Anisha
  • Female
  • Arlington, VA
  • United States
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Anisha's Discussions

Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage

Started this discussion. Last reply by SabineTawni Feb 2. 58 Replies

Bad news for those of us using Xeljanz with health insurance. In August of this year, health insurance companies - Blue Cross Blue Shield Care First, specifically - reclassified Alopecia as a…Continue

Intact root securer

Started Dec 30, 2019 0 Replies

I wanted to recommend Intact root securer by Follea. (Follea is the company that makes my prosthesis). It really does work to help preserve what little hair you may have.Continue

Xeljanz coverage denied

Started this discussion. Last reply by Nor75 Jan 2. 5 Replies

Are there any Xeljanz users whose insurance has suddenly denied coverage of their meds? Some insurance providers, including Blue Cross Blue Shield Care First has changed their rules so they no longer…Continue

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Latest Activity

Anisha replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"That is so true. It took me nearly 6 months on 20 mg. a day before I started to see results. Take it for at least 6 months before giving up on it"
Feb 9
Anisha replied to mtran2000's discussion Quitting Xeljanz due to ineffectiveness
"Oral Xeljanz has been a life saver.. What has worked for you?"
Feb 9
SabineTawni replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Please keep us posted concerning what your attorney says."
Feb 2
bibby replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Absolutely correct. I believe alopecia is equal to the cosmetic damage caused by scars etc and people need to find a legal precedent to hold them to account to cover prescriptions. Outrageous behaviour considering the premiums people are…"
Jan 28
SabineTawni replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"First of all, alopecia areata and psoriasis are not "cosmetic".  They are real autoimmune diseases that have real health consequences (both physical and mental).  Secondly, insurance companies have always covered…"
Jan 24
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"So it seems major insurance companies are run by men for men. No surprise, just like the rest of the world, women are second class citizens. Yes, I know men have alopecia too but I believe a bald man is nothing near to the emotional stress of a…"
Jan 24
TurboK replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I work for one of the major health insurance companies, and with the installation of Obamacare, my Alopecia and Psoriasis both became considered to be cosmetic. However, they still cover Viagra, which to me is more a cosmetic problem than Alopecia…"
Jan 23
Apple replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I have an am seeking legal advice form an attorney in my area about starting legal actions against advantek blue anthem blue cross."
Jan 22
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Oy, so far no luck. But I'll keep trying."
Jan 21
Apple replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"All companies put money first over actually helping people. It’s not cosmetic it’s a sx of an autoimmune disorder it’s medical, it is BS. I’m in the process of hiring a lawyer to dispute this no coverage for medical necessity…"
Jan 14
Austen replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Someone has to alert American NAAF. The insurance plan trouble (ie labeling AA as "cosmetic") can motive pharma enterprise to quit similarly improvement of AA medication. Also the insurers and public health carriers will start denying cowl…"
Jan 14
Apple replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"Mine started with gluten allergy, even if I do not. Inure gluten now the damage is done it does not stop."
Jan 13
Apple replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"YES CALIFORNIA INSURANC BLUE ANTHEM DOES NOT COVER ANY OF MY APPOINTMENT, TX, LABS OR OTHERWISE. THEY HOPE WE JUST DIE, THEY REFUSE TO COVER MEDICAL NECESSARY MEDICATION.THEE IS A LAW CALLED GALLEGOS LAW- THAT SAYS MEDICATION SHOULD BE AFFORDABLE IM…"
Jan 11
Anisha replied to NicoleT's discussion Xeljanz from India
"Yes. It took them 2 weeks to get back to me. They're closed Friday and Saturday."
Jan 11
rob replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I have access to pure ruxolitinib phosphate and tofacitinib citrate powder. Purity verified. I made a combo topical of 2% rux and 2% tofa for myself. I am considering making 10mg capsules of each compound and helping out some people if there is…"
Jan 5
Susan S replied to Anisha's discussion Attention Xeljanz Users!! New Alopecia classification leading to denial of coverage
"I will. Hopefully it will work for me too."
Jan 4

Profile Information

About Me:
I've had alopecia for 4 years.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Anisha's Blog

Xeljanz for alopecia

Posted on May 12, 2015 at 9:00pm 0 Comments

Some doctors are now prescribing Xeljanz (Tofacitinib) for Alopecia, with great results. Problem is it's cost. It can run upwards of $2k per month or $24k per year, and most insurance plans won't cover it because its not yet a recognized treatment for Alopecia. But the more people who try it and get results, the more likely the medical community will recognize it as a legitimate treatment and insurance companies may start covering the cost. I urge everyone to discuss with their…

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Comment Wall (5 comments)

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At 2:37pm on August 26, 2015, Michael Leigh said…
Hi Anisha. I am sorry you are not getting the response you expected from Follea. K the last time I knew, Mr. Cristopher Shippam was in charge. Best regards, Michael.
At 5:39pm on January 23, 2014, Vicki said…
Thanks for the info Anisha. How long would you say they last, a year or two or longer?
At 6:35pm on January 22, 2014, Vicki said…
Hi Anisha,
Do you mind me asking approximately how much the silicone hair prosthesis is?
At 9:41pm on November 6, 2012, MariaR. said…
Thank you so much for the information. I really appreciate it.
At 7:26pm on July 30, 2011, LeslieAnn Butler said…
Hello and welcome, Anisha!
How are you today?
Leslie Ann
 
 
 

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