All Blog Posts (5,736)

Depression and alopecia: A match made in heaven

Alopecia has plagued my life for almost 7 years (I am 19 now). For the first two years after I was diagnosed the alopecia was extremely mild and also came and went. The only things that were affected were small patches on the back and sides of my head which quickly filled in. The Alopecia wasn't affecting me as much as it is now.

When I was sixteen, it started to get worse and more permanent. By the end of the school year I only had half an eyebrow on each side and a bit of loss on my…

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Added by Jack on December 8, 2016 at 11:00am — No Comments

Alopecia only on body. Anyone else out there? Can this develop to appreciate universalist?

Hello,



I am very new to your site. My son is 10 years old and he has alopecia only on his body/ not head, eyebrows and eyelashes. I was wondering if there is anyone else out there with the same issue as I am really worry how it's going to develop.

He was born like this. He never has any hair all-over his body. When he was 4year old, his eyebrows started to fall off, took him to the doctor as I didn't had any idea of alopecia. Doctor informed me and gave us a liquot medicine. Two… Continue

Added by DespinaCy on December 3, 2016 at 6:49am — No Comments

New member...

Hi, everyone. I just found out I have FFA. Going through all the emotion that you all know about. Looking forward to connecting with this community. Wondering if there is anyone else out there from Denver. 

Added by Kathy in Denver on November 24, 2016 at 1:00pm — No Comments

Xeljanz (tofacitinib) Where to buy in Mexico?

I wanted to make a post about this because I found a post here where one person found this product in Mexico and it had TONS of responses in the comment section asking on how to get it. Ive personally messaged the gal who said she bought it in Mexico and it seems shes not responding even though shes added me as a friend here.



I dont want to explain the whole low down on all the scientific findings of Xeljanz, but in short some people have found it to help regrow hair in cases of…

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Added by Anonymous1103 on November 15, 2016 at 7:24pm — 1 Comment

Discovery Channel features Katelyn in a Documentary

KATELYN Payne, 13, lives in County Durham with her dad Darren, 44, mum Ann-Marie, 37, and twin brother Hayden. She says:

“As my classmates and I ran…

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Added by The Be Bold Team on October 27, 2016 at 3:17pm — No Comments

Differentiating biopsy results

Hello all

Any help appreciated in advance

I present as typical female pattern hair loss...Its just thinning on crown center part area...sides and back pretty normal.

I went to several Dr over years mentioned it and they all said AGA.

My loss has been slow and steady..

I started looking into it more seriously this year--long story short i had a biopsy done few weeks ago because i wanted to see a Dr for AGA that will only take patients referred by…

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Added by mcat111 on October 20, 2016 at 12:00am — 3 Comments

Topical vitamin D and AA

Successful treatment of AA with topical vitamin D:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3412244/

Most people with alopecia have a vitamin D deficiency especially if they have a defect in the VDR gene ( like I do, I don't convert Vitamin D from the sun very well)

Might want to get your vitamin D levels checked and if low take like 4000ui a day and get some topical vitamin D and…

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Added by Mike Staffieri RHN on October 14, 2016 at 12:30pm — 2 Comments

Help, please

I'm really having a hard day today. I just feel like I'm drowning and i have no one in my life that understands what I'm going through. I just wish I had someone that I could talk to. 

Added by EmJay417 on October 13, 2016 at 10:30pm — 3 Comments

Cautiously optimistic

My eyelashes and eyebrows have grown back! The hair on my head is coming back! I don't want to get too excited. I never lost all my hair before 2 years ago. My dermatologist is giving me steroid injections in my scalp and it appears to be working. I know there is no guarantee that it won't fall out again. I can hope it will come back and stay! It's pretty even all over. Thank God!

Added by Barbara on October 12, 2016 at 3:00pm — No Comments

The Last 5 Years

I remember when we first saw that quarter sized bald spot on my 5 year old daughter's head. I was terrified and determined to make sure I found a way to stop the inevitable. Trust me we tried everything, thinking the solution was one experimental treatment away. Finally my daughter said she was done with the painful injections, irritating treatments and crazy diets. There was a big fear of the unknown, but I knew ultimately it was her decision whether she wanted to continue. She just wanted…

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Added by Dena on October 11, 2016 at 2:52pm — 2 Comments

New diagnosis - AA and wedding!

Hi everyone!

So I had Folliculitis and was able to maintain another outbreak for about a year. My old bald spot was about 2.5-3 inches long and I was wearing clip in extensions every day to give body and length til my hair grew back. I was feeling good until about a month ago it really started to fall out again. I thought it was a new outbreak and went back to the dermatologist but now I have AA! My clip ins still kinda work, but soon my hair won't cover the tracks. Today the clips…

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Added by Veronicasteele on September 28, 2016 at 1:30pm — 1 Comment

How and when I learned about my Alopecia

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Added by Franchesca Bass on September 22, 2016 at 5:16pm — No Comments

Libby’s inspiring story of strength and love in overcoming the pain of hair loss

Charity Bailey, co-host of RightThisMinute.com, is helping spread the word about women and alopecia by featuring the powerful story of her own sister's battle with the hair loss disease.…

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Added by Cheryl, Co-founder on September 21, 2016 at 1:00pm — 1 Comment

Scalp acne

My 11 year old daughter was just diagnosed with alopecia areata a month ago.  We started her on the steroid scalp drops and after a few weeks of use her scalp is now covered in terrible acne.  It's painful and seems to be more prominent in the areas where there's still hair.  The bald spots don't have nearly as much.  I can't get hold of her doctor and the pharmacist just said to quit using the steroid until I talk to the doc.  Anyone else had this reaction?  

Added by Sealey on September 19, 2016 at 10:13pm — No Comments

Feeling depressed about my wig

I got a wig a few weeks ago.  I spent $550 on it.  It is synthetic.  I like it, but to me it looks so fake.  I've worn it about 5 times now and I have a hard time getting the part right.  I feel like I have a melon on my head.  I still have a lot of my own hair left. I am losing it in top middle, on the sides and at the crown.  I don't know it that's what is making me feel like a melon head or not.  Also, I don't feel like I can do a lot with it (like putting the bangs back) without it…

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Added by Jay Jay on September 18, 2016 at 6:00pm — 3 Comments

Starting Xeljanz

Hey everyone, So I was diagnosed AA on Nov, 2015. i have seen many doctors in the city and none of them have actually helped me. After a long wait, I am being treated by Dr. Brett King from Yale University. On July 8th, i had my first appointment. He wanted me to start taking Xeljanz but i refused to the idea of being exposed to Cancer and other side effects. So he gave me 3 pulses of prednisone of 350 mg that i took 1 day only and it would be good for the whole month.

At the…

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Added by Maxeen on September 14, 2016 at 1:00pm — 13 Comments

Wigs in summer

I live in Arizona.  Does anyone have experience or advice for wearing a wig in 100+ degree weather?  My job sometimes has me outside walking from location to location.  I bought my first wig yesterday and wore it today.  Luckily it went well and it wasn't as hot as it normally is, but I am stressing out for the days ahead. 

Thank you

Added by Jay Jay on September 9, 2016 at 12:00am — 5 Comments

Holiday bummer

At almost 64, after 54 years of this nonsense (okay, okay...I DID have regrowth in my 20s and early 30s), you'd think I would not have any more down days over alopecia. First Labor Day Weekend since retirement, nothing to do, I cut my remaining hair to 1/4", then started reading a novel that describes Mary and Anne Boleyn's combing their long hair. Argh. Must. Avoid. Devil. Mirror. Send uplifting humor.

Added by Tallgirl on September 5, 2016 at 2:00pm — 2 Comments

Trial Xeljanz

Hey everyone! My name is Christos Kyrgios from Australia - just a quick post to let you know I am doing a clinical trial of the JAK inhibitor Xeljanz now. My friend did it, he has universalis like me and he got all his hair back after 2-3 months of being on the medication.

I am documenting + doing this trial to raise awareness and to test the viability of the medication. Exposure on this type of thing if successful will hopefully get the medication on approved government funding…

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Added by ChristosKyrgios on September 4, 2016 at 10:30pm — 1 Comment

Advise please

Hiya I'm really new to this, I was just wondering if anyone could help me as I have a big bald patch and it seems to be greeting bigger all the time, I went to the doctors and they referred me to the hospital which took almost 2 months to get seen as they said there is usually a 3 month waiting list, when my appt came through I was hoping to get steriod injections but to my horror the doctor wouldn't give me them and gave. Me dermovate 0.5 lotion and told me I must use this first and come back… Continue

Added by hels36 on September 2, 2016 at 9:16pm — 1 Comment

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