Sad_Rapunzel
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Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?

Started this discussion. Last reply by Sad_Rapunzel yesterday. 27 Replies

Good day I am suicidal, for real. I lost my periods 2 years ago and same time I have started to lose hair.r Right now I left with 1/6th of previous volume and I cry every day. I am afraid to start…Continue

Tags: xeljanz, hopeless, alopecia

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Latest Activity

Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"Don't you think it will mess up my hormones even more? It's a diuretic"
yesterday
Maud Veloso replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"I don't  have sure, but I think u are polycystic ovary.  The pill espironolactona resolve ur problem. "
yesterday
Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"I need to star Minoxidil, don't I?? i think with THIS there are no hope for natural regrowth anymore..."
yesterday
Sad_Rapunzel replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"nooooope.. she's not helpful at all :(  as soon as you pay for her consultation she'll forget about you and you will call to the office on daily basis, trying to reach her. "
Wednesday
Sad_Rapunzel replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"absolutely unbelievable... only 24 weeks.. "
Wednesday
Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"I think there was no change either on hrt or without it. Only side effect was water retention. "
Sunday
kevin replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"I think to know where your hair falls is stopping the drugs ths for your rules I read on several forums that make lose the hair they exist natural ths ask your doctor to change it have you noticed that your hair has fallen since taking ths?"
May 17
Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"thank you a lot again  i'll try to find one of those.  you see, i'm a f-1 visa person here, so my health insurances is not covering a lot, and i don't have too many options as well.  my family isn't supportive at…"
May 17
Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"make a report if you are not deficient in food how could I do that? what is the name of this test?  do you take the pill or have you change your pill because some medicine make hair fall. I don't anymore. I have my periods when i take HRT…"
May 17
Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"I sent her my blood work. Then called her for two weeks. Then received a call from her front desk, and they told me she prescribed spironolactone, so I don't have a chance to hear why she think it's a good option for me and how it will…"
May 17
kevin replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"do you know the nanogenic powder that makes a greater density and that masks the imperfections. look on the Internet , you can find in hair centers it will be able to inform you that product to take, some hair center can checked if your hair is…"
May 16
kevin replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"you still have beautiful hair I think you may have found the cause of the fall you talk about your period you have to make a blood test you have to go step by step it's the first thing to do. make a report if you are not deficient in food makes…"
May 16
TC replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"Spironolactone (Aldactone) is sometimes used off label as an anti-androgen/hormone regulator for some types of female hair loss. For her to prescribe it, she would have had to review your blood work, especially your hormone test results.  Did…"
May 16
Sad_Rapunzel replied to Sad_Rapunzel's discussion Long-term thinning.. TE? CTE? Female pattern baldness?What to do next?
"She prescribed Spirinolactone (Veroshperone), basically diuretic, which is not helpful."
May 16
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"such amazing words to say - "full regrowth"... you exist! girl who has full regrowth!"
May 16
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's not disrespectful at all. We are all struggling here! And somebody is more strong then another one, don't try to shame me for what I'm feeling. This is for alopecia patients, not only for AU. We are all sharing our experiences…"
May 14

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Other type of alopecia
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At 7:07pm on March 19, 2019, Nat said…

Привет, пиши, если нужна помощь.

At 9:39am on March 16, 2019, Ahuva said…

Good day,
My name is Ahuva,I picked interest on you after going through your short profile and deemed it necessary to write you immediately.I have something very important to discuss with you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on (ahuvab005@gmail.com) for more details.
Have a nice day.

 
 
 

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