Kate
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Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat! I take a few other supplements, vitD, fish oil and vitamin consistently, sometimes add a few others but nothing that should impact the wbc.. will google them now "
Mar 18, 2021
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone I have had great success with Xeljanz generic, but my WBC count has been constantly getting lower and lower since starting the treatment. Now it's slightly below 3 and my derm wants me to stop the treatment immediately and even see…"
Mar 18, 2021
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi They have been in contact with me just a few weeks ago and said they won't be shipping during the lockdown, which is now extended until 25th"
Apr 23, 2020
magmck and Kate are now friends
Jan 2, 2020
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have been on 10 mg for 6 months with no response, upped to 15 and then 20 on month 8 - started seeing some response after that. Very slow though, but things are happening. "
Oct 24, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi! I'm in the UK at the moment and I've struggled to find a doctor who has practical experience with Xeljanz (it does not help that it's not approved for alopecia by nhs either). Do you mind sharing details of both?"
Oct 10, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you, it would be great! Do you need to book appointments well in advance?"
Oct 10, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks - I wasn't aware of any doctors in Europe who would know/have experience in Jak. Do you mind sharing the contacts of the doctor or the clinic, Italy is probably easier for me to travel to:)"
Oct 10, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Thanks, that's good to know. Are you happy with the treatment/advice? "
Oct 10, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi guys I can see many of you see Dr. Bordone, who is in NYC. Does she work with overseas (Europe) patients (so no insurance). What would be the cost of consultation then?  Thanks!"
Oct 9, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Thanks for your reply and sorry for taking so long to get back. I have only been on 20 mg for about a month, bit continue to lose eyelashes slowly. To be honest, hair is smth you can get used to but not having lashes and eyebrows sucks! My…"
Jul 6, 2019
Kate replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi guys New to this site but very impressed with the thread - took me a while to read. I'm after some stats :) - how long does one normally expect to wait to see some results? I had developed AU very rapidly last year, took me a while and a…"
Jun 19, 2019
Kate is now a member of Alopecia World
Jun 19, 2019

Profile Information

Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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