Meedo
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  • Oxford
  • United Kingdom
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  • Fonsi
  • Ricky_1008
  • Nat
  • MindOverMatter
  • Frida Rupert

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Latest Activity

Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi guys. What’s the difference between 300 mg prednisone once a month over three consecutive days and once a month 300 mg all at once in steroid pulsing ?"
Friday
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good luck, I think you are better off researching this . Let us know how you get on please "
Sep 13
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have tried 60 mg everyday for a week going down by 5 mg until I stop and it worked great , I was on that for 12 weeks then when I stopped I had a bit of hair loss on lashes and mustache and bit on the head hair but not much and after 2 months the…"
Sep 13
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat. Sorry to hear of your loss . Are you doing prednisone 300 mg once a months for three months then ?"
Sep 13
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Singh . I would like to place a big order but worries about customs . How many did you order with them ?"
Jul 2
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi marvpb. Welcome to the group . I’m glad you came across this group as it has helped all of us . It’s good that you have signs of regrowth at this point and with xelijanz I’m sure it will start all coming in . It’s almost…"
Jun 29
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello guy. Could someone please answer this ! I’m currently taking beacon 5 mg x 4 pills a day I’m thinking to switch to the 11 mg xr version and I wonder if it’s safe to do the 11 xr twice day , or perhaps someone already does it…"
Jun 3
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi joja101. Sorry to hear you haven’t had much luck with xelijanz . I believe you are seen by dr bordone ? What’s her view on you stopping the medication? Are you still taking 11mg extended release twice a day ?when you say you had no…"
May 21
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Has anyone ever taken xelijanz 3 times a day as opposed to twice per day? I’m thinking to take it three times a day as I heard the pills life is about 6 hours. Any thoughts would be much appreciated "
May 17
Fonsi and Meedo are now friends
Apr 5
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi fondue. Glad to hear of your progress . I have sent you a friend request as I would like to communicate with you .. thanks "
Apr 5
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi maree. What dose prednisone did dr king suggest and for how long you took it for? What’s your dose on tofa and how long before you started prednisone did you stay on that dose without response ? Thanks"
Feb 20
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I see . Sorry to hear you haven’t had the success you desired from it! Hope one day there’s a more safer and effective treatment for us . Good luck "
Jan 14
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi shad. Sorry to interrupt the conversation. If you don’t mind me asking, why are you quitting xelijanz ?"
Jan 14
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin . Happy new year ! How’s your progress ? Did you add cortisone to your xelijanz or you still use xelijanz and baracitinib ?"
Jan 1
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Merry Christmas to you Ricky and congratulations for your great progress. May 2020 bring you and your family happiness and fulfilment !"
Dec 25, 2019

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Relationship Status:
In a Relationship
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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