dreamscometrue
  • Female
  • Spring Valley, NY
  • United States
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dreamscometrue's Discussions

IV Stem Cell Therapy-How come no research on AU??

Started this discussion. Last reply by dreamscometrue Oct 31. 4 Replies

I wonder if having this done will help AA, AT and AU patients?  I have seen a few studies where this was done on a guy with AU and he went into complete remission, even after 5 years.  Anyone know…Continue

Alopecia-Long Term Sufferers; Do you find studies exclude you?

Started this discussion. Last reply by Moonbeam Jul 16. 26 Replies

Hi Good Positive People:)Have you found that when you apply for studies on Alopecia of any kind, Areata, Totalis, and Universalis that if you've had the disorder for more than 5 years they exclude…Continue

Seronegative Rheumatoid Arthritis and AU, soon to start meds, but scared

Started Sep 13, 2017 0 Replies

I was just recently diagnosed with seronegative RA and I also have AU.  I know the drugs for RA can help with the hair loss for AU but I am scared to death of the side effects.  My Rheumy tells me…Continue

Infections-Candida, Oral infections, any infections. Did you have any chronic infections before starting Xeljanz?

Started this discussion. Last reply by Camryn Mar 23, 2017. 37 Replies

I was wondering if chronic internal infections contributes to long term inflammation in the body thus triggering some sort of attack against the body with auto-immune disease.  I figured since…Continue

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Latest Activity

Tricia and dreamscometrue are now friends
7 hours ago
dreamscometrue replied to dreamscometrue's discussion IV Stem Cell Therapy-How come no research on AU??
"I agree!  Sometimes I think with organizations that are focused on treatments and cures with drugs have an ulterior motive, which is money.  They get people to donate to the organization, which pays their bills, accommodations, salaries,…"
Oct 31
Satriani replied to dreamscometrue's discussion IV Stem Cell Therapy-How come no research on AU??
"Best bet is the Stem Cell Educator therapy. It is mainly focused on Diabetes but it also works on AA  https://www.ncbi.nlm.nih.gov/pubmed/25896390 Currently, the FDA has approved phase I/II clinical trial in type 1 diabetes at…"
Oct 31
dreamscometrue replied to Di_girl's discussion Tests!
"I agree Xeljanz is very expensive, but I was on Humira which is even more expensive and insurance approved it.  Go figure, so weird!"
Oct 25
dreamscometrue replied to Di_girl's discussion Tests!
"I've heard of Dr Gundry, I most certainly will look into checking the book out!  I just know that there has to be something that all people with Alopecia share as far as a commonality that causes this disorder, something irrevocable that…"
Oct 22
dreamscometrue replied to Di_girl's discussion Tests!
"Then that would make your argument contradictory, because if everyone that gets a vaccine and does not experience some sort of autoimmune disorder, then vaccines are not the cause of autoimmune disease. "
Oct 22
dreamscometrue replied to Di_girl's discussion Tests!
"Then in the case of those who are vaccinated who do not have any autoimmune disease, what say you then??  How can that be??"
Oct 22
dreamscometrue replied to Di_girl's discussion Tests!
"I think you are totally missing my point.  I'm not saying not to consider vaccines as a causes, but just using science as a theory in causation, then if it does NOT happen to all, it CAN NOT be a primary, Do you understand that? …"
Oct 22
dreamscometrue replied to Di_girl's discussion Tests!
"The adage about get one autoimmune disease you get 3 rings true for me.  At 7-8 I developed eczema, at 11-12 I started getting joint pain, no one thought anything of it, 12-14 I developed eczema which eventually went away, then at 16 I…"
Oct 22
dreamscometrue replied to Di_girl's discussion Tests!
"I understand what you are saying, BUT, like I said before, not all those that are vaccinated get autoimmune disease, so there has to be another common denominator that anyone with alopecia share thats not associated with vaccines.  Something…"
Oct 22
dreamscometrue replied to Di_girl's discussion Tests!
"That may help explain a lot, but even if you get tested, what is the treatment?  One is no good without the other, so although while knowing one has higher Tryptase levels, if there is no current treatment, what then?"
Oct 21
dreamscometrue replied to Di_girl's discussion Tests!
"I think all suspected causes are worth exploring SINCE research hasn't given any absolute concrete evidence to show what actually DOES cause this disease.  No one seems to know what the causes are, and everyone hasn't been vaccinated…"
Oct 21
dreamscometrue replied to Di_girl's discussion Tests!
"Very good analogy, and I definitely agree with your thought process!  Mine started when I was in HS, then grew back, and then started to get really bad after the birth of my oldest daughter, and eventually fell out all over my body.  That…"
Oct 21
dreamscometrue replied to dreamscometrue's discussion IV Stem Cell Therapy-How come no research on AU??
"Yes, I've read a few medical journal reports on the use of stem cell therapy to help with other afflictions in patients with Alopecia and they went into remission with AA as well as the other disease cured.  I guess you're right, if…"
Oct 21
Aj95 liked dreamscometrue's discussion IV Stem Cell Therapy-How come no research on AU??
Oct 21
hagster replied to dreamscometrue's discussion IV Stem Cell Therapy-How come no research on AU??
"There are a couple of docs here in the US that do infusions of donated stem cells that have had supposedly great luck on AA patients.  It will probably be outlawed by the FDA soon.   This is not the procedure using your own stem cells…"
Oct 21

Profile Information

Relationship Status:
Single
About Me:
I believe that in dreams and thoughts create the energy needed to make all things possible. I believe in dreams and miracles, and when you do, manifestation occurs.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 8:46pm on July 19, 2016, dianna said…

Hello what you use and you hair grows back???

At 1:45am on August 8, 2012, LeslieAnn Butler said…

Hello and welcome!
How are you today? I have AU, too.
Leslie Ann

 
 
 

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