I'm an artist and author living in Portland, Oregon, with my sweetheart Ron, two cats and a dog. I've had aa for about 35 years, universalis for 25 years.
The latest on my book, "If Your Hair Falls Out, Keep Dancing!" is that it is now available not only in the USA, but Canada, England, Australia, European Union, Germany, Brazil, Russia and Poland.
It was written a few years ago, so it's not completely up to date on the newest medical findings, but these are readily available on this site.
You can find it at www.Amazon.com and any other online bookstore, as well as the National Alopecia Areata Foundation Marketplace. The book can be shipped anywhere in the world. If you want to get it at your local bookstore, simply ask them to order it for you.
You can see me on TV for a short segment talking a little bit about the book. Go to: http://www.katu.com/amnw
Click "Being Bald."
Here are a few comments from readers:
"If only I'd had this book when I first started losing my hair to Alopecia Areata. Some stories made me cry. Some made me laugh. All made me realize that I'm not the first to have gone through this.
"Leslie Ann provides invaluable information on wigs, eyebrows and eyelashes. Eye makeup tips that make all the difference in the world.
"The best part of all about this book is that even the serious parts are related with a sense of understanding and underlying humor.
"I'm passing my copy around to all of my family members to read!"
- Ree, Alopecia World member(who says she has read the book three times)
"I read your book. I laughed.I cried.I enjoyed your art.
Most of all, it helped me to accept my new image. I've always thought of bald women as being beautiful. I just never thought I would be a beautiful bald woman! Thank you for your help. I would recommend this to anyone. Especially people with newly formed Alopecia."
-Crowned Regal (Annette)
“I could not put it down. I was up till 1 AM reading. What a great book! I wish it had been around when I was first diagnosed. Everyone with alopecia, or anyone who knows someone who has alopecia, should read your book. I will be sharing it with my family and friends.”
"...Emily especially enjoyed the “Don’t you just hate it when…” section. Never before has she laughed so much about alopecia. What a wonderful gift you have given my daughter, helping her see a lighter side to alopecia. I cannot thank you enough for that."
"...The part where the girl was in a car accident, her wig flew off into her lap, and her boyfriend thought it was a rat made me laugh! It was also very nice that you had the section for children, and for people who have lost their hair due to chemotherapy. It's not easy to lose your hair for any reason. Plus, sometimes a women's hair after chemo is not as abundant as it was before, and you gave lots of ideas for how to augment thin or patchy hair. "
I wrote "If Your Hair Falls Out, Keep Dancing!" to help other people -- particularly women and girls --and it's one that I wish I had been able to find when I discovered I had alopecia years ago.
I have stumbled through all the stages of grief (feeling guilty because, after all, there are worse things than alopecia), figuring out how to look normal, bouncing from one treatment to another, buying and ruining or rejecting dozens of wigs, losing every single hair on my body, figuring out how to tell guys I was dating, living in fear of the wind and someone touching my head…all in all, going from heartbreak to acceptance to joy and confidence. And it's all in the book, along with experiences of others, advice on wigs, makeup, products, treatments -- and how you can celebrate your life with alopecia areata, go after your dreams, and know you’re not alone.
To buy "If Your Hair Falls Out, Keep Dancing," go to www.Amazon.com, at www.NAAF.org in their Marketplace, or click the link below.
I'm doing great, thank you! Sorry for the late reply-- I've been pretty busy these last few weeks. I'm pretty confident in myself but would appreciate some tips on the whole wig thing as I'm always looking to try new styles/techniques with mine.
Thank you for your comment, I really appreciate it. I only developed AU 2 years ago having lost all my hair in a short space of time (10 days). I haven't had any treatment as yet but am starting cyclosporine tomorrow! :) xx
Hello, Leslie! Thank you for your message. I read your profile. You have had AU a long time! I am 2 years completely haur free. Some days are good and some are really bad. Ehat has helped you cope with it all?
Hello, Thank you for asking, I am do great,I am really having a hard time, with my bald spots,I have been on a hair journey for 5 months,I have 3 bald spots.All I have is fuzz.very little,I have tried about everything
In March my hair start shedding in spots, so the hair,that had about 4 in length. I had to cut,it off,now i have about 2 inches all over my head,I am so sad about my hair,in the pass,I have been wearing weaves, perms color,I have been clean of all of this for 3 years now.I am African American, 63 years old.Is there any hope for me.Thank you Darlene Groves
Hi LeslieAnn, thanks for asking how I'm doing! My response may sound weird, but I am trying to breathe deep and embrace everything in my life right now. Losing my hair is a constant I would rather not have in my life, but I am thankful it's my hair and not something more serious. I imagine I will be picking out a wig within the year. Your book looks interesting. Thanks again for asking how I'm doing. I hope you are doing well! Sarah
Thanks for reaching out! I feel like I have everything under control except the damned eyelashes! Do you have any recommendations? I've had eyebrows and eyeliner tattood on, but I'd sure love to have lashes. False eyelash strips are so messy and such a pain in the morning!
Other than that, I've accepted my AU pretty well. It does have its advantages :)
Thanks for your response to my comment this morning. I feel very strongly indeed that the best support for a woman going through the frequently nightmarish situation that is FFA is from others who have experienced it.
My background is in children's services and I have used coaching techniques and so on. Would happily get involved in some sort of support service - even if it is only online.
Hello. Thank you! I'm very glad I found this sire. Wish I knew it existed years ago. I'm about to start wearing a topper. Should have it in the next couple of weeks. I'm a little nervous about it but also excited as I think it will make me feel more comfortable going out. How has your experience with wearing wigs been? You looks so beautiful in your pictures.
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