hellopeesha
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hellopeesha's Discussions

Positives and Negatives of Ordering from Beacon

Started this discussion. Last reply by bibby Jun 10. 6 Replies

Hey guys, I want to start a thread to chat about ordering from Beacon - for those who have done and for those considering. I'm really torn for various reasons. I desperately want this condition to…Continue

Tags: xeljanx, tofacitinib, beacon

Testing Beacon Tofacitinib before Starting It

Started this discussion. Last reply by Nat May 24. 2 Replies

Hey all,I was just wondering - have any if you had your Beacon tofacitinib tested before you started taking it?I'm based in Ireland and am about to order, but I'd feel a lot more at ease knowing of a…Continue

Tags: beacon, testing, Tofacitinib

Off-Label Tofacitinib in Ireland?

Started this discussion. Last reply by magmck Sep 13. 38 Replies

Hey,I'm based in Ireland and am hoping to order tofacitinib from overseas soon, as the price is horrendous here.However, I'm wondering how it would work getting a prescription/medical supervision…Continue

Tags: off-label, off, label, prescription, eu

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Latest Activity

magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi hellooecia.  Thank you so much for taking the time to reply.  Hopefully Natalie has read my reply and as you can see. I’ve started taking xeljanz also ... just in the last few days.  It will be probably 4 months before I get…"
Sep 13
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Natalie. My GP has agreed to refer me to Dr Sarita Singh at Chelsea and Westminster Hospital in London.  There is a long waiting time (4 months +) to be see as aNHS patient.  She has agreed to see me and  Following on from the…"
Sep 13
hellopeesha replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hey magmck and Natalie, I'm sorry to hear that you're having trouble finding dermatologists willing to prescribe. I found one in Dublin and am on Xeljanz for 7 weeks now, but that's all covered as I'm an Irish …"
Sep 12
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Natalie.   Send me a wee message and we can chat x"
Sep 12
Natalie replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Magmck Apologies for the delayed response.  I am not getting on very well. Still unable to find a London based Dermatologist to support me. I read that you have found a Dermatologist to support you whilst taking Xeljanx, would be good to…"
Sep 12
hellopeesha replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey Cassidymain. Wow, good for you - 6 months in from AU to your current pics is an incredible response - I'd say it'll keep getting better for you with patience.  You could always talk to the physician on your trial and perhaps…"
Sep 10
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi  how are people here getting on ? Ive found a London based Dermatologist and my GP has agreed to refer  me and she is seeing me as an NHS patient and my HP has agrewd tommon my bloods. So progress at last ! So let’s see what…"
Sep 10
hellopeesha replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey guys, How long does it typically take Xeljanz 5mg twice daily to start showing results? I have about 40% alopecia areata, 50% facial hair loss, eyelashes lost on one upper lid, and have had this bout of alopecia for about 3 years..."
Sep 2
magmck replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Natalie. How are you getting on! I’ve had a I’ll think about it response from my GP Re blood monitoring and don’t think he will. No clue how to progress this if he does refuse.  My precious dermatologist refused and emailed…"
Jul 31
hellopeesha replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Way to go man! This is super encouraging! Wishing you all the best with it! Paul."
Jul 15
hellopeesha replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm confused - Ahmed didn't lie? He simply stated that nobody will need to order from you as people can get the drug for much less than half price.  Also, you state in an earlier post that your name is Javier, yet in the post directly…"
Jul 11
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Thanks for that reply. Yes. I will communicate with both of them once my boxes arrive from beacon (2 weeks approx) to hopefully monitor the blood. Fingers crossed"
Jun 10
magmck replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Hi Bibby  the secretary was clear that Dr Ralph doesn't prescribe the drug.  However that’s not to say that she wouldn’t monitor the useage of in terms of blood monitoring.? I was recommended a De Murad also in Dublin and…"
Jun 10
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Just for some confirmation regarding dr Ralph , were you told by her secretary that she does NOT prescribe xeljanz for alopecia ? Thanks in advance "
Jun 10
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Hi. Glad I read this post magmck, I was going to make an apt with dr Ralph, saved €250. Please let us know how you get on with dr paus, Manchester is very close to Dublin so would be great if we could source a co-operative blood screening…"
Jun 10
magmck replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"hi paul. I think we’re in the same boat.  The drug from beacon does seem to have been tested by Pfizer and apparently is the same as Tofacitinib only slightly weaker ( I think Nicole had it tested ) .  Many people have been taking…"
Jun 8

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