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Return_life's Discussions

Canadian doctor prescribing xeljanz???

Started this discussion. Last reply by sammy Jan 9, 2016. 1 Reply

Hi,Can anyone let me know if they are aware of a doctor in Canada who prescribes xeljanz? Needs to be Canadian so the pharmacy sell it to me.Pm me or write it on the thread, it could helpany…Continue

Tags: doctor, Canada, Xeljanz

Canadian doctor prescribing xeljanz?'

Started Jan 8, 2016 0 Replies

Hi, am sure most of you are aware of the news drugs that could help treating alopecia. All the xeljanz friendly doctors I know are located in the US. Because I am in Canada, I need my medications…Continue

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Latest Activity

Return_life replied to DJ88's discussion Terrible looking eyebrow wigs came in the mail today...
"Eyebrow wigs for men always look terrible once u receive them."
Nov 11, 2018
Return_life replied to NicoleT's discussion Tofacitinib Results after 7 Month
"I know... contact me By the way there are plenty.. u didnt search. Its not 2016 anymore ehheeh"
Nov 11, 2018
Return_life and TC are now friends
Nov 11, 2018
Football fan and Return_life are now friends
Sep 10, 2018
Return_life replied to NicoleT's discussion Xeljanz from India
"Moi je suis avec ruxo. Je peux pas me plaindre serieux c est tres tres bien.   Pas parfait parfait mais tout de meme tres bien"
May 28, 2018
Return_life replied to NicoleT's discussion Xeljanz from India
"J ai vu tes photos. Ta repousse est un bon debut. L important est que la progression continue au meilleur en gardant les effets secondaires au minimum. Chacun a un dosage optimal... Comment va ton mal de ventre?"
May 26, 2018
Return_life replied to NicoleT's discussion Xeljanz from India
"Btw did u started xeljanz again? Ur having regrowth?"
May 25, 2018
Return_life replied to NicoleT's discussion Xeljanz from India
"Am not sure if I understand it correctly... it's late and am tired but what you buy is not a generic I believe. It's a biosimilar or the same tofacitinib molecule a company is selling to direct customers. Legally these companies…"
May 24, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Methotrexate is often used in autoimmune diseases. For severe cases of Alopecia I believe methotrexate has very little responder rate. On the other hand the sides are pretty common. "
Apr 10, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Big hug. We are stronger together"
Mar 25, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Exactly. That's also when u have a cold or a flu usually the symptoms are stronger in the evening.  Same reason why people with the 11mg pill take it in the morning . Personally I always spread it evenly. Morning and evening."
Mar 25, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This is beautiful. God bless!"
Mar 23, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Tactupump C est assez cher mais t en Mets tres peu. Ca brule et ca seche un max. Mais c est tres efficace"
Mar 12, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I initially tried xeljanz for 7 months with the regular 10-15 mg per day... after 7 months multiples doctors ( not random Dr, am talking about Dr with huge reputation in the alopecia community) told me I was a non responder.  3 months later I…"
Mar 12, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Continues avec la plus basse dose tant que tu as de la repousse... C est un long processus parfois mais il vaut mieux avoir une vision long terme.  J ai augmenter la dose graduellement... le seul effet secondaire que j ai eu c est de l acne…"
Mar 10, 2018
Return_life replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Exact c est bcp mais en meme temps ca a ete necessaire. Pas oblige de rester toujours a 60mg... j ai rebaisser. Avec il2 ton systeme etait deja aux aguets. Je suis certain que tu as bien fais de commencer xeljanz. Tiens nous au courant"
Mar 10, 2018

Profile Information

Relationship Status:
Single
About Me:
30 years old male checking in...
Great career, good life. I am not depress by this at all but it was tough as hell in the beginning. Just curious to meet other people like me!
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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At 3:15am on October 17, 2017, Frida Rupert said…

Hi return to life,

thanks for answering my questions and befriending me. Tough times with this stupid condition. As I said in the comments- I'm well into month 3 (week 11) on xeljanz and the results are so far a bit depressing. I think i am a responder as body hair and eye lashes are beginning to come back but my scalp is only showing   little improvement.

I am from Sydney Australia and unless you have arthritis then Xeljanz is somewhat expensive ($1300 AU  a month). I am lucky because my sister is a diplomat and worked for a while in India, so I was able to import some in (I have scripts from both an Aussie doctor and an Indian doctor) with her contacts that is still expensive but less then Australian prices ($US460 for 60 (5 mgs). I'm currently getting 3 months worth sent over and then get 8 months (of 10 mg a day) over in December as my brother in law does aid work there so is going to bring me the balance of 12 months worth (after the stuff I've used). If i go up to 20 mgs I kind-of have to wait til January when my BIL gets back but I've upped myself to 15 mgs and will subsidize my India load with some bought in Australia. I am going to plan on returning to India in 2018 to resupply and then I hope like hell the generics come to market.  

I've only been AT/AU for 6-7 months before I started and have had two very minor spotty episodes in my early twenties (am 35 now). I'm just so hopeful this will work. For me, yes some of it is vanity- when my hair is "normal" its thick and brown and I've always worn it long so this truely sucks but what people who don't have AU/AT don't realise is that its a pain in your ass- you get stuff in your eyes, your head gets hot/cold, you get massive anxiety...so for me finding a solution is my number one aim (after being a good mummy- which is hard to do when you feel so crap). Anyhow thanks so much for your advice.

I'm hoping one the patent expires we get flooded with cheap generics and then we can all go to a optimal dosage based on our bodies needs as opposed to be dictated by our bank balance..

Again Thanks for responding. Its hard at the beginning not knowing if its gonna work or not (I tried Methotrexate, Cyclosporine and prednisone and topical steroids prior to started on xeljanz - they didn't work hence my shift to xeljanz, luckily my bloods are continuing to be perfect but the roller coaster of ups and downs is getting hard to ride....).

Frida (Deb)

At 4:07pm on June 16, 2017, Sara said…
Shomare telephon man dar telegram
09107427390
At 4:05pm on June 16, 2017, Sara said…
Salam
Barname telgram darid?
Baray sohbat?
At 9:39pm on February 12, 2017, Stars-r-Aligned said…
Hey, I saw your message...however....I have androgenetic alopecia...the kind that's genetic pattern baldness...I don't think anything will help my hair.
At 12:21am on February 10, 2017, ejeffw said…

Hi, nice to meet you. 

At 4:48pm on December 1, 2016, Finley said…

Hi, nice to meet you!

 
 
 

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