Cheryl, Co-founder
  • Female
  • Detroit, MI
  • United States

Cheryl, Co-founder's Friends

  • AmieS
  • PaulaR
  • nessabrown52
  • Angela
  • Siella scott
  • StarShemya
  • CindiB
  • Cassin Ong
  • BrianH1972
  • Heisten
  • Rock D
  • Caroline
  • Joyful1
  • Alo-mom

Cheryl, Co-founder's Discussions

The 'Third Date Rule' by Debbi Fuller

Started this discussion. Last reply by Debbi Fuller Mar 12. 48 Replies

Being transformed by the renewal of your mind

Started this discussion. Last reply by Ivan Jun 20, 2013. 15 Replies

Official Blog

Loading… Loading feed

Our Video submission for National Bald Out Day 2009!

Cheryl, Co-founder's Videos

  • Add Videos
  • View All

Cheryl, Co-founder of Alopecia World

Profile Information

Relationship Status:
About Me:
I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.

It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).

Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).

On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.

I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.

In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.

Please feel free to "friend" rj and me: We would love to make your acquaintance.

Welcome to our world!

Cheryl Carvery-Jones
"It's Hair Loss Support At Its Best"

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):

Cheryl, Co-founder's Photos

  • Add Photos
  • View All

Cheryl, Co-founder's Blog

"I created my own beauty standards"

Posted on April 29, 2017 at 11:41pm 7 Comments

It amazes me how many people share their stories and triumphs about their alopecia.  I recently found another one that I think the community would benefit from.


By Lennox Bishop

...Fast forward to a few weeks after I…


CNN - Girl with alopecia wins competition with gorgeous jeweled head

Posted on April 27, 2017 at 3:13am 0 Comments

Source:  CNN/ By Alexandra Larkin

I agree with this mother that it is important to support your children with alopecia and help them understand that they are no different than anyone else with or without hair.

(CNN)Even without hair, 7…


"Meet the inspiring woman embracing her alopecia, even on her wedding day"

Posted on April 26, 2017 at 11:00pm 0 Comments

I recently came across an article about Kylie Bamberger, a member of Alopecia World. Below are some excerpts I would like to share:

“Kylie Bamberger looks every bit the blushing bride in her wedding photos.…


Use your difference

Posted on December 14, 2016 at 3:40am 3 Comments

One of the groups on is called “Use Your Difference!" and it reminds me that there are many ways you can use your alopecia to help others.


For example, right here on…


Comment Wall (1,460 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 12:20am on March 24, 2017, Tallgirl said…
Doing fine. Retired, but still doing some teaching to cover dental, car, and fun. About to throw a big Polish Gourmet Dinner for I will be cooking and making name tags all weekend. Our area support group us doing great: Mike Chapman from SF spoke at the last meeting. Still single and sassy. How about you?
At 7:34pm on March 18, 2017, Lisafc2000 said…
Thank you! :)
At 9:58pm on March 17, 2017, Rhonda said…
So glad to have found this site. After thyroid tests, vitamin level tests, 2 dermatologists, endocrinologist and ordering my own hormone level tests, no one defined what was going on with my hair for the past 4 years. First thinning, then noticeable change in texture, right side of head and around right ear and nape 50% less hair than left side. I have to do my own diagnosis given the lack of a knowledgeable Dr.i have given up and started never going out without a wig. I have quite a few now.but frustrated about where to turn next
At 12:38pm on March 17, 2017, LVL said…
Hi Cheryl, Thank you very much for your message. I appreciate it
At 9:07am on March 17, 2017, Keyla Cordero said…
Thank you so much for welcoming me to this community. I was just diagnosed with Alopecia Areata and Im getting to know so many things I didnt before. I pray this joirnet teaches me a lot of positive things and I cant get to help as lany people as I can
At 2:24am on March 17, 2017, Beloved said…
Thank You!
At 6:37pm on March 8, 2017, nessabrown52 said…
I joined bc i have a sweet baby girl age 11 going thru this. It hurts to see her going thru losing her hair.
At 6:38am on March 8, 2017, 123me said…

thank you. i appreciate that!

At 2:50pm on August 27, 2016, Claudia DePalma said…

I love this community so much! :) 

At 2:15pm on June 17, 2016, Heisten said…

Doing better day by day. This website has helped tremendously by being able to stay informed and finding out you are not alone.

Thank you so much for starting it.





Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World. It's hair loss support at its best!

© 2017   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service