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TC's Discussions

Low Ferritin in AA/AU patients

Started this discussion. Last reply by youarebeautiful Nov 23, 2018. 2 Replies

Hey All, I met a pretty sharp Dr. a few weeks ago. He mentioned that it's very common for AA/AU patients to have low ferritin (iron stores).In simple terms, Ferritin is a protein in our cells where…Continue

Hi, my story. Need advice.

Started this discussion. Last reply by Mohit Nov 1, 2018. 21 Replies

Hi All, I've been reading this forum since last Nov 2017, and almost feel like I know some of you here so thought I would join the community and introduce myself.I've always been an athletic guy, in…Continue

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Latest Activity

TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida - Happy New year with lots of healthy shiny hair! Your discovery with the compounded minox with retin A and azaelic acid is very interesting.  I think Nizoral is a pretty simple but effective treatment to control seb derm and…"
Jan 1
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey, Minocycline would have reduced the burning sensation, so that would line up. But it's pretty harsh on the system (like dropping a nuclear bomb) so not sustainable long term.  Seb derm (SD) becomes more difficult to manage when on…"
Dec 31, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"If you had seb derm on your face, it's likely that you also have it on your scalp. It's mild, so no big deal, and easily kept under control.  I just backed up on the thread to try to find one of your older pics and noticed you…"
Dec 28, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"From the pics, it looks like seb derm. Everyone has the yeast on their scalp, oily parts of skin, and face. Our immune system usually keeps the yeast controlled, but when we're sick, stressed, or on a med like tofa that reduces lymphocytes,…"
Dec 28, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi NewJack,  You're not imagining things and you're not being paranoid. There's some very slight thinning on the side, and around the neckline, I really don't think it's your AU.  Your scalp is somewhat…"
Dec 28, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi All,  Came across an article posted just yesterday from a Yale study on the success of combination therapy of Tofacitinib & oral minoxidil. Sounds…"
Sep 19, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I came across this dermatology article on Tofa. https://www.aad.org/dw/dw-insights-and-inquiries/2019-archive/april/tofacitinib-a-jak-inhibitor-of-all-trades  Found this interesting; According to Ciechanowicz et al, tofacitinib is a reversible,…"
Sep 3, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Either way you needed to address the infected teeth, and at least you eliminated a potential issue down the road, so all good. I've been tracking my bloodwork (every 2 months) for the last 3 years on a spreadsheet. Something interesting I…"
Aug 1, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi,  Sorry you're going through this. We all know how difficult and traumatizing it can feel. You're not alone here. At least take comfort in knowing that you do respond fully to Jakavi.   2 months on Xeljanz is too early to…"
Aug 1, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Mastros,  Good to hear from you. Sorry you're going through a rough patch. Agree with your thoughts on Dr. King. He's a great doc and a wonderful caring person. Interesting thoughts on the wisdom teeth infection. There's been…"
Jul 31, 2019
TC updated their profile
Jul 30, 2019
TC and LJBMD are now friends
Jul 29, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sorry the gut doesn't have anything to do with it in this case. I don't mean to lock horns with you but this while "Leaky Gut" BS is just fabricated internet fantasy to sell books and supplements. It doesn't exist as in…"
Jul 29, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Actually, your gut had little to do with it. The underlying issue antidepressants cause is adrenal failure and thyroid disfunction. I don't know if you ever had your DHEA tested while in withdrawl but it was probably that of a 90 year old man.…"
Jul 29, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"If you were diagnosed without a biopsy, the dermatologist just guessed it was AA because that's all they can go without one. The reality is that most antidepressants including Paxil can cause massive hair loss, including head, eyebrows and body…"
Jul 29, 2019
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Cocopuffz,  What makes you believe that you actually have/had AA/AU? Did you ever have a biopsy to confirm this? I don't want to steal your thunder, but have you ever considered that your hairloss & other issues were actually caused by…"
Jul 29, 2019

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