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Latest Activity

Kojack replied to Debs's discussion Ladies in UK with frontal fibrosing alopecia - URGENT
"Curious as to results of these tests?  Thx"
Jul 25
Kojack commented on Alopecia World's video

NFL QB Joshua Dobbs' Alopecia Awareness Mission

"On The Doctors he recommends wearing sunscreen.  I have read somewhere that sunscreen may in fact be something that contributes to the onset of alopecia.  I have frontal fibrosing alopecia which I discovered after a vacation in FLA where I…"
Jun 5

Profile Information

Relationship Status:
In a Relationship
About Me:
Diagnosed with FFA a month ago. Suddenly lost all hair on legs, arms and face. Still have few hairs on left eyebrow and some eyelashes but thinner. Hair very receded at forehead and around ears.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 7:57pm on September 11, 2014, LeslieAnn Butler said…

Thanks! I have always looked young for my age! And my guy is 13 years younger than me, tee hee!

I  divorced in 2007 and dated, but I wanted to hold out for the right guy. We've saved the best for last!

Keep watching for the breakthroughs -- there are two very promising new drugs being tested now for alopecia.

At 11:56am on September 11, 2014, LeslieAnn Butler said…

Hey Kojack, what a cute story. I am also 68 and I have recently met the love of my life (in January!). It's the most wonderful thing in the world! I've had alopecia since I was 25.

Anyway, a viable treatment is in clinical trials now so you may yet have all your hair back!

At 11:52am on September 8, 2014, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann



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