Kojack
  • Female
  • Alberta
  • Canada
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  • Debs
  • LeslieAnn Butler
  • Cheryl, Co-founder

Kojack's Discussions

Toctino

Started Feb 10, 2021 0 Replies

Has anyone ever been prescribed this for Alopecia?  Pharmacist says it is for eczema. I can find no mention of it here and I wonder if dermatologist is confused. Costs lots so don’t want to try if…Continue

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Latest Activity

Kojack replied to Charla S.'s discussion Frontal fibrosing alopecia
"7 years have passed now and hair loss finally slowing down but had sufficient receding in last 7 years to result in full time wig wearing.  Otherwise, I look like a clown.  Saw specialists even just last summer.  Finally gave up/gave…"
Jan 31, 2022
Kojack posted a discussion

Toctino

Has anyone ever been prescribed this for Alopecia?  Pharmacist says it is for eczema. I can find no mention of it here and I wonder if dermatologist is confused. Costs lots so don’t want to try if futile. I have FFA.  Any input appreciated. Thanks.  See More
Feb 16, 2021
Kojack updated their profile
Feb 10, 2021
Kojack replied to Erika B's discussion Success with any drug in the group Frontal Fibrosing Alopecia
"Hi Nancy Are you continuing to take dutasteride?"
Feb 8, 2021
Kojack replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"I was diagnosed around 2014-2015 and I also tried hydroxychloroquine and developed a rash the first week and had to discontinue. Hair continuing to recede and bangs too thin to cover baldness so having to resort to wigs now.  But they make some…"
Feb 8, 2021
Kojack replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Hi Robin it has been 3 years since you posted this and interested in how you made out with it?  Couttoj please provide an update?  Thanks muchly!"
Feb 8, 2021
Kojack joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Feb 8, 2021
Kojack replied to Ithastogetbetter's discussion JAK Inhibitors Xeljanz Tofacitinib - 3 year update
"Are you continuing to have success"
Feb 8, 2021
Kojack replied to Jiggybear's discussion Microblading eyebrows
"I also have fair skin and used to have auburn hair.  When I started colouring my hair blonde, I had to fight against the red and use ash to prevent brassy tones.  My micro bladed brows have never turned red.  Thinking it must have to…"
Jan 22, 2021
Kojack replied to Debs's discussion Ladies in UK with frontal fibrosing alopecia - URGENT
"So your post was in 2016.  Am I to assume the research was a dead end?"
Dec 10, 2020
Kojack replied to Debs's discussion Ladies in UK with frontal fibrosing alopecia - URGENT
"Curious as to results of these tests?  Thx"
Jul 25, 2020
Kojack commented on Alopecia World's video
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NFL QB Joshua Dobbs' Alopecia Awareness Mission

"On The Doctors he recommends wearing sunscreen.  I have read somewhere that sunscreen may in fact be something that contributes to the onset of alopecia.  I have frontal fibrosing alopecia which I discovered after a vacation in FLA where I…"
Jun 5, 2020

Profile Information

Relationship Status:
Married
About Me:
Diagnosed with FFA in 2014. Suddenly lost all hair on legs, arms and face. Still have few hairs on left eyebrow and some eyelashes but thinner. Hair very receded at forehead and around ears.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 7:57pm on September 11, 2014, LeslieAnn Butler said…

Thanks! I have always looked young for my age! And my guy is 13 years younger than me, tee hee!

I  divorced in 2007 and dated, but I wanted to hold out for the right guy. We've saved the best for last!

Keep watching for the breakthroughs -- there are two very promising new drugs being tested now for alopecia.

At 11:56am on September 11, 2014, LeslieAnn Butler said…

Hey Kojack, what a cute story. I am also 68 and I have recently met the love of my life (in January!). It's the most wonderful thing in the world! I've had alopecia since I was 25.

Anyway, a viable treatment is in clinical trials now so you may yet have all your hair back!

At 11:52am on September 8, 2014, LeslieAnn Butler said…

Hello and welcome!

How are you today?


Leslie Ann

 
 
 

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