"I'm 100% sure my hair is falling out because of the hpv shots, if your under 26 or have a young daughter don't get it!!!!!!!!!!!!!"
Alopecia World
It's Hair Loss Support At Its Best™
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Cheryl, Co-founder
- Female
- Detroit, MI
- United States
- Blog Posts (21)
- Discussions (282)
- Events (1)
- Groups (34)
- Photos (211)
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Cheryl, Co-founder's Groups
Cheryl, Co-founder's Discussions
Being transformed by the renewal of your mind
Started this discussion. Last reply by asdf234 Apr 8. 14 Replies 0 Favorites
How do you explain alopecia to a young child?
Started this discussion. Last reply by Sarah McIntosh Sep 2, 2011. 13 Replies 0 Favorites
National Alopecia Areata Foundation Support Groups
Started Jun 28, 2010 0 Replies 0 Favorites
Cheryl, Co-founder's Events
Official Blog
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Our Video submission for National Bald Out Day 2009!
Cheryl, Co-founder's Videos
Gifts Received (15)
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From Disaster
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From Tracy L Williams-Henry
Cheryl, Co-founder of Alopecia World
Profile Information
- Relationship Status:
- Married
- About Me:
- My name is Cheryl Carvery-Jones. I was born in Montreal, Quebec Canada, and recently moved to Detroit, Michigan after marrying the co-founder of Alopecia World, richard jones (rj).
I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.
It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).
Someone once asked me what I planned to do after I moved to the USA. My initial thought was attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with rj, who was my fiancé at the time.
My husband and I created Alopecia World to meet the online support needs of alopecians. Here we share and encourage each other through our struggles and celebrate our victories, big and small.
My dream and mission with AlopeciaWorld.com is that we truly liberate ourselves to no longer fear how others will see us, but to step out of hiding and just be ourselves. I truly believe that if we were to do so our lives and lives of so many others living with alopecia would be much more comfortable. I am not saying that a person who has alopecia has to give up their wig, but I am promoting sharing the fact that we have alopecia with our friends, family and those around us so that alopecia becomes a household word. One of the members of AlopeciaWorld.com, said that she never met a person who regretted telling others about their alopecia -- only that they have not done it sooner. We have nothing to be ashamed of.
On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.
I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.
In April 2008, I married rj, a VERY special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site. You can see our wedding photos here!
Please feel free to "friend" rj and I: We would love to make your acquaintance. :-)
Welcome to our world… AlopeciaWorld.com!
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
- Your Website (Leave blank if you don't have one):
- http://www.alopeciaworld.com
Cheryl, Co-founder's Photos
Cheryl, Co-founder's Blog
Where I am today is where many of you will be tomorrow
Posted on February 4, 2012 at 12:45am 3 Comments 8 Favorites
Occasionally I receive an email from someone saying that they wished they had my strength to handle alopecia -- as if I woke up one day without my hair and was immediately ok with it. As most members here would attest, that is hardly ever the case. Where I am today is probably where many of you will be tomorrow.
I wrote the following in response to one such email and thought that other members that are new to alopecia or struggling may benefit from it too:
You would be…
Continue Don't Hide the Scars
Posted on January 18, 2012 at 2:18am 5 Comments 2 Favorites
There are people lives that I believe I have touched because I was not afraid to show my “scars”.
Below is a song that the words ring so true to me and I wanted to share the lyrics with you.
Don’t Hide the Scars
(Michael Puryear/Cheryl Rogers/Jeff Silvey)
From CD: Sisters–The Story Goes On -1995
Vocals: Beverly Crawford/Cindy Morgan
I wept alone
Suffered on my own
I didn’t think that anyone would understand
Until…
Bless you alopecia, bless you for being in my life?
Posted on November 23, 2011 at 8:00pm 15 Comments 6 Favorites
My husband has been working on material for a class on character that he is teaching at a prison. He found himself researching Aleksandr Solzhenitsyn, who spent 8 years in an unfathomable labor camp for writing a derogatory comment about their country's leader in a letter to a friend. Solzhenitsyn later went on to write the classic book - The Gulag Archipelago: 1918-1956 - and in 1970 received a Nobel Prize in Literature.
These two quotes from his book have been circling my mind over…
Continue Random thought on my journey with alopecia
Posted on November 19, 2011 at 11:48am 3 Comments 4 Favorites
Most of you know that I am from Canada and rj is American. So when we married we started a whirlwind of immigration processes. I had to file yet another form and get another set of biometric done. One of the steps was another photo session at the immigration office.
I filled out the form and clicked “bald” as my hair color. For a second I wondered if I should have clicked black, since it was an official government form and being AA my black hair does show if I don't shave daily. I…
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Comment Wall (1,424 comments)
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Hi Cheryl , i hope all is well and i am so thankful to you and your husband for starting this sight. i am loving the support on this site.!
Hello, Cheryl. I echo the thanks from others for this site, which I just found last week. I don't have much time to spend on it, but I'm hoping to find some wisdom, inspiration, and acceptance of myself the way I am. I have a question for you in the meantime: when and how did you decide to go bald (shave)? I've been thinking about this for quite a while, but many people discourage it. How did you make that decision? Pam
Wow! Ask me why am I just now seeing your comment?! I am still learning AW. I don't quite know my way around just yet. Thank you for reading my blog. I was feeling some kind of way and I just began to type how I was feeling at eh moment. I am so looking forward to your comments. Even if you do not write anything, I am already flattered that you took the time to read it in the first place. ;) Thanks...blessings
Finally!
Hi,
thank you for accepting my friend request and for creating Alopecia World. Because of this site I have learned that I am not alone with this disease.
It is so good to see that there are strong people like you who learned to accept and to live with this condition. I hope that one day, when I am a little bit older I can deal with Alopecia like you do.
I wish you all the best!
Greetings from Germany, Mia
merci beaucoup pour ce site trés complet dommage qu'il n y en ai pas autant en france j'aurais aimer savoir s'il y avait des personnes ayant le méme probléme que moi habitant à coté de chez moi... j'habite à besançon france pas loin de la suisse je suis encore en traitement mais rien ne s'arrange.
Yes I understand. When I was younger I couldn't really understand how to deal with these things. I tried to stay out of kids views so they couldn't see me. Or I would hide behind my parents, or just cover up my face with my hand so I couldn't see them. I hated it when I was with a friend and there was a kid who was staring or pointing. I just felt bad because I felt it was akward for the other person just standing there and listening to the kid say these things. I hate walking past the elementary school right next door because the kids out on the playground would call me ugly or ask there friends if I was a boy or a girl. I used to think that being an adult with alopecia was easier then being a kid with alopecia. Because in school you were worried about never having a boyfriend or being liked or being popular just because you have no hair. But I learned I was wrong.....dead wrong. I get comments from adults to. I have had at least 5 adults call me sir, or refer to me as a his or him.
It really doesn't matter what you are people can be mean, and I have learned to live with what I have and not worry about. It's only when I get those points or stares or comments that make me feel bad. But I don't worry about them because there is nothing I can do and if they want to be that way let them, its not like I have to be friends with them. I still feel sad and ask God why he gave this to me, but other then that I doin alright. Thanks for the support and kindness!!:)
-Mekenna
Thank you very much!! :)))
Hi Cheryl and RJ!
I want to thank you for creating Alopecia World. Thanks to you we are now running a very active and positive support group in Vancouver, Canada!
( On the technical side, how do you manage to create such complete web application? )
I wish you all the best and, continue to be amazing!
xoxo
Tanya
hey cheryl! thanks for seeing up such a great site :) is great support when im feeling a bit down in the dumps. doing good tho! the sun is shining, the sky is blue and i have an indian head massage on the way...cant complain :) how's everything your end? x x
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