NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Vicki Oct 22. 315 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by nb3689 Sep 6. 91 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

Meedo replied to NicoleT's discussion Xeljanz from India
"Football fan, that’s something ! I’m very happy for you ..I remember from reading older posts you were a non responder and now you are!? So do you think it’s the dose increase ? What dose were you on before June then ? "
2 hours ago
Football fan replied to NicoleT's discussion Xeljanz from India
"Not sure what the delay was.It took almost 2 weeks before they even got my money transfer and another 2 weeks once they sent my package.Im on the west coast also. started getting nervous because they made me order 40 boxes but it did finally…"
15 hours ago
Rajeev Gupta replied to NicoleT's discussion Xeljanz from India
"Thanks my friend for your reply. If I may ask what exactly was delay? and how many days it took for ya? Mine tracking status shows in USPS - Dhaka Airport Sorting office since Nov 08, not sure where it is as I do not have any other means to know its…"
18 hours ago
Meedo replied to NicoleT's discussion Xeljanz from India
"Hello football fan. I just want to know if you have finally responded to xelijanz ?"
Saturday
Football fan replied to NicoleT's discussion Xeljanz from India
"Took my package longer to arrive last month than it did last February "
Saturday
Rajeev Gupta replied to NicoleT's discussion Xeljanz from India
"Hello All, Happy Friday, Hope everyone is doing well. I would like to check in to get your advise if anyone is experiencing delays in shipment from Beacon to USA - I ordered with them and they shipped a week back on Nov 08 and the tracking…"
Friday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Thank you Paul, I guess we all need to stick together because someway or the other we all share the same experiences . it will be a miracle if i have my hair back . i really appreciate you being there for me. I hope for the best for everyone who…"
Friday
Paul_melb replied to NicoleT's discussion Xeljanz from India
"Ricky... 26!! you have your whole ahead of you, wish I was 26 again, I was the same as you I didn't want to socialise and didn't want anyone to see me, Tofacinix will work for you, just don't think about it to much, like I said before…"
Friday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Thats amazing Paul! well i am just 26 years old and this disease has left me devastated up to the point i don't even speak to anyone . i feel so ugly sometimes i just wish my life to end. I have lost faith in god and everything good around me.…"
Friday
Paul_melb replied to NicoleT's discussion Xeljanz from India
"Hang in their Ricky, their are lots more worse things that can happen to you than losing your hair, just keep taking Tofacinix and try and take your mind off this disease.."
Friday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Hey man , thank you for sharing your story , i am on predisone 50mg per day with tofa 15mg per day . There are some people here who took 20mg of tofacinix to actually see progress. i guess we just need to wait . when you say vellus hair i am a bit…"
Friday
Paul_melb replied to NicoleT's discussion Xeljanz from India
"My vellus hair is just starting to go dark after taking Tofacinix from beacon for 3-4 months , still long way to go. Im 52 years old, because of this disease I haven't had much of a social life last 8 years, so I concentrated on…"
Friday
Paul_melb replied to NicoleT's discussion Xeljanz from India
"My whole head is covered with vellus hair, I was 6-7 years totally au, no hair, no vellus hair, took steroid tablets for few months and almost grew all my hair but side effects were bad, stop taking steroid tablets and all hair I had went back to…"
Friday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Hi paul, really happy that its working out for you. how much coverage do you have on your scalp? i have alot of vellus hair on my ears but thats about it. I see tiny tiny white hair on my scalp but they are way too small ."
Friday
Ricky_1008 replied to NicoleT's discussion Xeljanz from India
"Hey I hope it works out for the both of us. i get so frustrated but i think its teaching us patience .are you using tofa from beacon or ?"
Friday
Paul_melb replied to NicoleT's discussion Xeljanz from India
"Hi, I've been on tofacinix for 4 months(10mg a day), it takes 10-15 weeks to see anything happen(maybe more, everyone is different), Ive always had vellus hair, but after 3 months have beard, eyebrows are growing and vellus hair on head is…"
Thursday

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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