Patchylatchy
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  • Wheaton, IL
  • United States
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Patchylatchy's Discussions

For those of you with alopecia universalis like myself at what age did you develop it?

Started this discussion. Last reply by Hannah Jun 21. 30 Replies

Just wondering at what age did you develop alopecia universalis? And if it was in areata stage at what age did I first see your first spot and by what age did it become universalis?Thank you.Continue

Is alopecia TH1 or TH2 dominant?

Started this discussion. Last reply by Patchylatchy May 11. 6 Replies

Hi everyone I continue to learn alot from this website and thank you all for the updates. I have a question I hope someone can help me. I been reading about autoimmune diseases and found out that…Continue

Help us buy xeljanz!

Started Jan 2, 2017 0 Replies

Hi All,I created this thread to help myself and others who would like to obtain xeljanz from Turkey. I know details are mentioned in the other popular post by adml but it became quite messy with many…Continue

Why do we have nail pitting?

Started this discussion. Last reply by Patchylatchy Dec 27, 2016. 8 Replies

Why do we experience nail pitting? Is it only because of the inflammation and seperation of keratin of nail plate or is it because of inflammation and our immune system attacks nail?Also has your…Continue

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Latest Activity

Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi merry..did the doctor mention Allegra helps? Goodluck "
Oct 26
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Sarah congrats. Was allegra recommended for alopecia?"
Oct 21
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Does anyone know when will this drug be covered by insurance and be the stabdard deug in the states..without having yo go through copay or go to Turkey! Its been more than 2 years since they diacovered xeljanz helped and still no news if in near…"
Oct 14
Patchylatchy is now friends with janetparsons and Frida Rupert
Oct 4
Football fan and Patchylatchy are now friends
Sep 10
Patchylatchy replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Do you guys know when xeljanz will be standard FDA approved regular treatment for anyone with alopecia?"
Aug 23
Hannah replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"I am currently 22 years old and I have had alopecia universalis since I was 14 years old. I had a spot here and there when I was younger (maybe one in like, 2nd grade), but it was barely a dime size and always grew back. When I was 14, my hair…"
Jun 21
singh replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Thank you Anne I hope you respond  keep the faith  kind regards "
Jun 16
Anna replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Will do."
Jun 16
singh replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Hi Anne, only tried it for 7 weeks. And went form 10 mg a day for about 5 and a half weeks and the last week and a half went on to 15 mg and saw a difference but can’t say if I was a responder or non.  Just worried as some people on here…"
Jun 16
Anna replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Have you tried Xeljanz Singh?"
Jun 15
singh replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Hi Anne, don’t be discouraged as my doctor said it takes about 3-4 months just to get into the blood. Maybe try a steroid shot ? To boost things ? Adml the man started the xeljanz thread didn’t see results until the 7th month. ive had…"
Jun 15
Anna replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Hi Singh - 5 months, now at 60 mgs a day - no results whatsoever :("
Jun 15
singh replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"Hi Anna may I ask how long have you been on xeljanz ? "
Jun 15
George replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"I was about 13.  I'm 47 now. It started as AA.  My dad gave haircuts to the boys in my family, at least when we were young.  He had one of those home barber kits.  Anyway, he was cutting my hair and noticed this bald patch…"
Jun 13
Anne Williams replied to Patchylatchy's discussion For those of you with alopecia universalis like myself at what age did you develop it?
"In my 40's when I developed AA. Now 63 with AU. Lost it all about a year ago or at least that is when I shaved my head. Now a year later, I don't even have any stubble on my scalp any more. "
Jun 12

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 12:35am on August 17, 2017, Niece said…

sorry PAtchylatchy just saw this message..very late! You asked about my AU and if I had AA first. No, I did not. First noticed hairline thinning and within about 3-4 months lost all my hair. Its been over 3 years now..getting easier but to be honest I still struggle with alopecia. Have my hopes set on a treatment/cure in the years ahead. How are you doing?

At 3:45pm on December 21, 2016, D Costa said…
Postpartem spots got very progressive. I started using Thymuskin and feel it really helped slow the process. I'm currently about 50% hair loss right now (same going on five years). Hope this helps.
At 5:49pm on December 19, 2016, D Costa said…
Hi my profile probably needs to be updated. I gave birth back in 2011. I was 19 when I noticed my first spot though. Congratulations on your pregnancy!
 
 
 

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