sadele
  • Female
  • Kirkland, WA
  • United States
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Welcome, Serina!

Latest Activity

sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's been a long road. I don't come on very often either but I like to check in once in a while."
Jul 5
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm going to stay on the medication for sure for a couple more years. I don't want to risk losing what I have."
Jul 5
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s being fussy on my phone. I just added another one that is smaller in size so I hope it worked!"
Jul 3
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Here is the picture "
Jul 3
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Here is the picture "
Jul 3
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi All, I haven't been on here in a really long time but wanted to give an update. Just a Recap: I lost all the hair on my head in 2013 when I was pregnant with my daughter. A year later all my hair grew back naturally with no medication. In…"
Jul 3

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 7:31pm on December 31, 2018, Rajeev Gupta said…

Hello Sadele,

HNY 2019, I am Rajeev Gupta from Bellevue and need your assistance on getting Xeljanz from Mexico as I have been suffering from AU from last more than 6 years. Kindly Help please.

I came across your posts and I understand you might have had some similar life and good Xeljanz experiences, so I was hoping we could connect. Any advice or suggestions or experiences you would be willing to share is VERY MUCH appreciated. I'm trying to stay positive, hoping and praying that if I get to purchase Xeljanz, my hair will once again return.

As you are aware that in US Xeljanz cost is sky rocketing and more or less no insurance company approves it, even after repeated appeals they keep on rejecting. I even tried looking at Pfizers support program but haven't call them as yet, but again its a limited time option, so When I was going through your posts mention of cheap Xeljanz from Mexico and that too without prescription, it is sounding something an option I can give a try with your help and support on giving me a contact information and referring me if possible.

I also tried Vancouver option Dr. Donovan clinic in Whistler but his consultation fees is quite hefty.

I would highly appreciate your support and if you prefer to meet in person in public place in and around Redmond or Bellevue, Redmond is my work place. I work for a big telecom company here and I am a very legit person.

I sincerely appreciate your valuable support and kindness to AU community.

Hope to hear back soon with a positive help and support.

Thanks & Best Regards,

Rajeev Gupta.

At 12:43pm on January 21, 2018, LauraL said…

Hi Sadele,

My name is Laura - I live in Boston with my husband of 3 years. I am 4 months pregnant with our first child. I have Alopecia Universalis.

I had been taking Xeljanz under Dr. King's care, with tremendous success - I was completely bald a few years ago, and with Xeljanz grew back all of my hair (in about 6 months since starting).

Flash forward to today, and I have stopped Xeljanz since pregnant - Things appeared to be stable for the first 2 months of being off Xeljanz, but as of month 3 and 4, my hair is falling out rapidly. Very scary and sad :(, especially for someone who has been down this road before. 

I came across your posts and I understand you might have had some similar life and Xeljanz experiences, so I was hoping we could connect. Any advice or suggestions or experiences you would be willing to share is VERY MUCH appreciated. I'm trying to stay positive, hoping and praying that if and when I do go back on Xeljanz (post-pregnancy), my hair will once again return.

Thank you! Thank you! Thank you!

At 6:03pm on October 21, 2016, strawberry said…

Hi Sadele, I hope this question isn't too personal but I was just wondering whether Xeljanz had any effect on your birth control pill's effectiveness? I ask because it's my only form of birth control as of right now. Has your derm/doctor mentioned anything about taking both Xeljanz and BCP together? Thanks.

At 12:19pm on October 28, 2015, Football fan said…
You are not alone.Some days I don't Even want to go out of the house.Right now I would be happy to see vellus hair on my head.Is this your first time seeing Doctor King?He's the expert there is still hope don't give up!
At 1:37pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome!
How are you today?

 
 
 

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