LJBMD
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  • Cockeysville, MD
  • United States
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LJBMD's Discussions

Shipments from Beacon

Started this discussion. Last reply by LJBMD Apr 30, 2019. 12 Replies

 I ordered Tofacitinib  from Beacon a few weeks ago and it has been at JFK since April 10. Is anyone else having trouble getting their shipments from Beacon? Continue

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Latest Activity

Bob and LJBMD are now friends
Feb 13
LJBMD replied to NicoleT's discussion Xeljanz from India
"I ordered from Beacon In Bangledesh. Mine has been sitting at JFK since 1/26/20. I know someone who lives in Florida who ordered after me and she got hers yesterday. I just don’t get it. So, I placed another order online yesterday but I have…"
Feb 11
LJBMD replied to NicoleT's discussion Xeljanz from India
"I am trying to place another order through Beacon....I have emailed them twice and I still have not heard back from them. I have placed three orders with them since February and they usually get back to me within 24 hours with instructions. Is…"
Jan 10
LJBMD left a comment for AlopeciaDestroyedMyLife
"To Alopeciadestroyedmylife: How are you doing now? Are you still on xeljanz? "
Sep 28, 2019
LJBMD replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I completely agree. The faster you intervene, the faster the regrowth and more likely to be pigmented "
Aug 24, 2019
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have found that 20 boxes is a good number. It’s a large enough order so it is worth their time, but the one time I ordered 30 boxes it sat in customs for 40 days. "
Jul 26, 2019
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
" I literally cannot wait for the results of this trial "
Jul 12, 2019
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That is excellent! Pfizer just extended PF06651500 to a trial with 860 participants. They are testing the medication for long term use now. This means they think it works and they think it’s is safe. "
Jul 12, 2019
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi: which company is doing this trial? Thank you "
Jul 12, 2019
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"CTP-543 is Concert Pharma’s deuterated ruxalitinib. They are in a patent war with Incyte about it.  Nevertheless, they are proceeding with clinical trials which is great because as my doctor said “ruxalitinib grows hair like…"
Jul 10, 2019
Chi_Loss left a comment for LJBMD
"Hi! Happy to chat when you have time.."
Jul 10, 2019
LJBMD replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Your derm makes more money giving you injections. I’d consider a different doc...."
Jun 20, 2019
LJBMD commented on Cheryl, Co-founder's video
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PURE short film (by Stephan Eigenmann)

"I cried. Thank you for sharing. "
Jun 10, 2019
LJBMD liked Cheryl, Co-founder's video
Jun 10, 2019
LJBMD and Nor75 are now friends
May 2, 2019
LJBMD replied to LJBMD's discussion Shipments from Beacon
"That’s very funny!  No....it’s like going into a black hole. "
Apr 30, 2019

Profile Information

Relationship Status:
Married
About Me:
I have joined this group on behalf of my daughter who is almost 16 years old
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 12:13pm on July 10, 2019, Chi_Loss said…

Hi! Happy to chat when you have time..

At 2:17am on February 12, 2019, Frida Rupert said…

Hi LJBMD,

happy to chat re meds etc. I’m not a science expert but have read a heck of a lot of the studies etc due to personal self-interest. I really feel for parents who have to watch their kids go through this, I have two kids,5 and 7, - and while going AU myself was hellish, watching either of them suffer this would be worse. Any info I can give to guide or ease your concerns I’ll do my best!

 
 
 

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