I'm an artist and author living in Portland, Oregon, with my sweetheart Ron, two cats and a dog. I've had aa for about 35 years, universalis for 25 years.
The latest on my book, "If Your Hair Falls Out, Keep Dancing!" is that it is now available not only in the USA, but Canada, England, Australia, European Union, Germany, Brazil, Russia and Poland.
You can find it at www.Amazon.com and any other online bookstore, as well as the National Alopecia Areata Foundation Marketplace. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.
You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."
Here are a few comments from readers:
"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)
"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)
“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”
"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."
"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.
To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com, at www.NAAF.org in their Marketplace, or click the link below.
Thanks so much for your post! I've been diagnosed for quite sometime with Alopecia Universalis....I began losing my hair during early childhood (about 3-4 years old). It was quite a challenge for my family and myself during early childhood thru early adulthood.
I would love to speak with you about my study. I'm very excited about the study because it will offer a voice to the family members' of those diagnosed with any form of Alopecia.
As you know each of our stories may differ (according to our personal experiences), yet there is little to no information about family members' stories or about their experiences.
Looking forward to my journey and reading more about people LIKE ME! AWESOME!
Hi Leslie! Thanks so much for checking in. Doing ok. Also so happy to find this website. Have been dealing with diffuse hair loss (scalp, brows, lashes, nasal) for 10 months so far and it's nice to connect with others and see that I'm not alone. Would love to check out your book. Working on acceptance of this and hopefully your book can help me with that.
Thank you! I was excited to find this website. When I was younger, I kept to myself about my diagnosis, but I am now a junior in college and have decided to reach out. I am trying to find ways to reach others with alopecia for a video project I am doing to raise awareness and understanding for this disease. (: If you want to check out my discussion post about the project, it's called "Alopecia Video Project." I am hoping to get as many people involved as I can. And I am doing pretty well! How about yourself?
I live in Denmark, with my 2 year old daughter and my future husband. We're getting married 29th of August, so there's a lot to do. I think especially because my alopecia universal makes things a little harder. I miss my eyelashes and eyebrows. I really want to look pretty on my special day. I daily use false eyelashes, but I'm nervous if they gonna fall of in the church or during dinner. I imagine there will be some tears. :) I have not been so active here, but I hope it comes, I could use some advice regarding good eyelashes and good and durable glue.
I hope you are well and thank you for your message.
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