Nat
  • Female
  • Egg Harbor Township, NJ
  • United States
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  • Sad_Rapunzel
  • NicoleT
  • Cocopuffz17

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Latest Activity

Nat replied to hellopeesha's discussion Testing Beacon Tofacitinib before Starting It
"Kevin tested it in France. It has 4.2mg of tofacitinib per pill vs. 5 mg in Xeljanz. He attached the full report to his post on this site. I can't find it quickly. I am taking Beacon pill and real Xeljanz. No difference."
Friday
Nat replied to Sara's discussion Doing a research project on trying to find what triggers alopecia... some help?
"Hi Sara, my AA started at 25 after a stressful break up. My hair grew back quickly and I didn't have any problems for 12 years.   In 2014 - new episode of AA after changing jobs. Quickly grew back. In 2016 - diffused alopecia due to…"
May 17
Nat replied to Joey_C's discussion I Beat AU Twice
"Thank you Ema!"
May 12
Nat replied to Joey_C's discussion I Beat AU Twice
"Hi Ema,  What test did you do for the food intolerances? Thanks"
May 11
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"How many boxes did you order? Looks like they are interested in more than 20 boxes shipments."
May 11
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"SR, why wouldn't you try taking Tofacitinib and see if it works for you? Trial and error is the main method with hair loss."
May 10
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Carol, I would probably wait until you have taken Xeljanz for 3-4 months to see the results. Good luck!"
May 9
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Most people who are taking medications, already tried different diets. I did an AIP for 6 months and a lectin free for 6 weeks. Alopecia got much worse during my dieting process."
May 4
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey, I took a bus. Then 15 minutes walk from Port Authority."
Apr 1
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi, I live in NJ 3 hours away. I saw Dr.Kambigtin. After the initial visit, he wanted me to come every 3 month."
Mar 30
Nat and Sad_Rapunzel are now friends
Mar 23
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you TC! I am a few months away from any hairstyle. I hope my hair stays once I am off Prednisone."
Mar 19
Nat left a comment for Sad_Rapunzel
"Привет, пиши, если нужна помощь."
Mar 19
Nat replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You can buy Xeljanz in Ukraine way cheaper than in the USA. Check it out."
Mar 19
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"I read about steroid pulsing but I have not tried it. About the doctors. Dr. from Columbia prescribed Xeljanz. Then I had an appointment with a rheumatologist and he prescribed 60mg of Prednisone alongside Xeljanz. He called my Dr. in Columbia and…"
Mar 19
Nat replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi Singh, My AU was for 1 year. I take 5mg of Tofacitinib first thing the morning, then prednisone with breakfast. And Xeljanz XR 11mg before bed. I reduced Prednisone from 60mg to 20m now. I tried Prednisone before without Xeljanz and all hair fell…"
Mar 19

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 10:43pm on November 19, 2018, Ahmed Maris said…

Good Day,
How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on:( mrsstellakhalil588@gmail.com ) for the full details.

Have a nice day
Thanks God bless.
Stella.

 
 
 

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