Alopecia World
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Julie Koch
- Female
- Wausau, WI
- United States
- Blog Posts (9)
- Discussions (57)
- Events (1)
- Groups (7)
- Photos (11)
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Julie Koch's Groups
Julie Koch's Discussions
Biopsy advice please!
Started this discussion. Last reply by Chentil Changing Nov 20, 2010. 10 Replies 0 Favorites
Hello everyone! I was wondering if any of you could share your experiences with having a biopsy. I don't know much about them and was hoping to gather some information from all of you!My…Continue
Seborrheic Dermatitis?
Started this discussion. Last reply by Tony J. Jan 16, 2011. 3 Replies 0 Favorites
Hey everyone. Me again asking for help and advice!I was diagnosed with Seborrheic Dermatitis yesterday. I have severe itching and sometimes pain in my scalp along with lots of dandruff like stuff.…Continue
Is this bad? Any ideas?
Started this discussion. Last reply by Julie Koch Aug 16, 2010. 3 Replies 0 Favorites
Hi all... I was hoping for some ideas of what is going on with my hair and scalp. I examine the hair that falls out and most of them have a white jagged crusty sheath near the bulb. I can sometimes…Continue
Sever scalp pain, itching, some hair loss.. What is this?
Started this discussion. Last reply by estella garcia Sep 24, 2010. 9 Replies 0 Favorites
My story is kind of weird and I don't know if it's related to the pain. My boyfriends 3 year old grabbed my hair one night and pulled it VERY hard. The next morning my scalp was on fire and hurt so…Continue
Gifts Received (4)
Julie Koch's Page
Latest Activity
Julie Koch left a comment for KayleighJulie Koch left a comment for LifeLocksandLashesJulie Koch replied to holyhairlossbatman!!'s discussion Just curious: Did you always have really thin hair or did you used to have thick luscious hair that left?Julie Koch replied to holyhairlossbatman!!'s discussion Just curious: Did you always have really thin hair or did you used to have thick luscious hair that left?Julie Koch replied to Kayleigh's discussion My new hair seems to be an issue with girlsJulie Koch commented on Caity b's blog post My Poem about alopecia Julie Koch commented on Xoni's blog post Caitlin's story
Julie Koch commented on Cheryl, Co-founder's blog post Don't Hide the Scars
Profile Information
- Relationship Status:
- Single
- About Me:
- I'm a 30 year old female that was just diagnosed with Chronic Telogen Effluvium. I also suffer from Trichodynia which is the medical term for severe scalp pain. I don't know why I fell victim to either of these. I have lost about 40% of my hair and it has been very depressing and life changing. The pain may be the worst part of it all. It hurts to touch my head, shower, comb it, etc... I never experienced anything like it before.
I also have battled eating disorders (anorexia/bulimia) for 18 years now. I am unsure as are the doctors whether or not it contributed to all this. I also suffer from severe anxiety and panic attacks. I never thought anything could be worse than an eating disorder, but I may have been mistaken.
I just need a break from constantly being sick and fighting to find peace within myself and my body.
- Do you have alopecia?
- Telogen effluvium
- Are you age 18 or older?
- Yes - I am 18 or older
Julie Koch's Photos
Julie Koch's Blog
Vitamins and supplements
Posted on November 7, 2010 at 1:40pm 5 Comments 0 Favorites
I take SO many pills and I am afraid I am just wasting my hard earned money.. I take the following:
Prenatal once a day
Biotin 15000 mcg a day
MSM 2500 a day
Fish oil (Omega 3) 2400 mg a day
Vitamin E
Vitamin D
I take the basic vitamin because of some low levels, but does anything REALLY help?
Thanks in advance! I would love… Continue
My apologies to all
Posted on October 7, 2010 at 8:21pm 21 Comments 0 Favorites
I finally have a diagnosis after 11 doctors
Posted on September 7, 2010 at 5:34pm 10 Comments 0 Favorites
The only dermatologists that I had been able to get into see up until today were all male. I found the experience of seeing them intimidating and not very helpful because they couldn't understand the emotional stress I felt being a female. They all believed it was in my head and told me that I… Continue
Ketoconazole 2% and Corticosteroid Betamethasone
Posted on August 16, 2010 at 8:00pm 2 Comments 0 Favorites
Have any of you ever used either of these? I am very nervous about using them. I know the steroid… Continue
Comment Wall (101 comments)
- At 2:47pm on March 21, 2012,
Volker said… möp möpppppp .-)
- At 12:12am on December 26, 2011,
tim75 said…
You ought not to tell folks about your innermost troubles cause it only makes you vulnerable. Bad people in the world target those that are vulnerable. Internet messages and what not should be a little more anonymous. Just a thought, have a happy and safe new year. You might be self-destructive like a lot of people who are messed up but take of care yourself right now so you can at least have a 'chance' to get better. Cheers.
- At 4:15pm on December 24, 2011,
Piotr said… - Thanks. We all have something in common Julie. That is we care about our emotional and physical well being, even caring about you. I don't even know you. But I went through that. It is hard for you. Please believe positively. It will work out. Merry Christmas. I will talk more with you.
- At 9:15pm on December 5, 2011,
Susan Innes said… Hello Julie - I hope things are improving for you. This message is to let you know that there is now a Wisconsin group on AW called Alopecians in Wisconsin, and we'd love to have you join us. (I loved all of your pictures, such a beautiful lady and adorable little Shih Tzu:). Susan
- At 11:56am on November 24, 2011,
Erin said… I hope all is well :) Happy thanksgiving!
- At 10:58pm on October 31, 2011, Erin said…
- Hey Beautiful! How are you??
- At 12:46am on September 5, 2011,
Squonk said… - Hi Julie! How are things going? Sorry I've not been around, I sort of float in and out of my own life most of the time... please drop me a line and let me know how you're doing, ok?
- At 3:27am on July 29, 2011,
Cheryl, Co-founder said… - Hey Julie,
You have been on my mind, thought I would drop by and see how you are doing.
Cheryl
- At 7:43pm on July 18, 2011,
Beverly said… - Hi Julie, you are so BEAUTIFUL and I hope things are improving for you! I was literally in tears when I read some of your blogs and about me page. It's so unfair for any of us to have to go through this. I've had a rough few years adjusting myself. Sometimes I think that for a little while I actually stopped living my life. With the exception of the scalp itch I think we may have similar experiences. I have tried so many vitamins. I used to carry them in my purse and call it the pharmacy. I literally think I was taking 10 different vitamins a day. I was taking so much Vitamin A that I think it may have unknowingly contributed to more of my hair loss. I went to so many different doctors...family doctor, endocronologist, dermotologist, gynocologist...you name it. I got creams for my head, shots in my head and even spent $2000 for Low Level Laser Therapy. While doing all this more and more and more of my hair fell out. I started wearing extensions, which helped until I lost so much on top it starting looking more like a mullet. I wear wigs now...and my passive aggressive mother in law says that I gave up. Well, I disagree and I feel like I finally started to live my life again. I'm sooooooo tired of trying to fix my hair loss. Maybe it's just the way I am now and the way it's going to be. My mom told me to either accept my hair or accept my wig and start living again. I was spending so much time on my hair I was missing out on time with my son and letting the rest of my mind and body fall apart. I started the new diet which I LOVE. I feel good again. I have found a place that will maintain my wigs and finally found a style that I like. Finding a good wig was another challenge...but, worth the time and effort, I think. If you have any questions about the diet let me know!!! I sincerely hope things get better for you soon! I'm so sorry about the itching :( You are gorgeous and you will get through this too!!!
- At 6:29am on July 12, 2011,
R0BB said… - Hi Julie , Really enjoy your fotos here and also your blog journeys are incredible. I hope things are good and I will catcha on here sometime .
- Robb
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