"I have a daughter with Alopecia and live in the San Antonio area. If anyone has a child with Alopecia or is a family dealing with Alopecia, I would love to get together. My daughter was diagnosed about two years ago and she still hasn't…"
The short answer is that I am not sure. The leader is no longer listed on NAAF's website, but she may still be listed in the most recent newsletter (I'm sorry, I don't have in front of me). The last I checked, she was…"
"Looking forward to the Texas NAAF baseball event THIS Saturday, 8/10 in Round Rock, TX (just North East of Austin, TX); Tickets are still available (see details in previous post!) We'd love a BIG turn out to support NAAF and have a fab…"
My name is Kim Karacz and I've had Alopecia since I was 9 years old. For several years, I had Areata only. The spots would come and go, some severe – some minor. When I was 12 years old, Mom and I started to explore options. We got very creative! But eventually, these measures were replaced with my first synthetic wig later that same year. I still remember the name of the piece: “Brandy” (and I think they still sell “her” to this day!) Wearing a hair piece was short lived, however, as most of my hair grew back in within the next year. I continued to have spots, but was able to disguise them pretty well. But by my senior year of college – about 8 years later - I lost it all in a span of about 4 months. Soon thereafter, I lost my eyebrows and eyelashes. Fear, anxiety, confusion and sadness all started to creep in. At the time, I was in a great relationship, and all of a sudden I physically became a very different person – and perhaps emotionally as well. As a child, I had always feared what a “boyfriend” would think, and I wondered if anyone would want to marry someone who was bald. Mind you, these were the very real fears of a 12 year old, (and perhaps to a certain degree, even a twenty year old!)
My mom and I decided to contact Fuller Hair (Freedom Wigs agent); and along came Debbi Fuller – a wonderful, full of life, head-tattooed woman who rocked my world. And she was bald like me! But she was a lot happier, self-confident, and looked fantastic. When my piece arrived, it was beautiful. I hadn’t felt that good about myself and my appearance in a long time.
I should mention that my boyfriend (at the time of my significant hair loss) is now my husband – and we’ve been married for over 12 years.
And after 12 years as a client of Freedom Wigs, I am now an agent. I help Texas and the Southwest and run my own company, Second Nature Hair.
I have been blessed with a wonderful husband, two amazing children and a black lab named Casey. We live in Round Rock, Texas just 15 minutes north of Austin.
Yes, she has lost the majority of her hair and although she will have some grow back, it has fallen out again in the past. We are looking for something that will help her through middle school. Please send me whatever information you have in this area. I will contact Tracey about the support group, thank you again.
I am looking for a support group in San Antonio. My daughter was diagnosed with Alopecia in 2008 and it has been a very difficult road. She is 13 years of old and needs someone to talk to about this. Also, I'd like to know if anyone knows of a good place in San Antonio to find wigs.
Kim, I was curious if you have observed any alopecia issues in your children? My daughter is 26 and while planning her wedding, she got a bald spot. It has now come back with no treatment.
Also, I have heard that freedom wigs can cost $1500-$4000. I love the wigs and it has been hard enough to have to turn 50 this year, but 50 and bald?? Anyway, if you can share any info I would appreciate it. Thanks!
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.