If Your Hair Falls Out, Keep Dancing!

Profile Information

Relationship Status:
In a Relationship
About Me:
I'm an artist and author living in Portland, Oregon, with my sweetheart Ron, two cats and a dog. I've had aa for about 35 years, universalis for 25 years.

The latest on my book, "If Your Hair Falls Out, Keep Dancing!" is that it is now available not only in the USA, but Canada, England, Australia, European Union, Germany, Brazil, Russia and Poland.

You can find it at www.Amazon.com and any other online bookstore, as well as the National Alopecia Areata Foundation Marketplace. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.

You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."

Here are a few comments from readers:

"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)

"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)

“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”

"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."

"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
- Nicole

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.

To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com, at www.NAAF.org in their Marketplace, or click the link below.

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my author website at www.npauthors.com/leslieannbutler and click my name; and my artist web site at www.leslieannbutler.com.

And don't forget to have fun today!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):

Comment Wall (1,241 comments)

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At 5:08pm on December 18, 2014, Jinzy said…

Hi, LeslieAnn!  Thank you so much for the welcome!  I'm doing great! I noticed that you are an author...would love to read your book!

At 4:53pm on December 18, 2014, Aly said…
Hi all, thanks for having me.
Last night I found more spots on the back of my head. I fear I won't be able to hide it much longer. Waaaaaaaaaaaaaa
At 2:41pm on December 18, 2014, Molly said…

Thanks. I stumbled on this site by accident. I was recently diagnosed a  few weeks ago, and was looking for resources. Although, I have some hair loss, my main reason for going to the dermatologist was I've had this itchy. burning rash-type thing going on my face. It's really affected my self confidence., My doctor told me it's all related.It's like the pores on my face have scared over. I haven't read where anyone else has had this happen, so I was looking to see if anyone, also, had these type of symptoms.

At 10:05am on December 18, 2014, itzmejudy said…

Thanks for the hello. I am doing ok. I wish hair pieces and wigs didn't cost so much. I have been looking but on a limited income it is impossible to buy one but I am fine so far without one. I have decided to try and help other low income women by asking women who have wigs or toppers to send them to me. I am going to start a program to provide them at no cost to these women who can't afford them. I hope it works out but it may take some time to get it set up. I have asked for wigs on facebook and have had positive responses. I hope all suffering with Alopecia are doing well.

At 6:24am on December 18, 2014, Ann Wilson said…

HI Leslieann, Thank you for your welcome. I really don't know what to think at this point. I am newly diagnosed with FFA....I have little eyebrow hair and the hairline by my ears is starting to thin. I'm not really freaking out. I'm on the fighter mode right now trying to see if any treatments will help. My Derm. has given me eyebrow and scalp  prescriptions so I am going along with that and playing the waiting game. Your book looks interesting. Have a Merry Christmas!

At 10:59am on December 8, 2014, Londongirldee said…
I'm very good, thank you for asking. It's a beautiful sunny but cold day here in London. It was my Birthday yesterday and the first time some of my family members had seen me in the flesh with my new bald look.
The response was so positive and supportive.
I had my first down day on the 6th Dec as more of my hair started to come out so may be heading towards A Totalis but after speaking to my amazing Sister I felt much better.
At 11:49am on December 7, 2014, shanjon67 said…

Thank you for the welcome. I'm glad I found this page, it's good to know I'm not alone. I was wrong about my alopecia, though. I have androgenic alopecia, it wasn't one of the choices on the profile page. I have very thin hair on my head, very fine eyebrows, and very little body hair. I will post pics later on, I'm very inspired by the all the great pics on here, especially the women who choose to not wear wigs. I just wish I could get to that point!

At 4:44am on December 7, 2014, meriann said…


Thank you for the warm welcome.Small presentation for me. I have diffuse hair loss of about 5 years. My hair is now fallen 60%. I guess my problem is hormonal, but I do not want to use progesterone. In Bulgaria there are no qualified doctors on the problems of hair loss. I myself find the reason for my hair loss.

Sorry for my english :)

At 4:40pm on December 1, 2014, suburban mom said…

hi leslieann - thanks for the welcome! it is greatly appreciated!   i've had alopecia for about nine years and my son for about a year.  your book looks terrific - i will check it out.  have a great day!

At 12:59pm on December 1, 2014, Claire said…

Thanks for the welcome.  It is relieving to see others that are going through this and dealing with it so positively as I feel frustrated and so unsure about the future.  I see that you have a book - I will definitely be looking into it more.





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