I'm an artist and author living in Portland, Oregon, with two cats and a dog. I've had aa for about 30 years, universalis for 20 years.
Hooray! My book, "If Your Hair Falls Out, Keep Dancing!" has won TWO NATIONAL AWARDS: The national ReaderViews Best Body/Health Book Award and ForeWord Magazine's Book of the Year!
Thank all of your for your support and feedback on the book!
"If Your Hair Falls Out, Keep Dancing!" is available at www.Amazon.com and any other online bookstore. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.
You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."
Here are a few comments from readers:
"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)
"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)
“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”
"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."
"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.
To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com or click the link below.
i was just reading all the comments about your book, i think i am going to purchase it, i need all the encouragement i can get. not only am i trying to deal with the fact that i have lost almost all of my hair, my eyebrows and eye lashes are starting to go as well. but my boyfriend of 3 and a half years decided that he can't handle being in a relationship right now because he has too many personal issues going on within in himself.(too long of a story) talk about bad timing. although his decision has nothing to do with me and my issues but the TIMING REALLY SUCKS. how do you try to be stress free at a time like this? not to mention feeling very unattractive. i'm trying to have a positive attitude about my situation, until your hear about others suffering from the same issues it's hard to deal with. So far i have gotten many compliments on my new hair style, which is a little encouraging.
thanks for letting me vent, and i will be sure to get your book.
Thanks for asking. I've been on an optional rollercoaster since last week when my daughter asked me why god did this to her. She doesn't know much about the possibility of losing all of her hair yet. She does a great job at covering up the bald spots on her head. I have faith that we will get through this whatever the outcome may be. I'm glad that I found this website because not many friends or family have ever heard of it and since she is so good at covering her bald spots they don't know what we are dealing with at this point. Thx for inquiring how I am. I'm still learning how to use this site so if I've replied in the wrong area I apologize.
Many thanks and blessings to you!
congrats on your success, you are very joyous in your life approach. thanks for the inspiration.
At 12:44am on September 17, 2014, Sassydiana said…
I am great... Thanks for asking. I finished reading your book, and find it very helpful. A great read, with just enough fun to keep it balanced. I have only been diagnosed for about 1 month, I still have hair and am hopeful it will grow back, however I am still loosing hair at a fast rate. I read and research all I can about this disease. I would love to make a difference in the lives of children who are facing alopecia.
Hello, im from Bosnia and i have SCARRING ALOPECIA LICHEN PLANOPILARIS,and doctor told me that i probably have ANDROGENIC ALOPECIJA to! Im 29 years old and im dealing with that since i was 20 years old. I still have my own hair but i decide to by a wig so i was wondering if someone can give me some advice regarding that and i would be glad if i can exchange experiences relatet to diagnosis.Doctors told me that is not hereditary, but im scared that my children could inherit it from me when i decide to have them. I think im dealing with this very good theres a days when i just cry when im alone in my 4 walls and sometimes i just say things could be much worse. You are healthy,smart enjoy in your life. Some people are struggling with the horible desises like that i comfortet myself. But still its hard especially when you know that you never had even a broken tooth not to mention that i have never been sick in my life and for years i have alopecia and i dont know why or how to treat her!
That is awesome news, the possibility that I may get my hair back. Will be keeping my fingers crossed on that one.
Looks like we have more than alopecia in common. Congrats and best wishes in your new romance. My friends always told me good things come to those who wait. Just didn't think I would have to wait that long (divorced in 1993 after 23 yrs).
I must say you wear 68 well!!! Good for you! And I really like your wig in the pics. I am sure u r an encouragement to many.
I am havingg a good day in spite of the fact that we have SNOW this morning in AB, CAnada, and it is way too early for that. I am thankful that I can winter in Yuma, AZ, USA, but don't head south til end Oct.
The reason I chose Kojack as my name for this site is my fiancé (68 yrs old and finally found the love of my life, got engaged August 13th) said, when I was diagnosed in Aug, "Guess I will just have to call u Kojack then." That was his way of making light of it. I am thankful that I got it later in life (had such a thick head of hair til now) and that it is not life threatening. Just hoping we can arrest any further hair loss. I haven't read of any others having lost all hair on arms and legs as well as frontal, eyebrows and around ears, and wondering if I am alone in that symptom? At present (since August 23rd) I am applying topical 0.05% glucocorticoid lotion twice daily around hairline on head and taking 1 Finasteride every 48 hrs. If no improvement in 2 mos., I go for (cortisone?) injections. Scalp is still very itchy on and off so not sure if treatment is working or not.
Just want to add that my heart goes out to the mom's of little girls who have alopecia. Praying for all of you that they will find a cure for this.
Hi LeslieAnn, Thanks for the Welcome. So glad Ive joined. I feel greatful to have found this Website. I feel relieved that I can talk with people who understand how it feels to lose all your hair or some of your hair. This is a very vulnerable and scarey time. I also read on your wall you wrote a book. Ill have to search for it and give it a read. Have a great day !
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