All Blog Posts (5,709)

I had been diagnosed with CCCS alopecia - pretty scary

I am joining the forces Alopecia World - I never would of thought just 'last year' , I would be dealing with this now .

My name is Mary and I discovered a few months back a bald spot about a quarter size in the back of my scalp . Panic sunk in and my husband went searching my scalp and found others spots.

I first went to my primary care doctor which ran basic blood tests to find out I was just vitamin D deficienct . Wow , that is a easy fix and the doctor 'mega' dosed me on…

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Added by Maryisabell on July 27, 2016 at 3:00pm — No Comments

Alopecia and HRT implants

Hi everyone I have alopecia and have no hair at all anywhere on my body including eyelashes. As of yet the specialist has not been able to tell me what triggered it off however I have a younger sister who has recently had a hysterectomy and is now on HRT. During a discussion with her doctor regarding myself and HRT we discovered that I was laterally on implants and just recently they have found that women going through the menopause and taking HRT implants have been found to have low immune… Continue

Added by Lucy on July 27, 2016 at 12:17pm — No Comments

Reseting your immune system

I have read that fasting can trigger a reset of immune function, anyone here try this? Would love to hear about anyone who has tried this and results. I have started today only having 200 calories a day and water, I will report back on results but this might obviously take some time! I am going for a 3 day fast.

Added by Matt1 on July 18, 2016 at 10:30pm — No Comments

Low dose naltrexone and autoimmune disease

Apparently this is a very safe drug and it has good results with severe pain related autoimmune diseases...anyone try it for alopecia?

Added by Mike Staffieri RHN on July 13, 2016 at 2:30pm — No Comments

Hair up cream. Real or not?

Is this a scam? http://www.shmuel-gonen.com/en/ I have had AA for over 30 years and full-blown AU for 6. I am happy in my own skin and I have made peace with AA knowing that hair regrowth for me probably will never happen.

I know there is some exciting research happening for treatment.

Maybe the miracle is only a few years away. There are a lot of scam artists with fake claims of success and I want to be sure no one is taken advantage of.… Continue

Added by Craig A. on July 11, 2016 at 9:43pm — 1 Comment

Year 8 with alopecia

Hi All where does the time go?

It seems like it was yesterday that i found that first little bald patch on me...

I'm 2 days into my 8th year with alopecia.

While it wasn't an easy transformation I'm making the best of it. Thanks to all here and www.naaf.org 

I've spent many hours over the years on Alopecia World. Helping myself and others to the best of my abilities. I've thoroughly enjoyed all the time I spend…

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Added by JeffreySF on July 8, 2016 at 12:00am — 2 Comments

Hello, has anyone had experience taking low dose naltrexone for alopecia?

My doctor suggested i try it specially compounded.... I currently seem to be going from universalis to totalis... not sure what has brought about this change. I eat right, exercise a lot, and have had alopecia in my life for 40 years. I have added fish oils to my supplement regimen and my doc feels i have lessened my inflammatory levels. He said the low dose naltrexone can do this too. Thanks for your help, Rie

Added by Rie on July 5, 2016 at 7:02pm — No Comments

You also have anxiety / depression?

Hello everybody, apart from Alopecia I also have anxiety. After that my hair fell out, I stayed with my self esteem too low and I started having anxiety because hair loss moved a lot with my emotional state because before I used to be praised by the people and repentes these compliments turned on looks strangers, rejection and difficulty of relating to people. Something similar also happened to you?

Added by Tomy Pereira on July 3, 2016 at 8:30pm — No Comments

Frontal fibrosing alopecia

By way of biopsy, I was diagnosed with Frontal Fibrosing Alopecia in mid Feb. 2016. The timing of the study and my home location were such that I was able to volunteer for a clinical assessment on Feb. 25th at the National Institute of Health Dermatology Grand Rounds in Bethesda, MD. Anywhere from 50-75 doctors examined my scalp and provided their consolidated opinion and treatment. My dermatologist reported the findings to me and we began the following treatment: 1) C-Tacrolimus 0.1%…

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Added by Tress on June 28, 2016 at 7:00pm — 3 Comments

Alhamdulilah 60-70% regrowth at little cost!

Alhamdulillah 60-70% hair regrowth

I praise Allah first of all for the growth of my hair. A massive part of my beauty. I'm not out of the woods yet. I look like a parrot without my scarf but it's reassuring to see the new hair sprouting out of the once smooth shiny bald scalp. There are bits of my hair about three inches or more long! Back in November I was mainly bald with say 50- 100 hairs and shiny smooth head. But by the grace of Allah I'm getting there. I am hopeful. All power and… Continue

Added by Chamzy on June 28, 2016 at 7:00pm — 2 Comments

Am I dramatic?

My friends say that I tend to be a little dramatic. I have lost not as much hair as most people have here on this site that I have seen. I decided that I wanted to make sure I had some power. I lost most of my hair in the back in silver dollar size maybe bigger. The front of my head is thinning that for me its the the same like it was months ago before all this. Maybe it has always been thinning but it got worse with in the past 4 months. Anywho, the whole point of this rambling post is that…

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Added by Akrose on June 27, 2016 at 8:00pm — No Comments

Itchy scalp, with sore red bumps.

Does anyone else have problems with itchy scalp and random flair ups of very sore red bumps? I have Alopecia areata, and my scalp itches all the time. Its like i have lice or something, its very annoying. I also occaisionally get these swelled up red bumps around hair follicles, and they really hurt when i brush my hair. Please if anyone has any tips, please share!!!

Added by Tashalea on June 26, 2016 at 12:00pm — 2 Comments

Viviscal for alopecia universalis

Has anyone tried viviscal? I ve been using it for a week now and I see a few hairs coming back in my eyebrow area, I am going to use it for at least a year and see. I am au for over 20 years and still searching for a cure.

Added by Gina on June 22, 2016 at 3:48pm — No Comments

Today was the day I let it go

It all started in April with a small patch and thinning of hair, after that the doctor said its alopecia areata. I was losing hair, getting more patches and my head well that itches still. Everything seems to be normal as much as the doctor told me. I was suppose to do treatments but sadly certain things are not covered by my insurance and some of the medication has side effects that are affecting me. So I am doing this naturally. I made the decision mid May to let it run its course.…

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Added by Akrose on June 21, 2016 at 6:30pm — 1 Comment

Feeling emotional

I have universal Alopecia and it has all happened in under 6 months.  In the past month, I have lost my eyebrows and eyelashes and let me tell you that was almost harder than losing all my hair.  I go back to my specialist on Tuesday and I am trying to prepare myself for what I guess I already know.  I just wanted to share with everyone that each and every day is a gift - with or without hair and I am beginning to finally embrace that.  As hard as it is to look in the mirror some days I dig…

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Added by Maples79 on June 16, 2016 at 4:00pm — 5 Comments

Freedom Wigs

I'm new to this site and you can probably guess.

I just found the shop tab and the wigs I was blowing about it advertised here.  Who knew?  Not me.

Added by Pamela on June 11, 2016 at 8:52pm — No Comments

I am over the moon excited

I have been struggling with Alopicia since the very early 80's. My mid 30's. I am convinced that my situation in due entirely due to stress.  We moved from Il to MN in 1981. My husband had a job, that was the rule before we moved.  Well, I'm not sure if it was even 6 months after the move that the place closed the doors. Here we were with two kids, no job and no money.  Going from 1500 per month to 0.

My husband went to work for a farmer.  900 a month and free rent.  Kids on reduced…

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Added by Pamela on June 11, 2016 at 8:30pm — No Comments

What About Alopecia Babies?

My first bout with AA was in my 20's with AU following at age of 35.  A great paternal aunt was said to have had sporadic AA in adulthood.  2 of my 3 Children have AA since childhood but it's been managed.  My 3rd child has never had AA.  What I can say is that my children with AA have my support, don't feel alone and know that their father and I always understand and normalize it as much as possible.  My understanding is that although there is a genetic link, most people with AA don't have…

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Added by edie1122 on June 11, 2016 at 6:44am — No Comments

Vegan?

Has anyone here successfully changed there diet to regrow hair? I have been looking into claims of people going vegan/organic and have amazing results. I'm mostly a veg/fruit eater myself but I still included some animal products.

Added by Matt1 on June 10, 2016 at 8:00pm — 40 Comments

Tingling or crawling in the scalp

Hi guys, 

Does any of you face tingling or crawling in the scalp and body in alopecia? Does this happen?

Thanks

Added by Swati on June 10, 2016 at 12:30pm — 4 Comments

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