LJBMD
  • Female
  • Cockeysville, MD
  • United States
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LJBMD's Friends

  • Alopecia Strong
  • Ron'smom
  • Sarahmiller90
  • NicoleT
  • Newjack
  • Frida Rupert
  • Cocopuffz17

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Latest Activity

LJBMD replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"What rheumatologist do you go to?"
yesterday
LJBMD and Alopecia Strong are now friends
yesterday
LJBMD is now friends with Ron'smom and Cocopuffz17
Sunday
LJBMD replied to Starshine's discussion Trying to cope with diffuse AA
"Hi starshine: do you live in Maryland? I sent you a friend request "
Sunday
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Wow. I did not know that was an option, what is the advantage to doing that. I will be starting xeljanz very soon and I’m curious about dosing options "
Sunday
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Carlie: would you mind sharing your second source? Thank you!"
Saturday
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"How can you take !6 mg?"
Saturday
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Carlie: are you saying that she has a patient who is on 10 mgs but is getting spots no that dose? And is she saying that most people new to be on 15 mgs in order to get regrowth? is the affordable solution you are referring to xeljanz? "
Friday
LJBMD replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Yes. In fact we just saw a doctor in New York on Thursday. She was the first to offer us some hope. Now, we need to get xeljanz ASAP! "
Mar 9
NicoleT and LJBMD are now friends
Mar 9
LJBMD replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you so much for the update and for taking the time to post your progress. We want to start our 16 yo on xeljanz, but the cost is prohibitive. We are trying to get it from Beacon. Do you still feel that ordering from them is safe? Are you…"
Mar 9
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank  you for the information. I thought we were not allowed to order more than 6 months at a time? I’m happy to buy as much as they’ll sell..."
Mar 8
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I contacted beacon yesterday to order xeljanz; this is our first time. I have not heard back from them and it is stressing me out. Does anyone know how long it usually takes them to get back to you?"
Mar 8
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Brock - you have lost hair on Xeljanz?"
Mar 6
LJBMD replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes. It’s concerning "
Mar 5
LJBMD commented on Mikki's blog post Alopeica Areata or Telogen Effluvium?
" This is very interesting. Would you consider going on a prophylactic immunosuppressant at that time of year to try to decrease the shedding? Just a thought?"
Mar 3

Profile Information

Relationship Status:
Married
About Me:
I have joined this group on behalf of my daughter who is almost 16 years old
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 2:17am on February 12, 2019, Frida Rupert said…

Hi LJBMD,

happy to chat re meds etc. I’m not a science expert but have read a heck of a lot of the studies etc due to personal self-interest. I really feel for parents who have to watch their kids go through this, I have two kids,5 and 7, - and while going AU myself was hellish, watching either of them suffer this would be worse. Any info I can give to guide or ease your concerns I’ll do my best!

At 7:03am on February 2, 2019, Joyce said…

Good Day,

How is everything with you, I picked interest on you after going through
your short profile and deemed it necessary to write you immediately. I have
something very vital to disclose to you, but I found it difficult to express
myself here, since it's a public site.Could you please get back to me on:
(mrsstellaabudheir200@gmail.com ) for the full details.

Have a nice day

Thanks God bless.

Stella.

 
 
 

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