Alopecia World
It's Hair Loss Support At Its Best
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Cheryl, Co-founder
- Female
- Detroit, MI
- United States
- Blog Posts (73)
- Discussions (358)
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- Groups (38)
- Photos (364)
- Photo Albums (17)
- Videos (48)
Cheryl, Co-founder's Groups
Cheryl, Co-founder's Discussions
Teen With Alopecia Had Her Mom Paint Her Bald Head For Her Senior Photo Shoot
Started this discussion. Last reply by Hair Transplant Dec 18, 2018. 24 Replies 17 Likes
5 Things to Say to Someone with Alopecia
Started this discussion. Last reply by aa123 Mar 19. 2 Replies 2 Likes
The 'Third Date Rule' by Debbi Fuller
Started this discussion. Last reply by ree221 Mar 22. 53 Replies 25 Likes
Official Blog
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Our Video submission for National Bald Out Day 2009!
Cheryl, Co-founder's Videos
Gifts Received (15)
Cheryl, Co-founder of Alopecia World
Profile Information
- Relationship Status:
- Married
- About Me:
- I have been living with alopecia since 1991. Throughout the years, I have had alopecia areata and alopecia totalis. My life is not over, so there is still time for alopecia universalis. ;-) I have had many ups and down and find that I always come out on the other side standing tall.
It has always been a given for me to reach out to others with alopecia. I just did it naturally. I became involved in our local support group in Montreal, participated in the annual conferences of the National Alopecia Areata Foundation (NAAF), and also served as president of the Quebec Alopecia Areata Foundation (QAAF).
Someone once asked me what I planned to do after I moved to the USA. My initial thought was to attend or start a support group in Michigan, but I eventually settled on the wonderful idea of creating Alopecia World with my husband, rj jones, who was my fiancé at the time (2008).
On a personal note, I like to blend femininity and strength. A woman can be strong and physically capable as well as soft and feminine. For a long time, I thought I "had" to be one or the other, and I had a hard time finding my place. Blending both is very gratifying, indeed.
I also like to keep active. It does not have to be extreme. It can be a bike ride, walking, painting a room in the house, or cleaning the garage.
In April 2008, I married rj, a very special man that supports me in my alopecia and is the catalyst and the great mind behind the research and design of this site.
Please feel free to "friend" rj and me: We would love to make your acquaintance.
Welcome to our world… AlopeciaWorld.com!
Cheryl Carvery-Jones
co-founder
AlopeciaWorld.com
"It's Hair Loss Support At Its Best"
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- Alopecia areata
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Cheryl, Co-founder's Photos
Cheryl, Co-founder's Blog
"I didn’t know it was OK not to completely fit in."
Posted on September 19, 2019 at 11:00pm 1 Comment 1 Like
I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.
"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…
ContinueStudent with Alopecia takes the crown at local pageant
Posted on February 27, 2018 at 12:30pm 2 Comments 1 Like
""Bald is beautiful" isn't just a motto for one Gilbert Middle School student— it's a lifestyle."
I recently came across this article on wxlt.com that I thought I would share with the community.
"Gracie Ann Roland was diagnosed with alopecia, a condition that causes hair loss from some or all areas of the body, a year ago."
"Rather than letting her…
Continue"The Male Model Who Lost His Hair" - QC.com
Posted on September 28, 2017 at 11:50pm 0 Comments 0 Likes
I recently came across an article on QC.com and pulled a few excepts:
"Justin Hopwood's perfect looks helped him land a perfect career, traveling the world to model for Ralph Lauren. Then he was diagnosed with alopecia. What do you do when you lose your money-maker? Especially when that money-maker is a perfect head of hair? He's trying to figure that out."…
Continue"I created my own beauty standards"
Posted on April 29, 2017 at 11:41pm 7 Comments 5 Likes
It amazes me how many people share their stories and triumphs about their alopecia. I recently found another one that I think the community would benefit from.
By Lennox Bishop
Continue...Fast forward to a few weeks after I decided to shave off what remained of my hair—surrounded by friends and with many…
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Awesome Blog! Glad I found it and you are beautiful and encouraging.
I've been seeing a a dermatologist who is a specialist on alopecia at University of Colorado Health. He has had me on Methotrexate for 2.5 years and I have 75% of my scalp hair, eyebrows and eyelashes back. This drug has made a huge difference for me. Though there are side affects, I have felt that they are worth the risk.
Thanks, Cheryl, for uploading the animation, 'It's only Hair.' It is great to see what an active and supportive website you have developed.
Best wishes, Emma
Thank you Cheryl,
I would like to let the members know of something I have found useful in only the last several months. I have alopecia ophiasis (and have had occasionally nails come off) and was told from the beginning that it was unlikely to show improvement. For some 8 or so years, I went to various dermatologists in NYC hospitals. I had monthly steriod injections. Also for a short time, squaric acid to use at home. Finally after having been with one dematologist (having injections) she suggested Rogaine 5% and Fluocinonide 0.05%. I don't know whether to be pleased or angry that this was not mentioned years ago. Why? I have some hair regrowth in places that were completely bare. Also around the hairline I see some regrowth (mixture of dark and white, neither of which I am, but never mind). I can use the stronger Rogaine having had a hysterectomy some years ago. Being very fair I was not a candidate for laser treatment. Who knows if I had been given this much earlier whether the hair loss would have been far less. She has moved away so I cannot ask her but wanted to give this information to others in case it may be helpful to them. I use one in the morning and the other at night. It does make the hair look a bit dull - but that is a minimal problem. It is also cheaper than monthly injections. It would be wonderful if this could help others.
Paula
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