All Blog Posts (5,534)

What I've tried

It took me a long time to realize the severity of hairloss that was in store for me.  At first, I assumed that the shedding was due to seasonal shifts and stress and that it would stop naturally.  I had plenty of hair and the slight thinning was noticeable only to me. In this stage, I tried Nioxin products and a grow-fast conditioner.  I had to switch back to Head and Shoulders when the cold weather led to dandruff, and the conditioner made my scalp itch, so I stopped using it.  I added…

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Added by Feedingsparrows on December 13, 2014 at 11:30am — 3 Comments

NEW treatments to try

its been a while since I have posted on here but just wanted to let everyone know what I have discovered since I have been away so long. Maybe some of you could give these a try as they are not harmful or have chemicals etc in them.

one of the products I have been reading about is youngevity, and there is a young woman named Emily who used it and she grew her back and posted a testimony on the youngevity website. Its pretty much a package of supplements that you take collectively. I…

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Added by Alexis on December 10, 2014 at 8:10pm — No Comments

Great informational video on the causes of alopecia

Hello!

This video was created by the Functional Medicine doctor that I have been seeing for the last two years. When I first went to him I had a bald spot the size of a grapefruit on the back of my head, 8 other quarter size spots, only 1/2 of my left eyebrow and no eyelashes on my left eye. Within a few months ALL of my hair was growing back. I've had a couple of small spots since then, but the hair grows back quickly. I still see him, but now only once every 6 months. I had active…

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Added by Bridget F on December 10, 2014 at 10:30am — No Comments

Thought I was coping but now I am not

Hey there, I started with alopecia areata nearly two years ago and this summer in July all my hair and body hair fell out and I have alopecia totalis,  I was wearing wigs going out but now I hate them especially when I am eating a nice meal, I spent €350 on a wig and it feels like a swimming cap on my head and I am so conscious when people hug me or I am dancing and it just didn't feel right so I decided to go out bald.  I live in Clonmel a very small town and I tried going out in Cork bald…

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Added by Caroline on December 6, 2014 at 8:36am — 6 Comments

Kindergarteners and diversity

My youngest daughter recently turned 6, and I got to go to spend the afternoon with her in her class. I arrived to her room before the class got back from music and was preparing their strawberry shortcakes when the students began arriving.  Comments soon began to fly: "She looks like a boy."  "Your mommy is bald headed."  "Where did her hair go?"  I could tell my daughter was beginning to get defensive.  "My mommy's cute.  I think she's beautiful."

The teacher wasn't back, so I asked…

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Added by Bonnie on November 30, 2014 at 7:00pm — 10 Comments

My autobiography of alopecia in YA novel form

Last year I participated in NaNoWriMo (National November Write Month) and wrote, 50,000 words of a novel in the month of November.  This year, I decided to join again, and finished.  This novel is about a 17 year old who finds out she has Alopecia. Writing 50,000 words in a month, while you are trying to live your normal life is pretty tough, but this month has been an emotional roller coaster for me as I have relived so much of my own personal experiences through this writing process.  I…

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Added by Bonnie on November 29, 2014 at 8:51pm — No Comments

Tape question

Hi everyone!  I've been wearing human hair wigs for six years now, and I know a woman in town who sells me a type of thin, breathable fabric that I can cut and set into the wigs so I don't have to put the tape directly on the lace (she calls it "skin").  However, she can't get the skin anymore, and I'm not having much success finding "tape tabs" online for purchase.  Where do you guys get tape tabs?

Thank you, and happy holidays!

Added by Lauren on November 29, 2014 at 3:00pm — No Comments

Vitamins essential for hair care

Hair loss has become a serious problem to many people: young and old, male and female, as hair is the best decoration of our appearance. Loss of hair can possibly be caused by various factors such: high mental pressure, poor environment and even poor hair care practice. It’s very important to have a solution if you are facing this issue. Researchers have studied a wide variety of ingredients that can be used to recover your hair. We will discuss some of the natural vitamins that can be…

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Added by Daniel Peng on November 27, 2014 at 3:00am — No Comments

To light hair I go!

All these years, I have worn dark colors from reds mixed with dark brown to black. I have never worn something so light! Honestly, I really don't like it! It's a very pretty wig, but I just don't feel good about. I am now stuck wearing it till it either falls apart or turns turn frizz.

My husband says it looks great! I feel it was to make me feel better. It wasn't the oh WOW factor with him. I look at it and I'm like"hmmm" makes me look older. Lexi was mom it's looks good and I…

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Added by Jody on November 26, 2014 at 11:00am — 2 Comments

I feel so weak :((((

"Feeling down !!! My husband borrows m e for presentation to his friends because my wig I feel so broken"
And never told me that I'm pretty ... Feeling baaaaad when saw him proud to took photos with her friends and they have pretty hair and healthy!!!! I got enough

Added by Amouna on November 23, 2014 at 6:09am — 5 Comments

Has anyone ever dyed a monfilament human hair wig? HELP PLEASE!

Hello everyone!  I have AU and have been wearing a human hair wig from the Impressions Human Hair collection. (Venice/Venezia).  It's been great to me, I've been wearing it for over a year and it still looks great.  However the color is fading and now looks like a strawberry blonde.  I need advice coloring it.  Since it's human hair I was going to use a semi permanent dye but I'm really afraid of staining the monofilament.  I want to go from the orangey blonde to a dark brown (my…

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Added by RayG on November 22, 2014 at 6:56pm — 1 Comment

School research project

Ok, so I am in an Honors English class this year. We are required to do thirty hours of research or writing over the next school year. I chose to do mine on Alopecia, I am here asking for you help, I need to get a couple of peoples stories and a few other things if you are willing to help please inbox me or comment on this post. Thank you in advance.

~Jessica Hoschouer

Added by Jessica Hoschouer on November 15, 2014 at 8:00pm — 8 Comments

Hair is growing

My Son Lost all his hair at 2 1/2 years old. Now he is 12.

Up until November 2013, he had little to no hair. That all changed a month later. In December 2013, His hair has started to grow back. He has regained about a 1/3rd of the hair back, with lots of new ones coming in.

Would anyone know what triggers a regrowth? I would like to help him grow even more hair back. Its a very confusing condition.

He is not taking any medication, so that is not a factor.

Added by Hauye on November 11, 2014 at 11:00pm — 3 Comments

Treatment of alopecia

Hi guys, wanted to know who here has done the treatment and had 100% of his hair of back?

Added by Tomy Pereira on November 11, 2014 at 9:00pm — 2 Comments

Need help with FDA for Patient Focused Drug Development Initiative - those with alopecia in the US

I am the legislative liaison for the National Alopecia Areata Foundation in Massachusetts.  We have an action alert out that we need as many people as possible to provide input on their condition as possible so that we can be involved in a program that the FDA has called Patient Focused Drug Development Initiative (PFDDI).  PFDDI is a program that the FDA has begun to get the patient perspective about what is like to live with a condition and how it affects their life in order to help with…

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Added by Marianne Peterson on November 10, 2014 at 8:00pm — 2 Comments

10 things girls with alopecia will understand

Well, girls with alopecia who choose not to wear a wig! But you get the idea..

I wrote this Buzzfeed article that pretty much sum up life with alopecia.

Let me know what you think.

Enjoy! 

10 Things Girls With Alopecia Will Understand:

http://www.buzzfeed.com/erikavincent21/10-things-girls-with-alopecia-will-understand-13pji

Added by Erika Vincent on November 8, 2014 at 6:00pm — 1 Comment

NAAF notice going to alopecians

The Food & Drug Administration (FDA) has announced alopecia areata  is one of just 16 candidates for consideration in the Patient-Focused Drug Development initiative (PFDDI) for FY2016-FY2017. This is due to the hard work of our Legislation Liaisons making FDA involvement a  priority when meeting with their representatives and senators.

Now you can help make sure alopecia areata is one of the diseases  selected by telling your story!

Our friends at Health and Medicine…

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Added by Tallgirl on November 8, 2014 at 1:30pm — 2 Comments

Finally!

I have been on Xeljanz for 2 1/2 months 5 mg 2X daily and just last week I got about 7 white, baby fine "vellus" hairs right on top of my head and many, many of the same hairs on my face !! Like forehead, cheeks, etc. I never had hair on my face before just above my upper lip that I would pluck. Thankfully, it is light. There are no other hairs anywhere else right now but I am hoping for more. I just wonder if "vellus" hair always means you will get "terminal" hair with pigmentation? ..

Added by Rose on November 5, 2014 at 8:00pm — 7 Comments

I just was want to feel beautiful again

I've been living with this for over a year now and I'm dealing with it better than I used to..i still hate it when people stare at me and give me weird looks or they say ignorant things to me. I work in retail and it hurts when people go out of their way to avoid me..i still have not gotten married because of my baldness...I try so hard to be more confident but when I'm at home I just break down and cry because I don't feel beautiful or pretty...i have talked to counselors and friends and…

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Added by Leah on November 2, 2014 at 9:00am — 6 Comments

Embracing alopecia

In the last few months I have gone from, barely any alopecia patches to barely any hair. Thru this time frame, I've experienced a mix of back & forth emotions between embracing it and hating it. But thru it all it has been so inspiring to see so many of you, confidently sharing your experiences. Thank you to all of you who have been brave enough to be open about your alopecia, you have all helped me to get to the point where I am now. Happy enough to love the situation I am in, hair or…

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Added by Melissa on November 1, 2014 at 11:30am — 7 Comments

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