Moonbeam
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Lack of energy - fatigue, fatigue...

Started this discussion. Last reply by Moonbeam Jun 15. 13 Replies

AU going on 12 years, and ever since it started I've never felt the same (putting psychological stuff aside) - I mean physically the same. It seems fatigue hit at the same time as AU for me. And I've…Continue

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Latest Activity

Moonbeam replied to dreamscometrue's discussion Alopecia-Long Term Sufferers; Do you find studies exclude you?
"I got distracted and didn't address your original post. :) Yes, I've found studies exclude us based on the duration of the disease. I tried to get into the Pfizer study. Nope. Not gunna happen. I DID get into the Concert Pharmaceuticals…"
Jul 16
Moonbeam replied to dreamscometrue's discussion Alopecia-Long Term Sufferers; Do you find studies exclude you?
"I was just about to start taking Humira (hoping it might help the AU) but then I had a panic attack, when I was thinking about sticking myself with a needle, and worrying about side effects, so I canceled the medication. :( I'm going to try…"
Jul 13
Moonbeam replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"I'm sorry to hear this Bubbles. Yes, many autoimmune diseases can cause fatigue, as can the medications currently prescribed to treat them. I find it is the hardest to deal with, more so than no hair. Especially when working full time and…"
Jun 15
Bubbles replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"Hello Moonbeam,  I too suffer from crippling fatigue.  I just found out that my ANA titers show that I possibly have Lupus.  This could certainly be the cause of my terrible fatigue as well as hair loss.  I see that you have…"
Jun 14
Bubbles replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"Yes, I also have extreme fatigue,  in fact, I will have to write you tomorrow as I am simply too tired to even think straight today,  it is awful!"
Jun 12
Moonbeam replied to Aimee's discussion Crohns+ Alopecia + Humira = hair growth
"Thank you for your quick reply! Good luck to us both! :)"
Jun 7
Moonbeam replied to Aimee's discussion Crohns+ Alopecia + Humira = hair growth
"Maybe I'll give it a try! I was a little freaked out when I read that Humira can cause alopecia, but I already have it anyway (AU for 10 years). haha! :D Have you also tried MTX? "
Jun 7
Moonbeam replied to nerdyTrees's discussion "Do you have cancer?"
"Yeah, it's so crazy right? I remember wearing a scarf to a spa and everyone gave me pitying looks, but they didn't ask or say anything - I could tell they thought I had cancer, and bad. Lots and lots of staring if I go without hair,…"
Jun 7
Moonbeam replied to Aimee's discussion Crohns+ Alopecia + Humira = hair growth
"How's the Humira? My insurance denied my doctor's request for Xeljanz. So I have to take MTX or Humira now (also have RA/PsA). For some reason both these drugs scare me!! ;)"
Jun 7
michellelc23 replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"I had a blood drawn allergy test if that helps.  Also you could try cutting the major allergens out of your diet for a while and see what happens. It takes a few months."
May 28
michellelc23 replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"Yeah my scalp would hurt too. And that is not typical for Alopecia areata the type with the immune disease. The family doctor that I went to,  I could tell that her heart was in it because she actually went home and made me essential oil…"
May 28
michellelc23 replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"Yeah I went to an immunologist and an endocrinologist and about 20 other different doctors. The best bet in my case was I just went to a small town family doctor they did an allergy test through my blood. And then they looked at the results I was at…"
May 26
Danielle replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"amazing! I KNOW something is going on for me whether it's an intolerance or a hormone imbalance. My doctor is so useless and won't help me find answers. I'm thinking of switching doctors or just going to a walk-in clinic and getting…"
May 26
michellelc23 replied to Moonbeam's discussion Lack of energy - fatigue, fatigue...
"I was also feeling fatigued when I was losing mine.  It was because my body was fighting this intolerance. Here's my story.I went and had an allergy test ran and my whole life I didn't know that I was allergic to anything. Well it…"
May 26
Moonbeam replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"CTP-543 has been fast tracked by the FDA - might end up being the first treatment approved for alopecia: https://www.naaf.org/news-room/fda-grants-fast-track-designation-to-concert-pharmaceuticals-ctp-543-for-the-treatment-of I was (very briefly) in…"
May 1
Moonbeam replied to Susan McAdams's discussion Xeljanz and Looking Ahead to the Future...
"Sorry I didn't see your response until just now. We tried for Xeljanz and it was rejected by the insurance company (they want me to try methotrexate or, Humira and Enbrel first before approving Xeljanz). My doctor is currently appealing their…"
May 1

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About Me:
Just another Alopecian.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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At 6:19pm on October 28, 2013, LeslieAnn Butler said…

Hello and welcome!

How are you today?

Leslie Ann

 
 
 

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