NicoleT
  • Female
  • Brooklyn, NY
  • United States
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NicoleT's Discussions

Update: 1 year on Tobacitinib!

Started this discussion. Last reply by hgpb Nov 20. 462 Replies

HI All!March 1, 2019 marked my 1 year Tofacitinib.Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.Started on 10mg per day and bumped up to 15 mg per day in August of 2018.I…Continue

Tags: universalis, totalis, tofacitinib, xeljanz

Tofacitinib Results after 9 Months

Started this discussion. Last reply by Dan Mar 7, 2019. 91 Replies

Hi All,Here are my results after 9 months.Notice, virtually no results until about 5 monthsNote that I kept buzzing my head the entire time, hence no growth in length, just filling in.…Continue

Tofacitinib Results after 7 Month

Started this discussion. Last reply by nb3689 Sep 6, 2019. 91 Replies

HI Guys,I'm on Generic Tofacitinib from Bengladesh.On Aug 10, I increased doseage from 10 mg to 15 mg per day.I started March 1, with not one hair on my head. no eyebrows very few lashes.Here is my…Continue

My Xeljanz REsults after 6 month

Started this discussion. Last reply by Shad Sep 11, 2018. 13 Replies

Hi Guys,Here are pics of my progress on Xeljanz at 6 months from start date with AT.Slowly but surely.I started 10m on March 1.Hard to tell from side profile pic, but Right eyebrow was 100% gone and…Continue

Tags: xeljanz

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Latest Activity

NicoleT and Jason are now friends
17 hours ago
NicoleT replied to NicoleT's discussion Xeljanz from India
"All the studies I’ve seen of people coming off the meds they go back to baseline unfortunately. But that’s not a taper. Fingers crossed that’s great. Soo far so good in the 10/15 split for me "
17 hours ago
hgpb replied to NicoleT's discussion Xeljanz from India
"Thank you, Nicole. I started on 10mg and have now been taling 7.5mg for about 3 months, with no issue so far - fingers crossed. Have you heard of anyone actually weaning off the meds all together? Most case studies are have mixed results. "
23 hours ago
BA9186 replied to NicoleT's discussion Xeljanz from India
"It did.  It took about two weeks longer than when I ordered back in July."
yesterday
Joja101 replied to NicoleT's discussion Xeljanz from India
"My in the US but mine is taking long as well. Has yours arrived yet?"
yesterday
NicoleT replied to NicoleT's discussion Xeljanz from India
"HI So sorry i think I owed you a response earlier!!I have meant to pull up my charts.. March 1, 2019  i abruptly reduced  from 15 per day to 10 per day without tapering. May 15:  i noticed a large patch above my right ear. Took my…"
Nov 26
Jessica replied to NicoleT's discussion Xeljanz from India
"Thank you, that has put my mind at ease"
Nov 26
hgpb replied to NicoleT's discussion Xeljanz from India
"Nicole,  When you tapered the first time, how soon after did you notice a shed? Thanks "
Nov 26
hgpb replied to NicoleT's discussion Xeljanz from India
"Hi Jessica  Eyelashes normally have a longer growth cycle than head/body hair, so it's normal for them to take a little longer xx"
Nov 26
NicoleT replied to NicoleT's discussion Xeljanz from India
"Thats great news! My lashes took a while. this is normal. For a while i had little baby white lashes and then they slowly came in normal"
Nov 26
Jessica replied to NicoleT's discussion Xeljanz from India
"Hi all, i've been on 15mg of Xeljanz for 4 months now and i've gone from AU (for 10 years) to having the majority of my scalp fully covered and my eyebrows back but my eyelashes haven't come through at all. Is this normal at my stage…"
Nov 26
Vicki replied to NicoleT's discussion Xeljanz from India
"ok i am naive, you can’t sell medication. i didn’t realise that ☹️. "
Nov 22
BA9186 replied to NicoleT's discussion Xeljanz from India
"Has anyone from the UK recently received their order from Beacon?  According to EMS tracking, it was dispatched from Dhaka on 23 October but has yet to arrive in the UK.  This has already been double the time it took when I placed an order…"
Nov 21
hgpb replied to NicoleT's discussion Xeljanz from India
"Vicki i sent you a Private message a couple days ago "
Nov 21
Vicki replied to NicoleT's discussion Xeljanz from India
"Hi, I have 42 tablets which I would like to sell. I sadly had to stop due to cholesterol problems. I was on Tofacintab for just under a year and I spent a fortune. So if possible as I have tablets left I would like to sell them. I have the…"
Nov 21
SI replied to NicoleT's discussion Xeljanz from India
"Similar for me. Placed order in October, shipped 9th Nov and received 21st Nov. My order came through JKF within a day. Looks like the majority of the time was transit from Dhaka to JFK."
Nov 21

Profile Information

Relationship Status:
Married
About Me:
Developed AT during IVF and pregnancy.

Lost all head hair, eyebrows and eyelashes. Started to lose all body hair.
Got all hair back after 10 months on oral Tofacitinib 15 mg per day prescribed by Columbia University in NYC.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (13 comments)

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At 11:59pm on October 5, 2020, Apple said…

I have been so thankful fir prescription Hope which has been able to get xeljanz for me at no cost. This program in based in USA if anyone wants to contact them for help it’s amazing. It is really evaluated yearly and you will have time where you don’t have the medication right away that’s why I needed other sources to obtain the only medical treatment that works for alopecia.

At 11:51pm on October 5, 2020, Apple said…

I am also concerned about reparation date. I have medication that will expire by 10/2021. Trying to juggle meds expiring to take first. 

At 11:50pm on October 5, 2020, Apple said…

I bought 1 year supply from beacon it took about a month or longer to arrive. Doc pharma it was 3 month supply arrived quickly and when one shipment was running late they contacted customs it arrived in 24 hours to my front door.

At 11:28pm on October 5, 2020, Apple said…

The company was DOC Parma delivered to my door within 14 days $500. For one month supply.

At 11:18pm on October 5, 2020, Apple said…

I hear that generic xeljanz will be available in USA soon. Has anyone had any news on this? I had my medication from beacon com by deliver right to my home, but it did take time to arrive. I ordered from another company from India and RCVD it promptly but costly.

At 6:45pm on July 7, 2020, Justyna said…

Does anyone there is in touch with dr. Filamer Kabigting from Hudson Dermatology? 
I’m out of country patient and I’m trying to reach him for online consultation.

At 8:44am on January 22, 2020, Apple said…

I have golden 1 credit union ... Fresno, Ca 93711. I cant sleep omg.

At 3:34am on April 7, 2019, Khalil said…
Hello dear,

Can you send my the address of the pharmacy who sealing the same Xeljanz medicine from Bangladesh

Thank you so much
At 10:56am on February 1, 2019, Justyna said…

Wow looks amazing! 

I'll definitely order it!

Congratulations!

Justyna

At 5:39am on February 1, 2019, Justyna said…

Hi Nicole,

sorry for bothering you again.

I just wanted to ask you about Tofacinix - generic version of Xeljanz from India.

How is it? Are you taking it? Does it really work the same as original Xeljanz?

I'm thinking about ordering it...

Justyna

 
 
 

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