Tina (Jillians mom)
  • Female
  • Eureka, MO
  • United States
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Tina (Jillians mom)'s Discussions

Post-surgical alopecia?

Started this discussion. Last reply by Tina (Jillians mom) Aug 19, 2010. 10 Replies

8 year old daughter to have tonsils & adenoids removed next week. Just started to regrow hair all over head in May. Anyone with recurrent patches post surgery? This was just brought to my…Continue

Swimming with AA

Started this discussion. Last reply by Tina (Jillians mom) May 4, 2010. 3 Replies

Looking for a swim cap or hat with hair attatched for swimming. Daughter does not like the regular swim caps (she has never seen anyone wear one other than the Olympics on TV).

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Tina (Jillians mom)'s Page

Latest Activity

Andrea & Ethan Talamantez and Tina (Jillians mom) are now friends
Nov 28, 2011
Carolin commented on Tina (Jillians mom)'s photo
Oct 10, 2011
Tina (Jillians mom) joined Irene's group
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Alopecia Treatments

People who have tried or are doing Immunotherepy Treatment. All types of treatments are fine too.
Aug 13, 2011
Tina (Jillians mom) and Rhonda Kelley are now friends
Aug 13, 2011
michelle webb left a comment for Tina (Jillians mom)
"Hello tina ,thanks for adding us...ღ"
Jul 11, 2011
Tina (Jillians mom) left a comment for Gabriela Gonzalez
"Hello. Jillians pediatric dermatologist allows us to purchase the DCP from a local compounding pharmacyvia prescription & I apply it myself at home...cautiously. Mabye this will be possible for you as well."
Jun 12, 2011
Gabriela Gonzalez left a comment for Tina (Jillians mom)
"Hi tina, question about DCP. My doctor said I have to do it weekly and he says I cannot be in the sun or shower for 48 hours after using it? Also I have to go to his office every week because only he can apply it? I was just wondering if that is how…"
Jun 9, 2011
Tina (Jillians mom) and EB Dj are now friends
Jun 3, 2011
Tina (Jillians mom) replied to rj, Co-founder's discussion NAAF's response to mice study (press release)
"I too am watching this info. coming from Columbia Univ. Abatacept clinical trial starting soon. If you learn any info. please post! Thanks."
Jun 3, 2011
Tina (Jillians mom) commented on Tina (Jillians mom)'s photo
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Regrowth july 2010

"Jillian has had successful regrowth with DCP treatment."
Jun 3, 2011
Tina (Jillians mom) left a comment for Gabriela Gonzalez
"Hello Gabriella. What a beautiful name! Jillian is still using DCP once a week, low dose, minimal sparse dabbing to apply. We have found that her cycle is somewhat like a bird molting its feathers ( only in the opposite order). During darker colder…"
Jun 3, 2011
Gabriela Gonzalez left a comment for Tina (Jillians mom)
"Hi Tina ! I just started doing DCP here in Switzerland and I was just wondering how it went for Jillian under that treatment?"
May 31, 2011
Samantha left a comment for Tina (Jillians mom)
"Hi thanks for the message. What are you doing this summer? Tomorrow I'm going to a KISS 108 concert , the next day I'm going to my bro's collage graduation on Sunday, I'm so exited!!!!"
May 20, 2011
Tracey Holt commented on Tina (Jillians mom)'s photo
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Regrowth july 2010

"was your regrowth a natural remission or did you have treatment? x"
May 11, 2011
Tina (Jillians mom) and Sydnie Hyde and Mom Zelda are now friends
Apr 16, 2011

Profile Information

Relationship Status:
Married
About Me:
daughter diagnosed in 2009 with AA.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (10 comments)

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At 5:03pm on July 11, 2011, michelle webb said…
Hello tina ,thanks for adding us...ღ
At 1:59pm on June 9, 2011, Gabriela Gonzalez said…
Hi tina, question about DCP. My doctor said I have to do it weekly and he says I cannot be in the sun or shower for 48 hours after using it? Also I have to go to his office every week because only he can apply it? I was just wondering if that is how it works for you? It is really frustrating because I am moving to a small town on the outskirts of London and that means I have to take a 1 hour train every week there and back to go to a 10 minute appointment! Let me know, hope all is well with you and jillian!
At 9:27am on May 31, 2011, Gabriela Gonzalez said…
Hi Tina ! I just started doing DCP here in Switzerland and I was just wondering how it went for Jillian under that treatment?
At 7:14pm on May 20, 2011, Samantha said…
Hi thanks for the message. What are you doing this summer? Tomorrow I'm going to a KISS 108 concert , the next day I'm going to my bro's collage graduation on Sunday, I'm so exited!!!!
At 7:21pm on March 6, 2011, Samantha said…
Hi, How are you? I'm fine ! I'm doing a skating shown called Ice Chips , my pro is the Bewitched theme song! but we have to use fake brooms and wear a pom pommy hat.
The 2 boys are lucky!! >:(
By Peace and Harmony,
Sam.K.
At 8:23am on May 19, 2010, Cindy and Samantha said…
HiTina,, I am sure what you are seeing is positive. Just keep thinking positive thoughts and I wish Jillian the same success Sam has had. As far as CAP, they offer alot of different supports such as pen pals, online parent chats, support groups forming across the country and there is one in MO if you ask Betsy for the info, Alopeciapalooza and more. . Good luck.
At 8:38am on May 15, 2010, Samantha said…
Hi , My name is Samantha and I am 8 to . What a insidious . I also have American girl dolls ,I have Rebeca and Emily , you now one of the friends . I have a puppy a mutt . Her name is Harmony because I love music . My mom told me that you do something kind of the same as me . I do squarer aside , and my hair is growing bake . Bye .
At 8:19pm on May 14, 2010, Cindy and Samantha said…
Thanks...We have an AG store here in Mass nears us. No we won't be going to NAAF. Do you know about the Childrens Alopecia Project? www.childrensalopeciaproject.org. They will have Alopeciapalooza in Aug and it is all geared towards the kids. You should register with them, It is free. CAP also has support groups lead by parents through out the country. I think there maybe one in your area. I run a group her in Mass.
Yes, be patient with the treatment. How does the DCP work? Do you apply it on the whole head or half a head at a time. We apply it in small sections. We worked our way up. I say you need to give it at least 6 months . It took Sam only 12 weeks to see the start of regrowth once we went to weekly treatments. Good luck!
At 7:04pm on May 12, 2010, Cindy and Samantha said…
Hi Tina, My name is Cindy and you sent my daugther Samantha a request to write to your daughter. I know Sam will love that. I can have her post a message on your wall once she has some down time. She also has her own email address if Lillian would like it. How is your daughter doing? I see your using DCP. Sam has been using the sister treatment SADBE and if you be patient you may see results. Sam has regrown most of her hair head to toe in the 2 years she has been using it. We are finally seeing some eyelashes and she has a good amount of eyebrows now as well. Cindy
At 8:08pm on May 6, 2010, LeslieAnn Butler said…
Hello and welcome, Tina!
How are you and your adorable daughter doing today?
LeslieAnn

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