edie1122
  • Female
  • Tamarac, FL
  • United States
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edie1122's Discussions

AA and Oral Contraceptives!

Started this discussion. Last reply by LJBMD Feb 4. 3 Replies

My Husband's Reaction to My Possible "Coming Out"

Started this discussion. Last reply by Cindie Jul 25, 2011. 14 Replies

Swine Flu Vaccine and AA?

Started this discussion. Last reply by Kristin Devies Jun 24, 2011. 13 Replies

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Getting The Most Out of Life Despite Myself..!

Latest Activity

edie1122 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you for the update and pics!  It's wonderful to see you have great results.  Sounds promising:)"
Mar 21
edie1122 liked NicoleT's discussion Update: 1 year on Tobacitinib!
Mar 21
edie1122 liked Buck's blog post Hair improvement
Mar 1
edie1122 replied to Proud Dad's discussion Helpless
"Thank you for sharing.  I also have a daughter (18) who has battled AA since age of 3.  As a parent, it's so hard to be so anxious for your child yet try to be positive infront of your child.  I also have AU since age 35.  I…"
Mar 1
edie1122 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sounds exciting and promising!  Thank you!"
Mar 1
edie1122 liked AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
Mar 1
LJBMD replied to edie1122's discussion AA and Oral Contraceptives!
"Which dermatologist in Miami did she go to?"
Feb 4
edie1122 replied to Carmenj0nes's discussion South Florida Alopecia Groups in the group Sunshine State Alopecians
"Hi There! I'm an adult with AU who has 2 children with AA and want to welcome you.  We are large/diverse group and understand the feeling of isolation she is experiencing.  My children have had me to watch but when I was in my…"
Jun 29, 2017

Profile Information

Relationship Status:
Married
About Me:
I'm a realtor in South Florida and have battled AA since 1991 and then developed AU in 2000. I'm married 28 years and have 3 great kids; 2 have AA. We do pretty well for ourselves. Life would be a lot better if I could feel comfortable with a wig at the beach/pool! I don't think I'm asking for too much. I'd love talk to local people with AA.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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Edie1122's Blog

What About Alopecia Babies?

Posted on June 11, 2016 at 6:44am 0 Comments

My first bout with AA was in my 20's with AU following at age of 35.  A great paternal aunt was said to have had sporadic AA in adulthood.  2 of my 3 Children have AA since childhood but it's been managed.  My 3rd child has never had AA.  What I can say is that my children with AA have my support, don't feel alone and know that their father and I always understand and normalize it as much as possible.  My understanding is that although there is a genetic link, most people with AA don't have…

Continue

Calling All Florida Alopecians!

Posted on October 26, 2008 at 9:30am 7 Comments

Good Morning,



I joined Alopecia World several months ago and am THRILLED to hear all the optimism from fellow Alopecians! I'd really love to talk/meet with more fellow Alopecians from Florida. Is anyone out there? I'd love to hear about choices in hair replacement, going swimming, dealing with the heat etc....



I'm also very excited about partnering with a local hair restoration co. specializing in medical hair loss. Although selling real estate is my focus, I'm looking… Continue

Comment Wall (9 comments)

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At 8:35am on May 20, 2011, Valeska Medel said…
Hi Eddi!! I woul love to go with Matthew! please let me know where and @ what time!!
At 8:06am on July 5, 2009, BaldGirlsDoLunch.org said…
Hi and welcome!

We're getting women with alopecia together on August 1 in Fort Lauderdale. The invitation is in our upcoming list at baldgirlsdolunch.org and yes! women come with wigs and without - however you feel most comfortable.

At our site you can keep up with our photos, testimonials and FAQ.

Or, just send an email to us directly to get on our Florida event list.

Thea,founder
baldgirlsdolunch.org
At 8:04pm on April 14, 2009, Lonnie said…
Hi ! Thanks for the comment ! I know , we live so close together. I would love to meet up sometimes...especially because sometimes out of the blue i get this rush of sadness and frustrastion whether it be a look someone gave or a comment ..and my husband doesnt really help because his way of thinking is a little off , lol' . I hope to hear from you soon.
At 9:57pm on December 21, 2008, christy murphy said…
Hi! Thanks for your comment. You look great. I am thinking/planning on moving to FL in the next couple of years. I want to move to the Stuart area. I just can't deal with MI weather anymore. I have to go back tomorrow, and I am dreading it. I just cannot wear a wig. I wear bandanas in the winter, but I prefer to go natural. Stay in touch!
Christy
At 8:08pm on July 10, 2008, Dawn said…
Hi and Welcome Edie!!
At 4:16pm on May 23, 2008, edie1122 said…
Thank you all for the welcome! I'm looking forward to hearing from all of you and sharing our thoughts and experiences.



Edie
At 3:14pm on May 23, 2008, Cheryl, Co-founder said…
Hi Edie, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. Cheryl, co-founder
At 2:56pm on May 23, 2008, LeslieAnn Butler said…
Hi Edie!
Hey, I am thinking you might like to read my new book, "If Your Hair Falls Out, Keep Dancing!" -- it's for women and children with AA. It has a lot of helpful info, and it's fun to read! To find out more or order, go to my page -- there's a link to my author web site. Or cut and paste: www.leslieannbutler.npauthors.com
I wish I was in South Florida right now -- it's raining here!
LeslieAnn
At 2:30pm on May 23, 2008, Roger said…
Welcome.

Roger.
 
 
 

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