Nat
  • Female
  • Egg Harbor Township, NJ
  • United States
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  • Lav
  • Ricky_1008
  • Meedo
  • Arsenalauba
  • Ahmed
  • Sad_Rapunzel
  • NicoleT
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  • Tori
  • Merry

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Latest Activity

Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Contact Frida Rupert from this site. She stopped Xeljanz for a surgery for a couple of weeks."
Tuesday
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Oh, wow! Thank you Carlie for your help! What dosage of Tofa are you taking now?"
Sep 14
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carlie, did you take 100mg at once per 3 days? I took 50mg yesterday morning and could not sleep at night."
Sep 14
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I will. Thank you!"
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You are, probably, correct. I am afraid to take 100 mg at once. Based on my weight ( 60kg), the highest dose is 60 mg. I need to do more research. I found a medical study - they gave 30mg for 3 day/ week. They did it for 6 months. They had good…"
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Meedo,  I am trying a weekly pulse - 3days/week 50mg/per day. The next week - 40mg/day per 3 days and so on. I am afraid to take 300mg at once. Have you tried any other protocols?"
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you Ariel! I appreciate all the help and support from the community on this website! I am trying the Prednisone  pulse for now."
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Rascalx2, I have never been on 20mg. The highest dose for me was 16mg. I am trying to get down to 11mg due to the high cholesterol. How is your cholesterol level on 20mg? I have been on the reduced dose for more than 5 months. It's probably…"
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you Frida! I am terrified. My hair now is thicker than I have ever had before. I am thinking about Prednisone pulse."
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you Carlie! I am thinking about Prednisone - I have some. I don't go to local derm as they know nothing about AU."
Sep 13
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hey everyone, I am looking for some advice. I reduced Tofa dose in July (cut one morning pills per week) and I discovered a spot today. I was AU, full regrowth on Tofa. I am considering one of the following solutions:  1) stay on my current…"
Sep 12
Nat replied to NicoleT's discussion Xeljanz from India
"Hi Hgpb,I used TransferWise just yesterday and don't know the final result yet. Some people here used it before without problems."
Aug 15
Nat replied to NicoleT's discussion Xeljanz from India
"Hi YP,  I had the same problem. Look in your Spam folder. Emails from Mouree were there. I used my Yahoo email account and didn't get any response. When I emailed from my Gmail account - answered the same day and told me to look in my Spam."
Aug 13
Nat is now friends with Lav and Tori
Aug 6
Nat replied to NicoleT's discussion Xeljanz from India
"Thank you!"
Aug 6
Nat replied to NicoleT's discussion Xeljanz from India
"Thank you  Lav, Do you have an email for Abdullah? "
Aug 6

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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