Anisha
  • Female
  • Arlington, VA
  • United States
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Anisha's Discussions

Side effects from Tofacinix from India

Started Aug 16, 2020 0 Replies

Has anyone suffered any bizarre side effects from Tofacinix (generic Xeljanz) from India, such as restless legs?Continue

Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage

Started this discussion. Last reply by Sam Jun 29, 2020. 59 Replies

Bad news for those of us using Xeljanz with health insurance. In August of this year, health insurance companies - Blue Cross Blue Shield Care First, specifically - reclassified Alopecia as a…Continue

Intact root securer

Started Dec 30, 2019 0 Replies

I wanted to recommend Intact root securer by Follea. (Follea is the company that makes my prosthesis). It really does work to help preserve what little hair you may have.Continue

Xeljanz coverage denied

Started this discussion. Last reply by Nor75 Jan 2, 2020. 5 Replies

Are there any Xeljanz users whose insurance has suddenly denied coverage of their meds? Some insurance providers, including Blue Cross Blue Shield Care First has changed their rules so they no longer…Continue

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Latest Activity

Anisha replied to NicoleT's discussion Xeljanz from India
"I take 4 pills a day which equal about 20 mg."
Dec 24, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"No, but someone else on this thread suggested this as an alternative a while ago."
Dec 5, 2020
Anisha posted a discussion

Side effects from Tofacinix from India

Has anyone suffered any bizarre side effects from Tofacinix (generic Xeljanz) from India, such as restless legs?See More
Aug 17, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"I received mine last week. It was shipped on 7/26, so it got here pretty quick. I'm in the US."
Aug 11, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"Me too! Mouree just responded and provided me with tracking information via EMS. So don't despair."
Jul 26, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"He finally responded to me after a couple months and I was able to place my order. They're closed on Fridays and Saturdays."
Jul 18, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"Not at all. Quite unusual. I would be shocked if  the meds were responsible."
Jul 10, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"No, that's surprising. Perhaps there are special rules in France. Maybe if you offered to pay more.."
Jul 7, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"Hit and miss. Sometimes they acknowledge it, sometimes they dont."
Jul 2, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"July 1st"
Jul 2, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"I think it might be a different site. Try http://www.beaconmedicare.com.bd/. I don't see the notice. I just spoke with Mouree yesterday and he didn't mention it."
Jul 1, 2020
Sam replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Hi Susan,  I don't frequent this site too much, but I was interested in your above post.  How well did the Cream work?  And how did it work?  Xaljanz did not work for us at all.  Very frustrating!   Just…"
Jun 29, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"Yes. For best results, 20 mg per day is the recommended dosage. It took me a couple months for noticeable results."
Jun 28, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"What is the name of the pharmacy you use?"
Jun 25, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"Ive been on it for 4 years and it hasn't stopped working yet."
Jun 23, 2020
Anisha replied to NicoleT's discussion Xeljanz from India
"Has anyone heard from Beacon lately? They haven't responded to me in weeks."
Jun 17, 2020

Profile Information

About Me:
I've had alopecia for 4 years.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Anisha's Blog

Xeljanz for alopecia

Posted on May 12, 2015 at 9:00pm 0 Comments

Some doctors are now prescribing Xeljanz (Tofacitinib) for Alopecia, with great results. Problem is it's cost. It can run upwards of $2k per month or $24k per year, and most insurance plans won't cover it because its not yet a recognized treatment for Alopecia. But the more people who try it and get results, the more likely the medical community will recognize it as a legitimate treatment and insurance companies may start covering the cost. I urge everyone to discuss with their…

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Comment Wall (5 comments)

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At 2:37pm on August 26, 2015, Michael Leigh said…
Hi Anisha. I am sorry you are not getting the response you expected from Follea. K the last time I knew, Mr. Cristopher Shippam was in charge. Best regards, Michael.
At 5:39pm on January 23, 2014, Vicki said…
Thanks for the info Anisha. How long would you say they last, a year or two or longer?
At 6:35pm on January 22, 2014, Vicki said…
Hi Anisha,
Do you mind me asking approximately how much the silicone hair prosthesis is?
At 9:41pm on November 6, 2012, MariaR. said…
Thank you so much for the information. I really appreciate it.
At 7:26pm on July 30, 2011, LeslieAnn Butler said…
Hello and welcome, Anisha!
How are you today?
Leslie Ann
 
 
 

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