All Blog Posts (5,623)

My Story

I am new to Alopecia world! I am 24 years old and I first started experiencing hair loss when I was 21. I have female pattern hair loss. I first started noticing a difference in my part, then it became general hair loss all over my scalp. I have seen many doctors and had many test done only to determine there is no medical help I can receive. My dermatologist has suggested cortizone shots in my scalp. I am wondering if anyone has experienced these and what the results are! Thanks you!!

Added by kbourgoin on August 26, 2015 at 7:01am — No Comments

Looking for a special girl!

     Hi my name is Scott.  I am hoping to connect with a girl who would like to meet and see where it goes.  Friendship first, hopefully followed by a relationship. I look forward to sharing a relationship with someone I can relate to on all levels.  Most people can not fully understand what we are going through.  Look forward to meeting you!

Added by Bald & Lovin it! on August 20, 2015 at 1:00pm — 3 Comments

14 months

So I haven't written a blog post in quite a while, it seems that I had forgotten that my Alopecia even existed for a while! A lot of you will be thinking that that is the worst thing to do, because it always seems to come back with a vengance, but not this time.

I suffer from AA, but when my hair starts to fall out it all goes from my head, but then after a while I do get regrowth! So the last time I fully lost my hair was Christmas 2013, it is now the summer of 2015! Yes I have lost…

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Added by Madeleine Evie Truscott on August 16, 2015 at 6:24pm — No Comments

Found my first bald spot

It's finally apparent. I found a wide bald spot in the bang area where my part is. No matter how I style it it still shows. Trying not to panic but it's hard. Really need some encouraging words right now. Someone...anyone...

Added by Dragongirl on August 13, 2015 at 5:23pm — 1 Comment

My story

Hi all!

I decided today to look at some alopecia websites today for the first time. I had an idea that a lot of people have alopecia but I had NO idea how badly some people struggle with it. Reading some of the posts below put things into perspective for me so I decided to tell you all about my alopecia story.

I am now 20 years old and I have alopecia universalis. I got it around this time 3 years ago. It didn’t all fall out at once. First it was a slight loss of my eyelashes.…

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Added by Roksana on August 11, 2015 at 11:25am — 8 Comments

Gogetfunding.com

I know a lot of us people have been suffering from alopecia but we don't have the money to spend on wigs or medications so I wanted people to know that they can create a fund raising site for them selves if your ever in need of money all you have to do is tell your story and people will donate money for those cant afford an expensive wig or can't work cause of alopecia affecting your life.gogetfunding.com can help.

Added by Raya on August 11, 2015 at 1:52am — No Comments

Steve 2.0

Hi everyone,

I am new to this site as off yesterday but not new to alopecia unfortunately. I am a 24 years old male, currently living in the highlands of Scotland and I have had alopecia for roughly 6 years now. At first my alopecia started off as AA and then slowly developed over to AT where it currently still sits. I have had patches off slight regrowth but nothing major. Currently I have lost about 90% off my scalp hair, 50% off my eyelashes and my eyebrows are roughly…

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Added by Steve on August 10, 2015 at 3:30pm — 2 Comments

If you shave it all off

Hi - I have FFA, took years for the doctors to take it seriously.

 I have had the cortisones, NSAID , and minoxidil  and have had reactions to first two. Moon face, neuropathy.

The hair just keeps getting thinner and I am 59. 

I hate the itching - it never seems to actually stop.

It is spoiling so much in my day to day life, worst days being stressed days and the ones with flares.

I am healthy eater, do like wine, not much dairy but its there.

I…

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Added by Gilli on August 9, 2015 at 4:30am — 5 Comments

Patches

Hi wanted to here back from anyone with regrowth stories mine all fell out last September buy Christmas I started to regrow new white hair then mid April it started to fill in with original dark hair really well it's now the start of August and I still have patches theatre haven't got any dark hair at all wounding if anyone else had this and if there's ever filled in or could I be left with patches sick of shaving it every two days

Added by Anthony on August 2, 2015 at 3:38am — No Comments

Frontal fibrosing alopecia and food intolerance / medication

Hi I am a herbalist and treating a female patient with FFA, aged 68.

I wondered if there are any people  with FFA who also take HRT, nasal sprays for rhinitis or any other condition, or medication for glaucoma?

If there are, would you mind telling me if you feel any of this medication has madeyour condition worse or better, or just whether  you take the medication and also have FFA?

Also, do any forum members have any food intolerances?

If so, how long ago…

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Added by Rhiannon on July 31, 2015 at 3:30pm — No Comments

Feeling free

Saturday was a big day for me. I was chief bridesmaid at my cousins wedding and it was also the day I told everyone about alopecia on facebook. It's a little overwhelming the amount of support I've had , finally I feel free to be me and have some fun with it. Saturday I was long blond and wavy Sunday was long dark and straight. Now I'm dark straight in a bob. It's such easier being open about it than hiding it. I'm still really nervous about work and doing the school run but I'll face those… Continue

Added by monie on July 28, 2015 at 8:02am — 3 Comments

ARGH! Stupid commercials!

Is it just me or does anyone else wanna throw something at the t.v. whenever one of those shampoo commercials come on? I am starting to really dislike those women featured in them. Grrr...show offs.

Added by Dragongirl on July 26, 2015 at 4:56pm — 1 Comment

Time?

Hi everyone I'm new on here first day. Ok here's my story last September first week 2014. My only brother took his own life massive shock and deep sadness for me couple weeks later first patch on head appeared. As weeks went on more patches within 5 weeks all hair on my head fell out. Lost good bit of body hair ( wasn't very hairy anyway). Then eyelashes in one eye started falling out 80% next small bits of eyebrows. Buy December new white hair started to grow back on my head I think totally…

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Added by Anthony on July 24, 2015 at 5:30pm — 2 Comments

Here we go, I can't run from this problem

I'm new to this, they haven't even diagnosed me yet but one thing is for sure, I had, up until 4 weeks ago beautiful, thick and curly hair. I've lost more then half all over and now I'm noticing thinning spots around my temples and the rest of my hair line. And what's scary is I'm watching it get thinner and thinner. It's fast man. My hair is everything to me, to me it makes me. After a slew of blood tests, and tons of questions my dermatologist is very curious about me and my symptoms. I've…

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Added by Rippin_Chick on July 24, 2015 at 1:00pm — 4 Comments

Happy 8th Anniversary Alopecia

Hi All,

Oops I'm late again.

Okay, it's been 8 years since I found that little bald spot on me. July 5, 2007

Big Rollercoaster Ride for sure those first couple of years. The ups and the downs and all the sideways.

Thanks Alopecia World Members of past, future and present!

And thank you www.naaf.org

I'm enjoying the ride these days but when does the ride end?

 Thanks Everyone!

Added by JeffreySF on July 22, 2015 at 9:00pm — 2 Comments

Steroid shots every two weeks for 12 year old?

Hi There

I am new to this and have a 12 year old and his hair is rapidly leaving before our eyes.  A friend of mine sends her 12 year old to Colombia Presbyterian in NYC and the treatment there is shots every two weeks.  I am on the west coast and doctors advise every 4 weeks.  Does anyone have info about this? Her dr. claims the frequent shots can help shut down the immune reaction and actually help stop the loss as it is occurring.  She is quite a respected dermatologist and I dont…

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Added by aweiss on July 21, 2015 at 2:28pm — 1 Comment

Stylist recommendation in Manhattan??

Anyone have a stylist in Manhattan to recommend for a 21 yo girl with a vacuum piece.??!!
Thank you!

Added by cindy Babs on July 21, 2015 at 12:24pm — No Comments

New me

For the last 30 years I've pretty much felt uncomfortable and an outcast because of losing all my hair since I was 8. I never had anyone to talk to who I could relate to and as a result was bullied a lot and lost all my self confidence. Lately I've begun to feel like I don't care as much anymore what people thing and I've decided to start having fun with it. I've bought 3 different wigs 2 brown 1 long 1 shoulder lent and a long blond one. I won't lie I'm nervous about wearing them because my… Continue

Added by monie on July 19, 2015 at 1:34am — 7 Comments

Will there ever be a cure for alopecia? Can it be reversed?

Do anyone know of a cure for alopecia? I have heard that some medicines can reverse alopecia, but so many on the market and I wonder do they work. I also heard that vagina yeast cream have grew  peoples hair back I never tried it but I am going to.    I guess when you are desperate you try anything.

Added by helen30 on July 16, 2015 at 9:28pm — 3 Comments

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