Sad_Rapunzel
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  • Ukraine
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Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you dear Kathy...  All my blood tests were accepted by at least 3 doctors like "normal" abd "healthy". I don't have any deficiencies.... I have really really high Bad cholesterol and really really low LH and…"
19 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you  but I really don't believe in these good stories of some womens, who after all struggling got that all... i think all of them just made up for people like me to have faith...  In this topic some person replied to me that…"
19 hours ago
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Oh, I saw a lot of them already. Because it's been 2 years now. I loose more then grow. But all these years I have't changed anything in my diet and just recently start to add one apple, or dairy products, or beef (i ate only…"
yesterday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You are so amazing...  Are you a doctor? Or a psychotherapist? Or at least yoga instructor? :) Because I feel warm and care from every word you wrote me. And you know just what to say and how to say.  Really consider leading some…"
yesterday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So what do I need to do now?  If this dug is too powerful for me, so what is left? WHat to do with this awful thinning? It is noticeable. People asking, people see this difference. I don't meet with people who knew me before... "
yesterday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You are not right.  I have left with 1/6 of what I have got before.  Or you think I should come here. when I will have no hair at all? "
yesterday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I a, so happy I found you, guys.  Thank you so much for your reply. Thank you for finding time to response to me with such patience! You are right. I had anorexia nervosa, but without anorexic habits. I just restrict all high GL products, and…"
yesterday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"But don't you ever think why this had happened to you? Why nobody from your surrounding has somebody like this? Don't you ever think: "God, WHY?" Don't you know somebody who much much more worse then you are? Somebody, who…"
yesterday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you so much, dear TC.  I amazed how open-heart and kind you are. And you see right through me - you just writing all my thoughts. And all my fears.  You've been on Xeljanz and have no results, so it's not a magical pill,…"
yesterday
Nat left a comment for Sad_Rapunzel
"Привет, пиши, если нужна помощь."
Tuesday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have never herard about these options.  Steroids are way to harmful. Most scary thing of all these hormonal/steroids injections/pills for me personally is unpredictable reaction of body weight. I know cases when women just suddenly become a…"
Tuesday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for sharing...  What supplements do you take?  I actually cried a little while read your comment.  It is so hard, and so unfair. I have so many health issues, and on top of that - this awful hair loss, which, I don't…"
Tuesday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for your reply  I'm visiting my family in Ukraine now, and will be back in New York in the end of March...  How did she help you? Were you prescribed with Tofacitinib? "
Tuesday
Sad_Rapunzel replied to Cocopuffz17's discussion AA for 3-4 years, Partial AU for 1-2 years. I have 100% regrowth on my scalp(not 100% pigment yet), rest of my body regrowth is coming along.
"yep  this diet gave me amenorrhea and started my hair loss!"
Tuesday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I understand, I just want to be sure.  You see, in Ukraine and Russia they don't even know about this medicine. We have forum like this and it's full of people who's been stuggling for decades, and all they have is Minoxidil.…"
Tuesday
Sad_Rapunzel replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I wish I'd have these kind o doctors... It seems to me that they all just treat you by some routine medicine and don't want to think out of the box...  I can't look in the mirror, and I have read every study and research I could…"
Tuesday

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Relationship Status:
Single
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 7:07pm on March 19, 2019, Nat said…

Привет, пиши, если нужна помощь.

At 9:39am on March 16, 2019, Ahuva said…

Good day,
My name is Ahuva,I picked interest on you after going through your short profile and deemed it necessary to write you immediately.I have something very important to discuss with you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on (ahuvab005@gmail.com) for more details.
Have a nice day.

 
 
 

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