Liz Lov
  • Female
  • Surrey
  • United Kingdom
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  • Halfbakedwho
  • Jules Australia
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Liz and Liz Lov are now friends
Jan 5
Liz Lov and Weezie are now friends
Jan 5
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"Other good books along these lines:Medical Medium and Thyroid Healing by Anthony William.Have you had your thyroid checked by the way? "
Mar 18, 2018
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"Hin Lynn555, Sorry to hear of your Dad's diagnosis, such a tough time.It's great that you have been taking b12, Vit D, iron and a mutlivitamin daily, that will help with your general health. I would also recommend that you read up on…"
Mar 18, 2018
Liz Lov replied to akb's discussion Treatment cycling back: intralesional steroids in the group Frontal Fibrosing Alopecia
"Hi Sally, Def the way forward for me, it's too late for my hair.I will live healthy and enjoy all the new looks I will wear.Stress gone, I also have the old me back thank goodness"
Mar 7, 2018
Liz Lov replied to akb's discussion Treatment cycling back: intralesional steroids in the group Frontal Fibrosing Alopecia
"Hi Agneta, I'm also so grateful to have this site. I've struggled with this B*****.  ffa issue for YEARS, not knowing the cause, thinking it was only me, wondering why my own immune system was 'attacking me' etc. It's…"
Feb 28, 2018
Liz Lov replied to akb's discussion Treatment cycling back: intralesional steroids in the group Frontal Fibrosing Alopecia
"Hi Pif, Yes HUGE gut symptoms, bloating, not 'regular' etc. Diagnosed with leaky gut. I read as much as possible , great book is this one by Dr Michael Mosley " The Clever Guts Diet: How to Revolutionise Your Body from the Inside…"
Feb 25, 2018
Liz Lov replied to akb's discussion Treatment cycling back: intralesional steroids in the group Frontal Fibrosing Alopecia
"Hi illustr8rI also was late getting diagnosed and decided against meds that most likely wouldn't work for me anyway. I've lost so much hair it looks ridiculous! BUT THAT made the decision for me that I would wear wigs- full time and my…"
Feb 24, 2018
Liz Lov replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"I live on the UK, this is the one I get."
Feb 13, 2018
Liz Lov replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"This is very interesting. I take a couple of drops at night sometimes, get a great night s sleep at times of stress. Interested to hear how you get on with it."
Feb 13, 2018
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"Exactly, it's NOT just hair! It REALLY takes it out of you emotionally. I look at myself just a few years ago, looking 'normal' and compare to now, just SHOCKING. I first heard the dreaded ffa words when I went to my dermatologist for…"
Feb 10, 2018
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"@Sad in Chicago- so sorry to hear of your progression. Your words echo my own. 'Beyond horrible and such a frightening site when not wearing anything'. For me, now a full time wig wearer,  it has transformed my life. Took SO SO long…"
Feb 9, 2018
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"@Halfbakedwho Good luck with Dr Famous Man! Do let us know ;-)"
Feb 8, 2018
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"Halfbakedwho I have a super sensitive digestive system which is why I’ve changed my eating habits, certainly feel less bloated. Has it helped the hair loss? Absolutely not but I do believe it has helped calm my super active immune…"
Jan 28, 2018
Liz Lov commented on Celia UK's group Frontal Fibrosing Alopecia
"Ladies, let me share something with you, there IS a glamorous life with ffa! After spending the last 4 to 6 years stressing, crying, screaming, hiding, experimenting, whingeing, bargaining , ‘managing’ my ever growing shiny forehead with…"
Jan 28, 2018
Liz Lov updated their profile
Jan 27, 2018

Profile Information

Relationship Status:
Married
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Just diagnosed ( twice) with probable frontal fibrosing alopecia !

Only went to doc for skin check up! Mentioned recent hair loss as an after thought- WHAT a bombshell!

Waiting for biopsy to confirm for sure then will start looking at what can be done. 

Down in the dumps at the moment.

Liz

Comment Wall (2 comments)

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At 1:08pm on January 3, 2014, LeslieAnn Butler said…

Take care of yourself and if you have any questions, I am here.

At 1:03am on January 3, 2014, LeslieAnn Butler said…

Hello and welcome!

I'm sorry you're down in the dumps. You will get a lot of support here!

Leslie Ann

 
 
 

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