If Your Hair Falls Out, Keep Dancing!

Profile Information

Relationship Status:
In a Relationship
About Me:
I'm an artist and author living in Portland, Oregon, with two cats and a dog. I've had aa for about 30 years, universalis for 20 years.

Hooray! My book, "If Your Hair Falls Out, Keep Dancing!" has won TWO NATIONAL AWARDS: The national ReaderViews Best Body/Health Book Award and ForeWord Magazine's Book of the Year!
Thank all of your for your support and feedback on the book!

"If Your Hair Falls Out, Keep Dancing!" is available at www.Amazon.com and any other online bookstore. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.

You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."

Here are a few comments from readers:

"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)

"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)

“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”
-Renee

"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."
-Liz

"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
- Nicole

I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.

I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.

To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com or click the link below.

Hear a live interview at http://www.insidescooplive.com/author-pages/Butler-LeslieAnn-readin....

Visit my author website at www.npauthors.com/leslieannbutler and click my name; and my artist web site at www.leslieannbutler.com.

And don't forget to have fun today!
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://astore.amazon.com/ngp-20/detail/1933449586

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Comment Wall (1,206 comments)

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At 6:18pm on August 27, 2014, Houle said…

Hello Leslie.  Thanks for the welcome message. 

I was recently told that I have Lichen planopilaris.  Seems like we may have caught it early, but the hair that I have lost (mostly eyebrows and frontal )will not come back.   

I wanted to find a support group of people who have experienced the same. 

Would love to hear from women who have the same and have changed their hair style to cover the frontal issues. 

 

Thanks,

Ellen 

At 7:53pm on August 26, 2014, drea said…

HI, THANKS FOR THE MESSAGE. do you know how i can find a group in central florida?

At 8:55pm on August 21, 2014, emsy said…

Hi LeslieAnn

Thanks for your message. I'm doing ok am a bit scared and a little angry/ sad as was diagosed with Androgentic Alopecia two days ago.  Although I knew in my heart that I had it before the diagnosis I guess I am now faced with the reality of how draining it is going to be trying to keep positive. Need to come up with some coping mechanism before it all becomes very obvious. I just also find life Ironic as I  always had too much hair !!! crazy. I am glad you have this forum for support as finding it difficult for anyone close to me to understand. Cheers Emma

At 12:01am on August 9, 2014, Mom2C&R said…
Hi LeslieAnn, thank you for reaching out to me! We are still very heartbroken about our sweet girl. She recently lost the rest of her hair despite topical treatment. She does have some fine regrowth right now. And still has her eyebrows and lashes. We have decided to keep her off medication for a while and give her body a break. We are bringing her down to UCSF in 2 weeks and I am hopeful they will have some new ideas for us, though realistically I know they probably won't. I had no idea how emotionally painful it would be to watch you little girl's hair fall out. I worry about her starting school. Kids can be so mean. I know it will be okay in the end and we will all be better people for this experience, but I'm still grieving. Thank you again for contacting me, I will look into your resources, I can't imagine how encouraging it must be!
At 12:16pm on August 6, 2014, Ramesh said…

Hi Leslie,

Thanks for the message. I don't have a specific guru. I first learnt the headstand when I was a kid from my grandfather, who is no more. I guess he was my first guru. I have read and followed many gurus since including Yogananda, Swami Rama and Ramana Maharshi. 

At 12:02pm on August 4, 2014, Daphne said…

Thanks for the message. It is nice to know we are all not alone! My seven year old daughter was diagnosed exactly a year ago with Alopecia Totalis. Within 3 months, she had entirely lost her hair, but not her eyebrows and eyelashes. We are working with a Dermatologist, but have also seeked the help of a Naturopath. After extensive food sensitivity testing, and live blood work, we have eliminated gluten completely, as well as dairy, and eggs primarily. She has been on this regimented diet since November 1. March, she started to get blonde peach fuzz. She now has hair, covering about 70 percent of her head. It is coming in in patches, just as it shed, but we are thrilled to have any regrowth. We understand Alopecia is very unpredictable, and we are prepared for what may be a very long journey, but feel very fortunate at this point. I look forward to reading your book. 

At 6:13pm on August 3, 2014, Sara said…
Hello :) thanks for the welcome message ! We are doing ok. Was just looking at your comments and definitely plan on getting your book :)
At 5:48pm on August 2, 2014, Malin said…

Thank you for your welcoming! I just got diagnosed, so I'm definitely new in the situation. Trying to stay positive and happy even though som Days are easier than others. I guess that's a part of the process. Congratulations onn your book, I will definitely order it!

At 4:16am on August 2, 2014, Malin said…

Hi Leslie-Ann, and thank you for your welcoming me.

This website have finally made me realize that I'm not alone in this World and that there's people that understands me and know what I'm going through. I got diagnosed in February, and loosing my hair slowly so I'm definitely a beginner in all of this and trying to get through day by day.
I understand that you have a book abt this, i will buy it as soon as I'm back in america. Im visiting my family in sweden right now. Im very excited to read it, I Think it might be just what i need right now.

hope all is well and thank you for your email!

At 9:54pm on July 31, 2014, MamaDavis said…
Thanks Leslie. I'm having rough moments today but I didn't spend the whole day crying so its better than days I've had. I just feel so helpless and I hate, absolutely hate being so emotional about it. My journey is just starting and freaking out about now far its going to progress! Hope you had a great day!
 
 
 

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