All Blog Posts (5,357)

My alopecia

Hi! Call me Liz. I am 22 years old and I have been diagnosed with alopecia areata. It started it out with mild loss of hair on my left eyebrow years ago. I never suspected it to be alopecia because I never knew alopecia existed. Nonetheless a few months ago I noticed a tiny bald spot on my left top eyelashes. Later I lost my bottom right eye lashes. I also found a bald spot at the back of my head, but I ignored it because it wasn't serious. Long story short I now have huge bald-ing spots…

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Added by wiz on April 17, 2014 at 12:00am — No Comments

I'm new but I have a lot to say. . .

I'm 20 years old and I have Alopecia universalis. my main purpose for making this blog is to help people get comfortable with their and to help myself get more comfortable with my alopecia and able to talk about it. I have accepted but im not so comfortable with explaining or talking about it and i think the love from you guys will help. 

Added by ayanacalhoun on April 16, 2014 at 3:51pm — 1 Comment

New alopecian vs. seasoned alopecian

New: OMG, can I find a hairstyle that is in fashion to hide this? Will anyone notice? I HAVE to have a wig that is the same color, texture and style as my old hair and looks like it is growing out of my head. I can't let a boy find out or touch my head! Arrrrrrgh...what about eyebrows, intimacy, wedding, children, wind, convertibles, sports, hanging upside down from trees and monkey-bars, sleepovers, swimming, coworkers, gossips, mean girls, overprotective worried relatives, gawkers, rude…

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Added by Tallgirl on April 15, 2014 at 1:30pm — 2 Comments

A lovely thing happened today

Hi All,

I haven't posted anything other then responding to posts in a while.  A wonderful moment today has prompted this post.  A reminder...51 years developed Alopecia Universalis 3 years ago.  Last June I I went shopping for some make-up tips for my non-existant eye brows and eye lashes. I ended up at my local Shoppers Drug Mart (a chain here in Ontario).  3 cosmeticians spent several hours trying out different pencil/colours, etc.  The experience was nothing but positive.  I've…

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Added by michelle on April 11, 2014 at 8:00pm — 1 Comment

AA, eczema, fatigue and weight loss. Can anyone explain?

Hi all..

Can anyone help me with the following. 

Got AA a couple of years back. 1 big egg sized (goose egg) on the back of my head and a tiny weeny patch on the top. All grew back with the help of a steroid and making my diet a lot better (cutting out sugar etc )

However at the same time I have developed eczema on the back of my neck and scalp, I have lost a lot of weight (which i quite like) and I am so tired all the time. Quite often feeling disorientated and anxious…

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Added by Hayley on April 9, 2014 at 11:30am — 3 Comments

Exercising

So I have finally started exercising regularly and am wondering how others handle it.  I hate how I feel sweating with a wig on.  I am trying to look around for other options for covering but what have found few options.  What are others doing?  Any thoughts will be appreciated.  Thanks!

Added by Stephanie on April 8, 2014 at 8:41pm — 8 Comments

Losing hair dramatically yet all labs come back normal. Even physicians baffled! History of antibiotic and steroid use!

I have been on this site for over a month yet I have not been on here that much  this is why. In may of 2014 my hair started falling out right after I saw my physician for fatigue and my metabolism being shot. On May1st of 2013 she gave me a low does of synthroid I took it for 3 days on the third day my hair started falling out and I tossed it in the trash. Since then the hair has kept falling out and now my hair is grossly thin receding back to my ears and a bald patch in the front of my…

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Added by Dee on April 8, 2014 at 2:30am — No Comments

Scarring alopecia

Hello everyone,

I am new here...in December of 2013 I found out that I  have alopecia...and the worst one! Scarring Alopecia. I never had really thick hair but I had enough to cover my scalp. There were times when the hair would fall out more or less but it always grew back. The spring of 2012 was when I lost alot of hair, but the hair loss stopped and the hair grew back. A year later in the spring of 2013 it started falling out again and it never stopped. I spent many evening crying…

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Added by Anna on April 7, 2014 at 11:00am — 1 Comment

25 years of Alopecia

I was diagnosed with Alopecia when i was 10 years old. I can remember it like yesterday. It started with a few patches here and there. Within a few months, it was all gone. School was so hard after than. Children can be very cruel at that age. I seriously didn't want to live. My mother bought me a wig. I was the only child at my elementary school wearing a wig. My mom took me to this Dermatologist who prescribed me a shampoo. My mom did hot oil treatments and washed my scalp weekly with the… Continue

Added by Stephanie Y. on April 6, 2014 at 7:14pm — 4 Comments

I finally did it! My story

 I know that everybody has a story, so here is mine in a nutshell. My Alopecia (bald spots) started when I was 18 and progressively got worse. I've tried cortisone shots, creams, etc. ....you name it, to no avail. I've lost body hair (on legs and arms; eyebrows and lashes, which have now grown back) and have always worn wigs to cover my bald head.

I don't know about any of you ladies/gents, but I would feel extremely paranoid/nervous wearing a wig, especially during any type of…

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Added by babylums on April 6, 2014 at 5:14pm — 8 Comments

Rockin' a new wig any day you WANT!

Hello All,

Just thought I would pop in to write about this next stage I am moving into.  I would love to hear peoples thoughts and experiences :)

I have been completely bald for over a year now and wear a wig everyday.  The only folks who know I have alopecia are my close friends and family. I wear the same style/color wig everyday and never switch it up.  I recently started feeling like I want to embrace the fun/flexible and beautiful world of wigs more and rock different…

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Added by KStew on April 5, 2014 at 7:30pm — 5 Comments

Day 24 of Chinese herbal medicine to treat alopecia due to raw food diet and stress

Hello,

Just an update that it is now Day 24 of my medicine intake and positive improvements! My hair has considerably improved. The amount of hair coming out during showers seems to be 25% of the amount since the start of the treatment. It has been this way for about 5 days now. I am now waiting for hair growth to show after the 2 month mark....

The more I read about the effects of raw foods on my overall heath, the more convinced that it is not for everybody. You need…

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Added by beautybountiful on April 3, 2014 at 12:00pm — 1 Comment

Bald since 2012

Throwing a question out there....

Anyone else or has anyone heard of someone with Alopecia Totalis and have pancreatic cancer?

Added by Corrine on April 2, 2014 at 1:30am — 1 Comment

First blog - April 1, 2014

Hey! My name is Chenelle and I'm new to Alopecia World. I am excited to be on here blogging about my experience living with alopecia. This is the first time that I have really stepped out to share my story but I hope that it helps someone else to not feel alone.

I have been living with and dealing with alopecia for over ten years now and I have to say that it has been an uphill battle. I started losing my hair when I was about nine years old. I was so young and I didn’t understand…

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Added by Chenelle on April 1, 2014 at 9:30am — No Comments

Androgenic alopecia advise needed... please

I have been diagnosed with this, although I am still cautious I don't think the medical people know much!!, I also have hypothyroidism, does anyone think this is connected at all, as I lost my eyebrows first, then patches at the temples, then body hair, now my hair is going ... fast... I am on a high vitamin, protein diet, I have not seen any signs of my hair returning, can I expect it to grow back, I am having trouble coming to terms with this.

Thanks to this site I can talk about it…

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Added by Poppy UK on March 31, 2014 at 4:30am — 2 Comments

Science fair update

Hello again,

My name is Devyn Napier and a few months ago I asked for some advice and guidance regarding my science fair topic because I was entering a science fair and I began hitting dead ends and felt very discouraged. My topic was concerning Alopecia Areata and I have been working for about 10 months on this project. My project involved manipulating the external environment of two proteins involved in this autoimmune disease (i.e. NKG2D and ULBP3). I predicted that by altering the…

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Added by devyn on March 28, 2014 at 6:30pm — 1 Comment

Alopecia has now changed my life for the better - what about you?

Alopecia is one of the most emotionally devastating conditions, but it doesn't have to take over your daily life.

I have recently turned nineteen and I have now been suffering from Alopecia Areata/Totalis for five years. My first episode happened when I had appendicitis and although this was not the immediate cause it was one of the many contributing factors which caused the first bout of hair loss. At the time I was in the middle of exams at school which meant stress levels were…

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Added by Madeleine Evie Truscott on March 27, 2014 at 3:30pm — 2 Comments

Inspirational quotes

“And once the storm is over, you won’t remember how you made it through, how you managed to survive. You won’t even be sure whether the storm is really over. But one thing is certain. When you come out of the storm, you won’t be the same person who walked in. That’s what this storm’s all about.” Haruki Murakami

"You've got to be willing to lose everything to gain yourself." Iyanla Vanzant

"The inward journey is about finding your own fullness, something…

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Added by Jessica Hoschouer on March 26, 2014 at 9:00pm — No Comments

New human hair wig and need help with care and products

Hi

I have just purchased my first human hair wig, and am getting ready to wash it in the next couple of days.  I am very scared of the care of it, but have researched what other people use to shampoo and condition.  Can anybody tell me if I need to be doing something else? I have heard people use oil, but I don't know how often you should do this? how do you know when it needs it,  and also if you use heat what thermal protector do you use? 

Thanks

Ruthie

Added by Ruthie on March 26, 2014 at 8:09pm — 3 Comments

Girl banned from school for shaving head

ABC News reported:

A 9-year-old girl from Grand Junction, Colorado will be allowed to return to school after being banned for shaving her head.

Kamryn…

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Added by Cheryl, Co-founder on March 26, 2014 at 12:30am — 18 Comments

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