All Blog Posts (5,791)

Newly diagnosed with FFA

Have any of you with FFA done any kind of blood panels looking for potential sensitivity to chemicals, food additives, food, etc. it looks for antigens in your blood that react to any of the above mentioned allergens. It’s a pretty extensive array of tests and is expensive, not covered by insurance. But considering this is auto-immune disorder that attacks your hair follicles, something has to be triggering this. I’ve read studies that sunscreen, Botox are a couple suspects. If any of you have… Continue

Added by Pat D on November 22, 2017 at 10:12pm — 4 Comments

???????

So I know I shouldn't be shock or numb but for the past 4 yrs I have been so blessed with a lil one who know no different when it come to someone with or without hair. he runs around like nothing is wrong and I'm so grateful for that. 

Added by stephinee L Dawson on November 21, 2017 at 12:26am — No Comments

PRP=Platelet-Rich Plasma

Just a fuller head of hairs up! I have had substantial growth and less shedding since I began having my Platelet- Rich Plasma injected directly into my scalp. I had tried numerous things prior throughout the years since being diagnosed with Androgenic Alopecia years and can honestly say that it has been working for me.

Added by Jo on November 14, 2017 at 6:17pm — No Comments

Some research for an art project

Please send me a message or a reply if you would like to help me with an art project.  I only need your answers (no biographical information tied to you or your name).

1)  About how long ago were you diagnosed with Alopecia and about how long has your hair loss been noticeable?

2)  Have you ever been bald in public?  If so, what gave you the courage to leave your home bald?

3)  Have you ever been bald in public?  If not, what would give you the confidence to do so?…

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Added by Lynn on November 13, 2017 at 12:30pm — No Comments

Hello everyone I am so honored to be a part of the group once again

I would love to meet other alopecia also the ones that's in the Detroit Michigan area but remember I love all alopecia so remember God loves you and so do I and I can't wait to meet you all stay blessed

Added by Angenetta Whites on November 11, 2017 at 11:31am — No Comments

New topical Tofacitinib treatment done in Thailand 2 months ago that showed great promise for male/female pattern baldness!

(https://www.ncbi.nlm.nih.gov/pubmed/28884378) Here is the link on the study that honestly lead me to this website. I am extremely pleased with the way the research was conducted and the detail to which it was conducted. It was published by an MD/PhD which if you dont know gives them even more credibility. Basically in America our brightest minds go into the medical field but in Asia their brightest minds go into biomedical research…

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Added by yousey on November 7, 2017 at 4:39pm — 1 Comment

Cushings syndrome and Alopecia Areata changing to Universalis?

It will be a year now since i have shaved my head. Well the few patches of hair that still stood strong. And i can say this year has been a crazy train. I was getting steroid injections every 4 weeks last year up until the point i shaved my head. Soon after, i noticed a hump on my upper back. I also gained some weight. Came to find out i developed Cushings Syndrome from the steroids. Long story short i am still battling weight loss and still have the buffalo hump......

Other than that…

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Added by Lauren on November 6, 2017 at 6:08pm — 1 Comment

An anecdote from when I was a kid...the time my hat fell off!!

I was 16 - I had a full head of hair for the first time since I was 3. I started taking birth control pills, which totally set my hair progress back to zero - if you're a girl in her teens with alopecia, just don't. I was completely bald again for the first time since I was a toddler. I decided to completely shave my head rather than look at the thinning gold curls that remained on my head every day.…

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Added by LauraC.303 on November 4, 2017 at 5:50pm — No Comments

"Your haircut makes you look like a serial killer..."

Everyday, I seem to find some way to blame myself and my own body for giving me alopecia at such a crucial time of my life. I hold on to too many things in my life and my hair loss is one of them.

One of the more challenging ideas to have with this is condition is dating. While I've recently, in the past year, got out of a long term relationship on mutual terms, I still can't help but think about her daily, wondering if this condition pushed me to a point of depression that affected…

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Added by ZakR07 on November 2, 2017 at 11:54pm — 2 Comments

Is there still hope?

I am fairly new to this website, but i have decided to try to reach out and answer some questions. I have had AA for 4 or five years. Started out very minimal and after some steroid injections from my dermatologist, it grew back fairly quickly. I had a few spots come and go and received steroid injections every month for about 6 months. It was all good ( only about one small spot) until i started my second year…

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Added by ac on October 25, 2017 at 2:45pm — 12 Comments

Looking to start hair loss support group in Grand Junction, CO, anyone interested :)

Hi, I live in Grand Junction, Co and am wondering if there are any ladies out there that live in my vicinity? I would love to start a hair loss support group where we meet in person to support each other. Hair loss can feel devastating....but it does get much better with acceptance and making peace with it. It would be so nice to meet other ladies that are going through this to have that mutual support and understanding.  God bless you, Connie

Added by Connie on October 20, 2017 at 7:26pm — No Comments

Autoimmune-X

Has anyone tried the product Autoimmune-X by Dr. Ronald P. Drucker? Any success? Used the product as indicated for the appropriate length of time?? Curious if this is junk science.

Added by Paul on October 15, 2017 at 9:33am — No Comments

Does artificial hair transplantation works out for me??

This is my second blog on this site.Now I feel a bit better with all your support. Whenever I feel depressed about my alopecia condition, I am just visiting this site and read all the sad stories which are same as mine. Tears were rolling down my cheeks while I am writing this. Now I realized that I can't grow hair again and I should remain bald for this lifetime. It is more difficult to digest but I am setting up my brain that "this is what I am going to be for this lifetime". 

  My…

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Added by Vamsi on October 14, 2017 at 6:00am — 2 Comments

Xeljanz from Mexico

I can help getting Xeljanz from Mexico. If interested let me know. Just got my 56 pill supply today.

Added by Angel Lozano on October 11, 2017 at 10:30pm — 6 Comments

A Search for Purpose.

It's way past my 9-5 working person's bedtime, so this may or may not be coherent. I just feel compelled to throw it out there rather than keep it rolling around between my ears.

I have a job that's nowhere near anything I went to school for. I was lucky to get it right before the financial crisis, it's done a lot of great things for me, and it's stable, but it's not the kind of thing I see myself doing forever (though the fact I've stayed in it the better part of 10 years would…

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Added by OnlyChild1213 on October 2, 2017 at 2:20am — 9 Comments

The next Chapter

Hellooooo everybody!

Wow it's been a long time since I've been on the site.  I have missed seeing all the smiles and reading all the stories,  but my prayers and positive vibes have been sent continually.  

I lost my hair in a quick fashion 17 years ago.  It was a 3 week whirlwind of hairloss and wow, it was scary.  Doctors didn't know very much about Alopecia then (well, at least my doctors didn't) and they kept telling me it was just stress.  Sigh.  Have you heard that…

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Added by Sandy K. on September 30, 2017 at 8:00am — No Comments

Cortisone Injections

I was wondering if anyone who has been getting Cortisone injections also has any problems with yeast infections. My granddaughter has been getting the injections for the last 4 years. Lately she has developed a yeast infection which will not go away even with medical treatment.
Thank you

Added by Ashlestley on September 29, 2017 at 9:12pm — 1 Comment

"The Male Model Who Lost His Hair" - QC.com

I recently came across an article on QC.com and pulled a few excepts:

 "Justin Hopwood's perfect looks helped him land a perfect career, traveling the world to model for Ralph Lauren. Then he was diagnosed with alopecia. What do you do when you lose your money-maker? Especially when that money-maker is a perfect head of hair? He's trying to figure that out."…

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Added by Cheryl, Co-founder on September 28, 2017 at 11:50pm — No Comments

Denver Experience

The Snowy Day-Zak Reynolds

This is a link to my write up for Denver Center for the Performing Arts, The Snowy Day. Sept 21-Nov 18

Come see !

Added by ZakR07 on September 25, 2017 at 3:38am — No Comments

Treatments

I just found out that I have FFA.  I'm really hoping someone with tell me a success story and what they did to keep their hair from falling out.  It's really hard to have something like this happening.

Added by WandaRussell on September 23, 2017 at 7:29pm — 2 Comments

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