"Tami. You know. That is one issue that I've never seen addressed on here. My husband and i disagree a lot on different issues related to approaching different situations. We manage to get thru them but it can create quite a bit of conflict. No…"
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Tami & Taryn
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Tami & Taryn's Groups
Tami & Taryn's Discussions
Hair growth
Started this discussion. Last reply by Tami & Taryn Oct 12, 2010. 2 Replies 0 Favorites
Hair growth
Started this discussion. Last reply by Karen Smith Sep 30, 2010. 1 Reply 0 Favorites
Creams over Confidence?
Started this discussion. Last reply by Tami & Taryn May 6, 2010. 4 Replies 0 Favorites
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Latest Activity
cindy Babs replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss
Tami & Taryn replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss""I think introducing him to a world outside his home allowed him to grow into his own skin, so to speak, and gain confidence and self-assuredness" I agree. Your JP sounds like a great little guy. In my heart I know this is the truth. Thank…"
Wendy Willeroy replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss"My son, John Parker, lost all his hair at about a year and a half. We enrolled him in preschool at age two, and changed schools at age four (so a whole new group of kids at that point, too). I can honestly say we have not had any negative…"
cindy Babs replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss"I agree with all the comments here and want to add one thing.I think we mothers worry about and are more conscience of the condition than our kids. We have to realize that they do a lot better than we give them credit. That's my experience with…"
Tami & Taryn replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss"That sounds wonderful Shirley. I did plan on sending out letters or emails informing parents of Taryn's condition. I didn't want to make a big deal as Taryn, right now, doesn't realize she's different, and I fear making a big…"
shirley carole douglas replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss"My granddaughter lost her hair at 5 years old, what my daughter did she went into the school armed with Naaf Organization Videos- that was for the teachers they also need to learn about Alopecia and spoke to the children in her class.
She told them…"
Sara and William replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss"LOL. Thanks for the compliment (blush)!!
--Sara"
Sara and William replied to Tami & Taryn's discussion Its time.... in the group Parents of Children with Hairloss"One thing that I think we all consider with all our children (meaning the non-alopecia kids as well as the alopecia kids) is which preschool they go to and it's proximity to our house. I think it might be more important in our alopecia…"
Profile Information
- Relationship Status:
- Married
- About Me:
- My daughter Taryn was 20 months old when diagnosed with Alopecia Totalis.
- Do you have alopecia?
- I do not have alopecia
- Are you age 18 or older?
- Yes
Tami & Taryn's Photos
Comment Wall (5 comments)
- At 7:34pm on May 2, 2009,
Angie, Gracie's mom said… - Hi Tami, my daughter is 16 mo old, and was dx w/ AA, starting at 13 mo. I am concerned it will keep progressing, it still is. She does have lashes and brows, though those could be next? Anyways, I have had a difficult time finding anyone who was dx this young. It has been very sad and frustrating to me. Did your daughter start out w/ AA and develop AT? Angie
- At 1:02pm on October 18, 2008,
grizmom said… - Hi Tami, my daughter was just diagnosed this summer with AA but has recently lost all of her hair (95%), so I am guessing she is really AT. I share the same concerns as you for the future and how to deal with it. My daughter is 3 and could care less about her situation. She has a great personality and great attitude. I am concerned about what will happen when she goes to school or as she gets older. At this point we talk about her not having hair as if it is no big deal. This seems to work so far, and the kids she goes to school with haven't said anything. There are some books on the CAP site for kids and adults that I am interested in checking out. I wish I had more to tell you, but I am also very new to this. Take care, Meg
- At 11:27am on October 11, 2008,
Cheryl, Co-founder said… - Hi Tami & Taryn, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us and we look forward to your input. Cheryl, co-founder
- At 5:43pm on October 10, 2008,
LeslieAnn Butler said…
- Hi Tami and Taryn,
I just wanted to say hello and see how you are doing today.
I've had alopecia universalis for many years...
LeslieAnn
- At 7:14am on October 10, 2008,
MARIA (mom of Savanna) said… - Hello Tami, My name is Maria and I have a 6.5 yr old daughter name Savanna and she has AU...She was diagnoised when she was just 3yrs old, she lost all her hair pretty rapidly and the lost all her eyelashes and eyebrows following the hair loss. She is a amazing child in my eyes, she doesnt let being bald stop her from doing anything. She has alot of friends and family who love her just the way she is. She usually wears ball caps on her head, but she is now wearing a wig from the kids club and has wore for about a month now. She loves having her wig, but I am very diappointed in the quality of it. The hair in the front of her wig has fallen out and alot of the hair falls out when we brush it.
They are making her a new one and it shouldn't be to much longer for it to be ready, I am praying it turns out better than this one. If you wold like any info let me know...would love to hear from you!! Maria
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