Meedo
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  • Oxford
  • United Kingdom
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Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I see . Sorry to hear you haven’t had the success you desired from it! Hope one day there’s a more safer and effective treatment for us . Good luck "
Jan 14
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi shad. Sorry to interrupt the conversation. If you don’t mind me asking, why are you quitting xelijanz ?"
Jan 14
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin . Happy new year ! How’s your progress ? Did you add cortisone to your xelijanz or you still use xelijanz and baracitinib ?"
Jan 1
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Merry Christmas to you Ricky and congratulations for your great progress. May 2020 bring you and your family happiness and fulfilment !"
Dec 25, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Dnp224 I have had crazy acne starting two weeks into xelijanz and I started using duac gel twice a day , I’m three months now , my acne has settled down a lot and also I’m still shedding and not much growth at all, hang in there ."
Dec 16, 2019
Meedo replied to NicoleT's discussion Xeljanz from India
"No worries Nat. Better late than never . Lol. I tried all the diets and supplements nothing worked .. I just remember you had no growth until 5 months, when you say no growth , do you mean not even vellus hair?"
Dec 5, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I’m sorry You didn’t get the results you were hoping for , but one thing I would say, try to not get discouraged as I know of people who have had au for more than 10 years and eventually got their hair back . I think you should try the…"
Dec 3, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Shad . Sorry to hear you didn’t respond but have you tried steroid pulsing with xelijanz ?it may very well work for you . How long have you been AU ?"
Dec 2, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I hear you Charlie . In our cases unfortunately no one is going to help unless we persist . I remember I paid 270 sterling pounds for a dermatologist to tell me there isn’t much I can do for you ! I wish I had known about this fabulous forum a…"
Nov 25, 2019
Nat and Meedo are now friends
Nov 25, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks for your input frida. It’s very comforting and makes a lot of sense. I started tofa in September. I’m just over 2 months now with a slowed down progression of my condition but hast stopped completely . I’m on 11 mg morning…"
Nov 25, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat. Thanks for coming back . So I guess that you started the second protocol same time as you started xelijanz? And if so this protocol is similar to dr king’s protocol 3 months 300 mg except for second and third months you are tapering…"
Nov 24, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat. I hear a lot about different prednisone protocols , what’s your experience with this in details please . Why did you feel the need to start prednisone alongside xelijanz ? "
Nov 24, 2019
Meedo and Ricky_1008 are now friends
Nov 23, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Interesting ! I guess these side effects will disappear once you stop the course ! I need to look into different protocols and what everyone has done to see what I can ask my dermatologist on my appointment in January .."
Nov 23, 2019
Meedo replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Maybe Charlie can answer that? Did you have any side effects Ricky ? For how long is your steroid course ?"
Nov 23, 2019

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Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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