Anna
  • Female
  • Westmount
  • Canada
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Anna's Friends

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  • Shad
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Anna's Discussions

CALLING ALL XELJANZ NON-RESPONDERS

Started May 28, 2018 0 Replies

I wanted to start a discussion for those of us who have tried Xeljanz but had no results. Many people on this forum seem to do very well, and it is extremely frustrating to be in what seems to be the…Continue

Response time for those who have tried Xeljanz

Started this discussion. Last reply by Anna May 8, 2018. 16 Replies

Hi everyone,I am AU since June 2017 and 13 weeks into Xeljanz. Started at 5mgs twice a day, am now up to 20 mgs twice a day. I have had no response whatsoever, and am getting increasingly discouraged…Continue

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Latest Activity

Cocopuffz17 and Anna are now friends
Feb 2
Anna left a comment for Nar Nar
"Hi Nar Nar - Just accepted your friend request but lost your note. Please send me a PM!"
Jan 21
Anna and Nar Nar are now friends
Jan 21
Anna replied to chris_s's discussion exzema drug cures patient with AT - Dupixent or dupilumab
"Thanks :)"
Dec 20, 2018
Anna replied to chris_s's discussion exzema drug cures patient with AT - Dupixent or dupilumab
"Hey Pamela - did you find out anything about dupimulab at your appointment?"
Dec 20, 2018
Anna and mtran2000 are now friends
Nov 19, 2018
Anna replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"NY Guy - I have sent a friend request - I am also a patient of Dr. King's and have a similar profile - Anna."
Nov 12, 2018
Anna replied to ChrisPowers's discussion Xeljanz Depression Side-Effect?
"Sidney Prescott thank you so much for this post. I couldn't agree with you more - and I too find it so difficult at times to hear how I should try to feel positive etc. There is NO upside to this horrific disease."
Oct 24, 2018
Anna replied to mtran2000's discussion Back from doctor with a new plan
"Hi there - I have tried, yes - and I went up to 60 mg a day of Xeljanz along with the prednisone pusling. I have been AU for 1.5 years - and I still have not one hair. However, as you know, everyone is different, so I very much hope this works for…"
Oct 16, 2018
Anna replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Bonjour Kevin, Je comprends que tu as deja pris des medicaments qui ciblent IL-2. J'ai pris le Xeljanz pendant 10 mois sans aucune reponse. J'aimerais savoir quelle etait ton experience avec les medicaments IL-2 - ce que tu a pris, les…"
Oct 13, 2018
Anna and singh are now friends
Sep 12, 2018
Anna and ALOPECIARUINEDMEANDROBBEDME are now friends
Sep 10, 2018
Anna replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yeah I’ve pretty much tried every diet possible....!"
Jun 26, 2018
Anna replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi guys - taking 60 mgs, have done steroid pulsing, nothing has worked."
Jun 25, 2018
Anna replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Newjack - I couldn't say unfortunately because I am at 5 months on a very very high dose of Xejanz with no results whatsoever - as shiny bald everyhwre as it is possible to be. So speaking from no knowledge whatsoever (and a broken spirit,…"
Jun 25, 2018
Anna replied to Hannah's discussion Possible alopecia triggers?
"In my case there are two possibilities that come to mind: prolonged (like 10 years) extreme stress. or menopause. AU coincided with menopause - nothing before that."
Jun 21, 2018

Profile Information

Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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