Cheryl, Co-founder
  • Female
  • Detroit, MI
  • United States
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Cheryl, Co-founder's Discussions

5 Things to Say to Someone with Alopecia

Started this discussion. Last reply by Sandy K. Sep 30. 1 Reply

The 'Third Date Rule' by Debbi Fuller

Started this discussion. Last reply by Debbi Fuller Mar 12. 48 Replies

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Our Video submission for National Bald Out Day 2009!

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Cheryl, Co-founder of Alopecia World

Profile Information

Relationship Status:
Married
About Me:
I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world AlopeciaWorld.com!


Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
"It's Hair Loss Support At Its Best"

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.alopeciaworld.com

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Cheryl, Co-founder's Blog

"The Male Model Who Lost His Hair" - QC.com

Posted on September 28, 2017 at 11:50pm 0 Comments

I recently came across an article on QC.com and pulled a few excepts:

 "Justin Hopwood's perfect looks helped him land a perfect career, traveling the world to model for Ralph Lauren. Then he was diagnosed with alopecia. What do you do when you lose your money-maker? Especially when that money-maker is a perfect head of hair? He's trying to figure that out."…

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"I created my own beauty standards"

Posted on April 29, 2017 at 11:41pm 7 Comments

It amazes me how many people share their stories and triumphs about their alopecia.  I recently found another one that I think the community would benefit from.

 

By Lennox Bishop

...Fast forward to a few weeks after I…

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CNN - Girl with alopecia wins competition with gorgeous jeweled head

Posted on April 27, 2017 at 3:13am 0 Comments

Source:  CNN/ By Alexandra Larkin

I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.

(CNN)Even without hair, 7…

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"Meet the inspiring woman embracing her alopecia, even on her wedding day"

Posted on April 26, 2017 at 11:00pm 0 Comments

I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:

“Kylie Bamberger looks every bit the blushing bride in her wedding photos.…

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Comment Wall (1,458 comments)

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At 9:38pm on July 24, 2017, Eric Graff said…
I live in the area of Detroit Michigan and wanted to share a small story. I was diagnosed in 2010 with alopecia universalis. Took about two years to fully lose about 75% of my body hair. I took a job working Outdoors and got lots and lots of sunlight on my bald head. I also started eating a little better. I feel vitamin D played a big part in my hair coming back even though the doctor said it wouldn't. It's been 4 years now and I've had a full head of hair and I wanted to share my story because I truly believe it has to do with a vitamin D deficiency even though my doctor tested me recently and told me I had zero vitamin D in my body so he prescribed me pills. I do now try to get out in the sun more often since I work in an office after I got my hair back. Feel free to email me if you had any questions or concerns just wanted to make sure one person heard my story considering I feel very lucky and concern for others that may have this condition. Eric email graffer1320@yahoo.com
At 8:52pm on March 30, 2017, PaulaR said…

Thank you Cheryl,

I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than  monthly injections. It would be wonderful if this could help others.

Paula

At 12:20am on March 24, 2017, Tallgirl said…
Doing fine. Retired, but still doing some teaching to cover dental, car, and fun. About to throw a big Polish Gourmet Dinner for AAUW...so I will be cooking and making name tags all weekend. Our area support group us doing great: Mike Chapman from SF spoke at the last meeting. Still single and sassy. How about you?
At 7:34pm on March 18, 2017, Lisafc2000 said…
Thank you! :)
At 9:58pm on March 17, 2017, Rhonda said…
So glad to have found this site. After thyroid tests, vitamin level tests, 2 dermatologists, endocrinologist and ordering my own hormone level tests, no one defined what was going on with my hair for the past 4 years. First thinning, then noticeable change in texture, right side of head and around right ear and nape 50% less hair than left side. I have to do my own diagnosis given the lack of a knowledgeable Dr.i have given up and started never going out without a wig. I have quite a few now.but frustrated about where to turn next
At 12:38pm on March 17, 2017, LVL said…
Hi Cheryl, Thank you very much for your message. I appreciate it
At 9:07am on March 17, 2017, Keyla Cordero said…
Thank you so much for welcoming me to this community. I was just diagnosed with Alopecia Areata and Im getting to know so many things I didnt before. I pray this joirnet teaches me a lot of positive things and I cant get to help as lany people as I can
At 2:24am on March 17, 2017, Beloved said…
Thank You!
At 6:37pm on March 8, 2017, nessabrown52 said…
I joined bc i have a sweet baby girl age 11 going thru this. It hurts to see her going thru losing her hair.
At 6:38am on March 8, 2017, 123me said…

thank you. i appreciate that!

 
 
 

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