"I haven't been on this site in ages. I was hoping to find that a Houston support group was "alive and kicking." I live in Katy but would love to meet others. I've been asked by strangers quite a bit in the past couple of months…"
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Kim left a comment for Paula"Hi Paula! Hopefully we'll be able to meet up soon. I've been out of town and now am getting back into the swing of things at home. Hope all is well with you."
Paula left a comment for Kim"Hey Kim,
How are you? We have not talked in awhile. We need to meet soon.
Sincerely,
Paula"
Paula left a comment for Kim"We may not die or being pain and we are able body but it is a mentally hard disease to have. I go to the gym usually without my hair. Sometimes I do put my wig on in the morning before my boyfriend wakes up and I wake him up with it on. He loves…"
Paula left a comment for Kim"I actually live with my boyfriend in Clear Lake area close to NASA since I work for a NASA Prime Contracor, but I do like to sometimes go up around Katy mill mall and stuff adn would like to meet up sometime. I have been watching the Houston Chevron…"
Kim left a comment for Paula"Hi Paula! I'm sorry it took me so long to get back to you. It's been a busy couple of weeks. It would be great to meet someone who is going through the same thing. Granted, I'm 50 now and didn't start losing my hair until 3 years…"
Paula left a comment for Kim"Hey Kim,
Just checking in seeing how you are doing? I know it will take time for you and your family to deal with it and if you ever need to talk just let me know.
Sincerely,
Paula"
Paula left a comment for Kim"Dear Kim,
My heart goes out to you I know this is hard. I still remember by hair falling out almost 42 years ago when I was 5. If you and you husband has been married for a while he is probably just scared and men look on the outside 1st but if you…"
Kim replied to Andrea L.'s discussion The suckiest of all things...Eyebrow is going now"My right eyebrow has been missing the inner half for a while now. The left is starting to go. Of course it starts in the middle. So depressing. I wear fake eyebrows that I get online. My husband has to apply them because I don't have center…"
Kim joined Alopecia World's group
Alopecia Areata
Join today to meet, support and share information and resources with others who are also living with patchy hair loss.
Kim joined Cheryl, Co-founder's group
Newly Diagnosed with Alopecia
This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.
Profile Information
- Relationship Status:
- Married
- About Me:
- Not sure what type I have. Female, age 50. Started noticing hair loss 4 years ago. Got worse in 2010. Now almost bald and have lost most of my eyebrows. Very little hair on the rest of my body too. This from someone who was always very hairy (runs in the family and no one else has had this problem). Blood pressure meds seem to have made the most drastic difference in hair.
- Do you have alopecia?
- Alopecia totalis
- Are you age 18 or older?
- Yes - I am 18 or older
I don't have the nerve to shave my head yet. I have been taking off the last few strands in different sections of my scalp so I imagine I'll get there soon. I've been "playing" with fake eyebrows and wigs for a few months now. I've been having a rough time accepting this. Every once in a while I'll catch "strange" looks from people if they "catch" me without my cover-ups. I have to be looking just the right way to see them though because I am also legally blind...no center vision in either eye. That should be a blessing in some aspects...but it isn't. My husband says he accepts me the way I am but I also catch him looking at me strangely every now and then. (He has always wanted me to keep my hair long and makes comments about women on TV with beautiful long hair...although that has been cut way, way down.) I don't feel comfortable sleeping at night in the same bed. I wear a wide band at night but then awaken quite often to make sure it's still in place. My son and grandchildren hate the way I look now. However, they live 1500+ miles away now so, every time they see me, it's a dramatic change. I've been looking for a support group in the Houston area so I can start living my life again. I'm so glad I found this site. Getting ready to dig into it now.
Comment Wall (8 comments)
- At 12:44pm on March 30, 2011, Paula said…
- Hey Kim,
How are you? We have not talked in awhile. We need to meet soon.
Sincerely,
Paula
- At 11:31am on January 30, 2011, Paula said…
- We may not die or being pain and we are able body but it is a mentally hard disease to have. I go to the gym usually without my hair. Sometimes I do put my wig on in the morning before my boyfriend wakes up and I wake him up with it on. He loves long hair and so do I because I don't have it of course. I know he would prefer me to have a wig on at the marathons because people do stare. We have been together almost 5 years and the more he is around it the more he is getting used to it at the marathons. Because even if I know or know people are staring at the marathons I act like I don't notice or know people are staring and approach them like I have hair on. I do wear a hankercheif but people always think I am a cancer survivor. I need a shirt that say AU on it or something I don't know. As far as disease go this one is not too bad once you get a little use to it. I will always want my hair back and I love love love pony tails and I don't know what a real one is like. When they talk to me about being an inspiration I tell them I don't have cancer that I have had Alopecia Areata since I was 5 and tell the ones that don't know about but most know someone that has some degree even though total hair loss is little more rare that those with some I guess. I have had a couple of set backs this last year and not done any marathons but plan to in the year a head and plan to widen my training with weights, cardio, yoga, so hopefully I will do better and maybe a little faster. Well I talked way too much today. Glad to see you went on a trip I have never been to Vegas. I been to Lousiana.
- At 11:28am on January 30, 2011, Paula said…
- I actually live with my boyfriend in Clear Lake area close to NASA since I work for a NASA Prime Contracor, but I do like to sometimes go up around Katy mill mall and stuff adn would like to meet up sometime. I have been watching the Houston Chevron Marathon I did not run this year and I really want to get back into training. I have a lot of weight to lose right now. All my numbers are good but this only because I do work out and the doctor says if I don't get rid of some of the weight I will start having health problems. She found out that my thyroid was not work like it should and I am taking pills for that now so I am hoping that will help. I would love to lose 50 pounds at least. I am 202 right now. I know it will cause more health issues. I got into running because a trainer made me do it after I told him the last thing I wanted to do was run like my friend did and so he said okay start running. I mainly walk with some running because of my weight though. I have done 3 half marathons and really want to do a whole one just to say I did it. I don't like that people think I am a cancer survivor tough because I don't think I can run with a wig on. I don't not sleep with one either. One thing is I had to have a man that could except waking up to me the way I am. I can't help it I don't have hair and the older I get I sometimes tired of hiding it so much. As a kid I was told I had to understanding of other people because they did not understand what it was I had and now I am an adult I think people should be more understanding too as no one would ask for this.
- At 10:14pm on January 28, 2011,
Christy Ingram said… - Kim, I just got back here after a few days away. Hang in there. And take your time, you'll know when and if you are ready to shave your head. If you have any kind of Alopecia support group you can attend, I highly recommend it! Mine is almost 2 hour away. I'm hoping to find another one a little closer, but will still keep involved in the Indy group. My husband & I went out for our anniversary dinner Wed. night and I got several compliments from people I didn't know about my "gorgeous hair" my husband seemed to enjoy the comments, hopefully your husband will come around with time. I have been wearing wigs for about 5 months and still can't get an affirmative on any wig.....other than "it looks nice" some men are well just men...lol My right eyebrow still hasn't made up it's mind either. I am looking for who will be doing the tatoos if this keeps up.
- At 9:09am on January 20, 2011, Paula said…
- Hey Kim,
Just checking in seeing how you are doing? I know it will take time for you and your family to deal with it and if you ever need to talk just let me know.
Sincerely,
Paula
- At 8:09pm on January 14, 2011,
LeslieAnn Butler said…
- Hello and welcome, Kim!
Let me know if you have questions. I have had this for 30 years and wrote a book about it, so would be happy to help!
Leslie Ann
- At 9:47am on January 13, 2011, Christy Ingram said…
- Hi Kim, I hope you are doing good. My heart goes out to you too! I have found such tremendous help on here. My husband still won't give me much input about what he like as far as my new wigs, color, length and style etc... and I shaved what little I had left on my head late last summer. I still have ups and downs!!! I am having fun with different wigs, and have a couple that long. I have never had hair that was long or thick and my wig look pretty real, so I have been feeling somewhat better about myself. The compliments I get are a real lift!!! If you need to talk there are many of here you will listen!!! I am losing my right eyebrow, not sure what it is going to do??? And remember people/celeberties on TV have been helped with surgery, make-up, mink lashes and even extensions and wigs....so why shouldn't we be able to???
- At 8:39am on January 13, 2011, Paula said…
- Dear Kim,
My heart goes out to you I know this is hard. I still remember by hair falling out almost 42 years ago when I was 5. If you and you husband has been married for a while he is probably just scared and men look on the outside 1st but if you are still the same I am sure that is all it is. You can still be sexy and pretty. Now they have a lot of wigs that are so much more than going to the K-Mart wig counter :) . Ace Wigs gives medical discounts also and are not too pricy. I don't sleep with a wig at night but a tuban thing to keep my head warm mainly. I know my boyfriend would prefer to wake up next to a woman with hair but he has me instead. It will just take time for your whole family. I am the only one out of ten kids in my family that has it. My daughter has beautiful hair and she is 23 now. Just keep you chin up and stay pretty inside and it will start showing on the outside. I will be here for you to talk to and maybe since you are close we can even meet some time. I like that Katy Mills Mall. I don't know what a wide band is? I got my eyebrows tattooed by this woman and it is wonderful. Now I don't look like an alien when I wake up and I don't rub off the silly things during the day.
Well I better get to work for now. Talk to you soon.
Sincerely,
Paula
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