All Blog Posts (5,690)

On the radio sharing my alopecia story

Hi all,

I was on the radio this morning sharing my alopecia journey.  If interested click on the link, scroll to the 1pm showtime and move the audio cursor to 1:30pm.  I am on the show from 1:30 - 2pm.

http://www.cjob.com/audio-on-demand/

Added by Jennifer Krahn on May 24, 2016 at 4:00pm — No Comments

Makeup - contouring and baldness

I am living with my alopecia areata, without wearing wigs since 2011. I have no issue being bald in the world. I am glad living free of the "when-will-I-lose-my-hair" nightmare. I am a musician and am photographed often. I see in my photos that I am washed out; one big beige ghost-like blob.

Does anyone out there have any tutorials or info on learning contouring with make up for those of us who don't wear wigs and live bald in the world? I am certain that the correct makeup will help…

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Added by Lili Añel (aka Eulalia) on May 23, 2016 at 9:30pm — No Comments

Advil liquigels for spots?

Okay, so I was thinking about something... Researchers have developed topical Ruxolitinib, right? So I have a question - Has anyone tried poking holes in Advil Liquigels to apply to the scalp to see if that might have any effect? I mean, Ruxolitinib was developed for arthritis to tamp down inflammation, Advil is an OTC anti inflammatory. Id love any feedback about this.

Added by Kat on May 17, 2016 at 10:57am — 1 Comment

GoFundMe for Freedom Wig

https://www.gofundme.com/2k6jpmsc

Added by autumn on May 16, 2016 at 2:30pm — No Comments

My Reaction To Humira + Seeing Some Growth

I'm still taking Humira on my journey toward getting Xeljanz. I was liking that the Humira was making my arthritis feel better, but I've noticed lately that I am having a worse reaction to it each new time I inject myself with it. There is redness and swelling that is extending 8 to 10 inches beyond the injection site and it is becoming quite swollen--worse every time. I don't know how much longer I can take it. But I did think it worth mentioning that there are pubic hairs growing, and I'm…

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Added by Susan on May 8, 2016 at 6:27pm — 2 Comments

Why the peach fuzz?

Hi all. My son was diagnosed with alopecia Totalis in the beginning of April 2016 he's 2 1/2 years old. I'm noticing some regrowth without any meds but it's almost like peach fuzz texture and white in color. Does anyone no why it's looking like this??

Added by Brask on May 5, 2016 at 8:00pm — 1 Comment

Wigs

Hi, I am based in London and am now looking to wear a wig.  I cannot stand to see my sorry face in the mirror anymore without hair.  Have looked at wigs before in various shops, but have left in tears.  Anyone who knows of a good wig shop or supplier, I would love to hear from you.  

Added by Vicki on May 1, 2016 at 1:39pm — 8 Comments

My testimony with alopecia

Hi there beautiful people!

My testimony with alopecia and maybe how this going to help you. First of all I’ve been suffering from alopecia, one third of my life. I know how hard it is to deal with it, and I want this to stop just like you. They say it’s is incurable but sending people into space. We cannot wait for them to come up with a cure. If  they does it’s okay, but ‘m not going to wait for that.

I feel a great responsibility helping those who are also suffering from this…

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Added by David on May 1, 2016 at 6:30am — 2 Comments

Finally, success with Anthralin

Been struggling with AA for twenty years. For me it never ever quite went away. It would move around the back of my head away from my direct view where it’s easier for me to ignore. Once in a while I’d get energized and want to fight it, so I’d start a cortisone and Minoxidil treatment course where for a few months I’d get shots every six weeks. No significant improvement happens, and I’d start fretting over the impact of all the cortisone and so I’d eventually give up and stop the treatment…

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Added by AAB on April 16, 2016 at 4:00pm — 1 Comment

Four Women Bond Over the Beauty in Their Baldness

I recently came across the below article in the New York Times:

"Four Women Bond Over the Beauty in Their Baldness"

A few Excerpts from the article:…

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Added by Cheryl, Co-founder on April 7, 2016 at 12:08am — 1 Comment

Idek

i feel really alone, isolated & left out.

my almost 5 year relationship hurts me because I am always to hurt.

its so hard to let someone love you when you don't love yourself. 

i don't know what hurts more.

losing someone you love because of this

or 

loving someone who let you lose yourself.

Added by Lishah on April 2, 2016 at 7:30pm — No Comments

Started Therapy

I've been seeing a psychiatrist for the past few weeks because I felt like I just had too. My anxiety picked up sometime last month, it became a physical thing to me & it's not always about my alopecia (so I think). Lately I've been getting anxious in my dreams, hearing my troubled thoughts as I sleep so when I wake up I'm still anxious and being anxious is all I could think about.

I understand its an internal thing, my subconsious, my stresses and worries, dreams of suicide,…

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Added by Lishah on March 29, 2016 at 11:35am — No Comments

Xeljanz

Has anyone gone to Mexico or the Dominican Republic to purchase the xeljanz?  The name of the pharmacy where the drug was filled.. Can you buy multiple packages of the xeljanz?  Thanks, margaret

Added by mrappe7@gmail.com on March 28, 2016 at 3:00pm — 2 Comments

Kenacort injections

I have had alopecia universalis for over a year now. My hair did grow back but it fell again.

My earlier medication consisted of betason ( steroid) tablets, tenovate cream and protopic ointment.I also do occlusive phototherapy.

As the improvement is very less, my doctor now suggested I try kenacort injections 40mg once for 3 months.

Thoughts on the injection?

Added by Ithastogetbetter on March 25, 2016 at 8:30am — No Comments

Does alcohol affect alopecia?

I have alopecia universalis.

I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.

Please do reply.

Thanks!

Added by Ithastogetbetter on March 25, 2016 at 8:30am — 4 Comments

A Clearer Head Defeats The Eggheads And Wins Big For Alopecia UK

EGGHEADS vs A CLEARER HEAD: Mission Accomplished with Bonus Miracle

 

This blog, written on 9th…

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Added by Sue Hampton on March 24, 2016 at 2:30pm — 1 Comment

Actress Viola Davis reveals battle with alopecia

According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia. 

Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.

Viola Davis is a natural beauty, but there was a…

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Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 12 Comments

I found a cure!

Hello everyone,

I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.

Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and triggers…

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Added by Surya on March 20, 2016 at 5:30pm — 4 Comments

Fat cell transfer (stem cell) for hair growth for AGA

Has anyone had experience with fat cells harvested from your own body and injected into your scalp to arrest and promote hair growth?

I'm going for an interview Tuesday to see if I'm eligible to join this particular study. The study is in NYC.

Added by sabrinaann on March 20, 2016 at 12:00pm — 2 Comments

How does it work?

Everyone keeps telling me to be positive. It will be fine. Don't worry.

But what if doesn't get better? I can't wear a wig for the rest of my life.

I'll explain more on my situation in the next post.

It feels good to find other people going through the same thing!

Added by Ithastogetbetter on March 18, 2016 at 2:30am — 5 Comments

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