bibby
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bibby's Discussions

Could NETTLES have caused my almost full regrowth PICS attached

Started this discussion. Last reply by ChrisPowers Jun 6, 2018. 2 Replies

Going from AT (zero smooth scalp/beard etc) to what looks like full regrowth. Note , I’ve been AT for 5 years. February 2018 I applied raw stinging nettles on my scalp and beard for  5 days a week…Continue

Regrowth following cortisone injections in shoulders

Started this discussion. Last reply by bibby Oct 14, 2017. 6 Replies

I hope someone can shed some light on this one.I had 3 injections in my back 3 weeks ago. The injections were due to a neck and shoulder injury whip lash in a car accident.I was put under anesthetic…Continue

Tags: operation, Regrowth

Intolerable dry flaking skin on face and scalp

Started this discussion. Last reply by Aimee Feb 14, 2016. 2 Replies

I am wondering if anyone else is having this issue. I have incredible flaking skin on my scalp and face which coincides with a terrible itch. The rate of hair loss accelerates when this phenomenon is…Continue

DPCP caused 100% hairloss for me. WARNING

Started this discussion. Last reply by bibby Jul 29, 2014. 9 Replies

I started DPCP treatment under the care of a nurse in my local hospital June 2013. Its now July 2014 and all my hair is gone. I had mild alopecia areata since I was 9 years old , I am now 39. The…Continue

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Latest Activity

Saraloujay and bibby are now friends
yesterday
bibby is now friends with hellopeesha, mtran2000 and Kris
Friday
bibby replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Hi Sara, 10 boxes of xeljanz beacon pharmacy arrived in my office in Northern Ireland today. I am Dublin based resident myself working in Northern Ireland. I’ve yet to meet find GP or dermatologist support. I’m due a complete routine…"
Friday
bibby replied to Saraloujay's discussion Inspiration to start my journey on JAKS!
"Due to receive my beacon supplied batch tomorrow at my Uk address. 300 pills. Going to ease in an take 1 pill per day for the first 2 weeks and slowly increase. Its great to have a forum to share experience and support our journey to hopeful…"
Thursday
bibby replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole , hopefully this is just a temporary setback and the spots will reverse upon the increase in mgs. Just a question regarding beacon. I ordered last week and made a payment. I’ve heard nothing about payment receipt confirmation or EMS…"
Jun 12
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Thanks for that reply. Yes. I will communicate with both of them once my boxes arrive from beacon (2 weeks approx) to hopefully monitor the blood. Fingers crossed"
Jun 10
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Just for some confirmation regarding dr Ralph , were you told by her secretary that she does NOT prescribe xeljanz for alopecia ? Thanks in advance "
Jun 10
bibby replied to hellopeesha's discussion Positives and Negatives of Ordering from Beacon
"Hi. Glad I read this post magmck, I was going to make an apt with dr Ralph, saved €250. Please let us know how you get on with dr paus, Manchester is very close to Dublin so would be great if we could source a co-operative blood screening…"
Jun 10
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Magmck. I too have ordered from beacon. 10 boxes. All I need is someone to monitor me. After the email you received it does sound more positive. I will be following your lead and ringing them up Tuesday for clarity. Thanks for the tips on the gps…"
Jun 2
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Bad news. I just checked doctor Ralph’s profile , she was mentored by a dermatologist that 100% refused xeljanz to me after I made a pitch perfect plea regarding the treatments merits and effectiveness on alopecia areata etc. it seems there is…"
Jun 2
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Wow. Let’s see how you get on with dr Ralph. If this fails I am seriously considering a trip to the USA to find a doctor that will monitor remotely (while sourcing xeljanz in India from beacon pharmacy) "
Jun 1
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi Colin . Thanks very much for the info and the link. It’s a god send for a lot of sufferers in Ireland. Can you tell me did you have to wait long for an appointment to see doctor Ryan ? (Can’t ring myself today as it’s Saturday)…"
Jun 1
bibby replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Sheila  do you have more info on the GP in Ireland ? I’m Ireland based too and it would be a lot more satisfactory being on xeljanz if I had medical monitoring while using the drug. Thanks in advance "
May 27
bibby replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Kevin  did you get the lab results on beacons generic baricitinib yet with regards to how close it is to the original ? "
May 22
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Agree with Paul. I’m based in Ireland myself. I’m doing this back to front really as I’ve no clear medical plan as of yet.. I’ve ordered from beacon pharmacy 10 boxes. I’ll go either 2 routes once the meds arrive. 1 ,…"
May 22
bibby replied to hellopeesha's discussion Off-Label Tofacitinib in Ireland?
"Hi again i found that post. It came from user “mind over matter” , this individual is using xeljanz without medical assistance from their GP or dermatologist. They are using https://www.citydoc.org.uk to monitor their blood on a…"
May 20

Profile Information

Relationship Status:
Single
About Me:
have hairloss since i was 10
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 11:22pm on March 3, 2011, LeslieAnn Butler said…
Hello and welcome, Bibby!
How are you today?
Leslie Ann
 
 
 

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