All Blog Posts (5,796)

Debut After 5 Dormant Years

Hello Alopecia World Community, 

It has been over 5 years since I've been active and here I am again. I was reading through some of my old blog posts and it was at a time when I was lonely, not feeling accepted, and losing most of my hair for the first time. Since then, I found love and got married! He doesn't have AA, but he did lose half of his hair from regular male pattern baldness at some point in our marriage so now he shaves his head bald too =p

I even had my…

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Added by Jessi on August 16, 2017 at 9:02pm — No Comments

Flaking???

Hello, everyone I am pretty new to this site but I do have one question if anyone can help me out.. so about a month ago I found out I had alopecia areata. I have a rather large bald top on the top front part of my head. Over the past few days I have noticed that the bald spot and the area surrounding it has become flaky with the skin just flaking off. I can take my finger nail to it and peel it off. I was wondering if anyone else has experienced this? it might just be two separate things…

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Added by emsween93 on August 14, 2017 at 2:01pm — No Comments

Three men talk about hair, masculinity and the stereotype of the hairy 'manly man'

Having body hair is loaded with social judgement for women. For men, it's a sign of traditional masculinity that is still alive and kicking. These days, more and more men are trimming or completely getting rid of their body hair but for some guys, not having that choice is a big influence on how they feel as men.…

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Added by rj, Co-founder on August 3, 2017 at 2:30am — 1 Comment

A Lifetime of Doing Things the Hard Way.

(Repost from 7/22 as I accidentally deleted it before… also, update follows)



I’m pretty much the queen of being matter-of-fact about difficult things. My alopecia is no exception. Maybe I always had a lot of other stuff going on, but I viewed it as one thing among many. I’ve probably been guilty of the kind of minimizing a lot of alopecians hate, of the “It’s just hair” variety.



In romantic relationships, though, I never put my money where my mouth was, preferring to leave… Continue

Added by OnlyChild1213 on July 31, 2017 at 1:00am — No Comments

Pregnant and just diagnosed with Alopecia

Hello all!

I was 31 weeks pregnant when I was diagnosed with alopecia. It was small 4 bald spots (forehead, sideburn, behind my ear, and on the top of my head). That was exactly 5 weeks ago and now I am 36 weeks pregnant. And they have all gotten bigger and just recently noticed a new bald spot. I cry all the time when I shower seeing how much hair falls off. My doctor prescribed me a very oily ointment called Betamethasone Valerate since the day she diagnosed me with alopecia. It doesn't… Continue

Added by anabelv2 on July 29, 2017 at 6:25pm — No Comments

Off the Xelganz

I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.

My dilemma is I have a two year old beautiful baby girl. I love the way this…

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Added by BrianH1972 on July 25, 2017 at 1:20am — 3 Comments

FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.

Hi there,

I'm not sure if you are aware, but the FDA announced a public meeting and an opportunity for public comment on “Patient-Focused Drug Development for Alopecia Areata.”

The public meeting is intended to allow FDA to obtain patients' perspectives on the impact of alopecia areata, including on daily life.FDA is also seeking patients' views on treatment approaches and decision factors taken into account when selecting a treatment.

Could you please help…

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Added by gra on July 18, 2017 at 6:17pm — 1 Comment

Well I'll Be. (A chronicle for other curly girls out there.)

My first attempt at reclaiming my nearly-black 3B hair: Valentina by Outre. Extremely high density, despite how it might photograph. Has a different curl pattern in the underneath layer that is very thick and sort of boosts up the rest of it. Great looking but a little too Afro to pass off as my bio hair.

Second attempt: HH Brazilian Curl by It's a Wig. Very long, needs trimming, rough lace and lousy severe hairline right out of the box, but texture pretty soft for a synthetic…

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Added by OnlyChild1213 on July 17, 2017 at 10:30pm — No Comments

10 years of Alopecia

Hi Friends and All,

It's official, Ten years and counting since I found that little patch on the left side of my head.

Whirlwind of activity since my discovery of Alopecia Aerata.... The online chat here on Alopecia World and attending the www.naaf.org Conferences every year!

I'm happy to say that i've made peace with my disease!

Best of luck to all!

Shout out if you want to!

I've got great ears!!!…

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Added by JeffreySF on July 17, 2017 at 10:00pm — No Comments

hi, i'm new here^^

finally i've found a site where i can know people with my same problem,i'm so happy(sorry if i miss a few words^^;).

now i can tell my experience to someone who can undestand me.

i'm living with alopecia areata for about three years.

When my mother noticed the hair fall on a part of the head i didn't care much about it.I realized the problem when i had to cut off all the hair because the remaining ones were few and all tangled.

I've spend that summer with a foulard on…

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Added by White_44 on July 12, 2017 at 7:39pm — 1 Comment

What's New with Me and Wigs

Abandoned the bonding idea for now and am working on embracing more changeable and less costly options. Found a nice homey wig boutique in Richmond and purchased two brunette Raquel Welch's there. In front of people I see all the time but am not super close with (which is most people ;-)) I am still clinging for dear life to the self-made helper hair I've been using for four years... which is familiar but pretty crappy right now since I've got next to no hair, particularly at the front, to…

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Added by OnlyChild1213 on July 9, 2017 at 12:30pm — 3 Comments

Back with an update

I haven't been on  here in quite awhile, maybe a year or so.

The huge patch of hair loss on top of my head has since grown in with the help of  the needles I was given at the dermatology clinic.  I was also put on  a strong drug that I no longer take, it was doing more harm to my body than good.

I do however have a new patch of hair loss on the side of my head, and I still get small ones here and there.  I have to have another referral to get into the dermatologist so I just…

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Added by carebear42 on July 9, 2017 at 9:17am — No Comments

I want my hair back.What should I do?

I am 20 years old and i have alopecia totalis.6 months back i lost my hair on the scalp completely.Before that I have patches on my scalp.These patches were first found whrn i was 5 yrs old.Since then after every medication the patches will be covered and new patches in another site of scalp will be founded.I was vexed with all the treatments and don't have energy to take new medications.I don't like to be bald.I want my hair back.What should i do?

Added by Vamsi on July 6, 2017 at 12:00pm — 5 Comments

Alopecia got me down

I'm 16, have alopecia but cover it with long hair. I need a haircut and don't like my hair, especially because my friends make fun of how long it is. The only people who know I have alopecia are my direct family members. I'm don't like going outside anymore and feel hopeless. I don't know if anyone will even read this, but if you are give me some advice.

Added by Mudman on July 5, 2017 at 2:00am — 2 Comments

Life Changing Skincare-Rodan and Fields!

Hello friends!  I'm Lina and I've had alopecia universalis now for almost 7 years.  The first 3 years where a period of shock, suffering, depression with some hope that I'd have regrowth.  That didn't happen but  with some support, love, great wigs, nice skin, and some make-up, I look and feel normal.  It does not define who I am but it is a part of me now.  I've accepted it.  It took years to learn the magic of make-up but now most people are SHOCKED when I tell them I'm bald :D.  I get a…

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Added by lina on July 3, 2017 at 8:05pm — No Comments

Anyone?

Does anyone ever go to the bathroom at work simply to take off their wig for a moment? I find that when I feel overheated or if my scalp just needs to breathe, I go and take it off for a few minutes. Totally helps me! 

Added by Chenelle on June 29, 2017 at 1:00pm — 2 Comments

Quick post...

Just wanted to share this.

The other day I was on the train heading to work. It was no different than any other morning. I pressed snooze several times before finally getting ready and running out to grab the train. I probably should have taken more time to fix my wig, but I figured I'd go straight to the bathroom at my job if anything. I was standing for most of the train ride and when I finally got a seat, a young lady stood in front of me as her stop approached. She leaned…

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Added by Chenelle on June 28, 2017 at 2:41pm — No Comments

New to the forum and looking for any advice!

Hi everyone, 

I found out three months ago that I have female pattern hair loss. My hair had been disintegrating for over a year but I didn't know what was causing it. I'm in my mid twenties and have a brother a year younger who's losing his hair too. I knew my dad went bald at a young age, but never in a million years would have guessed I could inherit the hair loss as a girl. 

My dermatologist has me taking 200mg spironolactone and using the 5% minoxidil foam. I'm still…

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Added by JanieMH on June 20, 2017 at 10:11pm — 3 Comments

Prednisone for alopecia areata (possibly totalis)

Hi everyone,

I've never written on a blog before so I am hoping the I can learn from reading about other peoples experiences but also get some thoughts regarding my own.

In the last 3 months my hair has gone from having one small 10 cent piece patch missing behind the right ear to multiple patches across my scalp and hair loss on my arms and legs (patchy).  By the time I saw a dermatologist on April 18th (with a complete battery of blood tests having just been…

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Added by David on June 19, 2017 at 1:49pm — 6 Comments

New to support group... looking for help and guidance

After exhausting all of my options and losing 95% of my hair I find myself here for the first time to get somebody answers. Any input would be great.



After 8 months on prednisone and seeing my entire body change BUT also seeing hair growth I slowly stopped. After just one week I lost huge amounts of hair that have yet to grow back and this marks a year with almost no hair.



First question- how to deal with wigs!!! I bought a very nice synthetic wig almost a year ago but I… Continue

Added by Brooklynfighter on June 18, 2017 at 4:42am — No Comments

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