Plf
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  • Victoria
  • Australia
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Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi afraid, no low temp, but a low temp would definitely affect hair growth, ..what are you taking your temp with? And where? If not a rude question"
Jul 9
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hola all, well the sunscreen theory would certainly fit with why I have lost hair on my arms and legs as well!  But quite a problem as I also have had skin cancers removed from my face and body so need sun protection in Australia"
Jul 2
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi everyone, also a while since I have posted ..living in the land of denial, sounds like some small wins..but not 'the cure', Lu can you tell me if you have had any side effects from the medications?  I'm good to hear re the…"
Jun 30
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Go girls, thanks for all the practical tips there fantastic."
Mar 29
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Good on you spoilmygurl, and good luck at appointment, they charge like a wounded bull so yes have your questions written down.  Hope you get some answers"
Mar 20
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi spoilmygirl, I too cannot answer all your questions, I probably have had FFA for about six years?  Hard to know but I remember a hair dresser telling me the front Bart of my hair line was all inflamed, not associated with any itch or…"
Mar 20
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hola all, a product I have found really good for irritation, itchiness and also has calendula which is fantastic for healing is Hope's relief ( available at chemist warehouse in Australia) but also on line, so soothing, full of lots of goodies,…"
Mar 3
Plf replied to RoxyT's discussion Do you have these symptoms? in the group Frontal Fibrosing Alopecia
"Hi Roxy t, for me it's just frontal hair line loss, approx 3.5 cm if I'm honest, ..white shiny area where hair once was, Loss of hair on arms and legs..no other horrid stuff at this stage"
Feb 23
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Wow Deb's, fantastic input, I live in Australia..so a lot of the resources don't apply, really appreciate your positive attitude, yes just got to realise we are not alone and we r alive to tell our stories, go girl you are inspiring"
Feb 20
Plf replied to Irisheyes's discussion Finesteride, Cellcept results? in the group Frontal Fibrosing Alopecia
"Hi all, any side effects from the dusasteride? And what dosesge.  I was prescribed oral rogaine has any one used the topical product with success?, Thanks"
Feb 19
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"hi afraid, so far my eyebrows are sparse, but I think are responding to olive oil, enough there still to use eye brow powder ( but still sparse), lost hair on arms, and about 3 cm off the front of my hair line..so far quite fortunate by the sounds…"
Feb 19
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Oops celebrate"
Feb 13
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"I agree, we all have this angst, I know you know that your hairline is disappearing, but halfbakedwho, your hair is amazing, I cannot tell it's receding, ..celeb cele your curls"
Feb 13
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Thanks Lu, haven't got to derm yet, busily dealing with r/O bcc'sfrom my face, too much sun exposure as a kid..and now all the scary talk about not using sunscreen!!  Hairline seems to have stabilised but then again.may be just…"
Feb 8
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Thanks Elizabeth W, now if only Australia would follow suit!"
Feb 6
Plf commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Lu, just a quick question, when you had your appointment with Sinclair dermatology did the push the kerestase hair product range they have on their site, that supposedly stimulates the hair follicles"
Feb 5

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About Me:
57 year old women just diagnosed with frontal fibrosing alopecia, ..
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Plf's Blog

Just diagnosed with frontal fibrosing alopecia

Posted on January 25, 2018 at 12:48am 2 Comments

Hi, so glad to have found this forum, just before Christmas I went to have hair cut and my hairdresser was in shock at the loss of hair on my scalp since the last cut.  Needless to say he was pretty blunt and filled me in with horror stories.  I promptly went home and search Ed for a dermatologist in Melbourne who specialises in hair loss and managed to score an appointment on a cancellation.  Fast forward I had my appointment and apart from my diagnosis have been prescribed : aldactone,…

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