Maruf Hussain's Page

Profile Information

Relationship Status:
In a Relationship
About Me:
I'm 29 years old and live in Kent, OH. I have an American mother and an Indian father. I was born and raised in Northeast Ohio and have only been to India once back when I was 5. I don't remember much unfortunately :-P I'm currently pursuing a Masters in Library and Information Science while working in an IT tech support position at Kent State University. My Bachelors was in Management and Information Systems.

I started out with Alopecia when I was 7 years old. It started as areata, but then progressed to totalis in my pre teen years. It eventually became universalis not long after that. I have had patchy hair regrowth at times, but nothing real substantial. Whatever regrows usually doesn't last very long anyway, heh!

I've never really given a community like this a serious try before. I've known two others in my personal life here who also have alopecia, but I'm interested in getting to know others too. I'd like to hear their stories and how they have learned to cope/grow with it. Sadly, my self esteem was impacted more than i like admitting by this illness as a teenager due to the way kids and some adults reacted towards me. Some of it I still work through at times, but overall I have a much better opinion of myself. I don't let it affect me the way i used to. I've also had wonderful support from friends, family, and my church.

Feel free to message me if i sound interesting to you. I'm a very laid back, genuine person. I look forward to getting to know other members on this site :-)
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (17 comments)

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At 8:30pm on October 16, 2010, soniamarrysoniamarry said…
I am ok thanks for asking. I am so glad to hear that you are better! Alop is so hard for anyone to deal with alone. If you ever need to vent just drop me a line. Take care and keep your spirits up!:-)
At 3:54pm on October 14, 2010, soniamarrysoniamarry said…
Hi Maruf,
Thank you for adding me as a friend. I like the post it pic! I will have to try that myself! lol How are you today?
At 11:16am on October 14, 2010, Sarah Eisenhardt gave Maruf Hussain a giftSarah Eisenhardt
Gift
we will always be here for you
At 10:59pm on August 27, 2010, TuesdayTuesday said…
Curious if you did take biotin and find it helped your nails?!
At 7:58pm on April 6, 2010, Andrea EldaAndrea Elda said…
PS. I was just in India. Beautiful :)
At 7:58pm on April 6, 2010, Andrea EldaAndrea Elda said…
Hi Maruf. Apologies it's taken so long for me to respond to your friend request !! How's everything going?
At 7:57pm on March 23, 2010, YoshimiYoshimi said…
Hello! thankyou for such a long comment on my profile.. I really appreciated that :) yeah, trust is a real difficult issue, has always been for me, alopecia didnt make it any easier.. but I'm making a conscious effort.. you can only do your best and no more right? Understanding myself was the most important thing I realized I should do, because I just cannot live not knowing myself. For me, I didnt care so much of how the world judged me, I could take on the world.. however, it was myself that I had to take care of.. because I was so angry at myself, I couldnt forgive myself for various things.. I still believe that forgiving oneself is the hardest thing one can do.. and I'm still in the process of just forgiving myself, and loving myself for just who I am.. yeah.. but I've always been a introspective person.. and I'm not afraid to recognize and accept that I do have faults and sometimes its okay to be who I am.. you know, one thing though, is that if not for alopecia, I do not know if I would have really understood life like I do now.. maybe I would have realized when I was way older in life and made my own assumptions and mistakes in this life.. but this made me wake up in a way.. sometimes important lessons in life are learnt the hardest way. Through it all though, I'm glad that I havent lost myself.
oh, by the way, you are a very interesting mix.. I'm a half Japanese, half Sri Lankan.. :) anyway, thanks for throwing me a comment, really appreciated that.. take care..
At 10:19pm on March 22, 2010, kristen & karahgankristen & karahgan said…
since your a fellow ohioan do you know of any support groups that i could go to and take karah if she would want to? i hate roller coasters so i dont even ride them when i have gone, i just take the kiddos to ride their rides! i have rode in the past but i just dont really care for them!
At 3:42pm on March 20, 2010, HilaryHilary said…
i like to stand out in the crowd you know but it is hard sometimes. hope your having a great day too.

x
At 3:05pm on March 20, 2010, HilaryHilary said…
hey thanks for the add :)

Latest Activity

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Ann Laurie and Maruf Hussain are now friends Mar 30, 2011
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Funny acts of alopecia

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Welcome Ladies and Gents. Welcome to our new group. As we always hear about the how good old alopecia changes our life sometimes for the worse. Have we actually seen the funny side of alopecia?
Maruf Hussain joined Tiffany B's group Oct 16, 2010
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Maruf Hussain commented on Maruf Hussain's blog post 'Feeling discouraged :-('
Thank you all so much for your words of encouragement. I cant begin to tell you just how helpful it has been for me in the few days that have passed since I wrote this blog. Thank you for letting me vent a little, while also caring for me and…
Oct 16, 2010
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Terri commented on Maruf Hussain's blog post 'Feeling discouraged :-('
I feel your pain and I wish I could give you a big hug right now. Everything you are saying sounds all to familiar. Hang in there and stay strong. Remember life gives the biggest challenges to those that are strong enough to take it. We are all here…
Oct 16, 2010
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letcia Parga commented on Maruf Hussain's blog post 'Feeling discouraged :-('
I sorry you feel that way it sucks to be depressed it damages me more then the actual alpoecia
Oct 16, 2010
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PaulJ commented on Maruf Hussain's blog post 'Feeling discouraged :-('
There is nothing wrong with feeling this way,nothing wrong with simply writing down how you feel - shamefull and weak ? Hell no, it still takes guts to write about things you know complete strangers can read and comment on. alopecia always rears…
Oct 15, 2010
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Devin commented on Maruf Hussain's blog post 'Feeling discouraged :-('
Hang in there buddy! Ive been feeling the same lately. Hopefully we will become stronger people because of it.
Oct 15, 2010
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Molly Marie Blank commented on Maruf Hussain's blog post 'Feeling discouraged :-('
Dear Maruf, My name is Molly. I can totally relate. I have some hair on my head, but it's very thin. I'm getting he DCPC treatments once a week. DCPC is this liquid stuff that the doctor rubs on your head and it's suppose to create a…
Oct 15, 2010
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Cheryl, Co-founder commented on Maruf Hussain's blog post 'Feeling discouraged :-('
Maruf, from the looks of your photo's you look like you have great friends and you like to have fun. None of that has to change, you just have to ensure that it doesn't. Don't act any differently than you did before. You have not…
Oct 15, 2010
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Maruf Hussain is now friends with PaulJ and Lauren Edelman Oct 15, 2010
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Sarah Eisenhardt commented on Maruf Hussain's blog post 'Feeling discouraged :-('
http://www.youtube.com/watch?v=Gc4HGQHgeFE please watch this short video for a little insperation
Oct 14, 2010
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Priya commented on Maruf Hussain's blog post 'Feeling discouraged :-('
Dont worry dear, Always remember that "When life gives you a thousands reasons to cry, show the world that you have million reasons to smile."
Oct 14, 2010
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Maruf Hussain received a gift from Sarah Eisenhardt Oct 14, 2010
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Feeling discouraged :-(

I don't really know what all I want to say. I just hope I articulate myself well enough. Lately I feel like I say all sorts of things, but its all jumbled up in my head. It makes sense to me when I say it, but not necessarily to others around me who hear it.I only have one other blog post on here and its about my fingernails. I tried biotin for a few months and I didn't see a change so I stopped it. I actually had one thumbnail reverse itself on its own, but within 2 months it was screwed up…See More
A blog post by Maruf Hussain was featured Oct 14, 2010
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Maruf Hussain updated their profile Oct 14, 2010
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sad :-(
Status posted by Maruf Hussain Oct 14, 2010

Maruf Hussain's Blog

Maruf Hussain

Feeling discouraged :-(

Posted on October 14, 2010 at 11:03am 9 Comments

I don't really know what all I want to say. I just hope I articulate myself well enough. Lately I feel like I say all sorts of things, but its all jumbled up in my head. It makes sense to me when I say it, but not necessarily to others around me who hear it.



I only have one other blog post on here and its about my fingernails. I tried biotin for a few months and I didn't see a change so I stopped it. I actually had one thumbnail reverse itself on its own, but within 2 months it was… Continue
Maruf Hussain

Fingernails are frustrating me :-/

Posted on March 17, 2010 at 10:37am 8 Comments

I used to journal/blog all the time a few years ago. I always found it therapeutic, so hopefully this will be the first of many on here :-)



For the last 15 years I've reluctantly gotten used to having no hair, eyebrows, eyelashes, etc. However, in the last year my fingernails decided to join the party. They used to get white spots on them every so often, but last year the nails started separating. Now I have sections of my nails that are gone and wont grow back. Whenever something… Continue
 
 
 
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