Brock
  • Male
  • Charlotte, NC
  • United States
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Latest Activity

Brock replied to NicoleT's discussion Xeljanz from India
"How long did you wait?  They are extremely busy.  I normally email and then hear back a few days later.  "
May 6
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes my head would tingle and burn a few months after starting xeljanx.  Probably stopped around 3-4 months too.  I remember how disappointed I was with the progress because I just figured it would stop falling out.  I started taking…"
Apr 30
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I probably started 15mg after 2 months.  I started seeing dramatic results at the 3-4 month mark.  How it’s been explained to me is that your hair can fall out up to 3 months after the trigger.  So if something triggered hair…"
Apr 29
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I would wait if you can.  I didn’t wait too long much longer than you have and went up to 15mg daily.  If you are seeing a doctor I would ask for their recommendations."
Apr 29
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My hair did stop progressing but it took a few months on Xeljanz.  It’s hard to be patient but that is the key.  If you are take 20mg a day then I wouldn’t increase dosage... most of my hair has grown back. First it grew back…"
Apr 29
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey man... I think it is looking good!  Just always remember where you were and where you are today.  I know the constant feeling of never knowing what is going to happen.  That being said it sounds like the 20mg is working and when…"
Apr 18
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I think there are just a lot more people ordering so it is taking a little more time because they only have a few people working.  Not sure how long you waited but I would be patient.  "
Mar 27
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I started Xeljanz on December 4th and in January shaved my entire head.... so we are in a very similar situation.  I would address it with your doctor first just because it is good to be make sure you are monitoring things.  There are side…"
Mar 26
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I think we all go through this phase.  I know I did.  I did until one day the kindest person I know was diagnosed with terminal cancer.  She was only 12 years old and suddenly it whipped me into shape and appreciate what I have. Im…"
Mar 20
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Getting lots of white hairs.   Not much color even for some of the growth that is 2 months old but I guess something is better than nothing!  Been on xeljanx for about 3.5 months so I’m hopeful that the medicine is working... even if…"
Mar 19
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"You look great and the progress is inspiring!!  You’ll crush the wedding.  Good luck man."
Mar 19
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"For people that had regrowth... did your hair come back white?  How long did it take for it to regain pigment... if it did?  Just curious because one of my spots had regrowth for like 3 1/2 months but I shave my head and it still looks…"
Mar 18
Brock replied to NicoleT's discussion Xeljanz from India
"the drug is so new we can only speculate what will happen.  I commend you for documenting your progress with this drug and look forward to seeing your future results!"
Mar 9
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It will take a few days.  From my experience they don’t work everyday."
Mar 8
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I did but I was losing it right before taking it too.  I had AA that was progressing to AU I believe."
Mar 7
Brock replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Well said and thanks for the support!"
Mar 5

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Married
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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