sadele
  • Female
  • Kirkland, WA
  • United States
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Latest Activity

Rajeev Gupta left a comment for sadele
"Hello Sadele, HNY 2019, I am Rajeev Gupta from Bellevue and need your assistance on getting Xeljanz from Mexico as I have been suffering from AU from last more than 6 years. Kindly Help please. I came across your posts and I understand you might…"
Dec 31
Rajeev Gupta liked sadele's profile
Dec 31
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, Kathy! PRP is Platlet Rich Plasma. Your blood is drawn, spun and then injectes into the scalp. We offer it at my work so I didn't have to pay for it but it's pretty expensive and very painful. I did 2 rounds of that as well as 2…"
Aug 10, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Update on my growth: July 2013 - started losing the hair on my head. I was 4 months pregnant. By December I was completely bald. Still had eyebrows and eyelashes and body hair. January 2014 - Hair started to grow back on my head. Had full re-growth…"
Aug 10, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"How long have you been AU?"
May 10, 2018
sadele replied to Anna's discussion Response time for those who have tried Xeljanz
"I started this whole process by flying out from Seattle, WA to CT to see Dr. King. I was going out to see him every three months as well as a Dermatologist here in Seattle. The derm here monitors my blood work every three months and I've never…"
May 8, 2018
sadele replied to Anna's discussion Response time for those who have tried Xeljanz
"In 2014 I became AU within a matter weeks. I started 10mg a day xeljanz, went up to 20mg and it took me about a year to have any significant growth. I had about 70% growth on my head, but no lashes or brows. I stopped Xeljanz for about 6 months and…"
May 4, 2018
sadele replied to chris_s's discussion the ATI-50001 and ATI-50002 thread
"Please keep us posted Zach!"
May 1, 2018
sadele commented on Livia18's photo
Thumbnail

after 6 month of treatment with xeljanz

"Were you AU? Did your eye lashes and brows grow back as well? Thank You!"
Apr 7, 2018
sadele replied to HopelesslyFaithful's discussion Alopecia and Allergies?
"I've suffered from allergies for the past 17 years. It was sinus allergies. It got so bad I had to have sinusitis surgery because I developed polyps in my sinuses. I literally couldn't breath through my nose for the longest time prior to…"
Mar 21, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Was your head completely bald prior to starting xeljanz? I just started xeljanz again a few days ago, I'll post an update when I hit a month."
Mar 14, 2018
sadele replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"Do you have the information on the compound pharmacy? The name or phone number? And you say to specifically ask for the "xeljanz tub"? Is it a liquid or cream form? thank you!!"
Mar 6, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"That looks wonderful Frida! You're on your way! "
Mar 2, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It depends on the person. To my understanding, for those who don't respond well to xeljanz have a better success rate of responding to ruxolitinib. "
Feb 12, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I know there is something to stopping and re-starting, and the fact that I experienced it was great for me. Dr King had told me that those who were non-responders or incomplete responders would most likely respond well to Ruxo. It's just a…"
Feb 10, 2018
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I feel it takes time to ticken up, but eventually it will. Mine did. You might need to up your dose but that entirely up to you and your Dr. I have to take 20mg in order to see results. I was even considering going up to 25mg but…"
Feb 10, 2018

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 7:31pm on December 31, 2018, Rajeev Gupta said…

Hello Sadele,

HNY 2019, I am Rajeev Gupta from Bellevue and need your assistance on getting Xeljanz from Mexico as I have been suffering from AU from last more than 6 years. Kindly Help please.

I came across your posts and I understand you might have had some similar life and good Xeljanz experiences, so I was hoping we could connect. Any advice or suggestions or experiences you would be willing to share is VERY MUCH appreciated. I'm trying to stay positive, hoping and praying that if I get to purchase Xeljanz, my hair will once again return.

As you are aware that in US Xeljanz cost is sky rocketing and more or less no insurance company approves it, even after repeated appeals they keep on rejecting. I even tried looking at Pfizers support program but haven't call them as yet, but again its a limited time option, so When I was going through your posts mention of cheap Xeljanz from Mexico and that too without prescription, it is sounding something an option I can give a try with your help and support on giving me a contact information and referring me if possible.

I also tried Vancouver option Dr. Donovan clinic in Whistler but his consultation fees is quite hefty.

I would highly appreciate your support and if you prefer to meet in person in public place in and around Redmond or Bellevue, Redmond is my work place. I work for a big telecom company here and I am a very legit person.

I sincerely appreciate your valuable support and kindness to AU community.

Hope to hear back soon with a positive help and support.

Thanks & Best Regards,

Rajeev Gupta.

At 12:43pm on January 21, 2018, LauraL said…

Hi Sadele,

My name is Laura - I live in Boston with my husband of 3 years. I am 4 months pregnant with our first child. I have Alopecia Universalis.

I had been taking Xeljanz under Dr. King's care, with tremendous success - I was completely bald a few years ago, and with Xeljanz grew back all of my hair (in about 6 months since starting).

Flash forward to today, and I have stopped Xeljanz since pregnant - Things appeared to be stable for the first 2 months of being off Xeljanz, but as of month 3 and 4, my hair is falling out rapidly. Very scary and sad :(, especially for someone who has been down this road before. 

I came across your posts and I understand you might have had some similar life and Xeljanz experiences, so I was hoping we could connect. Any advice or suggestions or experiences you would be willing to share is VERY MUCH appreciated. I'm trying to stay positive, hoping and praying that if and when I do go back on Xeljanz (post-pregnancy), my hair will once again return.

Thank you! Thank you! Thank you!

At 6:03pm on October 21, 2016, strawberry said…

Hi Sadele, I hope this question isn't too personal but I was just wondering whether Xeljanz had any effect on your birth control pill's effectiveness? I ask because it's my only form of birth control as of right now. Has your derm/doctor mentioned anything about taking both Xeljanz and BCP together? Thanks.

At 12:19pm on October 28, 2015, Football fan said…
You are not alone.Some days I don't Even want to go out of the house.Right now I would be happy to see vellus hair on my head.Is this your first time seeing Doctor King?He's the expert there is still hope don't give up!
At 1:37pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome!
How are you today?

 
 
 

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