Susan
  • Female
  • Grand Rapids, MI
  • United States
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WheresMyHair commented on Susan's blog post New person needs help, advice, support!
"Actually realized Bon is 100% Correct Candida & alopecia"
Sep 2
WheresMyHair commented on Susan's blog post New person needs help, advice, support!
"Susan you are 100% correct link between Candida and Alopecia. I been in healthcare for over 25 years and many healthcare professionals will tell you different....please share your Candida control protocol and my family and I will be starting 1 ASAp."
Sep 2
WheresMyHair liked Susan's blog post New person needs help, advice, support!
Sep 2
Susan commented on Susan's blog post New person needs help, advice, support!
"Hi Bon, Thank you for sharing a little of your history and a lot of helpful and supportive info. you Definitely have Not bored me! So far you have been the only one that has responded,   I guess I don’t know yet how to maneuver…"
May 5
Bon commented on Susan's blog post New person needs help, advice, support!
"Hi Susan, my hair started falling out in 2017 4 months after a near fatal routine surgery. I've lost way more hair since this pic. I finally got a biopsy and am diagnosed with Lichen Planoparlis a rare form of scarring alopecia. So the doc who…"
May 1
Bon liked Susan's blog post New person needs help, advice, support!
May 1
Susan commented on Sorodmom's photo
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B81C547C-0B9F-40F5-9C45-BEC4D14E8A35

"This wig? Looks incredible, where did you get it? I have been recently diagnosed with FFA, and have no idea where to start looking. susan"
Apr 25
Susan replied to Liz Lov's discussion Plaquenil ( hydroxychloroquine) and covid 19 symptoms in the group Frontal Fibrosing Alopecia
"I was recently diagnosed with FFA., one week before “Stay At Home” orders went into effect. I was  giving a topical, oral oxide ,  given a 6 week follow-up appointment , and told to find a support group.  I guess I…"
Apr 25
Susan joined Celia UK's group
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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.See More
Apr 25
Susan posted a blog post

New person needs help, advice, support!

I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.And then 1 week later , corona virus happened !so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also canceled.So I am at home now for eight weeks unable to go out and investigate hairpieces , wigs, meds, etc.Recently, I read on someone’s…See More
Apr 25
Susan is now a member of Alopecia World
Mar 12

Profile Information

Relationship Status:
Married
About Me:
Retired teacher, that was given some scary and heartbreaking news today about having Frontal Fibrosing Alopecia
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Susan's Blog

New person needs help, advice, support!

Posted on April 25, 2020 at 10:00am 4 Comments

I was recently diagnosed with FFA . The Dermatologist gave me a topical for my scalp, prescribed 200mg of Hydroxychloroquine , set up a follow-up appointment for six weeks , and told me to find a support group.

And then 1 week later , corona virus happened !

so all my appointments were canceled and also a Second opinion appointment I was able to set up, was also…

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At 11:53am on May 20, 2020, Adudé Fafa Akue said…

Hello,

How is everything with you, my name is Adudé Fafa Akue, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on:(adudeakuea@gmail.com) for the full details.

Have a nice day

Adudé Fafa Akue.

 
 
 

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