Frida Rupert
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  • New South Wales
  • Australia
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Frida Rupert's Discussions

www.deox.com. Anyone tried and were you scammed?

Started this discussion. Last reply by Jonathan Holland Apr 11. 10 Replies

Hi, I am starting Xeljanz soon (bloods being checked etc). While looking online like we all do I came across this website offering it in a topical. I like many Alopecians are vulnerable to a scam,…Continue

Tofacitinib from overseas part 2

Started Jun 23, 2017 0 Replies

In addition I forgot to mention currrntly doing ddcp treatment, and have had oral steroids in 4 week pulses to no avail. Also take biotin, zinc, vit d, silica and collagen vitamins too.

Getting tofacitinib from overseas

Started this discussion. Last reply by Frida Rupert Jun 23, 2017. 2 Replies

I just joined the group after being in a bit of denial. I have had 3 episodes of AA - my first at 22, second at 26 and now at 34. I was very lucky the first few times and recovered in 6 months back…Continue

Tags: Tofacitinib

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Latest Activity

Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi guys- so here are some photos from today. I’m not really a photo girl but was going out for an occasion and  wanted to see what my outfit looked like. My first vellus hairs were around dec 17/Jan 18 and full regrowth by mid 2018. I had…"
11 hours ago
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Mine came back curly too! I’m having to learn how to style it in ways I’d never had to before. But it’s thick and I’m so grateful. Totally understand the anxiety - but I found with myself the longer I had the hair the less…"
Sunday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin, sorry i I missed this post. Baricitinib May help but be vigilant in looking after yourself as not as much testing has been done on it, but as it targets Jak 2 which seems to be a very strong pathway in alopecia than it could be helpful,…"
Saturday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sad Rapunzel, New Jacks hair is lovely you are very right but he actually went AU, so no hair, before he got treatment and had a great outcome.  These are the results of treating the condition, not all achieve 100% regrowth but many do. His…"
Saturday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Looking good NewJack!"
Apr 18
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Oh Mashloum - that is amazing! He has such beautiful hair. This makes me so very happy. Got happy tears in my eyes! Good job Mashloum! You have been a great father and advocate for your boy."
Apr 14
Jonathan Holland replied to Frida Rupert's discussion www.deox.com. Anyone tried and were you scammed?
"I do not think it is worth trusting any obscure enterprises. The method of payment should always be clear and publicly available. I always use the services of sites like this https://rocketpayz.com/paypal-casino-usa/ where there is an…"
Apr 11
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Cassidymain, sorry dor delay in response- firstly I reckon get a full blood panel if you haven’t already- especially thyroid as many on here have thyroid issues as well and sorting out those will help a lot. I personally take biotin,…"
Apr 8
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Pm me football fan...."
Apr 5
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Singh  i did betamethasone (oral) 2 consequetive days a week at 5mgs per day, took me about 3 months to get full coverage on scalp from the commencement of pulsing. Other treatment regimes I’ve heard of is a similar process with…"
Apr 3
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You look amazing Beth! I bet it feels so good to be out in the air feeling that breeze on your head. I’d forgotten how good it felt when I was in wigs and hats and then those first few months -it was lovely:).  Always overjoyed to see…"
Apr 3
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi SR, it varies vastly on the individual. Some get good results in 4/6 weeks, others around 3 months, some take up to 6 months +. Dosing and cotherapies are sometimes helpful to getting the regrowth happening and then can be weaned down or off.…"
Apr 2
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"yes there are some on here that have used it on this forum, most with good results or results comparable with xeljanz. It’s been tested by a forum member at 4.2 mgs vs 5 mgs in the Pfizer brand but still very cost effective. Read back through…"
Apr 2
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi NewJack, I’m sorry you are going through all this stress. One thing I always think when I look at your photos is how amazingly thick your hair is, however given your experience with AU, I know spots are super scared regardless of the…"
Apr 2
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I agree Rascal2. Many on here have tried diets and religiously followed them for years with no progress. Being healthy in your food choices and knowing what you body runs well on is important but unless your body was going to go into remission…"
Mar 21
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapinzel, i think that it is it is more likely to be TE, unless you have a spot where it is totally bald.  That should be encouraging as TE can be resolved within months when the underlying cause is dealt with. To me it sounds as though…"
Mar 20

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Alopecia areata
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