Cheryl, Co-founder
  • Female
  • Detroit, MI
  • United States

Cheryl, Co-founder's Friends

  • nessabrown52
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  • Cassin Ong
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  • Heisten
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Cheryl, Co-founder's Discussions

The 'Third Date Rule' by Debbi Fuller

Started this discussion. Last reply by Debbi Fuller Mar 12. 48 Replies

Being transformed by the renewal of your mind

Started this discussion. Last reply by Ivan Jun 20, 2013. 15 Replies

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Our Video submission for National Bald Out Day 2009!

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Cheryl, Co-founder of Alopecia World

Profile Information

Relationship Status:
About Me:
I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world!

Cheryl Carvery-Jones
"It's Hair Loss Support At Its Best"

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):

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Cheryl, Co-founder's Blog

Use your difference

Posted on December 14, 2016 at 3:40am 2 Comments

One of the groups on is called “Use Your Difference!" and it reminds me that there are many ways you can use your alopecia to help others.


For example, right here on…


Libby’s inspiring story of strength and love in overcoming the pain of hair loss

Posted on September 21, 2016 at 1:00pm 1 Comment

Charity Bailey, co-host of, is helping spread the word about women and alopecia by featuring the powerful story of her own sister's battle with the hair loss disease.…


Another Alopecia World member in the spotlight!

Posted on August 9, 2016 at 12:00pm 7 Comments

 I love stories of triumph! 

One of our members Caroline, was featured in a photography project "30 days of Gorgeous" by Toma Houston Photography.…


It may not be easy, but is it worth the courage?

Posted on August 8, 2016 at 1:00am 7 Comments

My husband had a life-long fear of large bodies of water. Recently, however, at almost 50 years old, he learned to swim. Within two weeks of his first stride, he was ready to show other family members what he learned so that they too could swim. Watching him has been exhilarating. It took courage: In order to float, you must let go, breathe, and allow the water to take over. At first you sink, then all of a sudden, almost magically, you start to float to the surface.

It was an…


Comment Wall (1,454 comments)

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Join Alopecia World

At 6:37pm on March 8, 2017, nessabrown52 said…
I joined bc i have a sweet baby girl age 11 going thru this. It hurts to see her going thru losing her hair.
At 6:38am on March 8, 2017, 123me said…

thank you. i appreciate that!

At 2:50pm on August 27, 2016, Claudia DePalma said…

I love this community so much! :) 

At 2:15pm on June 17, 2016, Heisten said…

Doing better day by day. This website has helped tremendously by being able to stay informed and finding out you are not alone.

Thank you so much for starting it.

At 6:22pm on April 26, 2016, Divine said…

Peace Queen!  Thanks for creating such an amazing place.  You are truly appreciated.

 Peace & Blessings.

At 2:09pm on April 4, 2016, Caroline said…

Hi Cheryl,  

I think you are an amazing woman, I am so glad to be part of this community!  Hugs

At 4:17pm on March 10, 2016, ChristineAnne said…

Hi Cheryl,

Thank you; how kind!  I just read your profile and your positive attitude gave me pause.  Thank you for starting this wonderful group; it is inspiring and empowering.


At 2:38am on December 9, 2015, JeffreySF said…

Hi Cheryl.

Stopping in to say hello!

Wishing you and RJ a happy holiday season!


At 10:09am on July 12, 2015, Dom said…

Hello Cheryl, sorry i was late in replying. I have been down Wimbledon. I saw Serena do the

"Serena slam". She is a machine....

Wore a Panama hat lol

I'm fine apart rom hayfever.

Stay cool.


At 4:39pm on March 20, 2015, Essence said…
I'm great! how are you? haven't been on here in a while so I figured I'd drop by (:




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