"No - I am not *really* writing a novel - I am playing someone on T.V. who is writing a novel! No that's not true either. I wish I could write a novel, but I lack imagination. I will read other people's novels and vicariously wish I had…"
"hi, everyone, it's been a long while. I have been in denial-mode which works for me, and very very busy (so much the better). I have lost a lot of hair on the top of my head. This is a good and bad thing for me since my hair has always been so…"
"Hello everyone, it's been a while. CurlyK I love your new hair. I just tried to catch up a bit - Minter I'm sorry that you're going through a hard time.
I have lost a lot of hair this fall; I find hair everywhere - all over my…"
"It would feel oddly better to me if I had a close or even not-so-close relative with this. I've always been the "weird kid" (what you're not surprised) and this just adds another notch to that scale, a peg to the left, a…"
"The weirdest thing - in the middle of my comment here my computer just switched off! A Mac - not supposed to do that shirt. If you know what I mean.
ANYway as I was saying, I am going to have to get out of my lazy-denial hair-space and look into…"
"Hi again, yeah my eyes are dry too along with everything else : b but my doctor says it's menopause. My hair is really thinning a lot on top and I'm not doing a dang thing about it aside from watching it leave my head - I'm kind of…"
"Hi Oh no,
I have never been much into meds. I already take an antidepressant long-term and will need to for the rest of my life most likely. I hated birth-control pills (when I was young) and today couldn't tolerate HRT. I tried Finasteride for…"
Can you discuss a bit about your decision not to take Finasteride? Just wondering about the downsides of that medication. My dermatologist does not like to prescribe it, but she did not go into detail. Thanks!"
"CurlyK - I love your new hair! It's been a while, I know, but I'm still here and still losing my hair and not wanting to take Finasteride etc. I've been following along on the FB group - different vibe there - people are more set…"
51 years old, have Frontal fibrosing alopecia that started 2 years ago, apparently rare. Hair loss only on sides of head and a bit on top, but it's getting more noticeable and my dx frightened me - have other auto-immune issues as well.
Can you discuss a bit about your decision not to take Finasteride? Just wondering about the downsides of that medication. My dermatologist does not like to prescribe it, but she did not go into detail. Thanks!
I'm not good at technology but will try and send you a photo. I have lost about 3 inches from the forehead and round to my ears. I had my hair long and was wearing it up and hiding it with headbands. It just got to the point of being so fed up with the hair that was left. I don't regret the decision....yet...and I have to admit the wig is taking a while to get use to. I have a very small head and the wig lies in top of my ears where my glasses go so not the most comfortable after several hours. It is also very hot in the weather we have been having but in that case I just worn a baseball hat. I find it best not to make eye contact with people that way if they are staring I just don't notice. its a horrible thing to have but I would rather have this than an illness that meant I was in constant pain. Take care
Hi, thank you :) I like your screen name as well ;) I'm in the USA. Diagnosed around 1 week ago. I'm 38. I'm really struggling with depression right now because of this. You're the first person to accept my friend request and send me a message. I really appreciate that.
hi halfbakedwho... i just tried to email you but it was returned undeliverable.. not sure what the problem is.. unknown or illegal alias. not great at computer issues.. what do you suggest? maybe you are better at this than i am?
also one more thing. do you have constipation? if so this is what you have to take care of. my food sensitivities cause if for me. when i stay away from the "foods toavoid list" things move better. when not, toxins stay in the body and cause issues. try magnesium gel. you don't take internally. you rub on your skin. our bodies don't absorb nutrients like they should with leaky gut so we need to take in other ways. also check your b12 levels. mine were low / about 279 (although dr. will say anything over 200 is fine, but naturopath advsied over 600 or higher is where we want to be.
from what ive read eczema you may know already is from stress but starts with leaky gut. heal your gut with food. and of course try to control the stress. i cant remember the site that i found info regarding the eczema help but will let you know as soon as i can dig it up. Stress was my big thing. it took a while but i dont let things bother me as much, even this hair loss(which still freaks me out sometimes after getting out the shower) but then I do my artistic thing....i not only have to paint my face with makeup i now extend to my head. oh well. that's my life. i am 59 and will be 60 the end of the year. I live in Canada so I love winters since I can put a hood on. I would love to email you separately instead of on the site? if you like please send me your email and we can communicate that way.
i started with the autoimmune paleo diet. you have to avoid a lot of foods for a while then reintroduce one at a time. please read up on it as i did this my 1st yr for a full year, i lost a lot of weight too due to the foods avoided. eat real food, no packaged preserved sh*t, organic as much as you can possibly afford. i also went to naturopath that recommended i be tested for food sensitivities. i had a long list... gluten,dairy, bananas, yeast and almonds was a big one for me. along with a few others. Cara do you have any other issues going on right now? hoping not.
hi.... i have had this scaring alopecia for about 4 years now. did not try any meds, foams etc. that dr. prescribed. thought they would cause worse problems, which we know they do.... how many side effects do most of them have. i did alot of reading for natural help. read up about leaky gut syndrome which is the cause of most health issues. hard for most people to understand but this does start with stress. worth checking it out. diet help immensely. i have foods that i must stay away from and feel better. i use to have the itchy scalp then the hair fall. not much
anymore. think of hives... why does anyone get hives? diabetes, insulin/sugar issues, peanut allergy's.... all food related. the one thing we all do is eat but certain foods affect some of us differently. my girlfriend gets pain in her leg and left side from gluten and certain other foods. stays away from it and it's gone...figure that one out. she also has pain in her ear alot with a loud whooshing noise that goes away if she stays away from those foods.. anyway i can keep going but most people don't believe it.. anyway all the best to you.
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.