Frida Rupert
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  • New South Wales
  • Australia
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Frida Rupert's Discussions

www.deox.com. Anyone tried and were you scammed?

Started this discussion. Last reply by codmench Jan 20. 9 Replies

Hi, I am starting Xeljanz soon (bloods being checked etc). While looking online like we all do I came across this website offering it in a topical. I like many Alopecians are vulnerable to a scam,…Continue

Tofacitinib from overseas part 2

Started Jun 23, 2017 0 Replies

In addition I forgot to mention currrntly doing ddcp treatment, and have had oral steroids in 4 week pulses to no avail. Also take biotin, zinc, vit d, silica and collagen vitamins too.

Getting tofacitinib from overseas

Started this discussion. Last reply by Frida Rupert Jun 23, 2017. 2 Replies

I just joined the group after being in a bit of denial. I have had 3 episodes of AA - my first at 22, second at 26 and now at 34. I was very lucky the first few times and recovered in 6 months back…Continue

Tags: Tofacitinib

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Latest Activity

Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Singh, Mainly I just follow what they generally say on the bottle, however I am so forgetful that sometimes I take them at night after shower as that’s when I’m thinking about hair. If they say spwcficallly take with food and…"
yesterday
Frida Rupert and TC are now friends
yesterday
Frida Rupert and Radhwan are now friends
Sunday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Radhwan, you maybe able able to get xeljanz via your doctor however unless covered by insurance or a government scheme it’s usually prohibitively expensive. Some of us have found a generic that seems to work, and is reasonable easy to…"
Sunday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi mscoops, it defintely comes in oral. Have a shop around at some other pharmacies - it seems quite unpopular in the western world but commonly used in parts of Europe and Asia. It’s often given to women who for whatever reason need to give…"
Sunday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi mscoops, it defintely comes in oral. Have a shop around at some other pharmacies - it seems quite unpopular in the western world but commonly used in parts of Europe and Asia. It’s often given to women who for whatever reason need to give…"
Sunday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Serg, im sorry xeljanz wasn’t for you. It’s very individual what we feel comfortable with. I do very much hope more treatments will come out for us soon. I gained weight on xeljanz but not to the extent were it was unhealthy or too…"
Friday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I had mine micro bladed prealopecia to enhance shape etc, that was a god send when alopecia hit and the hair just regrows over no probs- just super shapely brows. The only issue I could imagine would be if the hair is significantly lighter or darker…"
Feb 14
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Starshine- gorgeous! Thanks for sharing and being a pioneer! Without the early contributors on this forum in particular many of us would be living a very different experience! "
Feb 13
Frida Rupert left a comment for LJBMD
"Hi LJBMD, happy to chat re meds etc. I’m not a science expert but have read a heck of a lot of the studies etc due to personal self-interest. I really feel for parents who have to watch their kids go through this, I have two kids,5 and 7, -…"
Feb 12
Frida Rupert and LJBMD are now friends
Feb 11
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s doing the same thing when I try to hit reply too!  Must be the site. I think the fact the tingling isn’t as bad as last time would have to mean that the inflammation isn’t nearly as serious so the loss wont be as…"
Feb 11
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carlie- you look amazing! Such great progress- I’m so happy that the terrible 3 year experience of AU is coming to an end and now it will be just maintaining. I do think, even when we get all our hair back, and even without any relapses etc…"
Feb 9
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi New Jack- that the burning stopped is great news. It can take a while to see the white vellus hairs so they might be getting ready to pop out. I am confident you will get it all back and not lose too much BUT I know very well how devestatingly…"
Feb 8
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat (and Singh), firstly Nat- ask your doctor about betamethasone pulsing- it’s not popular in the western world as a steriod for most conditions but all studies seem to indicate of all the modern steriods it has the best rate of success…"
Feb 8
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks TC, I think it is kindof slowing, it’s weird as it’s not outside of the shed I used to have before pre-alopecia and didn’t think twice about. But it’s definitely more then what was coming out a month ago (which was…"
Feb 5

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Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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