Dolly
  • Female
  • Noord Holland
  • Netherlands
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  • Patchylatchy
  • Jan
  • Gon
  • Wockino
  • FreakSince13
  • Nicolas
  • kev
  • pterese
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  • Sabri
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  • Jcortez05
  • singh
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  • cwincos

Dolly's Discussions

DCP (diphencypron)

Started this discussion. Last reply by Ben Dec 28, 2016. 11 Replies

I know there has been a lot of discussion about this topic, however not recently. Since studies prove that this is probably the most effective treatment, I have started this some weeks ago and hope…Continue

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cwincos left a comment for Dolly
"Hi Dolly, I'm sorry, I haven't been on this website a lot in the past year and just saw your message.  I was only on the mtx and steroid for a short period because as soon as it worked, I stopped everything to get pregnant. The…"
Jul 18, 2018
cwincos and Dolly are now friends
Jul 18, 2018

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

As a six year old, I had one spot, which grew back quickly. In my twenties, an area at the nape of my neck fell out, but also grew back by its own within a couple of months (3 or so). Now at 38, I suffer from severe ophiasis. It started two years ago after my firstborn, with one spot above the ear, then turned to fullblown ophiais after my second daughter was born. September 2014 was devastating. I lost the right-side and nape area within two weeks. I have been trying steroid shots; hair grows, but falls out again. I tried everything: the diet, yoga, reduce stress, etc. Nothing worked. I've done a total internal check up - nothing.

I am with my 3rd derm, who is understanding. Just a month ago, he put me on antibiotics for a root canal treatment done in janauary (I had an infection I wasn;t aware of for 2 years). According to the derm, the infection may have been the trigger. Unfortunately, I don't see any change and I keep shedding (one day worse than the other). I am still hoping for a miracle, but don't find any positive stories on ophiasis...

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At 6:03pm on July 18, 2018, cwincos said…

Hi Dolly, I'm sorry, I haven't been on this website a lot in the past year and just saw your message.  I was only on the mtx and steroid for a short period because as soon as it worked, I stopped everything to get pregnant. The doctor's planned to was ween me off the steroids after a year if I got growth back.  Everything was on hold for 3 yrs.  Now he doesn't want to have me go back to mtx and wants to wait for a topical biologic.  I'm also a good candidate for clinical trials, but you can't do those if you have been doing other treatments. After 4 yrs, I'm used to wigs and am not so desperate. I did get impatient in May and started using Hair Up.  You have to have some hair -- which I got back with Vit D 10K doses -- for that to work.  I had fuzz for over a year with no progression.  This seems to be working.  It's spotty and not sure I'll ever be able to forgo wigs, but nice to have some coverage.  I got to the screening stage of a trial and reading the side effects had me really scared so I think going with topical solutions are the way to go.

Cindy

At 12:09pm on January 1, 2017, Jan said…
No, from California, USA. I have a distant cousin, our great grandmothers were sisters that had AA and her hair grew back for awhile and now she has AU. Dr.'s say this is too distant of a relationship to be considered genetic. From what I have read there is usually someone in your family that had Alopecia. I am educating people along the way as to the difference between women at my work with female pattern baldness and Alopecia. I let everyone know about my condition in case at some point the loss accelerates.
At 9:18am on December 22, 2016, Patchylatchy said…
Hi Dolly, ive been to your profile and read the about me section. I would like to ask you something how long after your first born did you see the spot and how big was it? All the best!
At 6:04pm on July 6, 2016, Gon said…
Hee Dolly,
Aangenaam kennis te maken!
Ik zit op facebook (heb zelf geen facebook) maar gebruik de facebook van mijn vader johncharlessijnke ( daarmee ben ik lid geworden op de LDN FACEBOOKPAGE van Paula Mead.
Groetjes uit Groningen
Gon
At 1:03pm on May 15, 2016, kev said…
Hi Dolly,sorry for late reply to your request in answer to your question I have now been on ldn for 3months and about 7 weeks on full dose of 4.5ml,I and my kids have noticed a lot of fine white hairs all over my head and I am over the moon as I really didn't expect any reaction for a while yet if at all,don't worry I will keep you posted on a more regular basis.
At 1:33pm on May 11, 2016, Sabri said…
Hi thanks for you friend request.
I only just found out about ldn and done a lot of research.
I live in London and they won't offer it to me.
I asked a friend to buy from turkey and will meet to collect in America as I'm going for a 3 week visit.
I will be happy to share my progress with you.
It looks promising.
I will you updates please send yours aswell.

I getting 50ml tablets and diluting it it distilled water. I seen on you tube how to do it with LDN.

Below is some info I found with are good reads.

http://suzycohen.com/articles/the-medicine-your-doctor-never-told-you-about-but-should-have/

https://sites.google.com/site/dudleyslowdosenaltrexonesites/home/how-to-obtain-ldn

http://www.ldnresearchtrust.org/content/low-dose-naltrexone-and-chronic-pain-pradeep-chopra-md

http://www.buylowdosenaltrexone.com/pricing.html
At 8:45pm on April 8, 2016, Nicolas said…

Yes it's work and has not sides effect like xelijanz i'm speaking whit factory to have it in cream 0,5% if you wants advise me so i can say you the cost the send in all world so i do not think problems in case i let send to my sister in italy and she can send in a normal packet to you from italy 

At 8:41am on April 5, 2016, pterese said…
Sure thing. Happy to share. The growth continues.
 
 
 

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