Return_life
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Return_life's Discussions

Canadian doctor prescribing xeljanz???

Started this discussion. Last reply by sammy Jan 9, 2016. 1 Reply

Hi,Can anyone let me know if they are aware of a doctor in Canada who prescribes xeljanz? Needs to be Canadian so the pharmacy sell it to me.Pm me or write it on the thread, it could helpany…Continue

Tags: doctor, Canada, Xeljanz

Canadian doctor prescribing xeljanz?'

Started Jan 8, 2016 0 Replies

Hi, am sure most of you are aware of the news drugs that could help treating alopecia. All the xeljanz friendly doctors I know are located in the US. Because I am in Canada, I need my medications…Continue

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Latest Activity

Return_life replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I did 3 things: 1) Xeljanz ( didn't work, only stopped nail pitting) 2) xeljanz again 2 months later I stopped first time ( worked 99%).  3) ruxo because xeljanz gave me acne. ( ruxo worked also) "
Aug 20
Return_life replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Yeah am on ruxo now. It's been at least 1.5 years I think We dont understand how immune system function. Lmao we dont even know where it is! In your foot? Stomach area?  Hoping your immune system resume to normal... I see what you mean. In…"
Aug 20
Return_life replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Alopecia isnt stable. U could have suddenly higher inflammation. Sometimes lower... that's why some people have regrowth even without medicine.  So the tipping point, unfortunately,  isnt stable either. Some people have relapse…"
Aug 20
Return_life replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Based yourself on other biologics and disease. RA, Chrons etc, are similar to alopecia. it's not rare that after 10 years u have to switch drugs. For example they go from humira to enbrel or remicade, etc... Some try to increase the dosage but…"
Aug 20
Return_life replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Anyone who recommends tapering down is clueless. Even with same dosage the disease can hit back so imagine tapering down.  Data of biologics medication show that we become tolerant to the drug, so even if you like the tapering strategy it…"
Aug 19
Return_life and Nar Nar are now friends
Aug 19

Profile Information

Relationship Status:
Single
About Me:
30 years old male checking in...
Great career, good life. I am not depress by this at all but it was tough as hell in the beginning. Just curious to meet other people like me!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:15am on October 17, 2017, Frida Rupert said…

Hi return to life,

thanks for answering my questions and befriending me. Tough times with this stupid condition. As I said in the comments- I'm well into month 3 (week 11) on xeljanz and the results are so far a bit depressing. I think i am a responder as body hair and eye lashes are beginning to come back but my scalp is only showing   little improvement.

I am from Sydney Australia and unless you have arthritis then Xeljanz is somewhat expensive ($1300 AU  a month). I am lucky because my sister is a diplomat and worked for a while in India, so I was able to import some in (I have scripts from both an Aussie doctor and an Indian doctor) with her contacts that is still expensive but less then Australian prices ($US460 for 60 (5 mgs). I'm currently getting 3 months worth sent over and then get 8 months (of 10 mg a day) over in December as my brother in law does aid work there so is going to bring me the balance of 12 months worth (after the stuff I've used). If i go up to 20 mgs I kind-of have to wait til January when my BIL gets back but I've upped myself to 15 mgs and will subsidize my India load with some bought in Australia. I am going to plan on returning to India in 2018 to resupply and then I hope like hell the generics come to market.  

I've only been AT/AU for 6-7 months before I started and have had two very minor spotty episodes in my early twenties (am 35 now). I'm just so hopeful this will work. For me, yes some of it is vanity- when my hair is "normal" its thick and brown and I've always worn it long so this truely sucks but what people who don't have AU/AT don't realise is that its a pain in your ass- you get stuff in your eyes, your head gets hot/cold, you get massive anxiety...so for me finding a solution is my number one aim (after being a good mummy- which is hard to do when you feel so crap). Anyhow thanks so much for your advice.

I'm hoping one the patent expires we get flooded with cheap generics and then we can all go to a optimal dosage based on our bodies needs as opposed to be dictated by our bank balance..

Again Thanks for responding. Its hard at the beginning not knowing if its gonna work or not (I tried Methotrexate, Cyclosporine and prednisone and topical steroids prior to started on xeljanz - they didn't work hence my shift to xeljanz, luckily my bloods are continuing to be perfect but the roller coaster of ups and downs is getting hard to ride....).

Frida (Deb)

At 4:07pm on June 16, 2017, Sara said…
Shomare telephon man dar telegram
09107427390
At 4:05pm on June 16, 2017, Sara said…
Salam
Barname telgram darid?
Baray sohbat?
At 9:39pm on February 12, 2017, Stars-r-Aligned said…
Hey, I saw your message...however....I have androgenetic alopecia...the kind that's genetic pattern baldness...I don't think anything will help my hair.
At 12:21am on February 10, 2017, ejeffw said…

Hi, nice to meet you. 

At 4:48pm on December 1, 2016, Finley said…

Hi, nice to meet you!

 
 
 

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