All Blog Posts (5,688)

Wigs

Hi, I am based in London and am now looking to wear a wig.  I cannot stand to see my sorry face in the mirror anymore without hair.  Have looked at wigs before in various shops, but have left in tears.  Anyone who knows of a good wig shop or supplier, I would love to hear from you.  

Added by Vicki on May 1, 2016 at 1:39pm — 1 Comment

My testimony with alopecia

Hi there beautiful people!

My testimony with alopecia and maybe how this going to help you. First of all I’ve been suffering from alopecia, one third of my life. I know how hard it is to deal with it, and I want this to stop just like you. They say it’s is incurable but sending people into space. We cannot wait for them to come up with a cure. If  they does it’s okay, but ‘m not going to wait for that.

I feel a great responsibility helping those who are also suffering from this…

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Added by David on May 1, 2016 at 6:30am — 2 Comments

Finally, success with Anthralin

Been struggling with AA for twenty years. For me it never ever quite went away. It would move around the back of my head away from my direct view where it’s easier for me to ignore. Once in a while I’d get energized and want to fight it, so I’d start a cortisone and Minoxidil treatment course where for a few months I’d get shots every six weeks. No significant improvement happens, and I’d start fretting over the impact of all the cortisone and so I’d eventually give up and stop the treatment…

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Added by AAB on April 16, 2016 at 4:00pm — No Comments

Four Women Bond Over the Beauty in Their Baldness

I recently came across the below article in the New York Times:

"Four Women Bond Over the Beauty in Their Baldness"

A few Excerpts from the article:…

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Added by Cheryl, Co-founder on April 7, 2016 at 12:08am — 1 Comment

Idek

i feel really alone, isolated & left out.

my almost 5 year relationship hurts me because I am always to hurt.

its so hard to let someone love you when you don't love yourself. 

i don't know what hurts more.

losing someone you love because of this

or 

loving someone who let you lose yourself.

Added by Lishah on April 2, 2016 at 7:30pm — No Comments

Started Therapy

I've been seeing a psychiatrist for the past few weeks because I felt like I just had too. My anxiety picked up sometime last month, it became a physical thing to me & it's not always about my alopecia (so I think). Lately I've been getting anxious in my dreams, hearing my troubled thoughts as I sleep so when I wake up I'm still anxious and being anxious is all I could think about.

I understand its an internal thing, my subconsious, my stresses and worries, dreams of suicide,…

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Added by Lishah on March 29, 2016 at 11:35am — No Comments

Xeljanz

Has anyone gone to Mexico or the Dominican Republic to purchase the xeljanz?  The name of the pharmacy where the drug was filled.. Can you buy multiple packages of the xeljanz?  Thanks, margaret

Added by mrappe7@gmail.com on March 28, 2016 at 3:00pm — 2 Comments

Kenacort injections

I have had alopecia universalis for over a year now. My hair did grow back but it fell again.

My earlier medication consisted of betason ( steroid) tablets, tenovate cream and protopic ointment.I also do occlusive phototherapy.

As the improvement is very less, my doctor now suggested I try kenacort injections 40mg once for 3 months.

Thoughts on the injection?

Added by Ithastogetbetter on March 25, 2016 at 8:30am — No Comments

Does alcohol affect alopecia?

I have alopecia universalis.

I wanted to know if drinking (i.e., the consumption) of alcohol on a regular basis prevents recovery. I couldn't find any definite answers online as to whether it makes the hair fall out or not.

Please do reply.

Thanks!

Added by Ithastogetbetter on March 25, 2016 at 8:30am — 2 Comments

A Clearer Head Defeats The Eggheads And Wins Big For Alopecia UK

EGGHEADS vs A CLEARER HEAD: Mission Accomplished with Bonus Miracle

 

This blog, written on 9th…

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Added by Sue Hampton on March 24, 2016 at 2:30pm — 1 Comment

Actress Viola Davis reveals battle with alopecia

According to an interview with Vulture that I found on Bet.com, actress Viola Davis struggles with alopecia. 

Many have noted that there seems to be an error in the article: The fact that stress does not cause alopecia, but may trigger it.

Viola Davis is a natural beauty, but there was a…

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Added by Cheryl, Co-founder on March 23, 2016 at 1:00pm — 12 Comments

I found a cure!

Hello everyone,

I got AA 9 years back. It slowly developed into AU. I tried many doctors, many treatments and nothing worked. I started accepting my condition after joining this group and learned to live with it, which is a good thing. At the same time, I was starting to give up hope.

Two years back, I thought I'll try my last shot with Dr.Richard Strick. At first I was skeptical with the treatment. I have tried a similar one where the cream irritates the scalp and triggers…

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Added by Surya on March 20, 2016 at 5:30pm — 3 Comments

Fat cell transfer (stem cell) for hair growth for AGA

Has anyone had experience with fat cells harvested from your own body and injected into your scalp to arrest and promote hair growth?

I'm going for an interview Tuesday to see if I'm eligible to join this particular study. The study is in NYC.

Added by sabrinaann on March 20, 2016 at 12:00pm — 2 Comments

How does it work?

Everyone keeps telling me to be positive. It will be fine. Don't worry.

But what if doesn't get better? I can't wear a wig for the rest of my life.

I'll explain more on my situation in the next post.

It feels good to find other people going through the same thing!

Added by Ithastogetbetter on March 18, 2016 at 2:30am — 5 Comments

Here it is again!

Well, same story as last time as it is every time. It was the second week before Christmas. I ran my hand through my hair and there it is. The size of a dime, it grew and then 3 weeks later right after the new year, there was now 2. One larger than the other, like siblings. One trying to out do the other - then at the wonderful size of Almost Silver Dollars, I find a third sibling hiding at the back of my head......

Same as the other two- about the size of a dime - then the hair loss…

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Added by kat533 on March 8, 2016 at 2:30am — 4 Comments

Anthralin Cream 2016

I am curious if anyone still gets anthralin cream prescibed, if it helps your hair regrowth, and side effects you have experienced.

Added by Beth on March 6, 2016 at 6:11pm — 2 Comments

It comes in waves

My level of acceptance toward the general ineptitude of my white blood cells is as inconsistent as my motivation to study.

More often than not, I could not give a fraction of a shit that my hair is basically absent. My reasoning there is mostly along the lines of "What would be different if I had it anyway?"

Looking pretty? Where does that get me? Friends? No. A job? No. A date? Maybe, but that's really not a priority at the moment due to my innate lack of skills in that…

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Added by Cue Ball of Steel on March 3, 2016 at 1:00am — 11 Comments

Alopecia survey

Hello,

My name is Shaianna, in my senior year in high school I was diagnosed with Alopecia Areata which progressed to Alopecia Totalis then on to Alopecia Universalis.  I am attending Delaware County Community College majoring in Business Administration while interning at VERSIDA a support organization for females with Alopecia.

As part of my course work I am conducting a survey to determine the number of females in the United States 18 and over who now have Alopecia (hair…

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Added by Valid_thaiwaiian on February 29, 2016 at 9:00am — 6 Comments

Elevated ANA

Do any of you have elevated ANA? Mine started out mildly elevated and now is very high but I've been tested for several diseases and al negative .. I did however, notice when I attempted gluten free my ANA was at its lowest.. I went back to gluten and it has been consistently elevated .. I also had extremely low vitamin D and was under a ridiculous amount of stress and had just had major surgery 3-4 months before I lost my hair so I'm not quite sure which triggered it but was curious if any of… Continue

Added by Jcortez05 on February 29, 2016 at 8:54am — 7 Comments

How to find the courage to go out bald and stop hiding behind the wigs?

Hello fellow alopecians! Been stalking some of your pictures and sexy bald heads and I'm inspired to want to show the real me to the world too. Thing is I know that if (for example)I take the bus to work tomorrow without a wig I predict that there will be one or perhaps a few moments where I will feel very self-conscious. And that's what stops me. I want to know how some of you found the courage to finally step out and what steps did you take? How did you do it? Did you go drastically say "from… Continue

Added by Michelle on February 24, 2016 at 12:25am — 15 Comments

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