MindOverMatter
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New user to this forum and Need some advice regarding taking Xeljanz

Started this discussion. Last reply by MindOverMatter May 22. 24 Replies

I first got Alopecia Areata when I was 15. I think the pressures of school took its toll on me a little… I lost a big patch of hair on the back of my head but it did eventually all grow back white…Continue

Tags: New, user, with, out, Starting

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MindOverMatter replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"As I stated in my post on the 17th Feb...   www.Citydoc.org.uk"
May 22
magmck replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hi mind over matter. Can I ask which company you are using to have your bloods checked  thank you "
May 22
MindOverMatter replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hi Magmck, thanks for your comment... yes... my blood tests are going well so far... as I mentioned in my previous post I’m am still having to fund my own private blood tests as the NHS is refusing to help. I have now been on Xeljanz for…"
May 21
magmck replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hi mind over matter. Hope you don’t mind me getting in touch to ask if you havd any luck with blood screening ? My dermatologist refused outright.  Hope the treatment is continuing to go well. Are you continuing to see results ? "
May 21
MindOverMatter and Cocopuffz17 are now friends
Feb 21
Cocopuffz17 liked MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
Feb 21
Johnny99 replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Thanks a lot for the info, I'll bear that in mind if and when I decide to go for it. I hope that your good results continue and that you see some significant growth soon!"
Feb 17
MindOverMatter replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Johnny99 - In reply to your question... I’ve read that you only need to get your blood count checked every 3 months. There are lots of companies out there to do the tests for you but the one I’m using is www.citydoc.org.uk they are…"
Feb 17
Johnny99 replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Thanks for getting back to me so quickly, that's great that you are seeing some results already. It's unfortunate that you haven't been able to get the tests done on the NHS, but it's good to know that you've found a way to…"
Feb 17
MindOverMatter replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"I have attached a couple of photo’s to show my early hair growth at three months using Xeljanz. 2ADBC67E-AB06-497C-BE1C-08E57F907D26.jpeg E540A51E-A6D6-44E0-8FEE-7ED08C5066F8.jpeg"
Feb 17
MindOverMatter replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"In reply to your question about blood tests here in the UK.... No..! I have had no help what so ever from my GP regarding getting my bloods checked.. They are refusing to do it as they can’t take any responsibility as this is a new and…"
Feb 17
Johnny99 replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hello MindOverMatter,  Thank you for taking the time to share your experience. I've been reading this forum intently for many months but this is my first time posting. Have you had any success in arranging blood tests? I'm…"
Feb 17
AlopeciaDestroyedMyLife and MindOverMatter are now friends
Jan 2
MindOverMatter replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Hi Nicole, Thank you for taking the time to read my story... I’m really pleased to hear that Xeljanz is working for you...! I wish that is was just that easy to go to another Doctor on the NHS...! As a worse case senario I could pay to have…"
Sep 25, 2018
NicoleT replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"Thanks for sharing. Great to read your story. Ive been on Xeljanz for 6 months. I consider it to be the biggest blessing. I thought i was never going to have another hair on head after the birth of my child. Just saw your note about your doc not…"
Sep 24, 2018
Nor75 replied to MindOverMatter's discussion New user to this forum and Need some advice regarding taking Xeljanz
"I may add that my patches grow back within two to three weeks and they disappear in one go. So for ages I was wondering why people do not simply use it as well. But it was likewise not working in my son as it does in me.  That was a very bad…"
Sep 24, 2018

Profile Information

Relationship Status:
Single
About Me:
Lost all my hair when I was 31, eyebrows, eyelashes, beard, everything other than the hairs under my arms.

I have some Xeljanz for alopecia and I'm hoping to start taking shortly.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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