All Blog Posts (5,446)

Thoughts on being a bald science fiction icon at Comic-Con

I want to share my thoughts about wearing my Ilia costume at Comic-Con. Attached is a photo of the original character, played by Persis Khambatta in 1979's Star Trek - The Movie.

For my two days in the costume, when people looked at me, they DIDN'T see a woman with cancer, or a masculine-looking female. They saw me as normal and healthy - more than that, they saw me as beautiful and sexy! (I apologize if this sounds boastful, but the character is much-loved and I nailed the…

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Added by Mary on July 28, 2014 at 1:30pm — 4 Comments

The ups and downs of alopecia

When I first began to have alopecia at the age of 23, I constantly asked myself, how will I ever learn to live with this thing. In the first 3-5 years I became extremely focused on my spots, and I was almost certain that people would either laugh or talk about my spots behind my back. In a few years I had developed a 'constant acute awareness' of other people's behaviour, and it was almost like being a 'human-radar'. Everything out of 'the ordinary' I would pick up and process.

"Did…

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Added by Tommy on July 28, 2014 at 6:00am — No Comments

Is anyone else struggling with the cost of having alopecia?

I am not ready to go wigless, but cannot afford nice looking wigs anymore. I have been paying $150-$250 for synthetic wigs that look good. These are the cheapest ones I can find that look decent. The problem is that they don't last long. I have to buy at least 3 a year. As a mom of 3 and a teacher I do not make enough to keep buying nice wigs. Is there any support out there for the financial burden of being bald?

Added by Jackie on July 27, 2014 at 7:49pm — 2 Comments

Ayurvedic treatment

Hello All

My wife is 29 years now and her hair is becoming very week and density is also becoming very less in overall the scalp. We are worried as this may be alopecia or female pattern baldness.

Will the ayurvedic treatment helps her to improve the hair condition, do any one have got treatment from Dr. Rohit's Herbal Treatment for this problem [alopeciacure.com], will this help, can you please share you experience with his treatment. 

Thanks., Raju

Added by ssraju on July 27, 2014 at 12:39pm — No Comments

Need advice

I'm
Married 3 months ago and never let my husband saw my baldness head without wig . Even when I sleep I use it, it's not comfortable but I can't show my problem to the closest Pearson to me ,
Or talk about it to the people !!
And hate the questions !!
I want to feel fine And live in peace inside and can work with all confidence !!
Also I fear if my husband saw my head without hair ... How he will feel .??
J

Added by amina on July 25, 2014 at 8:33pm — 5 Comments

My insurance covers a wig

I called my health insurance to see how it works for them to pay for a wig for me. They said I make an appointment and the doctor prescribes me a wig. Does anyone know if there is like a specific list of places I can choose from or can I get it from anywhere? If I can get it from anywhere, I'd like to get the best wig possible. I do have hair that's like 1/2 inch thick so any suction wigs will probably not work.

Added by Jennie on July 24, 2014 at 11:00pm — 4 Comments

Should you feel that you have to explain? NO but I do

A couple of years ago I was on holiday in the Dominican. One night,in the restaurant, the man on the table next to ours started asking me about my hair! Wig. He asked me how I had got it curly and if it was permed. I replied that it wasn't naturally curly and smiled hoping that would be that. But his wife kicked him under the table and apologised to me for her inquisitive husband. He told her 'shut up -you don't know it could be a WIG', enough was enough so I said 'well yes actually it is a…

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Added by wisteria on July 23, 2014 at 10:00am — 37 Comments

Help!

Hi! I was diagnosed a few months ago and recently my head has become more itchy and I don't know whether ya paranoia but I believe my patches are getting bigger - are they any warning signs I should look out for incase this starts to turn into Totalis?

Added by Chelsea on July 22, 2014 at 12:02pm — No Comments

ITCHY!

Hello everyone!

I was wondering if anyone could help me out! The bald spots on my head are SUPER itchy. Is there anything i can do to stop it from itching? 

Thanks,

Sara

Added by Sara on July 22, 2014 at 8:00am — 2 Comments

What's the cure?

Or should I say, what am I trying to cure? My hair started falling out when I was 9. I've lost "love", been angry, been depressed, been there... I'm done with that. I don't care if there's a cure for hair growth anymore. I can only hope that there's a cure for insecurity, shallowness, and feeling left out. Self acceptance? Emotional growth? It would be like trying to find a cure for a dysfunctional society. I wonder who made these crazy rules anyway. Stupid rules about how everything should…

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Added by CandiiP0w3r5 on July 21, 2014 at 9:11pm — 1 Comment

Keranique

Anyone ever see the info out there about Keranique products to regrow hair ??????

Added by Kat on July 20, 2014 at 7:20pm — 2 Comments

San Diego area International Alopecia Day event on August 2

If you're in Southern California, join us for an International Alopecia Day luncheon in San Diego on Saturday, August 2. Bonus: I'm planning on going on a Bald Mannequin Project photo shoot in the nearby mall after our lunch for those who would like! Celebrate the 5th annual IAD with us from 11:30am - about 1:30pm at Cozymel's in the north part of San Diego near I-805. Private room, party! Please RSVP to me if you would like to come. Family, Kids, Friends are welcome. Bald is optional -…

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Added by Mary on July 20, 2014 at 1:52pm — No Comments

Random upset

As I've had alopecia for ever I feel really strange to find I'm crying over a loss right now.
I'm unsure the trigger but just been thinking how sad I'd feel to loose the random patches of regrowth although there is no guarantee it will even stay. But what has caused it to come? What was the trigger to cause it to grow? Why can't I work out what I've done differently to keep it growing? Why am I even bothered? And why right now do I feel so sad over it.... not a good alopecia day :(

Added by KFlame on July 18, 2014 at 2:00pm — 5 Comments

Sad in Chicago

Just found you guys....I was diagnosed with FFA last year after going round and round to docs looking for reasons I was losing my hair, only to be told I had female pattern baldness, but it proved to be a much more specific diagnosis and I hate it.  Losing from the front to back is just weird and there does not seem to be anything to do about it.  I have lost most of my eyebrows, all my face fuzz, arm hair and leg hair, as well as my ridiculously receding hairline front and by my ears.  I…

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Added by Sad in chicago on July 18, 2014 at 1:10pm — 2 Comments

Dyeing a wig?

I have a black lace front wig and it's not the colour I want. It's real hair.. Has anyone ever dyed a Black wig like stripped it and then coloured it the colour they want. I'm thinking a chocolate brown colour but I don't want to go ahead and do it as if it messes up that's a lot of money ruined..

Added by Natasha on July 17, 2014 at 10:30am — 5 Comments

I'd like to offer support for anyone!

Anyways long story short AU since I was 7.. So I've been through a whole lot. I found myself to be a strong person and AU has never really stopped me, the people I've met here tells me they wish they had my spirit

Feel free to message me I do check this quite often
Remember you are not alone!

Added by Nammer on July 16, 2014 at 12:12am — No Comments

Can arthritis treatment trigger hair growth?

I have suffered from Alopecia since I was about 9 years old. It hasn't been easy for me. I am 35 years old and still am not comfortable with my appearance.

Well, I am currently being treated for Rheumatoid arthritis. My current medications are Plaquenil 200mg twice a day and Neurontin 300mg three times a day(For nerve pain). I've been taking medication for about 3 months. As per web MD, "Plaquenil is used, usually with other medications, to treat certain auto-immune diseases (Lupus,…

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Added by Vivian N on July 15, 2014 at 8:00pm — 1 Comment

Having a really hard time adjusting

Having a rough time adjusting after being diagnosed, I've been through so much that last couple of months I've kinda been a wreck. Just didn't know if there was any support groups out there, I've always been the type of person to give someone the short off my back if there in need. I'm trying to stay positive and make the best out of the situation but it seems impossible , I've never heard of it till now nor did my family have history of it, is it really hereditary ?? Or is it stress ?

Added by Travis Tirrell on July 13, 2014 at 1:28pm — 8 Comments

My first time blogging on here & I don't even know where to begin

Been going through a lot of emotions lately, with myself and the others around me. Comin' up on 7 years in the fall. Man, I hate saying that. Just so tired of saying that, tired of myself and the efforts I feel like I must put forth just to feel pretty, natural and comfortable with myself around other people. I've been so tired of my hair, my locks of love wig piece. I've seriously had the same hair style for my entire high school career. Feeling so deprived and degraded a bit. I just don't…

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Added by Elishah Villafuerte on July 12, 2014 at 12:17pm — 2 Comments

It happened for a reason?

Seven years ago I finished chemotherapy for breast cancer. I waited for my hair to grow back, waited some more and then some.

To my horror and disbelief I realised I was waiting in vain. I spent the next 7 years trying to discover the truth, why my world had been turned upside down. Actually not only my life but that of my family too. I finally discovered I have become part of a dirty little secret of the drug Taxotere.

By now I was desperate for closure on this nightmare so I…

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Added by wisteria on July 12, 2014 at 10:48am — 1 Comment

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