I don't know if squaric acid and anthralin are new. I Googled both and found the recommended use is for those suffering from AA. It seems the anthralin is a little easier to find in Utah. It is time consuming but not as invasive or painful as…
The anthralin was very strong and irritated Chloes head. She looked like her scalp had been burned. The skin itched then peeled. She had to work up a tolerance to it. I can't imagine how it would affect you if even rogaine was irritating. I…
Chloe is seeing a pediatric dermatologist at Primary Childrens. We were referred by: Dr. Ivan Flint - Dermatologist - 1250 E 3900 S
He is the one that first diagnosed Chloe with Alopecia.
The pediatric dermo. also told us to use rogaine. I was…
Oh sorry, I only had your first name when I emailed you and just didn't make the connection. I'm glad you found a doctor that you are comfortable with. Best of luck!
What alopecia doctor are you going to go see? We have only been to one of the better pediatric dermatologists at Primary Children's, but are always looking for more advice.
Lisa (Chloe's mom)
Hi Cindy,
Welcome to Alopecia World! We live in the Sandy, it's a small world. My daughter Chloe was diagnosed 2 years ago with AA. AA is a struggle everyday but is she is very strong and proud of who she is. I wish you the best and love the…
I also have a preschooler and have been surprised how accepting they are of others that are different. They ask about the difference but are satisfied with a "that's the way I am" answer. I hope it will help these children as they…
My daughter was 8 when diagnosed with AA. She's now 10. Its been almost two years and she has been lucky in that she still has most of her hair and her bald spots are near her ears. We tried everything from cortizone shots which we quit after…
It is hard to know what to do. Every medical option I have ever researched leaves you wondering if it is really worth it. Even though we saw hair growth when using the squaric acid, I'm not 100% positive it wasn't just the growth/loss…
I have seen video of grown men and women just crying in pain as they get these shots. I was truthful with my 8 year old and told her the shots would be painful, but in the end it was her choice. Two years later, no shots. (we have tried squaric…
I am a mother of an 8 year old girl that was just diagnosed with AA. I am looking for any info to help her through this tough time. I would like introduce her to other children that are dealing with the same situation.
My daughter was 8 when diagnosed with AA. She's now 10. Its been almost two years and she has been lucky in that she still has most of her hair and her bald spots are near her ears. We tried everything from cortizone shots which we quit after three months due to the pain to natural pathic medicine to ointments. Nothing worked for long. We've been doing nothing for 8 months. Some spots are slowly growing in, other aren't. It's a very strange condition. She isn't worried about going bald at all. Your daughter is beautiful by the way. Good Luck to you.
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Thanks for sharing your story with me. Chloe's story sounds very similar to Max's. We cut his hair down last night (the latest picture) -- he didn't want us to shave it, so we didn't. He did want us to leave his front curl so he could still look like Superman. :) I know what you mean about things not looking too promising. He's been on the steroid for 2 weeks now, and I know things aren't going to happen overnight (and I keep asking "Why?!? He lost his hair practically overnight!"), but I can't help but feel discouraged when he keeps losing hair. He goes back to the pediatric dermatologist at the beginning of June, so I guess we just wait and see. One thing I've noticed -- and you probably have, too -- is that our kids are often so much stronger than we give them credit for. Max is taking this all in stride, as I'm sure Chloe is, too. Good luck to you guys. I'll be interested to see how your appointment with the ped. derm. goes.
YAY another Utahn. Welcome to Alopecia World. I've not been on AlopciaWorld in a while so thanks for the friend request. You Chloe is a darling girl. My Jessica is now almost 10. She was diagnosed about 4 years ago and we have run the gambit. She went from a small spot to only having a patch or two left. she lost her eyebrows but kept her lashes. About 6 months ago it started coming back. She is still missing about 35% of her hair but it is mostly in back and the rest is starting to cover it over. She is amazing. She is even proud of her baldspots. My father was bald and always had a sign in his office that said, "God made few perfect heads and the rest he covered with hair." She thinks that is so funny. Hang in there. I know it's scary. You never know what it's going to do or whether or not the hair is coming or going. I think she's going to have to deal with this her whole life so I keep reminding her how very blessed she is to be HEALTHY!! Good luck and let me know if there is anything I can do to help. I would really like to get a bunch of kids together in Utah for an ALOPECIAPALOOSA but have yet to find the time. So maybe together we can all work something out.
Thanks for the friend request Lisa! I haven't been on here in a few months and it was a nice boost to get me on. This is a great place to get support and to not feel like you are the only one going thru this with our kids. It is so hard not to know what to expect and what will come next. My daughter Emma (9) now has full hair regrowth with a couple of small balding spots after having lost it all in a 5-6 month timeframe. It has been this way for about 9 months now, but as I've learned you never know what tomorrow may bring. How is your daughter handling it? Emma would be willing to chat with her I'm sure if she wants to connect with someone.
Hi Lisa ~ How are you and how is Chloe doing? When was she diagnosed? My son, Max, (who will be 5 in June) was diagnosed with AA in the beginning of March (two small quarter-sized patches on his head that was easily covered with his big huge mop of curly hair). Today was estimate he has about 75-80 % hair loss....Just in a month's time. He's currently using at topical steroid (triamcinolone acetonide), but haven't seen any changes yet. How about you? What sort of treatment, if any, are you seeking?
Your family is beautiful and your daughter is just adorable. I love her freckles!
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