NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Ricky_1008 yesterday. 314 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by nb3689 Sep 6. 91 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

Ricky_1008 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Singh what dosage are you taking?"
yesterday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"And what were the timings and dosage? I’d like to start it as it’s so frustrating waiting "
Thursday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Hi Nat , when you say tofa 15mg you mean beacon right ??"
Thursday
Football fan replied to NicoleT's discussion Xeljanz from India
"That was really fast.They respond to my email immediately went to a major bank and wired the money 2 days later and it took 2 weeks before they said they received it.Then another 2 weeks before I got my package.Last time I had to order 20 boxes this…"
Tuesday
Nat replied to NicoleT's discussion Xeljanz from India
"Email shamiul@beaconmedicare.com.bd"
Monday
sultan h replied to NicoleT's discussion Xeljanz from India
"Hi Nat  can you tell us how can we order from Beacon?  Please thanks "
Monday
sultan h replied to NicoleT's discussion Xeljanz from India
"Hi Nat  Can you tell us how can we order Tofacinix ftom Beacon please  thank you "
Monday
Nat replied to NicoleT's discussion Xeljanz from India
"My timeline. AU for 7months. January 1st,  2019 - started Tofa 10mg/ day. January 23rd, 2019 - started Prednisone 60mg/day, increased Tofa to 15mg/day. End of February - vellus hair appeared, reduced Prednisone to 50mg/day. March 2019 -…"
Monday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Well I want to speed up the process too because I can’t see myself going anywhere. It’s like I’m stuck . But did you have vellus hair at first or?  And how did you balance the dosage? Are u still on tofa? And are you off…"
Monday
Nat replied to NicoleT's discussion Xeljanz from India
"Hi Ricky, Prednisone speeds up the process and I had some hair in 4 weeks. If you are not in any rush - it's safer to wait on Prednisone. I took it because I wanted to get rid of the wig for the summer (to enjoy swimming, gym,…"
Monday
Nat replied to NicoleT's discussion Xeljanz from India
"Rajeev, I had a prescription from my rheumatologist. I don't know where to get it without a prescription."
Monday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Also are you still on tofa and did your hair fall off after you reduced the steroids? I know I sound dumb asking you so many questions but trust me I don’t want to live like this anymore. I will go through any heights to get my hair back "
Monday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"I got mine within 10days via DHL. I was tracking it . I got the direct contact of the supplier through what’s app "
Monday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Hey Nat, I’ve been on tofacinix only for a week now, tomorrow I’m going to my dermatologist for steroids injections on my eye brows. However I’m going to start prednisone just the way you did! Did you grow vellus hair first or? And…"
Monday
Rajeev Gupta replied to NicoleT's discussion Xeljanz from India
"Hello Nat, thanks for your reply. Where did you get prednisone from? Can we get it without prescription?"
Oct 13
Nat replied to NicoleT's discussion Xeljanz from India
"Hi Ricky, I started at 60mg/day for 3 weeks, then 50mg/day for 3 weeks, then 40mg/day for 2 weeks and then I got off by myself reducing by 10mg/week. The main side effect I had - a moon face. Also, acne and sleeping problems."
Oct 13

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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