hair. There is no glue needed so it is easy to take off the unit at night. You may like to wear it in sleeping. All I want to say is I like it very much. Finally, I am enjoying the gorgeous hair.

Added by Candy Lee on June 25, 2019 at 3:45am — 1 Comment

CARF 2020 Conference

Has everyone gotten the "Save the Date for the 2020 CARF Conference.  I've been to several and they are fantastic! - much info and camaraderie.

Watch for updates on the CARF website.  www.carfintl.org

Friday – Sunday, April 24 – 26, 2020

Conference Chairpersons – Crystal Aguh, MD, Loren Krueger, MD, and Jamie Mackelfresh,…

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Added by Wyobalance on June 13, 2019 at 2:30pm — No Comments

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