I'm an artist and author living in Portland, Oregon, with two cats and a dog. I've had aa for about 30 years, universalis for 20 years.
Hooray! My book, "If Your Hair Falls Out, Keep Dancing!" has won TWO NATIONAL AWARDS: The national ReaderViews Best Body/Health Book Award and ForeWord Magazine's Book of the Year!
Thank all of your for your support and feedback on the book!
"If Your Hair Falls Out, Keep Dancing!" is available at www.Amazon.com and any other online bookstore. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.
You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."
Here are a few comments from readers:
"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)
"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)
“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”
"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."
"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.
To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com or click the link below.
Hi .thx for welcoming me. I have been suffering with AT for 8yrs. Still difficult to get a proper lightweight wig . We have extremely hot weather in SA. Looking for a reliable source for a follea gripper sport wig urgently. Can any one perhaps assist me. Many thx! I am so desperate. Its 42 degrees and more here
i really want to order your book, for some reason it is not available in the Netherlands.. (i don't have a credit-card.. it not really common to have one in the netherlands, which makes ordering difficult). Do you know where i can buy one of your books with paypal for example?
Are you dairy free? We have no alopecia in our family. You are the first person that I have talked to that has not yielded results from a diet change. How long have you done the diet? You don't eat sugar? Have you ever had any steroids either topical or injected?
With Athena we started her on a steroid pulse. It was given orally once a month for three months. We also started her on the gluten/dairy free diet. Immediately we saw results from the steroid pulse. We were also giving her a rogaine and cortisone cream topical treatment twice a day. Eventually we went full on with the holistic approach giving her castor oil rag on her belly every night for 10 mins. Also giving her vitamin A drops, and probiotics along with special gummy vitamins, and cod liver oil daily. It's a lot of work, but we have gained almost all of her hair back from pretty much being universalis. She had a few more eyelashes left. So now she is almost fully recovered.
I have to be honest your story makes me sad although this disease is unpredictable I feel like this approach is working. It makes me sad to hear it's not working for you. The good news is the latest research sounds very promising coming out of Columbia University. It seems they are very close to curing this disease. So hopefully one day there is just a pill to swallow and Athena can eat whatever she wants.
I'd like to find more people like yourself that have tried the diet and not worked. Maybe it's something else ? Take care
My daughter is 2 and a half now. She was around 18 months when she was diagnosed. I'll send you pictures if you like. Have you tried a gluten/dairy free diet? Or a probiotic? It's amazing to me that the diet has not been more talked about. My email is firstname.lastname@example.org
Hello, i am excellent. How are you? I am here to hear other's experinces and to feel that i am not the only person with this problem. This site looks really interesting and with good purpose. Besides that i have never talked to people with alopecia, so this is my chance. I have a great number of questions and i would like to read your book. :) :)
Hi. I am doing okay, just have lots of questions. I want to know that i am doing everything possible to keep the hair i have if possible. I haven't told my boyfriend yet, i am afraid he will leave me :( he keeps asking about my eyebrows..
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