I'm an artist and author living in Portland, Oregon, with my sweetheart Ron, two cats and a dog. I've had aa for about 35 years, universalis for 25 years.
The latest on my book, "If Your Hair Falls Out, Keep Dancing!" is that it is now available not only in the USA, but Canada, England, Australia, European Union, Germany, Brazil, Russia and Poland.
You can find it at www.Amazon.com and any other online bookstore, as well as the National Alopecia Areata Foundation Marketplace. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.
You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."
Here are a few comments from readers:
"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)
"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)
“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”
"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."
"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.
To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com, at www.NAAF.org in their Marketplace, or click the link below.
Hi Leslie! I apologize that I did not get back to your comment until now. I do not login often on this site, and did not see it. Surprisingly you are the person who actually got me on this site. A friend of mine told me that he knew another elevation who was also an artist who lives in Portland and somehow looking up your name brought me to this site. I would love to have a conversation with you sometime! Robin
It's actually been a tough day. I do not struggle with my hair loss anymore, but I've spent three and a half years trying to find the best wig for me. I've done hours of research. Finally, after spending a whole lot of money,on other wigs, I decided to make the investment in a Follea. I had read only positive things about them. Truly rave reviews by all. Initially, I loved it. But,after wearing it for only six weeks, it was tangling. I was constantly combing out the knots under the nape. It then became dry and damaged. I had purchased it through Peggy Knight. I called Follea first. They instructed me to call Peggy. I took her advice when she suggested different products. It made no difference. (I didn't think it would. It had been washed & conditioned with high end products - Pureology). The hair was dry & damaged & yes, tangling way too much. I called Follea, after Peggy was of no further help. Not one word of apology or concern from her. She never even said she was sorry that I had this problem with my wig. But, this isn't about bashing Peggy. (I would never buy from her again). Folles,at first was very nice,concerned, & agreed to a full refund,or replacement. It became more complicated, but now they won't replace it without it being inspected by them.
I am really shocked and very distressed that a wig I spent almost $5,000 on, would have these problems with it, after only six weeks!!
Whether Follea does the right thing and stands behind it's product or not, that's not what this is about either. I would like to know if anyone else has experienced tangling with a Follea??? Any problems with dryness in the hair under the nape?? It looks very damaged. BTW, my stylist handled it very gently, never even putting a blow dryer on it. It's been handled with kid gloves. I have always taken good care of my wigs. I've been totally upset over this, as I truly believed Follea offered a superior product. Am I the only one to get a "bad Follea Gripper"??
Would love to hear from other Follea owners.
Hi. I saw that someone used a phrase "coming to acceptance."
My dermatologist has tried several medications but the disease is still active. The last thing she suggested was that I double to 400 mg daily my daily dose of hydroxychloroquine but get my vision and hearing tested because it could cause loss of both OR I could stop all medication and see if it stabilized on its own. (I also was using Clobetasol directly on my scalp.)
I stopped everything but the red patches with the flaking around the base of the hair in front is worse and the itch was driving my crazy so today I went back to 200 milligrams or hydroqcloroquine and the Clobestasol.
I'm embarrassed to be writing this because I have lost very little hair so far. What makes it difficult is that I also have a very dry mouth from other medications and bad headaches for which I'm going to get at MRI.
A therapist friend mentioned last week that some of the people she sees will not be here next year soI feel guilty about complaining about FFP but I'm newly diagnosed and it stinks - cause like probably all of you, I have other problems in my life.
Sorry to go on so long. thanks for giving me a chance to speak
Hi, I am doing fine. I am really struggling on a decision on how to handle my hair loss. It is falling out in front and on top. Trying to decide on weave, wig or just going bald. working on acceptance. If you have any suggestions on books, reading, etc. please share with me.
Hi Leslie! Thanks so much for checking in. Doing ok. Also so happy to find this website. Have been dealing with diffuse hair loss (scalp, brows, lashes, nasal) for 10 months so far and it's nice to connect with others and see that I'm not alone. Would love to check out your book. Working on acceptance of this and hopefully your book can help me with that.
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