Cheryl, Co-founder
Cheryl, Co-founder
  • Female
  • Detroit, MI
  • United States
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Cheryl, Co-founder of Alopecia World

Profile Information

Relationship Status:
Married
About Me:
My name is Cheryl Carvery-Jones. I was born in Montreal, Quebec Canada, and recently moved to Detroit, Michigan after marrying the co-founder of Alopecia World, richard jones (rj).

I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with rj, who was my fiancé at the time.

My husband and I created
Alopecia World to meet the online support needs of alopecians. Here we share and encourage each other through our struggles and celebrate our victories, big and small.

My dream and mission with AlopeciaWorld.com is that we truly liberate ourselves to no longer fear how others will see us, but to step out of hiding and just be ourselves. I truly believe that if we were to do so our lives and lives of so many others living with alopecia would be much more comfortable. I am not saying that a person who has alopecia has to give up their wig, but I am promoting sharing the fact that we have alopecia with our friends, family and those around us so that alopecia becomes a household word. One of the members of AlopeciaWorld.com, said that she never met a person who regretted telling others about their alopecia -- only that they have not done it sooner. We have nothing to be ashamed of.

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a VERY special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site. You can see our wedding photos here!

Please feel free to "friend" rj and I: We would love to make your acquaintance. :-)

Welcome to our world… AlopeciaWorld.com!
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.alopeciaworld.com

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Cheryl, Co-founder

Where I am today is where many of you will be tomorrow

Posted on February 4, 2012 at 12:45am 2 Comments

Occasionally I receive an email from someone saying that they wished they had my strength to handle alopecia -- as if I woke up one day without my hair and was immediately ok with it. As most members here would attest, that is hardly ever the case. Where I am today is probably where many of you will be tomorrow.

I wrote the following in response to one such email and thought that other members that are new to alopecia or struggling may benefit from it too:

You would be…

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Cheryl, Co-founder

Don't Hide the Scars

Posted on January 18, 2012 at 2:18am 5 Comments

There are people lives that I believe I have touched because I was not afraid to show my “scars”.

Below is a song that the words ring so true to me and I wanted to share the lyrics with you.

Don’t Hide the Scars

(Michael Puryear/Cheryl Rogers/Jeff Silvey)

From CD: Sisters–The Story Goes On -1995

Vocals: Beverly Crawford/Cindy Morgan

I wept alone

Suffered on my own

I didn’t think that anyone would understand

Until…

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Cheryl, Co-founder

Bless you alopecia, bless you for being in my life?

Posted on November 23, 2011 at 8:00pm 15 Comments

My husband has been working on material for a class on character that he is teaching at a prison. He found himself researching Aleksandr Solzhenitsyn, who spent 8 years in an unfathomable labor camp for writing a derogatory comment about their country's leader in a letter to a friend. Solzhenitsyn later went on to write the classic book - The Gulag Archipelago: 1918-1956 - and in 1970 received a Nobel Prize in Literature.

These two quotes from his book have been circling my mind over…

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Cheryl, Co-founder

Random thought on my journey with alopecia

Posted on November 19, 2011 at 11:48am 3 Comments

Most of you know that I am from Canada and rj is American. So when we married we started a whirlwind of immigration processes. I had to file yet another form and get another set of biometric done. One of the steps was another photo session at the immigration office.

I filled out the form and clicked “bald” as my hair color. For a second I wondered if I should have clicked black, since it was an official government form and being AA my black hair does show if I don't shave daily. I…

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At 10:42pm on February 4, 2012, TanyaTanya said…

Hi Cheryl and RJ!

I want to thank you for creating Alopecia World. Thanks to you we are now running a very active and positive support group in Vancouver, Canada!

( On the technical side, how do you manage to create such complete web application? )

I wish you all the best and, continue to be amazing!

xoxo
Tanya

At 6:50am on February 3, 2012, thinlizzyfairythinlizzyfairy said…

hey cheryl! thanks for seeing up such a great site :) is great support when im feeling a bit down in the dumps. doing good tho! the sun is shining, the sky is blue and i have an indian head massage on the way...cant complain :) how's everything your end? x x

At 8:24pm on December 5, 2011, AnastasiaAnastasia said…

Thanks for the compliment =)

At 4:26pm on December 5, 2011, LilyBellLilyBell said…

Thanks for accepting my friend request : )

At 6:09pm on December 3, 2011, vellyvelvellyvel said…

hey thanks for showing me that i wud have never known :) greats to know some appreciates wat i put thanks xx

At 3:12pm on December 2, 2011, NataliaNatalia said…

Thank you and your husband ,Cheryl!
It was a great idea to create this community .
The people who has not this problem, can not understand me, but I can know now how feel themselves the other people who has this problem.

At 10:51pm on November 22, 2011, KycieKycie said…
I am slow to start this connection process; which is such a dichotomy considering I have no support system. So today is my start date. This truly is a encouraging, inspirational, honest and authentic community via the internet. I am grateful for everyone. For now unknown personaly, yet I have no doubt that there will be a sense of knowing in a spiritual and humanistic sense......
At 1:38pm on November 20, 2011, strklydklystrklydkly said…

Hi Chery,

Thank you for your welcome and for the information. I am very excited about joining Alopecia World and will definitely take advantage of the wonderful support and info. you seem to provide. Thank you very much.

At 5:08am on November 20, 2011, TonyTony said…

Thank you for your note and kind welcome and thank you also for this website. My wife and I are trying to educate ourselves and at the same time trying to provide love and support to our daughter. We are actually quite impressed with the way she has been able to handle it. This week we have scheduled two appointments at wig places. I've been impressed with her friends who have been highly supportive as well.

At 11:24am on November 12, 2011, 10yr old Jada and her mommy10yr old Jada and her mommy said…
Hello

BuddyPoke!

 
 
 
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