All Blog Posts (5,718)

4 Years Later.

It's been awhile. September 17th marks 4 years since I found my first bald spot on my head. My hair has fallen out 4 times now. Currently I have almost a head full of hair (again) and it's curly and fun, but no hair on my temples and my hair line is way back from where it used to be. I don't feel comfortable going without a wig on the daily. Now in the last week I noticed fresh spots and losing more in the shower. So here we go again. I found the best way to cope for myself is to push it out…

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Added by Sierra D on August 19, 2016 at 12:09pm — No Comments

My story. Who can relate?

I am from a small town in Nebraska Population Approx. 7,000+/-. I am 40 years young, a kid at heart. I love to watch sports, both live and on television. I’m an avid Husker fan and Kansas City Royals fan (#4 & #35) are my favorites. I have 2 furbabies, kitties, Calpurnia (Cali) and Boo. To Kill a Mockingbird references. I am currently an advocate for sexual assault and domestic violence survivors. I have my degree in Human Services and plan on using it to advocate for people with…

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Added by CindiB on August 17, 2016 at 11:30pm — No Comments

Why is this happening?

Hi all those who have AA, AU or AT.

I have been through all parts of Alopecia symptoms in last 40+ years.

So here is a conundrum.

I am losing my eyebrows yet again but have started to see brown hair no white on my scull.

I refuse to shave my legs now I have some hair growing there but have no hair on my arms!

Just infuriating.

If anyone out there has had similar is going through the same do contribute to discussion.

I live in UK and do not get…

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Added by skit on August 16, 2016 at 9:16am — No Comments

Addressing alopecia in a job interview

I have started the process of looking for work. I have not had to interview since I lost my hair. I'm completely bald and wear nothing on my head to cover it. I would like to get advice from all the great people on here as how I should deal with the elephant in the room during an interview. Any help or advice would be great.

Jeannie

Added by Jeannie Terrel on August 10, 2016 at 1:00pm — 54 Comments

Alopecia and active

Hi my name is Zoya I have had alopecia arrays since 1993 and alopecia totalis since 2009. I have been wearing wigs since 2009. I love sports have been an athlete in the past still live an active life and now starting this online store selling activewear for all kinds of women and mostly thinking about how to be beautiful during your training hours regardless if you wear a wig or not. I hope to get some support here. Thank you for any comments and feedback!

Added by Zoya Sokolovska on August 9, 2016 at 7:30pm — No Comments

The most liberating experience I have ever had

Hi fellow alopecia and hairloss knowers

I am so happy to be who I am.

This year I started my university days at Stellenbosch University in South Africa, studying my passion. At this time I was still uncomfortable to be seen without my wig (I have Alopecia Universalis)- with only close friends and family having ever seen me with my untanned head.

I wanted to be brave, to shake off the cloak that societal beauty standards insisted on wrapping around my adolescent body, but…

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Added by Lauren on August 9, 2016 at 6:30pm — 2 Comments

Another member in the spotlight!



I love stories of triumph!

 

One of our members Caroline, was featured in a photography project "30 days of Gorgeous" by Toma Houston…

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Added by Cheryl, Co-founder on August 9, 2016 at 12:00pm — 7 Comments

Decisions

Not sure what to do. Should I give up the eyebrow fight and the injections and let nature run with it or should I continue to spend the money on shots with reasonable results? Also I am being told Latisse works on brows and lashes. I already shave me head due to male pattern baldness. I teach so it is a bit scary when you have 200 eyes on for hours a day each week.

I often received compliments about my brows and lashes pre alopecia and now the lashes are gone and brows take…

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Added by BrianH1972 on August 8, 2016 at 11:00pm — 1 Comment

It may not be easy, but is it worth the courage?

My husband had a life-long fear of large bodies of water. Recently, however, at almost 50 years old, he learned to swim. Within two weeks of his first stride, he was ready to show other family members what he learned so that they too could swim. Watching him has been exhilarating. It took courage: In order to float, you must let go, breathe, and allow the water to take over. At first you sink, then all of a sudden, almost magically, you start to float to the surface.

It was an…

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Added by Cheryl, Co-founder on August 8, 2016 at 1:00am — 6 Comments

Cure?

I've had alopecia universalis for 2 years now, I tried many things to prevent my hair from falling but to no avail, I tried various cremes and such, when that didn't work I moved to shots in the scalp but that never really works for most people.

BUT, I've been recently trying out this new natural medication, two months to be exact, I have seen improvement in which white hairs began growing in patches and such but it's still undetermined whether it'll work or not, it's worked before on…

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Added by Sxra on August 7, 2016 at 5:30pm — No Comments

Alopecia and HRT implants

Hi everyone I have alopecia and have no hair at all anywhere on my body including eyelashes. As of yet the specialist has not been able to tell me what triggered it off however I have a younger sister who has recently had a hysterectomy and is now on HRT. During a discussion with her doctor regarding myself and HRT we discovered that I was laterally on implants and just recently they have found that women going through the menopause and taking HRT implants have been found to have low immune… Continue

Added by Lucy on July 27, 2016 at 12:17pm — No Comments

Reseting your immune system

I have read that fasting can trigger a reset of immune function, anyone here try this? Would love to hear about anyone who has tried this and results. I have started today only having 200 calories a day and water, I will report back on results but this might obviously take some time! I am going for a 3 day fast.

Added by Matt1 on July 18, 2016 at 10:30pm — 2 Comments

Low dose naltrexone and autoimmune disease

Apparently this is a very safe drug and it has good results with severe pain related autoimmune diseases...anyone try it for alopecia?

Added by Mike Staffieri RHN on July 13, 2016 at 2:30pm — No Comments

Hair up cream. Real or not?

Is this a scam? http://www.shmuel-gonen.com/en/ I have had AA for over 30 years and full-blown AU for 6. I am happy in my own skin and I have made peace with AA knowing that hair regrowth for me probably will never happen.

I know there is some exciting research happening for treatment.

Maybe the miracle is only a few years away. There are a lot of scam artists with fake claims of success and I want to be sure no one is taken advantage of.… Continue

Added by Craig A. on July 11, 2016 at 9:43pm — 1 Comment

Year 8 with alopecia

Hi All where does the time go?

It seems like it was yesterday that i found that first little bald patch on me...

I'm 2 days into my 8th year with alopecia.

While it wasn't an easy transformation I'm making the best of it. Thanks to all here and www.naaf.org 

I've spent many hours over the years on Alopecia World. Helping myself and others to the best of my abilities. I've thoroughly enjoyed all the time I spend…

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Added by JeffreySF on July 8, 2016 at 12:00am — 6 Comments

Hello, has anyone had experience taking low dose naltrexone for alopecia?

My doctor suggested i try it specially compounded.... I currently seem to be going from universalis to totalis... not sure what has brought about this change. I eat right, exercise a lot, and have had alopecia in my life for 40 years. I have added fish oils to my supplement regimen and my doc feels i have lessened my inflammatory levels. He said the low dose naltrexone can do this too. Thanks for your help, Rie

Added by Rie on July 5, 2016 at 7:02pm — No Comments

You also have anxiety / depression?

Hello everybody, apart from Alopecia I also have anxiety. After that my hair fell out, I stayed with my self esteem too low and I started having anxiety because hair loss moved a lot with my emotional state because before I used to be praised by the people and repentes these compliments turned on looks strangers, rejection and difficulty of relating to people. Something similar also happened to you?

Added by Tomy Pereira on July 3, 2016 at 8:30pm — No Comments

Frontal fibrosing alopecia

By way of biopsy, I was diagnosed with Frontal Fibrosing Alopecia in mid Feb. 2016. The timing of the study and my home location were such that I was able to volunteer for a clinical assessment on Feb. 25th at the National Institute of Health Dermatology Grand Rounds in Bethesda, MD. Anywhere from 50-75 doctors examined my scalp and provided their consolidated opinion and treatment. My dermatologist reported the findings to me and we began the following treatment: 1) C-Tacrolimus 0.1%…

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Added by Tress on June 28, 2016 at 7:00pm — 3 Comments

Alhamdulilah 60-70% regrowth at little cost!

Alhamdulillah 60-70% hair regrowth

I praise Allah first of all for the growth of my hair. A massive part of my beauty. I'm not out of the woods yet. I look like a parrot without my scarf but it's reassuring to see the new hair sprouting out of the once smooth shiny bald scalp. There are bits of my hair about three inches or more long! Back in November I was mainly bald with say 50- 100 hairs and shiny smooth head. But by the grace of Allah I'm getting there. I am hopeful. All power and… Continue

Added by Chamzy on June 28, 2016 at 7:00pm — 2 Comments

Am I dramatic?

My friends say that I tend to be a little dramatic. I have lost not as much hair as most people have here on this site that I have seen. I decided that I wanted to make sure I had some power. I lost most of my hair in the back in silver dollar size maybe bigger. The front of my head is thinning that for me its the the same like it was months ago before all this. Maybe it has always been thinning but it got worse with in the past 4 months. Anywho, the whole point of this rambling post is that…

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Added by Akrose on June 27, 2016 at 8:00pm — No Comments

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