Frida Rupert
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  • New South Wales
  • Australia
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Frida Rupert's Discussions

www.deox.com. Anyone tried and were you scammed?

Started this discussion. Last reply by MintDice on Friday. 14 Replies

Hi, I am starting Xeljanz soon (bloods being checked etc). While looking online like we all do I came across this website offering it in a topical. I like many Alopecians are vulnerable to a scam,…Continue

Tofacitinib from overseas part 2

Started Jun 23, 2017 0 Replies

In addition I forgot to mention currrntly doing ddcp treatment, and have had oral steroids in 4 week pulses to no avail. Also take biotin, zinc, vit d, silica and collagen vitamins too.

Getting tofacitinib from overseas

Started this discussion. Last reply by Frida Rupert Jun 23, 2017. 2 Replies

I just joined the group after being in a bit of denial. I have had 3 episodes of AA - my first at 22, second at 26 and now at 34. I was very lucky the first few times and recovered in 6 months back…Continue

Tags: Tofacitinib

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Latest Activity

Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Your progress looks great Mastros, and I’m hoping that you recover from your op quickly. Perhaps getting rid of the infection will help lower inflammation which may result in a few less patches- though the patches are not noticeable and give…"
Aug 1
Frida Rupert and Arsenalauba are now friends
Jul 31
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Cocopuffz, to a degree I agree. Some people have come off and retained hair, many, at this stage, cannot. My personal opinion is that xeljanz is a treatment, not a cure. Just like numerous other conditions that require ongoing treatment, blood…"
Jul 28
Frida Rupert and Devices561 are now friends
Jul 25
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Devices561, I’m not thinking of coming off until there is another effective treatment or other health reasons force me off (which I don’t anticipate.). I do think that after a long period of stability you can wean down, but this…"
Jul 23
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi TS,  That’s great results in 8 weeks! I think the response is different in everyone- some respond quickly but sparsely - ie they notice growth early but it takes ages to thicken up, other times it comes back in patches before filling…"
Jul 23
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Singh, from memory it took about a month, and the first signs were a fuzzy vellus hair all over my scalp. It also lengthened my lashes and brows (which I had stubble before I started the pulse). I think with scalp hair everything is kindof in 3…"
Jul 19
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is really great progress! In 6 months I think you’ll have it all back. It’s an amazing feeling to see the hair starting to grow and feeling the grip of this condition loosen on our lives! Very much looking forward to seeing your…"
Jul 16
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin I seem to have issues using the link- can you give me the name of the article and I will search jaad for it online and then get back to you with what it says and my thoughts on it."
Jul 14
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Margaret, I think to start off with just take the Tofacitinib on its own and wait 3 months or so before adding any steriods. If growth isn’t happening or you aren’t getting the coverage you’d like then add in a steroid pulse. I…"
Jul 14
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Mashloum- sorry it’s taken me awhile to get back to you. I think it sounds like a flare - others (including myself) have had temporary shedding or patches develop while on treatment. Some seem to surround triggers (stress, low iron,…"
Jul 14
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Cassidy, mine took 5 months to get started, but once it started around 4/5 months to a point where I had coverage thick enough to ditch my wig. Great to her of your growth so far and a new product in the works!"
Jul 12
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Alex/Daniel, thanks for the offer but a lot of us have a full head of hair from Beacon meds, which have been lab tested (twice independent test results with the active ingredient being very close to the Pfizer branded med) and cost a tiny fraction…"
Jul 12
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin, for some reason I can’t open the link- could you repost the link? I am  interested in reading the article. I have  thought that something that focuses on Jak 2 would be more effective, given slightly higher regrowth rates…"
Jul 12
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"hi Kathy- I generally just use vitamins from piping rock or ones with decent reviews on iherb. The supplement industry is problematic and I feel like expensive brands are often no better than budget. Unless we test them ourselves (expensive and not…"
Jul 10
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Device561 - yes I use generic. I used Pfizer for the first few months and then switched to generic, all of my hair growth has been on a generic version from Bangladesh. There are a few different ones out there but Beacon is the best for buying…"
Jul 10

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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