NicoleT
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by Nat 21 hours ago. 74 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by Steve Dec 8, 2018. 90 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

maireadcg replied to NicoleT's discussion Xeljanz from India
"Hi Singh, I’ve added you as a friend as I wanted to ask a few questions- I hope that’s okay! "
1 hour ago
maireadcg replied to NicoleT's discussion Xeljanz from India
"Any updates on your tablets? "
1 hour ago
maireadcg replied to NicoleT's discussion Xeljanz from India
"Hi Singh, I’ve added you as a friend as I wanted to ask a few questions- I hope that’s okay! "
17 hours ago
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you TC! I am a few months away from any hairstyle. I hope my hair stays once I am off Prednisone."
21 hours ago
NicoleT and srujant are now friends
23 hours ago
NicoleT replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Be patient! You are right on track with the white hairs!!"
23 hours ago
maireadcg replied to NicoleT's discussion Xeljanz from India
"Can I ask if you’re in the Uk ? If so how long did you wait for them?"
yesterday
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Getting lots of white hairs.   Not much color even for some of the growth that is 2 months old but I guess something is better than nothing!  Been on xeljanx for about 3.5 months so I’m hopeful that the medicine is working... even if…"
yesterday
TC replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Woohoo congrats Nat!! :) So happy for you! Look at all that hair!! Enjoy every minute of it. Have you started thinking of a hair style?"
yesterday
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I read about steroid pulsing but I have not tried it. About the doctors. Dr. from Columbia prescribed Xeljanz. Then I had an appointment with a rheumatologist and he prescribed 60mg of Prednisone alongside Xeljanz. He called my Dr. in Columbia and…"
yesterday
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Brock, How you getting on mate ?"
yesterday
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you for replying Nat! Oh cool, as I am considering taking it to give my head a boost as I have tried Pred in the past and 80% of my hair grew but fell out once of it. Do you know anything about steroid pulsing ?  What does your dr feel…"
yesterday
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Singh, My AU was for 1 year. I take 5mg of Tofacitinib first thing the morning, then prednisone with breakfast. And Xeljanz XR 11mg before bed. I reduced Prednisone from 60mg to 20m now. I tried Prednisone before without Xeljanz and all hair fell…"
yesterday
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nat ! You look amazing !  Can I ask how long was you AU? Did you take xeljanz first then predisilone? Or take them simultaneously? And what is your regime for take the both tablets ? As I’ve heard you cannot take them both at the…"
yesterday
singh replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Nicole, My vellus hairs are not the way I can see yours it’s more when I shine light on my head then I can see them.. so am thinking is it worth steroid pulsing ? Although facial has come back first so thinking should I wait it…"
yesterday
Brock replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"You look great and the progress is inspiring!!  You’ll crush the wedding.  Good luck man."
yesterday

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

At 7:38am on January 15, 2019, Justyna said…

Hi Nicole,

thank you for a quick reply.

So I think I'll have to wait a little bit longer or ask my doctor cause maybe I just need a higher dosage.

keep in touch!

justyna

At 6:09pm on September 12, 2018, Shad said…

Hi, I emailed the person in Bangladesh and he said the custom will be on you to take care of it, do you live in NY? Just wondering how post don’t ask you anything about medicine?! 

Thanks Nicole 

At 5:03pm on September 10, 2018, Tatiana said…

Hi Nicole. I am in Brooklyn, NY also. Was wondering which doctor did you go in Columbia to get a prescription? My dermatologist in Brooklyn has no idea about those pills(. Thank you.

 
 
 

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