NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Arsenalauba Jul 12. 248 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by Steve Dec 8, 2018. 90 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

Lidan replied to NicoleT's discussion Xeljanz from India
"Pour ma part ils ont reçu mon virement le 12 juillet et ils m ont donner un code pour suivre le coli via EMS mais sur le site quand je râpé le code ils disent que le transporteur n a pas donné d information ! "
yesterday
Devices561 replied to NicoleT's discussion Xeljanz from India
"Hey Nicole, Do you know if many patients of your Columbia doctor are taking generic from Beacon? Just placed an order and transitioning from branded after 6 months (getting too expensive). Just a bit nervous... TS"
Monday
Arsenalauba replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I’m taking Xeljanz 15mg everyday. I’m shedding really much hair.  When you stopped did your hair stopped shedding?"
Jul 12
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"After a few days of taking zelijanz I started shedding hair rapidly all over. Including my eyebrows which I’m trying to hold on to as long as possible. Got scared and stopped, wondering if anyone has a similar experience. "
Jul 11
Arsenalauba replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"What do you mean? Did u lose your hair because of Xeljanz?"
Jul 11
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Would love to know also. I stopped taking it because of the shed. Was losing the hair I had left and got too scared. "
Jul 11
Arsenalauba replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I’m shedding a lot! Please if someone knows something that helps, DM me."
Jul 11
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Good luck Kevin ! Can I ask how much hair growth have you had with just using xeljanz? Was you AU? And good luck Kevin I hope you get all your back ! Kind regards "
Jul 10
Devices561 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Good luck with your new therapy. I too am looking at starting generic xeljanz from beacon and also concerned if drug is genuine and safe. I finally made contact with beacon and looking to find a reputable laboratory to test a sample of the…"
Jul 10
kevin replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"hello, I am a bad responder of xeljanz in the hair, it will be 1 year and 4 months, I developed a strategy I take 10 mg of generic xeljanz and 2 mg of generic baricitinib I have not tested in the laboratory I hope to trust beacon, I have already…"
Jul 10
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Magmck, I took 60 mg/day every day for 30 days, then 50 mg/ day every day for 30 days. The plan was to reduce 10mg each month. But I had to reduce quickly due to side effects. My third month I took: First week 40 mg/ day, Second week - 30mg/day,…"
Jul 10
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat  last question ! Re prednisone. Did you take 60 mg 3 days each month or did you take them daily ?  Thanks for your help ! "
Jul 10
magmck replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat - Well done you.  I’m going to do the same.  I’ll start Tofacitinib from Beacon over the next few weeks. Hopefully my doctor will agree to monitoring blood. If not I’ll see if there’s a UK counterpart…"
Jul 10
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Your welcome Nicole! I hope your regrowth is coming along well. Kind regards "
Jul 9
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi, I saw a doctor from Columbia only once. They didn't want to discuss the meds from Bangladesh. The nurse told me that there are some other sources to purchase affordable Xeljanz. But they wouldn't openly discuss the illegal meds."
Jul 9
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Well, I don't have a good doctor. I bought meds myself and decided on the dosage based on the people's experience (from this website)-15 mg of Tofacitinib. I saw a doc from Columbia once who ordered the initial blood work. I can't…"
Jul 9

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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