AlopeciaDestroyedMyLife
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AlopeciaDestroyedMyLife's Discussions

Xeljanz (Tofacitinib Citrate): My experience on the trial

Started this discussion. Last reply by mtran2000 on Saturday. 6902 Replies

I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.I thought it would be nice for everyone if I documented my progress on here. Xeljanz is a Jak3…Continue

Tags: xeljanz, trials, treatment, tofacitnib, citrate

Got dumped because of my alopecia

Started this discussion. Last reply by Stars-r-Aligned Jun 23, 2016. 39 Replies

I had another alopecia episode and my eyebrows fell out again. This has had a dramatic impact on my appearance. I was scared to tell my then girlfriend but eventually plucked up the courage to tell…Continue

I can't take it anymore

Started this discussion. Last reply by Rose Marie' Jul 3, 2014. 6 Replies

I have pretty no hair anywhere my only pride and joy were my eyebrows which grew back after steroid injections 2 years ago with full regrowth in 2 weeks. In the past few months they have all fallen…Continue

Please bring back chatrooms (disappeared with no explanation)

Started this discussion. Last reply by AlopeciaDestroyedMyLife Jul 6, 2014. 3 Replies

Alopecia World please bring back chatrooms there are no alopecia chatrooms anywhere on the internet. Chatrooms are the best support someone can get online as its in real time. Bring them back please.Continue

 

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Latest Activity

mtran2000 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I don't think it would  be safe to be on that high of a dose for long. Problem is, what is to stop hair from falling out once dose is lowered."
Saturday
Football fan replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Wow be careful seems like a crazy high dosage.Thats 6 bottles a month! It seems no one who finds the right dosage to grow hair can lower their dosage with out losing hair again.Latisse has less scary side effects than xeljanz I have been using it…"
Saturday
mtran2000 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Ok, is it covered by insurance?"
Friday
ChrisPowers replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Well, 25 mg isn't working for me, or isn't working fast enough.  At this rate, I'll have eyebrows in five years, maybe eyelashes in ten, and a head of hair in two thousand. The way I look at it now, at least this way I'll…"
Friday
ChrisPowers replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yep, definitely don't wanna mess around with those eyes."
Friday
ChrisPowers replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Apparently, it only happens in a small percentage of cases, and even then it might be more likely to turn light brown eyes darker brown. That said, at least for me, it's not a gamble worth taking  I also happen to have lighter brown eyes…"
Friday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
Thursday
Frida Rupert replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi James- glad to hear you are giving it another go. Are you covered by insurance? Interesting about lumigan- I have very light eyes - pic attached- I used lumigan for a few months back in my twenties before Alopecia after a bad experience with lash…"
Thursday
mtran2000 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Wow 30 MG of Xeljanz seems like a lot. Can't imagine taking 60 MG. How can anyone afford it? I don't think insurance will cover it."
Thursday
ChrisPowers replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Anna, I hope things started to pick up for you.  If not, I wouldn't get too discouraged just yet for the following reason: it sounds to me like you might be in the middle of an active flare, in which case very few, if any treatments…"
Thursday
ChrisPowers replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Frida, Apologies for the delay in replying, but I don't get updates when people respond to my posts, and I only stumbled upon this old post now. Thanks for the kind words and for the suggestions.  The reason I've stayed away from…"
Thursday
James 2me replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I take 2 in the morning and one in the evening "
Aug 14
Jj_085 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi, curious how are taking 3 pills? 2 in the morning, 1 at night or spaced out throughout the day? thanks in advance "
Aug 14
singh replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Amazing James! So happy for you ! Will be looking forward to your pics once all your hair is back. And thanks for letting people know about baricitinib !"
Aug 14
James 2me replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I stopped Xelljanz in 2017 because of the slow response  went back on it8 months ago at  a higher dose of 3 tablets a day. Currently have full eyebrows and lashes complete facial hair and about three quarters of scalp back  and still…"
Aug 14
singh replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good luck Football fan! Hope this time wrong it works for you ! "
Aug 14

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 18, eyebrows , beard, everything other than some parts on my chest.

I am on the study with the new drug Xeljanz for alopecia.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (12 comments)

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At 6:45am on April 19, 2017, Davy said…

Hi brother,

I live in Uk, Manchester, and have been under Xeljanz through dr. king

for more than a year now. Do you have a mobile phone, I would like

to talk to you about Xeljanz in UK, apparently it is available for

compassionate use. Have you heard about that?

Plese if possible send me a whatsapp message at the +393286266248.

very appreciated

At 9:22pm on May 20, 2016, Stressedmom said…
My daughter is on Xeljanz oral for 5 months. She is experiencing rapid regrowth since month 4 and while patchy, hair is dark and soft and her own healthy hair regrowth. The doctor is blown away with the progress.
This truly is a miracle if only for the hope that we really needed to have that one day this could be reversed.
At 2:17pm on January 26, 2016, The_Flyest gave AlopeciaDestroyedMyLife a gift
Gift
Thanks for doing this on the forum, keep up, be great
At 3:29pm on December 20, 2015, Hope finder said…

Hi ADML

I hope your progress is being maintained. 

I'm new to this forum but I have been monitoring it since you started it. I have to commend you on your work. You have encouraged thousands based on the over 225,000 views.

You could even say that you are a pioneer. I never suspected you of being a conman because of the press, Pfizer are a multi billion dollar company who do not need crooks selling snake oil and you have been a member for quite a while prior.

What got me hooked was the letter you received from Pfizer confirming Turkey Xeljanz is genuine and affordable.

If you accept me as friend I hope you would be able to further discuss how I could obtain Xeljanz in Turkey.

Whether you accept me as a friend or not you should be truly proud of your work.

At 2:37am on October 1, 2015, Naresh said…
This is Naresh from India. How can I get tofacitinib citrate. Please reply me
At 7:38pm on July 6, 2015, LittleSadEyes said…

At 7:19pm on July 6, 2015, LittleSadEyes said…

At 8:42pm on January 20, 2015, lusha22 said…
Hi:) I sent a friend request... Would you mind if I asked you a few questions? I'm 37 yo female with AU.
Thank you!
At 4:25pm on December 22, 2014, itzmejudy said…

Thanks for friend request.. Hope you are doin well.

At 12:01pm on November 23, 2014, Morgan said…
Thanks for the updates and for trying this out so we all can get more answers
Morgan
 
 
 

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