Football fan
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  • Northridge, CA
  • United States
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Latest Activity

Football fan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Last November I had the copay card and a prescription and couldn’t get my 3 month supply either .Went to CVS pharmacy and have express scripts anthem blue cross.After about 25 phone calls gave up because it was the end of December.Also talked…"
Jun 13
Football fan replied to texas2016's discussion After 2 Years...Xeljanz Did Not Work For Me
"Xeljanz does not work for me either.I was called in for the baricinitib trial also and they would not take me because I already tried xeljanz.It doesn’t make sense to me because I would be a good candidate to see if a different jak would be…"
Jun 10
Football fan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"keeping my fingers crossed the 15 mg kicks in real soon."
Jun 9
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sounds good but that will probably be about 25 or more years down the road.Every disease uses quick fixes but does not solve the real problem.I have thyroid disease I take a pill that mimics the thyroid there is nothing out there to stop the immune…"
Jun 5
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Last year naaf (national alopecia foundation) said they would have 2 treatments by 2020.Now I just read 2 treatments by 2022.So silly probably never have a treatment insurance will pay for .They  have been doing clinical trials for almost 5…"
Jun 1
Football fan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole Sorry to hear about your shed.I think we know more about Alopecia than  most Doctors!I thought you were weening yourself off to soon.When I go up or down dosages I always either add an extra pill every other day or take one away every…"
May 27
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin I have not had much luck with xeljanz and am going to switch to Barcitinib in a few months.Do not know anything about the dosing.Why did you switch to barcitinib if you had a good response to xeljanz?How long have you been on barcitinib and…"
Apr 27
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"So happy for you!"
Apr 25
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Just finished watching a tv show and every commercial was an advertisement for a new drug for psoriasis or eczema.Arent there multiple drugs out there already.What about Alopecia it’s been 5 years since Dr King discovered xeljanz works for…"
Apr 5
Football fan replied to 5DH's discussion Clinical Trial Blog: Topical AA Treatment
"Any new updates on your progress?"
Mar 25
Football fan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Sent an email to the one one you did and always got a reply within 15 minutes. I always sent it when I knew they were in the pharmacy.Did not realize there are only 30 pills in a pack now I’m really glad I got 20 boxes."
Mar 16
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes I tried berberine  by itself and with xeljanz didn’t do anything for me"
Mar 12
Football fan replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Tried the co pay card last November at CVS in Los Angeles they faxed it to their specialty pharmacy and after 1 month of at least 10 phones calls gave up they refused to give it to me and said they never heard of it before.Even though I used the…"
Mar 10
Football fan replied to NicoleT's discussion Xeljanz from India
"Wow I sent one e-mail and got a reply in about 5 minutes"
Mar 9
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Would not take both of those drugs together.Accutane is a super powerful drug.When my daughter had a acne flair up in her teens her doctor refused to give it to her."
Mar 8
Football fan replied to NicoleT's discussion Xeljanz from India
"After I use up my 20 boxes of tofacinix and if I don’t respond I am trying the generic barcitinib "
Mar 7

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Married
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 9:39pm on June 6, 2015, LeslieAnn Butler said…

Hello and welcome to AW!

How are you today?

 
 
 

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