Frida Rupert
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  • New South Wales
  • Australia
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Frida Rupert's Discussions

www.deox.com. Anyone tried and were you scammed?

Started this discussion. Last reply by Belmonto on Wednesday. 8 Replies

Hi, I am starting Xeljanz soon (bloods being checked etc). While looking online like we all do I came across this website offering it in a topical. I like many Alopecians are vulnerable to a scam,…Continue

Tofacitinib from overseas part 2

Started Jun 23, 2017 0 Replies

In addition I forgot to mention currrntly doing ddcp treatment, and have had oral steroids in 4 week pulses to no avail. Also take biotin, zinc, vit d, silica and collagen vitamins too.

Getting tofacitinib from overseas

Started this discussion. Last reply by Frida Rupert Jun 23, 2017. 2 Replies

I just joined the group after being in a bit of denial. I have had 3 episodes of AA - my first at 22, second at 26 and now at 34. I was very lucky the first few times and recovered in 6 months back…Continue

Tags: Tofacitinib

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Latest Activity

Frida Rupert and Alo Kiwi are now friends
8 hours ago
Belmonto replied to Frida Rupert's discussion www.deox.com. Anyone tried and were you scammed?
"If you want I can tell you couple of things about blockchain and crypto gambling in general. What'd you like to know?"
Wednesday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yay!!! So happy Carlie- your well on the road to recovery! Super happy!!!"
Nov 19
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Stay on it NY guy! It was 4/5 months for me- and yes- that’s even vellus hairs though in full disclosure I had a small thumb nail size patch that didn’t fall out on my scalp. I have had full regrowth. My hair now is a bit thicker then…"
Nov 11
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My side effects were minimal and I actually feel healthier on it then off.  I used to get bad and unexplained nausea through my twenties and into my thirties. That disappeared on these meds. Otherwise I got some indigestion for the first three…"
Nov 11
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Everything crossed for him! Totally understand the anxiety re dropping dose. Best of luck and what a great mum!"
Nov 7
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It took about 2 months from memory but I also started pulsing steriods not long after. Is there any more hair coming in? It could just be your body needs a bit more time. I was a relatively recent alopecian - as in I had gone Au only a few months (I…"
Nov 1
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Singh- have you started yet? Hoping to hear of your journey soon."
Oct 28
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Oh my goodness this is wonderful! Is he excited? It’s just so great to see how well he’s responded. And what a good dad he has!"
Oct 28
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin, Ill definitely take him that study. To be honest I’m comfortable being on xeljanz long term- it got rid of some persistent nausea that I had as well as beinging the hair back so I do feel better day to day on it, and the only reason…"
Oct 27
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Merry- that’s really sad about the insurance - there are some affordable options out there that have worked for others (pm for extra details if you like)- if insurance gives you a run around again that is. Though it maybe a blessing in…"
Oct 26
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you JG- that’s so kind. Funnily enough my hair is probably the healthiest it’s been since.    my high school days as I am not colouring it or overstyling. Once you’ve had no hair- if/when you get it back you…"
Oct 26
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"i feel so lucky to have responded as I have. Hopefully if something new is released it might be something that will bring your lashes back. I do use lumigan/careprost/latisse on the brows and lashes and I do think that helped. It’s great you…"
Oct 26
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I really hope anything in the pipeline comes out soon- I would be so happy to see those who haven’t had good luck with this med have an option."
Oct 26
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank god for the wonderful doctors out there who actually listen to us alopecians and are concerned with our quality of life mentally. I have been to a couple doctors who were extremely dismissive and inept, so I just thank all my lucky stars for…"
Oct 25
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Beth, I’m pretty sure the steriod pulse will push you to more growth plus maybe thinking of eventually going to 20 mg if you are able to. The shed slowing is a good sign and the steriods will probably take a month to fully kick in. I am…"
Oct 25

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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