All Blog Posts (5,827)

Cause ?

I think it's funny how everyone categorizes Alopecia Areata ,Totalis, And Universalis as an Automune disease .  I'm not saying that it's not , but I was told by a number of specialists that it is just "believed " to be an autoimmune disorder.  I was told that there isn't 100 percent solid proof of it being autoimmune. I was told that the cause is unknown.  There are theories as to why it happens, autoimmune being one of them.  And I was told that research is still being done regarding the…

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Added by CET1993 on August 8, 2018 at 7:10pm — 1 Comment

New to major AA hair loss

I am new to this site but dealing with AA for about half my life (25 years). My AA has suddenly acted up and I have lost more than 50% of my hair. I wear a headband but even then, my spots sometimes show. I was on prednisone for a while, which helped, but my doctor kept reinforcing what I know is true - that is not good to stay on that for long so I stopped. Well now I am trying squaric acid with no effect yet. I am sometimes just so embarrassed to wear head scarves and to know my spots are…

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Added by Ev on August 8, 2018 at 12:28am — 2 Comments

Thoughts of a Faux Brunette

I'm writing this blog sitting on my couch in PJs with my wig still on.  It's a short but thick brown bob that I've thrown into a low ponytail.  I run my fingers through the ponytail's human hair.  I want so desperately for it to be mine, but I have to be careful not to pull too hard else I'll move back the cap.  Then I carefully take my ponytail band out and let the wig fall to my shoulders. It's nice to feel that movement.  It feels like I have hair again.  God, I miss having hair.  I frown…

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Added by KristenBrunetteWig on August 2, 2018 at 12:04am — No Comments

I Am My Hair.

Imagine this: Years of dedication and hard work towards my first masters degree. With the finish line in sight, my heart filled with nothing but excitement and bliss for what my future holds, only to wake up to spots of bare skin where my hair would usually be. I had interviews and meetings that I was prepared for. I had no doubt in my mind these meetings would open doors to the future I had dreamt about for the past 8 years. Now I felt nothing but self consciousness and anxiety. How…

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Added by Sharon Weinberg on July 31, 2018 at 12:56pm — No Comments

I'm new!

Hey everyone! My name is Allison and I'm new to alopecia world! I wanted to seek advice on my eyebrow. Recently, I lost half of my right eyebrow. I see some hairs growing in, and I was wondering how long it might take to grow completely back. Also, is there a way to prevent more eyebrow hair from being lost? 

Added by Allison on July 29, 2018 at 3:06pm — No Comments

Alopecia Areata Treatment

  I'm loosing my hair because of stress and it's for information about treatments....  I was going to see a specialist and stopped going for a while i was sick for a while and i have acne....  I need a family doctor now and dont have one anymore for the time being....  is there any treatments that work for alopecia areata? thanks...

                                                                                              Kayla

Added by kayla on July 27, 2018 at 1:57am — No Comments

Treatment for Alopecia Areata

Hi 

  I havent really been doing treatments for my alopecia areata right now and its been 10 years, since I have alopecia.  I was kind of seeing a hair specialist and told me my hair is going to grow back but don't know when.  I'm thinking of starting treatments again so the whole process can be faster.  I had thyroid cancer and got stressed out and lost my hair bacause of stress.  Does any one know of treatments that work…

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Added by kayla on July 26, 2018 at 12:30am — 2 Comments

The worst summer of my life.

it’s been about a week since I found a quarter sized bald patch on my head. I had just showered and was in bed mindlessly playing with my hair when I felt a small patch of flesh. I immediately went to the bathroom to check and was completely horrified when I flipped my hair to examine. My heart sunk. I began breathing erratically and tears flooded my eyes. It felt like a nightmare. I couldn’t sleep for the rest of the night and told my mom when…

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Added by mars on July 25, 2018 at 12:53am — No Comments

Take part in a new research survey exploring out of pocket expenses for patients with alopecia areata.

Harvard Medical School is conducting a short survey about out of pocket medical costs associated with alopecia areata 

A research study being conducted by Brigham and Women’s Hospital is seeking to learn more about understanding the out of pocket expenses for patients with alopecia areata. …

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Added by JessicaStinkle on July 23, 2018 at 9:31am — No Comments

11 Years of Alopecia

Hello All,

What the journey we go through with this thing called alopecia areata.

I've just returned from the www.naaf.org conference and want to let you know that once again I had another, yes another wonderful experience of my life! 

I celebrated with old friends and met new friends. 

Thank you all for you being you!!!

Love and hugs!

Jeff

Added by JeffreySF on July 6, 2018 at 2:35am — 11 Comments

Ashwagandha/Anthony William of Medical Medium

Hello ---

I have not been on here for quite some time.  Still coping with the alopecia areata and it has been 10 years!  I still routinely get kenalog injections when spots occur and so far it has helped.  I would just like to find out how to stop this though, like many of us.

Recently a friend turned me onto Anthony William of Medical Medium.  Of course I checked to see if he talks about alopecia and he does.  He recommends Ashwagandha and I wonder if anyone has tried…

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Added by Georgie on June 6, 2018 at 3:34pm — No Comments

Eye Make-up for Alopecia Universalis

I love this community. It is helping me to accept my Alopecia Universalis. While I strive to get healthier in hopes of regrowing hair, I've found so many wonderful and caring people on this website who have helped me to accept the condition. I still hope that the autoimmune disease cures itself, but I'm not stressing out over it anymore. 

Today, I created a vlog on doing my make-up and getting ready in the morning. I don't bother with fake eyelashes. I don't have real ones to…

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Added by Melinda on June 2, 2018 at 5:00pm — 2 Comments

Autoimmune disorders and deficiencies—Hypothyroid and iron

Also, looking at auto-immune disorders, I have had excema since I was 12 and had rheumatoid arthritis from 1998-2004 (6 years).  

Added by Kathryn on May 26, 2018 at 12:23am — 1 Comment

I found my answer to my alopecia areata- my hair is completely back

Like the title said this is my answer and I came back to write about it so that maybe it could help at least one person. Everybody's answers going to be different but this is what I found out was the reason that I was losing hair. So I went and had an allergy test ran and my whole life I didn't know that I was allergic to anything. Well it turns out that I had an egg white intolerance so it is causing inflammation on my scalp and causing my hair to fall out. I went to about 20 different…

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Added by michellelc23 on May 22, 2018 at 8:39am — 7 Comments

Shampoo

I read in today's paper that someone who had alopecia claims that Watermans Grow me shampoo cured their Alopecia. Before I go rushing to buy some I thought I check with you on here to see if anyone has tried it. It could have just been a story to increase sales!!

Thanks

Sue

Added by Sue on May 16, 2018 at 3:43pm — 1 Comment

Dating was already hard, and then all my hair fell out in 1 year

  I am basically 6 feet tall (5' 11 1/2").  Dating was already hard because of my height.  Most guys are attracted to average height women.  I was shy and a very late bloomer--didn't start dating seriously until age 30. Over 10 years, I had one crappy or bad relationship after another.  Nothing lasted very long, was cheated on, etc. 

  2 years ago, I finally figured out the kind of man I really wanted.  I broke up…

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Added by Kathryn on May 15, 2018 at 11:04pm — 19 Comments

Disapointing Hair Piece

Hello my fellow Alopecians!

I want to share a story with you.  I ordered a hair piece with a grant I rcvd.  The vendor is located in North Texas and I am in Ga.  Took 5 weeks, no big deal it was custom.  I was so excited but when it came I was so dissapointed, wrong length, not quite the right color, wrong size (too big) and definetly the wrong texture!  I sent emails and phone calls with my complaints.  When I finally rcvd a reply they told me essentially the order was correct and…

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Added by Shelly on May 8, 2018 at 8:41pm — 2 Comments

My Personal Hair Loss Story

As a woman who has experienced hair loss for most of her life, I can tell you that it really does a number on your self-esteem.  I was in my teens when my first bald spots appeared due to alopecia areata which developed into alopecia universalis.  By my mid 20’s I was wearing wigs full time. Back in 1988 the options for “spare hair” were not nearly as plentiful or as nice as they are now, Hollywood celebrities weren’t talking about wearing hair, and if you were wearing wigs you probably…

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Added by Divoicer on May 8, 2018 at 9:30am — 1 Comment

Bald Woman Problems

I have lived with alopecia universalis for 9 years now. Yikes! All of my thirties were bald! In this video, I share some of the challenges that being bald can have that most people don't know about or even think about. 

First and foremost, let's talk about wigs. If you have more than one, people will notice,…

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Added by Melinda on May 8, 2018 at 9:30am — No Comments

Hot and tired

I am so so tired of wearing my wigs.  some days I'm over heated other days I am self conscious.  Other days I am depressed and embarrassed. Yesterday I went out to get my nails done, when I got home and took off my lace wig my head was soaking wet.  This morning I didn't even have the desire to put a wig on and go to work.  I just stayed home.  it's been many years but I still miss the days when I could get up and pull my hair back in a pony tail.  It's been over 20 yrs and I am still in…

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Added by Shelly on May 7, 2018 at 7:24pm — No Comments

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