All Blog Posts (5,833)

Xeljanz for Alopecia Areata Incognita - Question

Hi All,

I began Xeljanz for my Alopecia Areata Icognita 1 week ago. About how long have most of you gone before you noticed the medicine taking affect? When will my shedding slow down? REALLY hoping this medicine works for me.

Thanks!

Dana

Added by dnp224 on October 29, 2019 at 5:10pm — No Comments

"I didn’t know it was OK not to completely fit in."

I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.

"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…

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Added by Cheryl, Co-founder on September 19, 2019 at 11:00pm — 1 Comment

Modified Coimbra Protocol...high dose vitamin D for Immune modulation

I have no designated Coimbra practitioners here in Toronto Canada. I've had alopecia Universalis since I was 30...I am now 55.. Over two years ago I had my genome read and found out I have polymorphism in my VDR (vitamin D receptor gene) where I don't convert sunlight into vitamin D very efficiently. When I went to get my vitamin D levels checked at the time at I was under 30 (ng/ml) . …very low. Since then, I…

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Added by Mike Staffieri RHN on August 26, 2019 at 3:07pm — 3 Comments

Canadian Alopecia Areata Foundation Conference July 19-21

Hi Everyone

just a quick note to let everyone know that Canaaf is hosting their annual Come Together Conference at Great Wolf Lodge in Niagra Falls July 19-21. I will be sharing my story on Sunday of the conference. Meet others with Alopecia, share journeys, and get great advice and resources. More info is found at Canaaf.org. 

Added by Jennifer Krahn on July 9, 2019 at 9:45am — 3 Comments

Best Human Hair Wig for RoyalMe

I said I had bought a human hair wig from RoyalMe. 800 credit for my wig! I have used the wig for about 1 month. Yes, it is still in good condition. I wash it as I wash my own hair. There is no glue needed so it is easy to take off the unit at night. You may like to wear it in sleeping. All I want to say is I like it very much. Finally, I am enjoying the gorgeous hair.

Added by Candy Lee on June 25, 2019 at 3:45am — 2 Comments

CARF 2020 Conference

Has everyone gotten the "Save the Date for the 2020 CARF Conference.  I've been to several and they are fantastic! - much info and camaraderie.

Watch for updates on the CARF website.  www.carfintl.org

Friday – Sunday, April 24 – 26, 2020

Conference Chairpersons – Crystal Aguh, MD, Loren Krueger, MD, and Jamie Mackelfresh,…

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Added by Wyobalance on June 13, 2019 at 2:30pm — No Comments

Headscarf styles for alopecians

Ways to brave the bald... 

I've had alopecia areata on and off since I was 10 and have been wig-free for about 5 years. One day, I decided I was sick of wearing an uncomfortable wig and of worrying about it every time a gust of wind came, so I asked my boyfriend to shave my head.…

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Added by Emma on May 12, 2019 at 4:33am — 2 Comments

Headscarf styles for alopecians

Ways to brave the bald... 

I've had alopecia areata on and off since I was 10 and have been wig-free for about 5 years. One day, I decided I was sick of wearing an uncomfortable wig and of worrying about it every time a gust of wind came, so I asked my boyfriend to shave my head.…

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Added by Emma on May 12, 2019 at 4:30am — 3 Comments

How do you think of the current human hair wigs?

I started to wear wigs for many years. But they were made of synthetic hair. Of course, the price is affordable. Now I buy a human hair wig from RoyalMe. I till choose the affordable one. Actually, it is soft and enjoys a natural looking. Too many wig companies are here. premier lace wig, best lace wig..

I hope it can last for long. It seems that they are prone to sell human hair wigs. What about your view?

Added by Candy Lee on May 8, 2019 at 10:56pm — 2 Comments

Eso era la vida...

I don't know exactly when the days start to pass so fast; my daughter is now 16 but still remember when I carried her in my hands (she was so little), my marriage was done so many years ago and the image in the mirror is the only that I can remeber (except whe I saw the family albums), so this is life now... 

Added by Víctor Ratzeburg on April 17, 2019 at 4:48pm — No Comments

A Wisdom Story - The Three Hairs

I love this story so I thought I would share it!!

A Wisdom Story - The Three Hairs

There once was a woman who woke up one morning, looked in the mirror, and noticed she had only three hairs on her head. "Well," she said, "I think I'll braid my hair today." So she did and she had a wonderful day.

The next day she woke up, looked in…

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Added by PrincessElla on April 2, 2019 at 3:18pm — 1 Comment

Ella The Enchanted Princess Who Are You? book helps Maci Huffstetler Through Losing Her Hair

Alopecia is an autoimmune disease that affects hair growth on the scalp and entire body which results in minor or complete hair loss with slim chances of regrowth, for which there is no cure. For children especially, it is easy to imagine the detrimental psychological effects losing hair can have on self-esteem and…

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Added by PrincessElla on April 2, 2019 at 3:11pm — No Comments

Scholarship for hair loss community!

Hello everyone, 

I'm not a student, but I just wanted to let everyone know about a scholarship specifically for people with hair loss thats on wigs.com. It's $1000 and an essay contest and for people with alopecia and trich and chemo, etc. Thought everyone would like to know about this! …

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Added by Gracie'shair on April 1, 2019 at 1:30pm — 1 Comment

Alopecia in the Media

Since people have talked about the subject before, I figured I'd post this. Not sure if you can find it around the world yet but, they made a TV show about a girl who develops alopecia in India.…

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Added by JessicaStinkle on March 29, 2019 at 1:17pm — 1 Comment

Please I am looking for help for my daughter she’s 19 and we are in New Zealand our doctors told us there is no treatment and we are desperate for any help 

Please I am looking for help for my daughter she’s 19 and we are in New Zealand our doctors told us there is no treatment and we are desperate for any help 

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Added by Mygirl on March 28, 2019 at 2:36am — 7 Comments

College Student

My Story, 

Instead of studying for a physics exam I have on Monday.. here I am venting my story of my random occurrence of my bald spots at 12:30pm. 

Last month I received a bad spot on the top back of my head. I play collegiate softball in Missouri and was hoping my team doctor would say it was some rare thing that seemed to happened to me and it will never happen again... I was wrong. A week later another bald spot appeared. Multiple visits and referrals to…

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Added by Taylor A. on March 24, 2019 at 1:33am — 3 Comments

Diagnosed today with Alopecia Areata

Hello everyone. I am so happy to find this online community. I was officially diagnosed with alopecia areata today and spent a lot of time crying. I am not new to auto-immune diseases with having Hashimotos and Celiac's already. My bald spots literally came out of no where and now I am trying to get my mind wrapped around what this means for me. The doctor prescribed a steroid to put on my scalp, and would like to hear the communities experiences and opinion on this. Thank you 

Added by Cybergirl on March 19, 2019 at 10:03pm — 11 Comments

My alopecia story

My name is Nicholas, I come from Cyprus and I want to share my alopecia story. Couple of years ago I started having alopecia signs, a bald patch on my beard near my chin. At first, I didn't even pay attention because it was quite small. Unfortunately things got worse. One more patch appeared on my beard and then another 4-5 patches on my head. Needless to say I got really upset, so I visited a doctor whose reaction was unsympathetic and not at all reassuring. He just said that it is alopecia…

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Added by Jiraiya on March 18, 2019 at 3:55pm — 2 Comments

Advantages of Alopecia

Seems like an oxymoron, right? 

How could there be advantages to this condition? It makes us alopecians feel ashamed. It makes us feel different. And it makes us live in fear, a lot of the time...especially if we're still at the stage of covering our patches with stick-on pieces or wearing a full wig.

It can even lead to us feeling anxious and depressed – something I have…

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Added by Emma on March 5, 2019 at 9:40pm — No Comments

Walking Dead

I was watching the Dead last night, they have added a new character, It was a woman who Is the head of a clan, she Is bald, and no nonsense, and obviously shaved a full head of hair for this role, now my point, It would have been so cool If they had tapped lets say an alopecia site looking for aspiring actress with no hair, she could have kicked ass and got the word out, your thoughts, It dont happen all the time just every once In a wile something  just pains me

Added by Eric Heffner on February 22, 2019 at 1:57pm — 3 Comments

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