Frida Rupert
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  • New South Wales
  • Australia
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Frida Rupert's Discussions

www.deox.com. Anyone tried and were you scammed?

Started this discussion. Last reply by Frida Rupert Aug 1, 2018. 4 Replies

Hi, I am starting Xeljanz soon (bloods being checked etc). While looking online like we all do I came across this website offering it in a topical. I like many Alopecians are vulnerable to a scam,…Continue

Tofacitinib from overseas part 2

Started Jun 23, 2017 0 Replies

In addition I forgot to mention currrntly doing ddcp treatment, and have had oral steroids in 4 week pulses to no avail. Also take biotin, zinc, vit d, silica and collagen vitamins too.

Getting tofacitinib from overseas

Started this discussion. Last reply by Frida Rupert Jun 23, 2017. 2 Replies

I just joined the group after being in a bit of denial. I have had 3 episodes of AA - my first at 22, second at 26 and now at 34. I was very lucky the first few times and recovered in 6 months back…Continue

Tags: Tofacitinib

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Latest Activity

Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Maree, I don’t think it’s uncommon to have a patch appear, unfortunately the only real way to counter this is to take strong steroids as a pulse therapy, though I think it’s important to give it time to see if the spot…"
Jun 30
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"that’s wonderful NYguy! I know I go on and on about the time thing but honestly it can take more than 8/9 months to respond in the beginning and it’s so hard not to give up, especially if you are stuck paying the insane price for the…"
Jun 29
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Sara, yes their are a few who have used Tofacitinib on kids, most have similar success to adults and generally tolerate the medication well, the only thing I have noticed is that dosing is a bit unpredictable with kids and the results are a tad…"
Jun 6
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Jcortez, mine took a few months to get pigment. I remember it felt like a really long time to go from white fuzz to normal thick coloured hair, but it did happen. I suspect the longer the hair has been gone the longer it takes our hair follicles…"
May 20
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Carlie, I have had success with India mart but also failures. For the most part it’s come through fine, but I tend to think Beacon is the best option as their meds are tested and they have a history of success. I think you can look at…"
May 13
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks Joja! I am hopeful they will pull through this tough time, but expect they are probably inundated with orders for covid 19 related medication and are required to assist domestic supply in response to current shortages etc."
Apr 23
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Carlie, of late the best way to get in contact is to go onto the webpage and do a quick order. I got an order through about 3 or so weeks back but I suspect soon they will be told to focus on domestic supply to help counter covid 19 when it hits…"
Apr 22
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Sahel,  Have you seen any patches? There are people who do have relapses, most of these seem to pass with dose adjustment or just riding it out. I’ve had a few “sheds”, not noticeable to anyone but me, and I increased dose…"
Apr 3
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Looks great Carlie, and the minoxidil is working a treat!  I’m so excited for you. I’m not entirely sure what treatments are being used for the Covid 19 though I have read articles regarding the use of baricitinib in Europe and also…"
Apr 3
Frida Rupert and Jayc2112 are now friends
Mar 31
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Lori, I think patience is the hardest thing with this treatment - I needed 5 months, on 20 mg and a steriod pulse before it started happening for me. I now have full growth and have had full growth for almost 3 years. I always advise giving the…"
Mar 26
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That’s very interesting indeed! I don’t have any medical background but the fact children seem to cope better then adults makes me wonder about how much of the condition is worsened by over active immune response. The more an immune…"
Mar 21
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Merry, you can also pay into the bank account they include on the invoice though banks tend to charge exorbitant international fees so Kevin’s instructions are probably the best. I have been on Bangladesh meds for most of my journey (since…"
Mar 20
Merry and Frida Rupert are now friends
Mar 19
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Oh Merry , so sorry you are going through this. Does anyone in North America have extra stock they can spare or have moved on to another treatment and can provide some to Merry? I would send you some from here but I think australia to Us would take…"
Mar 18
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ok - so I haven’t responded re the Coronavirus as I am not a medical expert and my thoughts are not substitute for medical advice from a doctor. I believe, like maestros has kindly responded, will not impact many of us as significantly as…"
Mar 12

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Married
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 10:57am on January 1, 2020, Anisha said…

Hi Frida, Starshine told me you have been taking Tofacinix from Beacon Pharmacy in Bangladesh. Do you recommend this? My insurance company just cancelled my Xeljanz coverage and I'm looking for a more affordable alternative. Would love to hear about your experience with thi drug. Thanks!

 
 
 

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