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TC's Discussions

Low Ferritin in AA/AU patients

Started this discussion. Last reply by youarebeautiful Nov 23, 2018. 2 Replies

Hey All, I met a pretty sharp Dr. a few weeks ago. He mentioned that it's very common for AA/AU patients to have low ferritin (iron stores).In simple terms, Ferritin is a protein in our cells where…Continue

Hi, my story. Need advice.

Started this discussion. Last reply by Mohit Nov 1, 2018. 21 Replies

Hi All, I've been reading this forum since last Nov 2017, and almost feel like I know some of you here so thought I would join the community and introduce myself.I've always been an athletic guy, in…Continue

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Latest Activity

TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Courageous Rapunzel :) I totally get how you're feeling and why you're cynical. Remember that most of us here are going through the same issues and feelings so we're all in this together. What I told you about my friend is completely…"
yesterday
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"LOL! no not even a Yoga instructor :) Like most people here, this has been a long and difficult experience for me. But at some point, you realize that no matter what medical treatment path is out there, you have to help yourself heal yourself from…"
yesterday
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Quand quelqu'un est fragile, il faut être doux et patient."
Wednesday
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapunzel (notice I left out the sad) :) Thank you for sharing your pics. I know and understand how hard it was for you to post your pics, but consider it a first courageous step to healing...step by step. So now you have change to change your…"
Wednesday
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rapunzel (notice I left out the sad) :) Thank you for sharing your pics. I know and understand how hard it was for you to post your pics, but consider it a first courageous step to healing...step by step. So now you have change to change your…"
Wednesday
TC replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Woohoo congrats Nat!! :) So happy for you! Look at all that hair!! Enjoy every minute of it. Have you started thinking of a hair style?"
Tuesday
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Don't be sorry. You're among friends here. We're all going through the same things. It causes a lot of emotions, especially sadness.  Just know you're not alone here and you never will be as long as you're willing to…"
Tuesday
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Isn't Ruxo JAK 1 & 2 whereas berberine is JAK 3? Resveratrol + Curcumin + Quercetin might be worth looking at. "
Mar 14
TC replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"We really need a group hug button :)"
Mar 12
TC replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole, I'm so happy for you ! :))))) You're the sweetest and kindest soul, always ready and willing to help everyone. You've shared and documented your journey so well to help others, and even found an alternate low cost…"
Mar 10
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's either or. They don't have to be in combination. Both affect the GABA receptors similarly.  The reason he knows this is because during research they initially thought a drug was causing hair loss in patients, but it turned out…"
Mar 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Actually scratch that. The ones I take are 600mg Resveratrol (50% trans 300mg). It's important to stop taking them at least a week before any surgery or procedure that could cause bleeding. "
Mar 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Lindzzej  TE=Telogen Effluvium "
Mar 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The ones I take are also 600mg.  "
Mar 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ok, that's great. Do you find yourself looking for a White Castle at 2am? LOL The reason why I asked is because my bio-chem friend was saying that almost 25% of patients that take benzos (Valium, Xanax, Klonopin, Ativan et al) & z-drugs…"
Mar 7
TC replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey NewJack,  Thanks bud, really appreciate the support. So grateful for the wonderful people in this forum. I hope we can all celebrate together someday. It's hard to tell if there's any new vellus hairs on my scalp because there…"
Mar 6

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