NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Ahmed 2 hours ago. 141 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by Steve Dec 8, 2018. 90 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

Ahmed replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Yea, they sell it 30 tablets for $27"
2 hours ago
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Does beacon have 11mg tablets? "
5 hours ago
hopeful replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"hi.  i have the same problem.  no response. :("
7 hours ago
kevin replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"hello nicole yesterday I made my first bolus solumedrol 500mg infusion in the hospital I have two days left for this month. since 1 month I pass tests for a suspicion of venous thrombosis I did all the tests d dymere negative and Doppler ecography…"
10 hours ago
kevin replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"hello vanessa I advise you 3 tablets because tofacinix make 4.2 mg instead of 5mg xeljanz so you will be 12.6mg per day tablets tofacinix you can cut in two what will be 2.1 mg. my sister takes 3 tofacinix tablets for 4 months she has a cover of 80%…"
10 hours ago
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole and Shiela, I just want to say I traveled from Liverpool Uk to New York to see Dr Bordone and she is lovely. I feel reducing the dose after 1 year may not be enough for your immune system to go into remission, as Dr kings first patient…"
13 hours ago
hopeful replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"hi ryan.  which email responded to you?  "
15 hours ago
hopeful replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"hi.  did you stop xeljanz while pregnant?"
15 hours ago
Vanessa replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks so much Nicole for keeping us posted.  I have been taking 10mg/day (2 Beacon pills) for 3 weeks, but decided to up my dose to 3/day because I understand the Beacon generic may be slightly less percentage of tofacitinib, and because…"
16 hours ago
Ahmed replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I started seeing Dr. Bordone on 4/15, she started me off on 16 mg. I take a 11mg tablet in the morning and a 5mg at night. I heard the ones from Beacon are a little underdosed tho, so in reality I'm probably taking 14-15mg."
18 hours ago
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
" Sultan I don’t know why some people are hearing back from Beacon and some are not. My only thought is maybe that they are getting back to their existing patients faster and maybe not having enough product or staff for new patients…"
19 hours ago
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I take the 5mg pills.  Bordine will likely start you on 10 mg per day and then up you to 15 mg per day but she might just start you at 15 mg per day"
19 hours ago
sultan h replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"The problem with beacon email not answering and some ignore., i don’t now why?!  Maybe they afraid . Many times i sent emails but nothing No respond form them !  Anyone else like my problem . Please give me your experience with that…"
20 hours ago
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nicole, i just make appt with Bordone. What mg do you order from Beacon, 10 or 15? Sheila"
20 hours ago
momx2x2 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks Nicole, i just make appt with Bordone. What mg do you order from Beacon, 10 or 15? Sheila"
20 hours ago
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Sheila! If King cant get you in you can try Bordone at Columbia The Phizer 3 month coupon has nothing to do with income. You can get 3 months free once per year. Getting a pharm to fill it with the coupon can be challenging, but Coumbia will…"
21 hours ago

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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