All Blog Posts (5,527)

To light hair I go!

All these years, I have worn dark colors from reds mixed with dark brown to black. I have never worn something so light! Honestly, I really don't like it! It's a very pretty wig, but I just don't feel good about. I am now stuck wearing it till it either falls apart or turns turn frizz.

My husband says it looks great! I feel it was to make me feel better. It wasn't the oh WOW factor with him. I look at it and I'm like"hmmm" makes me look older. Lexi was mom it's looks good and I…

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Added by Jody on November 26, 2014 at 11:00am — No Comments

I feel so weak :((((

"Feeling down !!! My husband borrows m e for presentation to his friends because my wig I feel so broken"
And never told me that I'm pretty ... Feeling baaaaad when saw him proud to took photos with her friends and they have pretty hair and healthy!!!! I got enough

Added by Amouna on November 23, 2014 at 6:09am — 5 Comments

Has anyone ever dyed a monfilament human hair wig? HELP PLEASE!

Hello everyone!  I have AU and have been wearing a human hair wig from the Impressions Human Hair collection. (Venice/Venezia).  It's been great to me, I've been wearing it for over a year and it still looks great.  However the color is fading and now looks like a strawberry blonde.  I need advice coloring it.  Since it's human hair I was going to use a semi permanent dye but I'm really afraid of staining the monofilament.  I want to go from the orangey blonde to a dark brown (my…

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Added by RayG on November 22, 2014 at 6:56pm — No Comments

Santa list, Hannukah list

So many women on this site say they cannot afford a wig. Before you all leave for Thanksgiving week (USA) to see relatives, scope out some wig salons and hat stores, or modesty scarf vendors online, in your family destination town. Print out the address, map and phone number of each site you like. Take a relative who…

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Added by Tallgirl on November 21, 2014 at 10:30am — 1 Comment

School research project

Ok, so I am in an Honors English class this year. We are required to do thirty hours of research or writing over the next school year. I chose to do mine on Alopecia, I am here asking for you help, I need to get a couple of peoples stories and a few other things if you are willing to help please inbox me or comment on this post. Thank you in advance.

~Jessica Hoschouer

Added by Jessica Hoschouer on November 15, 2014 at 8:00pm — 8 Comments

Hair is growing

My Son Lost all his hair at 2 1/2 years old. Now he is 12.

Up until November 2013, he had little to no hair. That all changed a month later. In December 2013, His hair has started to grow back. He has regained about a 1/3rd of the hair back, with lots of new ones coming in.

Would anyone know what triggers a regrowth? I would like to help him grow even more hair back. Its a very confusing condition.

He is not taking any medication, so that is not a factor.

Added by Hauye on November 11, 2014 at 11:00pm — 3 Comments

Treatment of alopecia

Hi guys, wanted to know who here has done the treatment and had 100% of his hair of back?

Added by Tomy Pereira on November 11, 2014 at 9:00pm — 2 Comments

Need help with FDA for Patient Focused Drug Development Initiative - those with alopecia in the US

I am the legislative liaison for the National Alopecia Areata Foundation in Massachusetts.  We have an action alert out that we need as many people as possible to provide input on their condition as possible so that we can be involved in a program that the FDA has called Patient Focused Drug Development Initiative (PFDDI).  PFDDI is a program that the FDA has begun to get the patient perspective about what is like to live with a condition and how it affects their life in order to help with…

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Added by Marianne Peterson on November 10, 2014 at 8:00pm — 2 Comments

10 things girls with alopecia will understand

Well, girls with alopecia who choose not to wear a wig! But you get the idea..

I wrote this Buzzfeed article that pretty much sum up life with alopecia.

Let me know what you think.

Enjoy! 

10 Things Girls With Alopecia Will Understand:

http://www.buzzfeed.com/erikavincent21/10-things-girls-with-alopecia-will-understand-13pji

Added by Erika Vincent on November 8, 2014 at 6:00pm — 1 Comment

NAAF notice going to alopecians

The Food & Drug Administration (FDA) has announced alopecia areata  is one of just 16 candidates for consideration in the Patient-Focused Drug Development initiative (PFDDI) for FY2016-FY2017. This is due to the hard work of our Legislation Liaisons making FDA involvement a  priority when meeting with their representatives and senators.

Now you can help make sure alopecia areata is one of the diseases  selected by telling your story!

Our friends at Health and Medicine…

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Added by Tallgirl on November 8, 2014 at 1:30pm — 2 Comments

Finally!

I have been on Xeljanz for 2 1/2 months 5 mg 2X daily and just last week I got about 7 white, baby fine "vellus" hairs right on top of my head and many, many of the same hairs on my face !! Like forehead, cheeks, etc. I never had hair on my face before just above my upper lip that I would pluck. Thankfully, it is light. There are no other hairs anywhere else right now but I am hoping for more. I just wonder if "vellus" hair always means you will get "terminal" hair with pigmentation? ..

Added by Rose on November 5, 2014 at 8:00pm — 7 Comments

I just was want to feel beautiful again

I've been living with this for over a year now and I'm dealing with it better than I used to..i still hate it when people stare at me and give me weird looks or they say ignorant things to me. I work in retail and it hurts when people go out of their way to avoid me..i still have not gotten married because of my baldness...I try so hard to be more confident but when I'm at home I just break down and cry because I don't feel beautiful or pretty...i have talked to counselors and friends and…

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Added by Leah on November 2, 2014 at 9:00am — 6 Comments

Embracing alopecia

In the last few months I have gone from, barely any alopecia patches to barely any hair. Thru this time frame, I've experienced a mix of back & forth emotions between embracing it and hating it. But thru it all it has been so inspiring to see so many of you, confidently sharing your experiences. Thank you to all of you who have been brave enough to be open about your alopecia, you have all helped me to get to the point where I am now. Happy enough to love the situation I am in, hair or…

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Added by Melissa on November 1, 2014 at 11:30am — 7 Comments

Share your Halloween photos and videos on AlopeciaWorld.com

How did you celebrate Halloween this year?

What costume did you wear?

We'd love to know!

So please upload your photos to

http://www.alopeciaworld.com/photo/photo/new

If you create a cool photo album, we may even feature it:

http://www.alopeciaworld.com/photo/album/new

You can post videos, too:…

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Added by Alopecia World on November 1, 2014 at 10:00am — No Comments

I wish

I wish I could go to the salon and get my hair high lighted and walk out feeling awesome, like I used to.

I wish I could wash my hair with the super expensive shampoo and conditioner that smelled awesome, that made my hair feel great.

I wish I could tie my hair up in a pony tail, instead of tying my bandana over my hairless head.

I wish I didn't have to pretend to be ok with losing my hair, to make people comfortable.

I wish my "courage/strength" wasn't based on…

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Added by BlondeB4bald on October 29, 2014 at 3:30pm — 16 Comments

Anyone tried this way?

I currently am using DCP .05% for nearly 2months, little improvements(used it ages ago too and had a full recovery) tho this time nothing definite of yet. I heard my friend had a very good result with hydrocortisone cream 1% so thinking of adding this with my treatment... :)

Added by Humbled on October 29, 2014 at 1:00am — No Comments

Please help

Hi

Please just take one minute to help myself and Alopecia Uk to fund research and promote awareness by liking this photo



https://m.facebook.com/story.php?story_fbid=848129211884302&id=251430234887539



Please click on the photo and like it so that the vote counts!



Liking this photo will hopefully allow me to with the competition to win £1000 travel…

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Added by Madeleine Evie Truscott on October 26, 2014 at 5:00pm — No Comments

AA vs. Cancer

We live in a world of all types of diseases. Today I found out that someone I love dearly has stage 4 cancer!!!! There is no chemo that will help her or radiation that will reduce the size or kill it off. With all of my health issues and aches and pains along with hair loss due to AA and LUPUS ............I took a step back today and said to myself............" I am fine!! Its not Cancer and I need to be strong and realize that this is NOTHING compared to CANCER..........Live Lupus and AA…

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Added by amberlove on October 24, 2014 at 12:00pm — 2 Comments

Girl bullied after cutting hair short to donate to charity

Fox News reported:

An Ohio mother is speaking out after she says her 10-year-old daughter was bullied at school because she cut her hair short to donate it to charity.

 FOX45 reported Tuesday that Jetta Fosburg decided on her own to cut 14 inches off of her long blonde hair and donate it to Wigs for Kids, a charity that helps children with cancer and other hair loss issues.

“I have some family members who have cancer so I thought it was the right thing to…

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Added by Cheryl, Co-founder on October 22, 2014 at 1:30am — 9 Comments

Hair growth

A few months ago I wrote a blog saying that I went to an endocrinologist for my alopecia because I was at a loss( i had gone to a dermatologist for months and gotten injections, to no avail) The dermatologist did blood work but they failed to check my hormone levels( they basically checked my iron levels, just protocol). I also went to a regular doctor and got blood work there and they did not see anything out of the ordinary. My endocrinologist on the other h

and was very thorough…

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Added by wiz on October 20, 2014 at 3:00pm — 4 Comments

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