Stephanie
Stephanie
  • Female
  • Independence, Missouri
  • United States
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This is How I Am, This is Me.

Latest Activity

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B.C. The hairless Guy replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
I agree my nails and really gross and jagged.......
Nov 14, 2010
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Auntie Sheila replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
I lost all of my fingernails about a month after my hair started to fall out. They are growing back. I am taking biotin and a prenatal and calcium+D...I'm hoping they will continue to grow out and stop splitting...I have been putting on a clear…
Oct 25, 2010
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Sherry Washington replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
After reading the other email. I do take a Biotin supplement daily so that may be the case for my nails.
Sep 28, 2010
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Sherry Washington replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
No affect on my nails at all. My nails are actually growing and they are strong, shapely and beautiful. I did read about alopecia affecting your nails....I pray mine remain as they are today.
Sep 28, 2010
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Happy Daddy replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
I have ridges on all my nails and occasionally I get indentations. They are still thick but aren't very flexible so instead of bending they tend to snap off down one of the ridges towards the cuticle causing bleeding so I have to make sure I…
Aug 27, 2010
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JeffreySF replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
You could try taking Biotin 5mg daily for your nails.
Aug 25, 2010
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cathy clark replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
My nails only become a problem when I use nail polish and remover-not sure which item does the damage-but it took me several years to figure this out-now nail polish is a big no no.
Aug 23, 2010
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Marisa replied to Stephanie's discussion 'Fingernails' in the group Alopecia Universalis
I agree...sometimes it just would be nice to sit and talk with someone who really understands...
Aug 15, 2010

Profile Information

Relationship Status:
Married
About Me:
I woke up one morning with a bald spot the size of a softball above my left temple, and my life has never been the same. That was almost 18 years ago. Now I live in Independence Missouri with my husband Joe and all our pets. I work as the news editor for a daily newspaper and can't believe how fast 30 has crept up on me.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes

Stephanie's Photos

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Stephanie's Blog

Stephanie

I've been neglecting you all

Posted on November 11, 2009 at 11:39pm 5 Comments

I know it's been months, literally, since I've even logged on to Alopecia World, and I'm so ashamed of myself.



I switched to the night shift at work, which has been crazy.



As soon as I got adjusted to that, I found out I am pregnant. I'm due in January, and spend most of my free computer time researching baby-related stuff.



My hair grew back this summer, likely from the hormones and prenatal vitamins. I really thought I'd be wearing a wig for the rest of my… Continue
Stephanie

Today I cried

Posted on February 21, 2009 at 3:14pm 3 Comments

I read a story about a little girl in Mass. with Alopecia. Her cheerleading team and all the pop warner football team wore bandanas on their heads or a T on their helmets to support her during a fundraiser. One of the parents (a coach) and a player shaved their heads to support her.



I read this in the latest NAAF newsletter, and got teary-eyed. Then, I read it out loud to my husband and started sobbing. What an amazing group of people. It made me wish I had that kind of community… Continue
Stephanie

A lot going on

Posted on January 31, 2009 at 1:55pm 0 Comments

I don't know if it's a blessing or a bad thing, but over the last several months, I've kinda' put my alopecia in the back of my mind (as much as I could) to focus on the holidays and work... And a bout of stomach flu.

I just haven't had much time to sit and do anything but work.


I got a new wig from Revlon, and I LOVE. It. I'll post pictures soon, I promise.
Stephanie

In my dream...

Posted on December 20, 2008 at 4:29pm 1 Comment

For someone who portrays the world that she's OK with wearing a wig, I still finding myself having the same dream.



I wake up one morning, just like any other morning and start getting ready for work. I go through the routine of taking out the dog, showering, brushing my teeth, doing my makeup (all with the towel on my head) and them situating my wig before I leave for the office...



But this particular day is different because I have time to kill and notice my hair has… Continue
Stephanie

I found a new bald spot

Posted on November 21, 2008 at 8:35pm 4 Comments

I've been keeping my real hair really short lately... my wig doesn't seem to move on my head so much if my hair is short.



And I noticed the places where I do have hair don't seem to be growing as quickly, and the bald spots that showed up last spring seem to be taking a much longer time to grow back. One is almost completely grown in, and I can feel peach fuzz on the other, but it's taking a long time.



But yesterday, I noticed another bald spot on top, a little to the… Continue

Comment Wall (14 comments)

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At 5:33pm on November 27, 2008, CSueCSue said…
At 8:32pm on November 8, 2008, MayMay said…
hope your having a blessed day...you have goregous eyes.
At 2:28pm on October 26, 2008, JeffreySFJeffreySF said…
Hi Stephanie,

Stopped in to say hello.
Hope you are having a nice weekend and all is well with you.

Jeff
At 4:21pm on October 1, 2008, LeslieAnn ButlerLeslieAnn Butler said…
Hi Stephanie,
Like you, I'm a writer and have universalis, too. How are you today?
I wanted to say hello and welcome.
LeslieAnn
At 1:48pm on September 30, 2008, CandaceCandace said…
Welcome Stephanie! I must admit...I shedded some tears while reading your story! I'm really glad I read it and hope to chat with you soon! Take Care!
At 12:02pm on September 29, 2008, Cheryl, Co-founderCheryl, Co-founder said…
Hi stephanie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
At 11:50am on September 29, 2008, DylanDylan said…
soooooo do you have msnÉÉ
At 8:15am on September 29, 2008, Amber LounderAmber Lounder said…
I love your story Your husband seems like a super sweet guy Great pics You are a very lucky and beautiful lady :)
At 1:47am on September 29, 2008, Rose Marie'Rose Marie' said…
Hi Stephanie

Welcome to alopecia world. It's a great place to spend some time.

I just read your blog and I looooooved it. Thanks so much for sharing. My daugther has AU and is 17 years old.

I'll look forward to getting to know you a little better.

Rosy
At 9:30pm on September 28, 2008, DawnDawn said…
Hi and welcome Stephanie
 
 
 
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