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TC's Discussions

Low Ferritin in AA/AU patients

Started this discussion. Last reply by youarebeautiful Nov 23, 2018. 2 Replies

Hey All, I met a pretty sharp Dr. a few weeks ago. He mentioned that it's very common for AA/AU patients to have low ferritin (iron stores).In simple terms, Ferritin is a protein in our cells where…Continue

Hi, my story. Need advice.

Started this discussion. Last reply by Mohit Nov 1, 2018. 21 Replies

Hi All, I've been reading this forum since last Nov 2017, and almost feel like I know some of you here so thought I would join the community and introduce myself.I've always been an athletic guy, in…Continue

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Latest Activity

TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sounds like you may have a respiratory tract infection which is pretty common with Xeljanz. The body produces eosinophils, which in this case cause inflammation in the respiratory tract, to isolate and deal with the infection. The narrowing of…"
Jun 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida,  Awww thanks. I feel the same way about you, and your contributions here, so we're sort of stuck with each other :) I think I've mentioned this before, but we really need a group hug button!"
Jun 6
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"How elevated?  Could be something as benign as your body fighting a parasitic infection, fungus, or allergies.  "
Jun 5
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey guys, Sorry, I didn't mean to ruffle any feathers. I had had a glass of wine (ok maybe 2) after a long day which usually makes me color outside the lines. Please forgive me :)  Like I said, I'm very grateful for Tofacitinib, and…"
Jun 5
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Just some random thoughts... Although we're grateful to the research & medical communities that developed them, JAKS are only a short term temporary band-aid for now. We shouldn't and can't stay on them for long, or we'll be…"
Jun 3
TC replied to Diana's discussion High Potassium levels whilst taking Tofacitinib
"That's great news Diana. Glad you're doing well.  Thanks for taking the time to post an update. It's helpful for others in similar circumstances. Keep well :)"
Jun 3
TC replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"Spironolactone (Aldactone) is sometimes used off label as an anti-androgen/hormone regulator for some types of female hair loss. For her to prescribe it, she would have had to review your blood work, especially your hormone test results.  Did…"
May 16
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida,  You'll want to give your body the best chance to prevent any complications or issues. Consider pausing Tofacitinib 7 days before surgery. It's very important to also pause Resveratrol because of its blood thinning…"
May 16
TC and Sad_Rapunzel are now friends
May 2
TC replied to Diana's discussion High Potassium levels whilst taking Tofacitinib
"Diana,  Sorry I meant to ask you how your creatinine (CK) levels are? This should give you a good how well or not your kidneys are handling Tofacitinib."
May 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Smitty,  Discussed this only very briefly, but from what I gathered treatment duration varies by patient. Some can taper off slowly, while others need to maintain dose...so no big news here.  I asked about his thoughts on generic…"
May 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi carol,  He prescribed 10mg pills to halve or quarter. Mainly because he said they cost less. He said you can take 5mg once per day or quarter the 10mg pills to 2.5mg BID if you prefer. I think it 's better to take 2.5mg BID since the…"
May 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I finally met with the man himself who made this all possible for many us, Dr. Bret King at Yale. I thought I'd share some of what I learned from our meeting. We discussed Xeljanz/Tofacitinib response rates he's observed in his studies…"
May 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapunzel, I found a site for women run by women who have or had amenhorea and hair loss that you might want to check out. They also have a facebook support group so you can chat with women going through similar issues. Remember...stay…"
May 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"From your post in your other thread, you mentioned Dr. Bordone told you it was TE, so I'm somewhat confused. There isn't a specific blood test to diagnose auto-immune alopecia (AA/AU/AT). You've been on antidepressants that can cause…"
May 1
TC replied to Diana's discussion High Potassium levels whilst taking Tofacitinib
"Potassium range can vary by lab, but generally 3.5-5.5. At 5.7 it's just slightly above, and most probably nothing to be concerned about, but it's good that you're on keeping a close eye on your lab work. Another thing that can cause…"
May 1

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