LeslieAnn Butler
  • Female
  • Portland, Oregon
  • United States

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LeslieAnn Butler's Discussions


If Your Hair Falls Out, Keep Dancing!

Profile Information

Relationship Status:
In a Relationship
About Me:
I'm an artist and author living in Portland, Oregon, with my sweetheart Ron, two cats and a dog. I've had aa for about 35 years, universalis for 25 years.

The latest on my book, "If Your Hair Falls Out, Keep Dancing!" is that it is now available not only in the USA, but Canada, England, Australia, European Union, Germany, Brazil, Russia and Poland.

You can find it at www.Amazon.com and any other online bookstore, as well as the National Alopecia Areata Foundation Marketplace. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.

You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."

Here are a few comments from readers:

"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)

"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)

“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”

"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."

"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
- Nicole

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.

To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com, at www.NAAF.org in their Marketplace, or click the link below.

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my author website at www.npauthors.com/leslieannbutler and click my name; and my artist web site at www.leslieannbutler.com.

And don't forget to have fun today!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):

Comment Wall (1,278 comments)

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At 6:49pm on September 26, 2015, Gail said…

Hi Leslie Ann.  I'm fine, thank you. Your .sou nds interesting, and I'm considering it, not only for myself but also for a friend who has gone through chemo and whose hair never did come back adequately. I have frontal fibrosing alopecia. At this point, I am hopeful that my condition will not progress much more; at least my dermatologist thought it had run its course. Sure hope he's right!  :o)


At 2:07pm on June 29, 2015, Barbara Buchanan said…

I found your book!! Can't wait to order it!


At 9:21pm on June 27, 2015, Jlhollow said…
Can I purchase your book via kindle? Or only hard copy?
At 9:04pm on June 27, 2015, Jlhollow said…
Hi Leslie! Thanks so much for checking in. Doing ok. Also so happy to find this website. Have been dealing with diffuse hair loss (scalp, brows, lashes, nasal) for 10 months so far and it's nice to connect with others and see that I'm not alone. Would love to check out your book. Working on acceptance of this and hopefully your book can help me with that.
At 9:47pm on June 24, 2015, mscosu said…
We are doing well. My son is progressing, he recently commented that "there are things worse than alopecia." He shaved his head a few days ago. That was a hurdle, but a necessary one.

I read your background page and will check out your book. Thank you for welcoming me.
At 4:39am on June 8, 2015, Marie said…

Good morning  Leslie,

Thank you for asking.

I live in Denmark, with my 2 year old daughter and my future husband.
We're getting married 29th of August, so there's a lot to do.
I think especially because my alopecia universal makes things a little harder. I miss my eyelashes and eyebrows. I really want to look pretty on my special day.
I daily use false eyelashes, but I'm nervous if they gonna fall of in the church or during dinner. I imagine there will be some tears. :)
I have not been so active here, but I hope it comes, I could use some advice regarding good eyelashes and good and durable glue.

I hope you are well and thank you for your message.

At 3:58am on June 7, 2015, Precious 66 said…

Good morning, 

Thank you for asking. Was feeling a little down today but thanking God for life. Nice profile. I will be buying your book. We'll keep in touch. God bless.

At 1:47am on May 29, 2015, Kitra said…

Hi Leslie,

Nice to meet another Oregonian. I am new to all of this, and feel numb, or overwhelmed. I don't know what to do.

I was diagnosed with Alopecia Areata this month. With my birthday tomorrow, and the future unknown; I hurt, but I am not going to be a victim of this disease.

Your book sounds inspiring. I think I'll buy a copy for my birthday.~Take care

At 1:28am on May 22, 2015, katelenp said…

Yes Leslie, I will certainly tell you how I like your book. I am a middle school teacher and am looking forward to the chance to finally sit down with a book to read at my leisure again. Thank you again for the support. 

At 11:15pm on May 21, 2015, katelenp said…

Hi Leslie,

Thank you for welcoming me. I purchased your book and am awaiting its arrival. I notice my hair coming out in massive clumps in the shower and while brushing it. I had my boyfriend giving me a rough percentage of hair vs. not hair on my scalp. According to him, its 70% hair to 30% not hair. In this state of frustration, I am tempted to shave my head and revert to my headwrap ways. I am also currently using a professional shampoo/conditioner line named 'Bosely Pro' that claims to stimulate hair growth. I have yet to see a major change, but know that alopecia always ebbs and flows in terms of loss and regrowth. We shall wait and see what is in store!





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